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2019 Top-Rated Nonprofit

Spondylitis Association of America

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Nonprofit Overview

Causes: Arthritis, Arthritis Research, Health

Mission: Our mission is to be a leader in the quest to cure AS and related diseases, and to empower those affected to live life to the fullest. There are more than 100 types of arthritis. For over 25 years, SAA has focused on just one - yours. So that no one has to face spondylitis alone.

Programs: SAA provides public and patient education programs to facilitate early diagnosis, promote effective treatment, and encourage self-help care for optimal quality of life. 

SAA’s website, www.spondylitis.org, is updated regularly with the latest news and information about spondylitis treatment, medications and research. In addition, information about SAA events and seminars, supportive programs and the online Message Board community can also be found here.

SAA hosts free educational seminars in different metropolitan areas throughout the United States each year. All seminars include an experienced rheumatologist who provides an overview of spondyloarthritis along with current medications and other available treatments. Secondary speakers complement the program with presentations on other topics of interest including exercise, physical therapy, occupational therapy, the emotional impact of living with spondylitis, etc. These seminars provide an opportunity for attendees to ask questions and meet other people from the area impacted by spondylitis.

SAA offers free online seminar events, referred to as webinars. These webinars allow people to learn about specific spondylitis-related topics in the comfort of their home without having to travel. SAA hosts approximately 3 webinars each year; the live event is free and open to everyone in the spondylitis community. 

SAA provides a library of audio interviews (podcasts) to SAA members, which include questions posed to spondylitis experts to provide information on a wide range of topics including spondylitis symptoms, medications, treatment, complications, etc. Members are also asked to submit their own questions to be answered during future podcasts.

Community Stories

149 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 3

I cannot express the welcome I felt when working with the people at Spondylitis org. I came to help to give back to the community , but what I got was much more than that. I received a extended family and a lot of friends. My experience I will never forget

Ruby C

Volunteer

Rating: 5

SAA is truly a great nonprofit and it has dedicated individuals who genuinely care about the organization's purpose. SAA undoubtedly cares about its cause more than anything and it definitely shows through all the hard work,effort, and careful planning. I really enjoyed my time volunteering and I'm grateful that I had such a fulfilling opportunity since I was able to help this wonderful organization so they could keep helping others.

Client Served

Rating: 5

I am so grateful to SAA - for their support groups, for the research they sponsor, for the sense of community they foster, for the awareness they raise about spondyloarthropothies, and for the education they provide people living with these conditions to empower them to participate in their own health decisions. Thank you!

Jesse L.2

Volunteer

Rating: 5

An amazing organization with a great team behind them!

I'm so glad I chose to volunteer my time with the Spondylitis Association of America while completing my post-baccalaureate program at UCLA. They were very friendly and welcoming to me, which showed how grateful they are to their volunteers. Would highly recommend to my fellow pre-health/ pre-med students interested in the non-profit sector. I'm so thankful for the opportunity and experience I gained that I hope to implement in my future career as a clinician.

Wishing SAA and the members a successful and bright future!

Lorraine B.2

General Member of the Public

Rating: 5

SAA has been a most valuable resource. Most of the treatments and therapies that have helped me were found through the SAA. For Spondylitis patients The SAA is the only place where we can garner knowledge and become literate enough to be proactive with our disease treatment. As well as find a physician and support group all in one place.

General Member of the Public

Rating: 5

I was diagnosed with AS in 2015. I have a fabulous MD who, after I reacted to Sulfasalazine recommended Remicade. I have been on Remicade for four years. It has definitely helped the AS disease progression. I am so thankful and appreciate his attention to my details. I also take chair yoga twice a week. Fantastic for anyone who wants more flexibility. The ASS
Has been helpful with direction on how to hep yourself.

1 Charis H.

Volunteer

Rating: 5

Rarely have I come across a more personal, committed staff at a nonprofit. In the past few years SAA has doubled, yet remains small and close-knit. Spondyloarthritis is not rare, but it's treated like it, and the only national nonprofit committed to funding research, raising awareness, and supporting patients is the SAA. They have a heavy lift and are doing a great job. If anything needs changing, it's that more materials need to be translated to reach more people.

