My Nonprofit Reviews

Marvin Veselka - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Marvin Veselka

590 profile views
1 reviews

Review for Spondylitis Association of America, Sherman Oaks, CA, USA

Rating: 5 stars  

I am 70 years old, and had my first AS symptoms at age 17. I was not correctly diagnosed until the age of 30. When I discovered SAA years later, it became a valuable resource. It provided up-to-date information, opportunities to link to others with AS, and opportunities to get involved in the quest for better treatments and hopefully a future cure. I am most excited about their support for research which gives me a chance to volunteer as a research subject. Major advancements in understanding AS are being made. New and improved medication options are available. If these options had been available earlier, I would not have to look at the ground when I walk because of my almost totally fused neck and spine. These options, however, have been vital in helping me continuine to lead an active and wonderful life with much less pain than I had 20 years ago. My use of pain medications is almost nil. It is the least in the past 50 years. I hope this trend continues. With the wonderful work our association, SAA, is doing , I am hopeful for a better future for all AS- afflicted individuals. Marvin Veselka, Austin, Texas

I've personally experienced the results of this organization in...

learning how to live better with AS through their information services and seminars. Research of AS has resulted in advancements in knowledge and treatment options. These have helped me improve my life with AS.

If I had to make changes to this organization, I would...

not change the mission, but widen their efforts in obtaining funds for research. It is difficult, and I don't have a suggestion for improving their great efforts,, but more funds for research is vital for a future without AS.

Role:  Volunteer & I volunteer as a mentor, and as a research subject in SAA supported research.