So informative and a life saver with the FPIES community.
My son was diagnosed 2.5yrs ago with FPIES.. The foundation/grouo has helped in so many ways. Great people and great information.. I can honestly say I would be lost on this journey without help and advice from other FPIES families..
We found out my son had FPIES just before the first Global FPIES day, and since then you have been such an amazing resource, always keeping us up to date and informed on all things FPIES! Thank you for all you do for our FPIES kiddos and parents alike. We appreciate you!
The FPIES Foundation is amazing and have brought so much more light to an issue I knew very little about
The FPIES Foundation is amazing! I'm so grateful for someone to be bringing our children's rare condition to light to help bring awareness to the cause. Having a child with FPIES is scary enough on its own and it's even worse if the people around you have no idea what it is or how your child reacts to trigger foods. We are blessed to have such an amazing support group within the The FPIES Foundation!
This non profit plays an incredible role in our lives. Our son has FPIES AND this nonprofit has allowed us to gain knowledge through education, provided materials to others to gain awareness, and also provided a support to us during this difficult season of life. Also, as a dietitian, this nonprofit has provided education to further help my knowledge as a practitioner. I'm so proud that we have this organization to lead us as we find out more about this rare disease.
Being a young family who is only still in the early days of working with an FPIES diagnosed child, we are eternally grateful to the foundation for all their information that helps us day in and day out with dealing with our eight month old sons syndrome. We appreciate everything you do. We are the voice.
I really appreciate the time and effort and passion that this nonprofit takes towards learning more about this mysterious allergy issue. My son has FPIES and it's can feel like a lonely road with so many medical professionals who are uninformed. But this nonprofit is doing all it can to change that.
I had never heard of F-PIES until my daughter started having symptoms. The F-PIES Foundation helped us find a doctor who would listen and other very important information. It is so nice to know that we are not going through this alone!
Thanks for all the information being right there when I need it.