My Nonprofit Reviews

I was referred to the FPIES Foundation nearly one year ago. Both of my children have FPIES ...not just the acute vomit to shock symptoms, but the more "gray area" reactions. Severe intolerance to just about every food protein.
We have been fighting this battle alone for 5 years. Eighteen medical specialists, nutritionists, pediatricians, lactation consultants, etc. have all been stumped by the day to day struggle we endure as a family finding safe ways to nourish our children. Even giving our infants a bath was enough to trigger a reaction. With no understanding and no help, it has been a very isolating road.
Being referred to the FPIES Foundation was a lifesaver for our children. Reading other parent's stories and relating to their journey ...for the first time ever I was not alone! Having the "toolbox" of letters to schools, physicians, medical articles, and guides to day to day survival of FPIES has made a WORLD OF DIFFERENCE. We have finally connected with a medical team to help us navigate this crazy journey of life with older FPIES children. We also have joined the foundation to organize FAMILY MEETUPS ... our journey with FPIES can be so isolating ...it is wonderful to connect with others who truly "get it".
The FPIES Foundation is providing much needed information and awareness of this rare disorder. Knowledge is power, and with the FPIES FOUNDATION ...AWARENESS IS ACTION!

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