My Nonprofit Reviews
fpiesmom
Review for The FPIES Foundation, Stewartville , MN, USA
My family first became aware of the FPIES Foundation through our pediatric nutritionist at CHOP.
After many years of misdiagnosis we were happy to have a diagnosis, but were completely overwhelmed with questions we had no answers for. Through the foundation I have learned how to care for my daughter, how to cook for her, how to support her and how to get support for myself. I'm glad to have the opportunity to volunteer for the foundation that helped us through the hard times and even happier to be volunteering with an awesome team of other parents who give so much of their time to help newly diagnosed kids and their families. FPIES is a complex disease that takes up much of a parents time and money, so it is especially touching that the foundation is completely ran by other parent volunteers who give up some of their free time to extend their hand to another family.
More Feedback
If I had to make changes to this organization, I would...
None. This foundation has provided my family with the information and support we need to continue winning our battle with FPIES.
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
