Information received via website and direct mail has always proven to be very helpful. The research that this organization is doing is outstanding. I wish the best of luck
DEF has been raising money to support vision saving research for for over 48 years. It sponsored research has helped patients with keratoconus, many kinds of corneal and retinal diseases. A main focus for the last decade has been seeking treatments for Dry macular degeneration and other retinal diseases including RP. Supported researchers, Drs. Henry Klassen and Jing Yang with great support from CIRM have just completed a Phase 2b FDA clinical trial using retinal progenitor cells to treat human RP. Sponsored researcher Dr. Cristina Kenney is foing ground breaking work on mitochondrial rejuvenation in retinal cell from Age related Macular Degeneration (AMD) patients that could open treatments for Dry AMD patients.
Discovery Eye Foundation has supported research for new treatments for sight-robbing eye diseases for over 47 years. It's supported scientists have advanced new treatment for age-related macular degeration, diabetic retinopathy, retinopathy of prematurity, retinitis pigmentosa, glaucoma, herpes keratitis and kernatoconus.
It is exciting to participate as a Board Member.
DEF conducts sight-saving research and is well worth supporting. Everyone who works there is so dedicated to eradicating sight-robbing eye disease.
As a person with Keratoconus I rely on the Discovery Eye Research Foundation for the latest information about research, treatment, contact lens, and care all of which are essential to coping with my condition. It also provides a forum to share experiences with other people who have the disease.
Discovery Eye Foundation has supported many projects that are dear to me. Their research on macular degeneration and keratoconus is cutting edge, and has already improved the lives of some of my friends.
Their dedication and diligent research has changed many lives and will continue to do so.
Discovery Eye Foundation;s useful information on various eye diseases has consistently helped not only myself but my family members as well. I find their website extremely informative and love the good health recipes.
Discovery Eye Foundation and their researchers have made amazing strides in the research that they do. Their website is also very informative and provides lots of information.
The Discovery Fund is an important organization focused on research of eye diseases. In our aging demographic we will all benefit from the research carried out by TDF. The benefit to people in the beginning of their lives, young people, is also life altering.
My husband had shingles very close to his eye. His treatment as researched by TDF alleviated his illness and prevented eye damage. Friends with macular degeneration are benefiting from TDF research as are patients with kerotatonis (sp). This is a forward-looking and well-run organization doing work crucial to the advancements in treatment of eye disease.
Discovery Eye Foundation (DEF) is an excellent choice if you're interested in supporting a nonprofit on the frontline of cutting-edge vision research. Over the years DEF medical professionals and research teams have shown great success advancing vision science across the entire range of inquiry from basic retina research theories to applications that actually help people with serious eye diseases. They are committed to research excellence and have a proven track record of great research achievements, and typically return many times over the value of support invested with targeted scientific results.
They have helped our family through research in macular degeneration.
Their research in mitochondria may save countless lives from terrible diseases.
I have been involved with the Discovery Eye Foundation since its founding over 45 years ago.
It has consistently delivered on its promises to help find new treatments for sight threatening eye diseases, including keratoconus, diabetic retinopathy, glaucoma, retinitis pigmentosa, retinopathy of prematurity and age related macular degeneration. They have supported cutting edge research in all these fields. One great example--Dr. Henry Klassen at UC Irvine has developed with DEF's support a human retinal stem cell therapy for retinitis pigmentosa that is undergoing an FDA Phase 2b clinical trial. If found effective and safe it will be the first really effective therapy for retinitis pigmentosa. It could also offer therapy for glaucoma and age related macular degeneration in the future.
I have been proud to serve on its Board.
Discovery eye foundation really help general public enrich the knowledge regarding eye diseases. Discoveries from their eye research, the treatments had been improved and more effective years after years. Thank you Discovery Eye Foundation.
The Discovery Eye Foundation has provided me and my family with so much great information about eye health. Their website and social media are wonderful sources for all things eye! I also like that they support research. How are else are we going to find cures and causes?
Discovery Eye Foundation (DEF) has been supporting research on age-related macular degeneration (AMD) and keratoconus (KC) for over forty years. The DEF supported researchers have made tremendous contributions to moving forward our knowledge on what causes these diseases and how to treat them. This foundation really exemplifies how an individual donor can help improve how patients are diagnosed and treated. They do a terrific job!!
Discovery Eye Foundation is an excellent organization that provides education and support for people with vision problems. They also support novel, exciting eye research in different laboratories around the country. This organization has been around for over 30 years and has help thousands of people with age-related macular degeneration and keratoconus.
