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Causes: Health, Nerve, Muscle & Bone Diseases
Mission: To raise awareness and identify carriers of spinal muscular atrophy (sma).
Programs: When we formed the claire altman heine foundation (cahf) in 2004 after claires tragic death, implementing policy to promote pan-ethnic carrier screening for sma seemed like a highly timely but challenging aspiration. Yet, thanks in large part to the unwavering support and inspiration of our donors, we have materially achieved this goal. Together, we have made a difference and helped thousands of families. We are delighted to be moving into the final phases of fully implementing our objective: pan-ethnic carrier screening for spinal muscular atrophy (sma) and have spent the year addressing what, if any, additional programing is appropriate.
This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.