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Causes: Birth Defects & Genetic Diseases, Centers to Support the Independence of Specific Populations, Health, Human Services, Voluntary Health Associations & Medical Disciplines
Mission: Dedicated to improving the quality of life of persons affected by bleeding disorders through advocacy, education, promotion of research and delivery of supportive programs and services.
Programs: Hemophilia of north carolina provides education to help people with bleeding disorders avoid debilitating complications and live longer, more active and healthier lives; conducts advocacy initiatives at local and national levels to help ensure access to medical care and equitable insurance reimbursement for all; builds awareness of bleedng disorders and promotes early diagnosis; advocates and creates awareness for blood safety and helps to fund and promote research toward better treatments and cures.
hemophilia of north carolina publishes a quarterly newsletter, the concentrate, that is distributed to members, the medical community and other interested parties. Information in the newsletter contains articles on relevant topics to the bleeding disorders community, updates on programs and services and highlights of community members. Based on information received from the membership, the newsletter is their primary source of information. In addition to the newsletter, hemophilia of north carolina publishes flyers with information about upcoming programs and services. Our website is also a key source of information and received a national award for its content and presentation.
the hemophilia of north carolina financial assistance program is part of the organization's continuing effort to improve the quality of life of individuals and families affected by bleeding disorders. This program provides funds to eligible individuals and families who need assistance with expenses incurred in the care, treatment or prevention of a bleeding disorder, and/or basic living expenses.