As you know, Medicare refuses to pay contact lenses, even if they are deemed medically necessary, even if wearing them is?the only way I can see.
Ween I went to your organization for assistance, I was?told that there is absolutely nothing you can do to helo. Hell, your group refused to even try!
My son was diagnosed with Keratoconus when he was in college. I had never heard of it and there was not much literature on it. I found the Discovery Eye Foundation on the net and was able to educate my son and myself on the condition. The foundation continues to keep us updated on the progress being made and gives up to date information about how to treat the disease. We are very grateful to all associated with this foundation.
I was referred to Discovery Eye Foundation's blog by someone who understood that their information would be helpful to me. I have a family member dealing with macular degeneration, and I was just looking for information and people to talk to. Their staff is incredibly compassionate, resourceful, and informative, and I'm greatly appreciative for all of the help they've provided me with!
The Discovery Eye Foundation supports eye research for blinding eye diseases. Its efforts in keratoconus and macular degeneration eye research make the Discovery Eye Foundation a critical component in progressing against these blinding diseases. These innovative research areas include stem cell retinal regeneration, age related macular degeneration genetics, and corneal transplantation and scarring. The Discovery Eye Foundation's work is vitally important to the understanding of the health of the eye. Its website www.discoveryeye.org is a valuable resource for people dealing with eye disease. This is an exceptional organization which deserves the highest praise and support.
The Discovery Eye foundation is unique amongst non-profits in how many people they help in relation to how many people they are. I have rarely seen any organization where their people are so hard working and have such a deeply rooted personal interest in what they do. Truly a stellar organization with stellar individuals!
I have seen DEF grow over the years and they provide a great source of information and comfort for those suffering with eye disease. They sponsor ground-breaking research into the source of many of these aliments and provide patients with support and clear information to help them manage or treat their disease. It's amazing to see such good work produced by their small, but dedicated staff.
I was first referred to Dr. Anthony Nesburn, Medical Director for the DEF, as a result of his expertise, both clinically and in the field of ophthalmic research specific to my medical needs. Continuing as his patient for over forty years, I have been the beneficiary of both his wisdom and compassion. Throughout this time, I've witnessed the unwavering devotion he has demonstrated not only to his own research, but in his support of the research of others through the Foundation.
On a separate note, my family and friends have suffered from the impacts of both AMD and Keratoconus.
The community outreach the Foundation affords those suffering with these serious eye conditions
is so very important.
It has been my privilege to offer financial support for the last several years to an organization accomplishing much in different arenas.
Over the years, 30 to exact, I have watched Discovery Eye Foundation blow the lid off off of so many unsolvable problems! From Keratoconis, to mitochondria genetics, Ocular herpes, Potassium osmosis, and a subject close to my eyeballs, pterigum.
All kidding aside, these researchers are leading scientists who care about everyone.
Do great work. Are starting to produce some very important discoveries that will not only save lives but allow thousands of people such as my father in law to see.
I was a patient of Dr. Anthony Nesburn, when I presented with a challenging corneal problem. His compassion, expertise, conservative approach and overall care were exemplary. I since learned about the foundation he supports, and have been a donor - and passionate fan - ever since, in support of the foundation's good works, Dr. Nesburn's selfless service, and their goals.
In my professional life, I am CEO of a non profit organization - and I've served in similar capacities for over 30 years. The Discovery Eye Foundation is an incredible organization, from all perspectives.
NKCF has helped me gain insight to my son's keratoconus. I rely on it to keep me updated among other sources.
The National Keratoconus Foundation Newsletter has been a hugely helpful resource for us in keeping informed about developments in the study and treatment of Keratoconus.
I was diagnosed with keratoconus over 10 years ago. Every year my condition worsened, and my ophthalmologist did her best to fit me in new contacts each year. It has been a struggle, and I eventually could no longer drive at night at the age of 48. The DEF newsletter helped me be informed about this condition and about the corneal crosslinking (CXL) study. This information was so valuable to me as I knew very little about keratoconus, how it was treated, and the status of the study. Because of my age, I wasn't a candidate for the (CXL) study until last year. I had the procedure completed in both of my eyes 6 months apart from each other. Being part of the study took lots of time, patience, and many appointments; not to mention having to live and not being able to drive without my medically necessary contacts for several weeks before and during recovery. But because I was better informed, I felt confident that the CXL procedure was the right choice for me at that point in my life.
