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2016 Top-Rated Nonprofit

The FPIES Foundation

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Nonprofit Overview

Causes: Health

Mission: The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community.

Results: In the last year, we applied for and received our official 501(c)(3) tax-exempt status from the IRS, allowing us to further expand our programs and services for the FPIES community at large. We have created a brand new, extensively expanded website. It is packed with FPIES resources for medical professionals and families alike, once more supporting our mission of FPIES education and awareness. Our database of FPIES-friendly medical professionals is a keystone to our web offerings. We have partnered with our esteemed Medical Advisory Board to create an in-depth Q&A. This document provides medically responsible answers to questions asked by the FPIES community. Be sure to follow our activities during Food Allergy Awareness Week 2013!

Target demographics: Families and their children affected by FPIES, medical professionals that serve those diagnosed with FPIES

Geographic areas served: Worldwide

Programs: A Toolbox for families including Food journals, ER Care, symptom checker, doctor visits, label reading tutorial,… Cooking and Nutrition website pages for tips, tools, and resources Provider Directory to find family-recommended knowledgeable FPIES practitioners Medical Journal Article links and glossary Printable education materials FPIES Q&A: Questions from the FPIES community, Answers from the Medical Advisory Board Food Allergy Fair participation Inspiring Family story share program Resource lists Partnering organizations Foundation Social Media for awareness and support: Facebook page/Twitter/Pinterest Foundation Blog/ The Foundation YouTube channel How to Help an FPIES family today article Hugs for Hero’s and other volunteer programs Ongoing Fundraising and Awareness programs Easily accessible website and support forum Multidisciplinary Medical Advisory Board, leaders in FPIES treatment and management 1023 submission and 501c3 non-profit designation

Community Stories

75 Stories from Volunteers, Donors & Supporters

Melissa R.1

Client Served

Rating: 5

The FPIES Foundation SAVED us! This was literally the only place we got answers, advice, encouragement, and HOPE! Thank you FPIES Foundation for helping our family thrive!

1

General Member of the Public

Rating: 5

The website for this nonprofit is a valuable resource to FPIES caregivers. I use it for research, support, recipes, and more!

1 Annette M.1

Client Served

Rating: 5

Both of my children have FPIES and the Foundation is my go to for helpful info. Recently I needed FPIES info for my daughter's school. The Foundstion's website was easy to print from. I was even able to look up dental info for my son's first dentist appointment.

1 Michelle N.1

Client Served

Rating: 5

So helpful since day 1 of my daughters diagnosis! I needed answers, information and education fast and the foundations website did all of that.

3

Client Served

Rating: 5

So informative and a life saver with the FPIES community.

3

General Member of the Public

Rating: 5

My son was diagnosed 2.5yrs ago with FPIES.. The foundation/grouo has helped in so many ways. Great people and great information.. I can honestly say I would be lost on this journey without help and advice from other FPIES families..

3 Tina112

Client Served

Rating: 5

We found out my son had FPIES just before the first Global FPIES day, and since then you have been such an amazing resource, always keeping us up to date and informed on all things FPIES! Thank you for all you do for our FPIES kiddos and parents alike. We appreciate you!

4 Kristen79

General Member of the Public

Rating: 5

The FPIES Foundation is amazing and have brought so much more light to an issue I knew very little about

4 Samantha88

Client Served

Rating: 5

The FPIES Foundation is amazing! I'm so grateful for someone to be bringing our children's rare condition to light to help bring awareness to the cause. Having a child with FPIES is scary enough on its own and it's even worse if the people around you have no idea what it is or how your child reacts to trigger foods. We are blessed to have such an amazing support group within the The FPIES Foundation!

4

Professional with expertise in this field

Rating: 5

This non profit plays an incredible role in our lives. Our son has FPIES AND this nonprofit has allowed us to gain knowledge through education, provided materials to others to gain awareness, and also provided a support to us during this difficult season of life. Also, as a dietitian, this nonprofit has provided education to further help my knowledge as a practitioner. I'm so proud that we have this organization to lead us as we find out more about this rare disease.

4 Bacall E.

General Member of the Public

Rating: 5

Being a young family who is only still in the early days of working with an FPIES diagnosed child, we are eternally grateful to the foundation for all their information that helps us day in and day out with dealing with our eight month old sons syndrome. We appreciate everything you do. We are the voice.

3

Client Served

Rating: 5

I really appreciate the time and effort and passion that this nonprofit takes towards learning more about this mysterious allergy issue. My son has FPIES and it's can feel like a lonely road with so many medical professionals who are uninformed. But this nonprofit is doing all it can to change that.

2 Donna268

General Member of the Public

Rating: 5

I had never heard of F-PIES until my daughter started having symptoms. The F-PIES Foundation helped us find a doctor who would listen and other very important information. It is so nice to know that we are not going through this alone!

2

General Member of the Public

Rating: 5

Thanks for all the information being right there when I need it.

2

General Member of the Public

Rating: 5

Great for information, support, and advocacy when dealing with FPIES.

2 Andrea132

General Member of the Public

Rating: 5

This foundation helped my cousin tremendously with caring for her daughter. They had such a major impact on their lives. I Highly recommend them to everyone.

1

General Member of the Public

Rating: 5

Fabulous organization that has been a wonderful resource for my stepsister's little one. Keep up the good work!

1

General Member of the Public

Rating: 5

I'm so happy that this foundation has helped so many people! My friends daughter has Fpies and she is doing so much better! Thank you to all that have helped raise awareness and helped those struggling!

1

General Member of the Public

Rating: 5

Thank you for all that you do! My friends little girl was diagnosed with FPIES. It was such a scary journey. Your foundation helped my friends feel that they weren't alone and the education and sense of community were invaluable for her journey. Thank you!

1

General Member of the Public

Rating: 5

Our little girl's best friend was diagnosed with Fpies and the journey has been a hard one. Your foundation has not only shed light on her day to day struggles, you have helped her get to her normal and and a good place of support. Thank you for all you do!