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Review for The FPIES Foundation, Stewartville , MN, USA

Rating: 5 stars  

Can't say enough positive things about the FPIES Foundation. They've got a solid mission and are a great resource for those of us who have a child suffering from FPIES. Our son was diagnosed as an infant, more than two years ago, and it's been a long journey. The FPIES Foundation has provided support, education, encouragement and friendship.

Also, I have to disagree with the reviewer who said he didn't know where his donations were going. Whenever there's a fundraiser the foundation makes it very clear to donors in how they plan to use that money... and it's many of the same things he mentioned. It's not easy running a successful volunteer non-profit organization... the Board of Directors and all the volunteers at the FPIES Foundation do a superb job.

If I had to make changes to this organization, I would...

Provide them with government funding to support the amazing work they are doing with this rare disease and it's lack of diagnosis. There are far too many physicians who don't know about, and certainly don't understand, FPIES.

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Role:  General Member of the Public