DEF has provided me with valuable and timely information about treatment options, lifestyle adaptions, dietary suggestions, and more over the course of the 15+ years I have had AMD. It has helped make an informed patient who can interact intelligently with my doctor about my condition. I have achieved a good perspective and much peace of mind about having AMD largely thanks to DEF.
Review from Guidestar
Discovery Eye puts out a very informative newsletter a few times a year. Judy Delgado has consistently responded promptly and thoroughly to requests I have made for info about macular degeneration treatments, etc. She runs support groups in the LA area that are very helpful for individuals with AMD and their family members. They helped my Dad, who had AMD, and have helped me, with early stages of AMD, a lot.
I have Keratoconus and we need advocates working for us to find a cure to this condition. The monthly newsletter is helpful. In particular information about the research.
I am very grateful to Macular Degeneration Partnership , which allows to not feel lonely people with wet AMD.
Patients are always interested if there are new treatments of their illness. I do not live in the U.S. and I can not take part in various activities organized for patients. But Macular Degeneration Partnership helps us to keep abreast of new research in the field of treatment of wet AMD, eliminating the need to look for this information on different sites on the Internet . It also helps not to tire the eyes and save some vision. And the stories of those who do not give the disease , moral support . Thank you again !
I learned that I have dry macular degenerative disease almost 3years ago. I was told not to worry. The a year later my sight in my right eye became wavy, went back to my eye doctor. He referred me to a specialist . After an exam was told to either get a sho in eye or be blind in a couple of days. Took the shot, that night I had twitching on right side if my face. Did not go back. Found website for age related macular degenerative and have learned a lot more. Learned that there are different forms of dry. Learned that there is a chart to use. Had to request for one from , eye doc. Tried to tell me I didn't need one. I rely on this organization for lots of info.
I have been attending the monthly meetings the Macular Degeneration Partnership gives at my local Senior Center for the last 4 months. I was diagnosed with AMD two years ago and then Wet AMD in my left eye four months ago. These meetings have been life changing as they have enabled me to understand the condition better and to have a more positive attitude toward it. I have received an unbelievable amount of helpful information as well as having the opportunity to meet other people with AMD and share our experiences. The guest speakers have also been very helpful.
Thank you Macular Degeneration Partnership and Discovery Eye Foundation for making such a difference in my life.
I have had macular degeneration for some time now and the Macular Degeneration Partnership has always kept me informed about the latest treatments and what the results are, which gives me hope that I might be able to use a different treatment other than the shots that I get now directly in the eye. They are costly and very uncomfortable, I don't like them at all but at least it has slowed the disease for now.
Discovery Eye Foundation fills many roles to those of us with eye problems. We use the website for information from the Macular Degeneration Partnership since my Mother suffers from this debilitating disease. We have so many eye issues in my family from ambliopia, to eye sockets that are not even that it is truly a blessing to find so much information on one website. Thank you from the bottom of our hearts.
The Macular Degeneration Partnership continually gives good information and help. I have been battling wet AMD in my right eye for 8 years and it is now beginning in the left one. I live in France and have the good fortune to have a specialist here who keeps it under control. Because this is inherited in my case, my 2 sisters are also readers of the MD Partnership site, and it gives all of us good guidance. We are very grateful!
I live in France. The Macular Degeneration Partnership has been a life saver for me! The modest contributions I have been able to make, qualify me only as a very small donor; but my gratitude to this association is huge! They gave me support, information and good advice every time I needed them, helping me overcome very difficult periods in the course of this cruel illness. And very importantly, they made me feel like I had not only qualified, sympathetic and readily available advisors, but also good friends overseas! The mere thought that they are there, just an email away, is very, very comforting. I AM glad of this opportunity to express publicly my immense gratitude!
Monique van de Stadt-Kamber
I am a huge fan of the Macular Degeneration Partnership. I am a biologist and have learned much about Dry Macular Degeneration, which my father has. Thanks for your cutting edge research and clinical trials. Keep up the good work!
I especially appreciate the information provided by the Macular Degeneration Foundation about the latest research on treatments. I cope with the loss of vision caused by Wet Macular Degeneration and have had a total of 88 injections in both eyes since 2005. The knowledge that my children and grandchildren will be affected by this condition is very sad to know. I am grateful that there is hope for them - thanks to the information that I receive from the Macular Degeneration Foundation.