Previous Stories
6

Professional with expertise in this field

Rating: 5

When I was diagnosed with Ankylosing Spondylitis in 2013 I faced a dearth of information I felt I could trust. I was skeptical of my doctors as well as what I could find online from resources that were supposed to be accurate but weren't. Then I found the Spondylitis Association of America. The staff and the website were and are easy to trust and navigate, and I know that the resources and information were and are reputable and up-to-date. I have even become friends with some of the staff through the years. I refer people to the SAA website all the time through my blog (www.beingcharis.com) and individually. I am also a volunteer support group leader (one of many SpA support groups sponsored by SAA across the USA) for people with spondyloarthritis and am proud to represent the organization in that small way. The SAA seems to balance a tricky mixture of good relationships with patients, researchers, pharmaceutical companies, and more with grace. I can't imagine living with Ankylosing Spondylitis and not having the SAA to turn to for advice, research reports, seminars, opportunities to engage, support for patients like me, and trusted current news and information.

Volunteer

Rating: 5

I recently had an opportunity to volunteer at the Spondylitis Association of America. It was a great opportunity to work with sincere and hard-working team. They were always ready to help me even if someone had to step out of a meeting so that I could continue to work on my given responsibilities. Everyone at SAA were great team players, knowledgeable and always ready to assist when asked. It was a pleasure to volunteer at SAA.

Volunteer

Rating: 5

I love this non-profit!

I began volunteering here in February 2019 and have been blown away by the dedication and professionalism of the staff.

Creative, energetic, caring, giving people who love what they do and it shows!

I hope to be associated with SAA for a very long time.

1

Volunteer

Rating: 5

Awesome non profit organization! My brother, Michael, had A.S. and was very involved with this organization for years. His advocacy work for the Spondylitis community and the Spondylitis Association of America while struggling with this chronic disease was his life work. The people and the non profit organization are absolutely wonderful to work with regarding all aspects of living with Spondylitis. I am now volunteering my time to support this wonderful non profit organization, Spondylitis Association of America.

Volunteer

Rating: 5

I recently volunteered and have to say it was one of the best experiences I've had. The office staff were so friendly and helpful. They went out of their way to make me feel comfortable. If I requested help with the project I was working on, someone was always there. The Spondylitis foundation is a wonderful place and a fantastic office to for volunteering.

Volunteer

Rating: 5

I recently volunteered for the Spondylitis Association of America and I found the experience to be very rewarding. I enjoyed participating in the association's efforts to spread AS awareness. The staff was attentive and welcoming from the start and they provided me with all the help I needed. I will not hesitate to volunteer for such a great organization in the future!

Donor

Rating: 5

The SAA has been open to ideas on how to reach out to children who are diagnosed with Spondylitis or a related disease. They created a website, offer parent mentors, share children's stories and so much more. The team is always willing to help and answer any questions we have as parents of a child with Spondylitis. The research they help fund is what provides hope to many suffering from this disease. Thank you SAA for all you do!!!

1

Board Member

Rating: 5

The resources available are great! From the exercise videos, to the website for teens with spondylitis, to the support group contacts - everything is valuable!

Client Served

Rating: 5

When I was diagnosed with Ankylosing Spondylitis, my rheumatologist referred me to the SAA. They not only provided me with knowledge and tools, they gave me a sense of community and let me know I was not alone.

Previous Stories

Client Served

Rating: 5

When I was diagnosed with Ankylosing Spondylitis, the SAA provided me with knowledge, support, and the tools I needed.

Volunteer

Rating: 5

Earlier this year, I had the honor of performing volunteer work for the Spondylitis Association of America. From the moment contact was initiated, I felt very appreciated for any effort I was able to contribute. It is easy to see that the backbone of this organization comprises genuinely warm and caring people. As an added bonus, my contribution was possible to do virtually in the comfort of my own home! What I also appreciated was the open communication with SAA personnel in a "no pressure" environment. Highly recommended if you are looking for a volunteering opportunity! :)

1

Volunteer

Rating: 5

I volunteered with SAA since February 2019 to June 2019. All I can say is this nonprofit is amazing. The staff working here are one of the most friendliest and hardworking people you will ever meet. They make you feel very welcomed! I would volunteer with them in a heartbeat!

Volunteer

Rating: 5

I had a wonderful experience volunteering at SAA for 4 weeks in the spring of 2019! Everyday I witnessed how their dedicated, compassionate efforts helped change the lives of those who are suffering. Their kind and supportive staff made me feel right at home. I highly recommend SAA, and would volunteer there again in a heartbeat!!!

1

Client Served

Rating: 5

Thank goodness for SAA! After my diagnosis I discovered their website. They do an excellent job of staying up to date on the latest research, treatments, and resources. I was able to talk directly with staff to obtain referrals and other support. Their videos and magazine are professional and and added benefit. Thank you SAA! Liz

General Member of the Public

Rating: 5

SAA has been such a great resource for me. I only wish I would have found them when I began my journey with AS 15 years ago.