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Bill1ee

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1 reviews

Review for Spondylitis Association of America, Encino, CA, USA

Rating: 5 stars  

As a disabled Veteran who is partially crippled and always having to deal with pain that was mis-diagnosed for over 20 years. . I myself who was finally diagnosed by one of the best MD's at age 39. I had to close a business which i loved but could no longer endure the pain with the Arthritis without some real hard drugs from the Doctor. Well, i got some relief but the hard drugs were destroying my life. I went through a divorce after almost 10 years of marriage. I lost everything in the courts and I was at my lowest point i think in my life at the time. My sister (Lori) who works with the Cancer Society herself became a victim last year. She is doing well now after the chemo and is considered a survivor. In 1999, she had heard about this small group for Anklyosing Spondylitis and paid for my first year as a small gift to me for my Birthday. I think it was one of the best Birthday presents i have ever received. I have gotten to know others on the internet and even submitted my story of years (16) of mis-diagnoses from Doctors who just didn't know any better. Becoming a member with SAA it helped me to start to understand what was happening to my body. I found some friends here that understood what i have been up against for most of my adult life. I consider myself to be a life long member and consider this a great way to help others who have been through the tough times as well. Now i understand to feel better that i have to deal with the pain and depression that all of us Spondy's endure everyday of our lives. Most spondy's will tell you It keeps most of us single and our friends at a distance so this website is something that helps fill the gap especially on some of our most painful days when an understanding friend just to talk with when you are hurting can make all the difference in the world. Thank You SAA and keep up the great work keeping all of us Spondy's up to date.

I've personally experienced the results of this organization in...

Some great Spondy's and understanding people here

If I had to make changes to this organization, I would...

I would like to have more social meetings with other Spondy's.

Role:  Donor & First year membership for my Birthday.