I have 2 children with rare genetic disorders, CTNNB1 being much more rare than the other. Despite how much more rare this condition is, the CTNNB1 Connect & Cure NonProfit has been such a fantastic resource and support for our family. We’ve found hope, connection, and community here. I especially appreciate how well they communicate regarding research updates and how they work to help connect families with resources.
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- EIN 83-4541448
- info@curectnnb1.org
- P.O. Box 152 Green Village NJ 07935 USA
- www.curectnnb1.org
- Facebook page
- ctnnb1cc
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Nonprofit Overview
Causes: Autism, Birth Defects & Genetic Diseases, Birth Defects & Genetic Diseases Research, Disabilities, Health, Public Health
Mission: Finding treatments and a cure for CTNNB1 Syndrome to help children live their best lives possible while raising awareness and connecting families.