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Titaniumgirl

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1 reviews

Review for Spondylitis Association of America, Encino, CA, USA

Rating: 5 stars  

Five years ago I was diagnosed with Ankylosing Spondylitis and within a month joined SAA. I needed information, from definitions of "new" termonology, names of the current medictions available, the enormous research facts accurately presented, and I needed everything fast. They are there to help.

The SAA website quickly became my primary source for AS. As a volunteer for the charity for the last four years my respect and appreciation for SAA continues to grow. The educational materials available to the members (from podcasts, web presentations, free seminars, free support group meetings, and countless informative articles), allows us to empower ourselves. Its' richly dynamic and informative website allows me and countless other AS sufferers to be proactive in our lives. There is not any charity for AS that provides as much as SAA does to the members, volunteers and public. They stay true to their mission, they respect those diagnosed with Spondylitis and become a real friend by helping patients, physicians, caregivers and family members.

The Spondylitis Associaion of America is the best charity I have ever been privileged to know of and be associated with.

I've personally experienced the results of this organization in...

my daily life. I am definitely better educated due to SAA, have a healthy outlook due to them, and I never feel alone anymore with this devastating disease since becoming a member.

If I had to make changes to this organization, I would...

pray for a cure to AS and all spondyloarthropathies. I feel certain that SAA would pray for this change, too.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

What one change could this group make that would improve your volunteer experience?

It is great the way it is now.

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

Has made me a better person overall. The new friends are a bonus.

How did this volunteer experience make you feel?

the experience continues to make me feel warm, needed and wanted.

When was your last experience with this nonprofit?

2011

Role:  Volunteer & I began volunteering for SAA following the initial educational assistance they provided me with when I was diagnosed with later stage AS. .