I have been diagnosed with dry Macular Degeneration. My father and grandparents all suffered from the disease and went blind. Thanks to the Macular Degeneration Partnership and the great information that is emailed to me from AMD.org, I am learning more and more about the disease and keeping informed as to things in the pipeline. Thank you for your help!
My father has macular degeneration. I a grateful for the services provided by Discovery Eye Foundation. I always check your email newsletter as soon as it arrives.
I am grateful for the Macular Degeneration Partnership. I depend upon it to keep me up to date with the latest developments in the field. Otherwise I would be lost for reliable and useful information. Again, I am most appreciative of this service.
I was diagnosed with wet & dry macular degeneration two years ago and was devastated I do have sight loss in the eye with wet, because of the cost i was afraid we would have to choose between loosing our home or my eyesight because of your connection with Macular degeneration partnership i receive $ to help with my co pay and have regained some loss in that eye I sincerely want to thank you and your donors for all the help you have helped someone who really needs it and is grateful beyond belief Evelyn
I was diagnosed with macular degeneration at 45. It has been a very scary and life changing diagnosis. At present my eyesight is stable, but by reading articles provided by Macular Degeneration Partnership, I believe I will have better information when I need to make treatment choices in the future. Macular degneration doesn't run in my family, and I have lived a healthy lifestyle, so my risk factors for getting this were low. Never thought I would be dealing with this at my age. Grateful for any information that can help me understand and come to terms with these cards I have been dealt.
Having AMD myself along with several family members and friends, I'm really thankful we have DEF to keep us up to date on the latest information regarding this awful condition of the eye.
I DISCOVERED I HAD MACULAR DEGENERATION ABOUT 2 YRS. AGO. I HAVE HAD SHOTS IN BOTH EYES. I've BEEN ON DIALYSIS FOR 214 YRS. & I'll TAKE THAT ANY DAY TOTHIS PROBLEMATIC EYESIGHT:) I TAKE pRESERVISION & I APPRECIATETHE COUPONS!!
As an Ophthalmologist dealing with patients with Keratoconus, I cannot emphasize enough how much the discovery eye foundation has been helping these patients in ways complementing their medical and surgical treatment thereby obtaining better outcomes both in the patients' function and in their quality of life
In the early days of my KC diagnosis, before the KC stabilized, the regular NKCF newsletters/forum provided much needed information and support. Discovery Eye Foundation/NKCF provide a valuable and much need resource for a disease that does not get as much visibility as other more obvious and prevalent conditions. KUDOS!!!
Hi, My name is Lilian and was diagnosed with Keratoconus at 22 years of age. For any sufferers of KC and their families, it can be a rather trying experience. It's been about 10 years since I found NKCF while browsing the web for information about KC. I registered for the forum and received great support and feedback from participants. A recent relocation to a new city left me without a clue about finding a specialist. The efficient and easy referral service offered by NKCF pointed me into the direction to some of the best, most friendly and professional, MD and Optometrist (at a University Hospital in Jackson, MS) who fitted me with perfectly fitting Rigid Gas Permeable lens on the first try. I am so appreciative of the tireless efforts of forum and referral coordinator C. Warren. We are lucky to have her's and NKCF's 100% commitment to the holistic care, treatment and research of KC. Kudos to NKCF!
As a person diagnosed with KC, the NKCF forum on their websitea allowed me to read what others with KC have gone through and are experiencing as well as learn about advances in treatments for this condition.
NKCF is a wonderful part of this non-profit. I applaud this organization's ability to reach patients with this condition who can not find eye doctors with the skills needed to help them see. I just finished fitting a young adult who found me through NKCF. This patient can now see well enough to drive with an unrestricted license; a world of difference for this young parent who works full-time! I look forward to the continued efforts made on patients' behalf by NKCF, especially the work with insurance companies and corresponding legislation to try to get this affordable care covered that allows working adults to remain productive and provide for their families.
I'm Danny prem from India. I'm really happy to have link with this organisation as I live with keratoconus with more than 6 years in a country with less knowledge about the disease and NKCF's newsletter helped to know more about my problem and also boosted my confidence to face this world.. thanks for giving a hope for new life
The NKCF Discovery Eye Foudation is a very practical way to get tons of information about keratoconus.
The monthly newsletter presents the latest development for treatment alternatives. It's also possible to get in touch with other people diagnosed with keratoconus to learn about their experience with different treatments. Overall very pleased with the work of the NKCF Discovery Eye Foudation.
