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Causes: Health, Health Support
Mission: To provide information to parents and children facing life threatening illnesses.
Programs: Provide accurate, readable and timely information for families with children diagnosed with rare diseases. (rare disease education prjoect-part i)
provide a website designed as an online community for parents to access valuable data resources for sharing and interacting information about rare children diseases.
This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.