Their research has always been in fore front. They have helped many people with their research and educational programs
As you know, Medicare refuses to pay contact lenses, even if they are deemed medically necessary, even if wearing them is?the only way I can see.
Ween I went to your organization for assistance, I was?told that there is absolutely nothing you can do to helo. Hell, your group refused to even try!
My son was diagnosed with Keratoconus when he was in college. I had never heard of it and there was not much literature on it. I found the Discovery Eye Foundation on the net and was able to educate my son and myself on the condition. The foundation continues to keep us updated on the progress being made and gives up to date information about how to treat the disease. We are very grateful to all associated with this foundation.
I was referred to Discovery Eye Foundation's blog by someone who understood that their information would be helpful to me. I have a family member dealing with macular degeneration, and I was just looking for information and people to talk to. Their staff is incredibly compassionate, resourceful, and informative, and I'm greatly appreciative for all of the help they've provided me with!
The Discovery Eye Foundation supports eye research for blinding eye diseases. Its efforts in keratoconus and macular degeneration eye research make the Discovery Eye Foundation a critical component in progressing against these blinding diseases. These innovative research areas include stem cell retinal regeneration, age related macular degeneration genetics, and corneal transplantation and scarring. The Discovery Eye Foundation's work is vitally important to the understanding of the health of the eye. Its website www.discoveryeye.org is a valuable resource for people dealing with eye disease. This is an exceptional organization which deserves the highest praise and support.
The Discovery Eye foundation is unique amongst non-profits in how many people they help in relation to how many people they are. I have rarely seen any organization where their people are so hard working and have such a deeply rooted personal interest in what they do. Truly a stellar organization with stellar individuals!
I have seen DEF grow over the years and they provide a great source of information and comfort for those suffering with eye disease. They sponsor ground-breaking research into the source of many of these aliments and provide patients with support and clear information to help them manage or treat their disease. It's amazing to see such good work produced by their small, but dedicated staff.
I was first referred to Dr. Anthony Nesburn, Medical Director for the DEF, as a result of his expertise, both clinically and in the field of ophthalmic research specific to my medical needs. Continuing as his patient for over forty years, I have been the beneficiary of both his wisdom and compassion. Throughout this time, I've witnessed the unwavering devotion he has demonstrated not only to his own research, but in his support of the research of others through the Foundation.
On a separate note, my family and friends have suffered from the impacts of both AMD and Keratoconus.
The community outreach the Foundation affords those suffering with these serious eye conditions
is so very important.
It has been my privilege to offer financial support for the last several years to an organization accomplishing much in different arenas.
Over the years, 30 to exact, I have watched Discovery Eye Foundation blow the lid off off of so many unsolvable problems! From Keratoconis, to mitochondria genetics, Ocular herpes, Potassium osmosis, and a subject close to my eyeballs, pterigum.
All kidding aside, these researchers are leading scientists who care about everyone.
Do great work. Are starting to produce some very important discoveries that will not only save lives but allow thousands of people such as my father in law to see.
I was a patient of Dr. Anthony Nesburn, when I presented with a challenging corneal problem. His compassion, expertise, conservative approach and overall care were exemplary. I since learned about the foundation he supports, and have been a donor - and passionate fan - ever since, in support of the foundation's good works, Dr. Nesburn's selfless service, and their goals.
In my professional life, I am CEO of a non profit organization - and I've served in similar capacities for over 30 years. The Discovery Eye Foundation is an incredible organization, from all perspectives.
NKCF has helped me gain insight to my son's keratoconus. I rely on it to keep me updated among other sources.
The National Keratoconus Foundation Newsletter has been a hugely helpful resource for us in keeping informed about developments in the study and treatment of Keratoconus.
I was diagnosed with keratoconus over 10 years ago. Every year my condition worsened, and my ophthalmologist did her best to fit me in new contacts each year. It has been a struggle, and I eventually could no longer drive at night at the age of 48. The DEF newsletter helped me be informed about this condition and about the corneal crosslinking (CXL) study. This information was so valuable to me as I knew very little about keratoconus, how it was treated, and the status of the study. Because of my age, I wasn't a candidate for the (CXL) study until last year. I had the procedure completed in both of my eyes 6 months apart from each other. Being part of the study took lots of time, patience, and many appointments; not to mention having to live and not being able to drive without my medically necessary contacts for several weeks before and during recovery. But because I was better informed, I felt confident that the CXL procedure was the right choice for me at that point in my life.
DEF has provided me with valuable and timely information about treatment options, lifestyle adaptions, dietary suggestions, and more over the course of the 15+ years I have had AMD. It has helped make an informed patient who can interact intelligently with my doctor about my condition. I have achieved a good perspective and much peace of mind about having AMD largely thanks to DEF.
Review from Guidestar
Discovery Eye puts out a very informative newsletter a few times a year. Judy Delgado has consistently responded promptly and thoroughly to requests I have made for info about macular degeneration treatments, etc. She runs support groups in the LA area that are very helpful for individuals with AMD and their family members. They helped my Dad, who had AMD, and have helped me, with early stages of AMD, a lot.
I have Keratoconus and we need advocates working for us to find a cure to this condition. The monthly newsletter is helpful. In particular information about the research.
I am very grateful to Macular Degeneration Partnership , which allows to not feel lonely people with wet AMD.
Patients are always interested if there are new treatments of their illness. I do not live in the U.S. and I can not take part in various activities organized for patients. But Macular Degeneration Partnership helps us to keep abreast of new research in the field of treatment of wet AMD, eliminating the need to look for this information on different sites on the Internet . It also helps not to tire the eyes and save some vision. And the stories of those who do not give the disease , moral support . Thank you again !
I learned that I have dry macular degenerative disease almost 3years ago. I was told not to worry. The a year later my sight in my right eye became wavy, went back to my eye doctor. He referred me to a specialist . After an exam was told to either get a sho in eye or be blind in a couple of days. Took the shot, that night I had twitching on right side if my face. Did not go back. Found website for age related macular degenerative and have learned a lot more. Learned that there are different forms of dry. Learned that there is a chart to use. Had to request for one from , eye doc. Tried to tell me I didn't need one. I rely on this organization for lots of info.
I have been attending the monthly meetings the Macular Degeneration Partnership gives at my local Senior Center for the last 4 months. I was diagnosed with AMD two years ago and then Wet AMD in my left eye four months ago. These meetings have been life changing as they have enabled me to understand the condition better and to have a more positive attitude toward it. I have received an unbelievable amount of helpful information as well as having the opportunity to meet other people with AMD and share our experiences. The guest speakers have also been very helpful.
Thank you Macular Degeneration Partnership and Discovery Eye Foundation for making such a difference in my life.
I have had macular degeneration for some time now and the Macular Degeneration Partnership has always kept me informed about the latest treatments and what the results are, which gives me hope that I might be able to use a different treatment other than the shots that I get now directly in the eye. They are costly and very uncomfortable, I don't like them at all but at least it has slowed the disease for now.
Discovery Eye Foundation fills many roles to those of us with eye problems. We use the website for information from the Macular Degeneration Partnership since my Mother suffers from this debilitating disease. We have so many eye issues in my family from ambliopia, to eye sockets that are not even that it is truly a blessing to find so much information on one website. Thank you from the bottom of our hearts.