I was told I had kertaconsis in 1990 wen i was 26 and i had 3 small children under 6. It was the most devastating you I can't at the age of 26. A full time working mom wife. The doctor told me the name of the disease I went home and read up on the disease that I had. I recall being scared and ASHAMED aashaking t
This foundation (NKCF) has provided me great information and support. Keratoconus is not a well known condition, it is mostly misdiagnosed. Thanks to this foundation its information is disseminated to patients, families and even ophtalmologists!!! It also provides great service updating the latest research and treatments through the website and newsletter; promotes corneal donation, seminars, research and great support to patients by sharing common experiences. I am very thankful to NKCF. It has been very helpful to us!
I have had keratoconus for more than 30 years. This Foundation provides a great service by disseminating the latest information on treatment and research for this eye disorder through its Website and newsletter. The Foundation also offers a discussion board for patients to be able to ask questions, share information, and find support from others with similar experiences. It is a much needed resource for information and support.
When I was first diagnosed with Keratoconus, after having received several misdiagnoses, I went to the Internet to do research. My most positive experience has been with the NKCF, whose website and newsletters have been truly useful and informational. I was particularly impressed when I announced to the newsletter that I would be having a corneal transplant. I received immediately from Cathy Warren a booklet concerning the whole procedure, including factors which my surgeon didn't think to tell me. I was touched and pleased with her prompt response. The procedure went as described, and now I see well enough to drive with glasses.
Hi My name is Antonio Mendoza, 46 old, I live in Mexico (sorry for my English) I have Keratoconous for +20 years.The reason for typing this message is because I want to share my experience trying to control it. In my case, I have periods with critical sensations in my both eyes. In that moment It has been greatful to use soda can soda cold direct to my eye for a short moments. also I have access to traditional Mexican herbal medicine and with some herbals I have the possiblity to manage my eyes when I have crisis.It has been helpful for me because I have the possibility to stabilize the keratoconus. I share this info in order to help others and also try to give some ideas for making new studies. Regards. Antonio firstname.lastname@example.org
My name is Sandy. I am a 52 year old female. My mother has AMD and she is 86 years old. She is blind. I thought I too had AMD. I started having vision changes in my left eye this past summer. I felt dizzy and nauseated. I also had a migraine headache the day my vision changed. I noticed that my left eye had a gray spot in the center of my vision and words I tried to read were wavy. I also noticed that doorways and window frames were wavy. It was like being in a fun house with those crazy mirrors. The scariest thing was when I closed my right eye and looked in the mirror. It looked like my face was dropping or melting on the right side. I looked like a monster. I went to see a doctor at University of Michigan. He didn't think I had AMD, but diagnosed me with Chronic Serous Chorio Retinopathy. I had laser surgery done. It helped improve my vision only for about a month. It is bad again. I am scared that I will lose my sight in both eyes. I wonder if I too really have AMD like my mother.
I am only 61 and have been dealing with wet Amd for two years. I called Discovery Eye Foundation and was able to speak with Judy Delgado the very same day. She listened and was able to confirm that the course of treatment my doctor is using is standard protocol. She also gave me the name of a doctor at Casey Eye Institute who would be a good physician should I choose to get a second opinion. After the conversation, I felt very reassured. It has been difficult dealing with this disease at such a young age. It was so nice to talk to a knowledgable person who showed compassion. They are providing a great service.
When I was diagnosed with Keratconus the foundation provided me with the information I needed to really understand what was going on with my vision. Hearing from others has been a great source of support for me. i feel so much more well equiped to deal with this eye disease with thier help.
My father is almost blind from Macular Degeneration. Recently I have found out that his sister is also showing symptoms, and I also have beginning signs of developing AMD. This organzation has become a valuable resource for me, to get the information I need to keep my own vision healthy, and to understand the implications of having AMD. Through this organization, I have been able to participate in research regarding the genetic factor in AMD, which is important to me since it clearly runs in my family. I feel very fortunate to have this wonderful resource to help me and my family!
I have been diagnosed with Keratoconus for 41 years. As new developments and proceedures have recently emerged, the NKCF website has been a saving grace. I am currently 61 and through the interchange of others with KC and physicians and contact fitters in the field, I am able to discern what treatments have been successful as well as others who have have similar side effects to new contact lenses.
AMD provides the latest research and care information for macular degeneration with timely emails and newsletters. When I've asked a more specific question of the director, Judith Delgado, I get a very prompt, informative, caring response. I've been helped a great deal to handle the AMD diagnosis in my life by this group, and have recommended them to others over the years.