Find Nerve Muscle & Bone Diseases Nonprofits and Charities

  cilla wrote:

I have many friends who have been touched by lupus, and want to do all I can to help. The Lupus Foundation has brought awareness to my community by humbly but confidently asking for specific support through donations, education, and many other services. more »

  Julie134 wrote:

I just wanted to say how much our family appreciates you guys. My grand daughter Alexis Harding has gone without being diagnosed for almost 4 years , now we know what her health issues are and how to deal with this. you guys have been very supportive... more »

  lynnmanning54 wrote:

Although my family member has myositis, I say please, please do not donate to the Myositis Association. It is an outrage that they get three stars. The Director's lofty salary represents 20% of the revenues! It's shameful how a few people who control... more »

  khealey43 wrote:

Without the help of this forum, I would not have found a better treatment option for my daughter. I have always found the advice to be candid and unbiased, while also giving legitimate supporting evidence for all sides of the equation. They led me toward... more »

  FD Mom wrote:

Kudos to the FD NOW researchers! Since 2000, Dr. Berish Rubin and Dr. Sylvia Anderson have solely dedicated themselves to the FD community, discovering many safe treatments for the 300 children that battle daily with the ravages of Familial Dysautonomia.... more »

  lostberrypicker wrote:

I helped in the planning stages of forming this organization. Was at first ever meeting. Met others who are dealing with this horrible illness and continue to talk with families on how things have worked/not worked for us as a family living with someone... more »

  Alexis W. wrote:

Best organization ever. Period. I won't be the only glowing testimonial so I'll keep it short. This organization has helped encourage and support me through the worst trials of my new life with a very special daughter. There were times I was at my worst... more »

  Charles Goslee wrote:

Dear Friends of ALS WORLD WIDE: I would like to provide you with a testimonial to both the incredible Organization of ALS Worldwide, and most importantly the dear souls , the Byers, who have dedicated their entire lives of "Devotion" to the... more »

  MirandaM wrote:

All the ladies on the board of directors are wonderful, compassionate and so helpful. Especially Cathy she has gone above and beyond to educate me on all aspects of EDS, so that I could advocate for my child. I am forever grateful. This knowledge that... more »

  Petad wrote:

What an incredible organization, doing great work to help children, young adults, parents, and schools. I have volunteered with this organization for seven years and every day I continue to be impressed with their work. Key members of the staff have been... more »

  amycaseyrdh wrote:

I have had amazing experiences with Cure VCP Disease. The members of this group are helpful, positive, knowledgable, and hopeful! The drive and desire to find a treatment or cure for VCP Disease is evident in all of the work that this group is doing. more »

  Jeannie Hardesty M. wrote:

This Non-profit Society has given me something no one else could: the co-pay for my new power wheelchair. I cannot express how grateful I am for this gift, or grant, you call it. It is a GIFT to me, AND NOW SUPPLEMENTS TO BOOT! The cost of the supplements... more »

  DavidGoad13 wrote:

I got involved in fundraising for MMRF because my brother is a Multiple Myeloma survivor, but I continue to put my heart and soul into fundraising with them because I know a majority of the funds are going directly to research, and because I have such... more »

  grace wrote:

When i was first diagnosed, it was helpful to get all of the information that they had availaable. I also went to the support sessions for a few years. One of the best things they did was to send patient information packets to 2 people who had been... more »

  CWellsSPSRF wrote:

I've worked for more than 20 years in the nonprofit sector and can say with confidence that it has been an absolute pleasure being involved with such a driven organization! Their mission is clear and the work that supports their mission is intentional... more »

  Cherie Hrusovsky wrote:

GLASA lets kids and adults with serious physical disabilities take part in year-long sports and recreation activities. Able bodied people understand how sports and exercise play a very important role in building not only strong bodies but providing opportunties... more »

  Todd J. wrote:

As the parent of a ten-year-old boy with spina bifida, I find SBAA to be an indispensable source of information and support. They provide some of the most valuable services imaginable to families who are dealing with spina bifida. They are a very important... more »

  humanitarian-poet wrote:

Thank You MDA! What About The MDA Sometimes to understand the functions, Of an organization like MDA... We need to hear from people they've helped. I have a poem with something to say. Six months after I married my bride,... more »

  Sam M.3 wrote:

As someone who has an L1 spinal cord injury, spinecore has allowed me to stay active, try new things and push my limits Outdoors. First with water skiing and then kayaking and biking. I would highly recommend to anybody with a disability that if you want... more »

  Howard Jablonski wrote:

Poorly lead national leadership. Local chapters are independently run and are led by competent local leaders. Unfortunately, the local chapters are required to provide "tribute" of 80% of their fundraising donations to the national office. What do local... more »

  bgaughr wrote:

Back in the late 1990s, I felt alone. I had just been diagnosed with Kennedy's Disease. There was no treatment or cure and none of my regular doctors knew anything about the disease. I had originally been diagnosed with ALS, but fortunately found a... more »

  Donaldo wrote:

This non-profit was founded in 2005 by one of the bravest women I have ever met. After struggling with CRPS (Complex Regional Pain Syndrome) for several years Helen Freemyer founded Rocky Mountan CRPS/RSD in 2005. The organization has steadily grown and... more »

  Jennifer Wiemer wrote:

I made one donation to the National MS Society several years ago in memory of a colleague's father who passed away. I never had any intention of making another donation because I already support several other charities that are closer to me. For years... more »

  cd-greatnonprofits wrote:

MDF has been instrumental in helping me and my family learn about this little-known, but extremely impactful condition. Additionally, just becoming aware of the extended communities of families and others living with this condition has helped me understand... more »

  infantryman71 wrote:

My son was diagnosed with MG while he was a cadet at West Point in the summer of his junior year. West Point provided minimal help Walter Reed was outstanding and they recommended, along with others, the MG Association. We asked for, and received,... more »

  Charles Hummer Jr wrote:

Good mission, badly needed services for its clients made up of terminally ill ALS patients. Disappointing trend in all aspects and particularly in view of the superb performance of some of the chapters who are more successful in demonstrating responsible... more »

  jean4 wrote:

Provides education and support services for adults & children with spina bifida. Offers annual benefit to help pay for equipment that is not covered by insurance. Great way to meet people who also have spina bifida. Contacts greatly help assist with... more »

  jvenitz wrote:

This is a very patient-oriented, all-volunteer patient advocacy organization for a rare disease, myasthenia gravis. more »

  Wayne wrote:

I am writing this review both as a client served and a volunteer. When my wife was diagnosed with MS three years ago and we sought out information and assistance, this organization was the first one to step forward with the programs and services... more »

  RobNYC wrote:

The Hereditary Neuropathy Foundation is run by a highly motivated and compassionate team with a singular goal: To find treatments and ultimately a cure for Charcot Marie Tooth. The CMT Team and Board care deeply about the patient population they serve,... more »

  Jamil B. wrote:

I cannot find any phone number for this organization. They did not leave us a receipt fro our 5 bags fo donated clothes. Their website says it is for sale. If this is not the case please let me know. more »

  PaulC75 wrote:

American Bone Health is a fantastic organization to support! It's also the one that's more likely to be specifically relevant to you weather you know it or not. Most people don't know that Osteoporosis is not an old persons disease. Rather, its... more »

  Shawn wrote:

Stand Among Friends is such an amazing organization with wonderfully dedicated staff and volunteers. We are focused on helping all people with disabilities to become as independent as possible. We do this by helping others to find and maintain employment,... more »

  neobuysell wrote:

I would have been homeless and with no access to meds were it not for the intervention of the MSF. Thank you from the bottom of my heart.These people really care with no strings attached and no pressure to fundraise. more »

  dbatpg wrote:

"This program has helped me deal with a variety of issues such as relaxation therapy to reduce pain levels, meditation to put my mind at ease to better control the fight or flight problems and learning that I'm not alone in this walk because others are... more »

  SETXCAJUN wrote:

Mr. Jim Broatch is someone that spends his time helping and has helped me for nothing just educating me on my CENTRAL NERVOUS CONDITION CRPS TYPE II !I'VE HAD IT SINCE 1999 BUT NOT UNTIL 2002 DID I FIND THIS SITE AFTER DR. ROBERT G. SCHWARTZ TOLD ME... more »

  mnyhuis wrote:

When my daughter was diagnosed with SMA I was devestated and didn't know where to turn. I found Fight SMA and felt immediate support. Through Fight SMA I knew we were not alone and I gained hope for the finding of a cure/treatment for SMA, not only... more »

  Lee_16 wrote:

When rated by the armed forces charity review, united spinal/wwp was rated a D because of bloated salaries and administrative costs. Actual donation to helping vets was less than 25% more »

  Natalie V. wrote:

The ALSAOC is so supportive to everyone they care for. If you ever need anything they are just a phone call away. more »

  sean87 wrote:

The Alaska MS Center is a place of compassion, support and inspiration to everyone who walks in the door or calls on the phone! The atmosphere amongst the board members is one of trying to do the best they can for all Alaskans living with MS, their co-operation... more »

  prueann wrote:

I started volunteering with the Mid-Atlantic Chapter of the National MS Society as a way to help one of my best friends who was diagnosed with MS. She lives in Texas and it was hard for me to be able to help her from so far away. I called the local chapter... more »

  Joan27 wrote:

As a practicing R.N. for over 35 years and working in many challenging fields of practice, I am so very glad to read of the importance of gratitude in your newsletter. This behavior is clearly a cellular changer. Your newsletter is always a joy to read.... more »

  cindy18 wrote:

The ALS Association has been a wonderful place to volunteer. Through working in the office collating mailings all the way to doing Autograph Parties and Walks, it has given me the opportunity to help those in need while at the same time bringing my family... more »

  8677 wrote:

I was married to The Love of My Life for close to 46 years, until ALS took him from us. I wear a ring to this day with the word HOPE on it, in hopes , I can in some small way, raise awareness of ALS, so no others will have to go through what my husband,family... more »

  ____724 wrote:

Thank you to the National Multiple Sclerosis Society for setting up a chapter in the Central PA area. This disease is devastating and violent and the more we can spread the word about a cure, the better. We would like to introduce you to a great... more »

  Brinton C. wrote:

PATSA is a fantastic organization that has helped my family by providing education and support with living with Tourette Syndrome. They have also come to our school to help educate the staff and help us all to better understand TS. This has been incredibly... more »

  DenLee wrote:

My friend received a spinal cord injury and I knew nothing about a spinal cord or an injury to it. Spinal Cord Injury Network International took time to answer my questions and explain about spinal cord injury. The organization helped me understand about... more »

  jory1961 wrote:

Hope Instilled is such an amazing source of information for people living with chronic pain. I have never seen so many alternative treatment options explained in one place, and no one is trying to sell me anything. You are able to get a better understanding... more »

  jmarks006 wrote:

Our family gives funds to CureNFwithJack on a monthly basis because we believe it’s so important to not only support our friends and neighbors, but also this incredible organization that impacts so many families. Jack is our local hero and we want to... more »

  SandraParker wrote:

This is a great, small Texas non-profit that serves patients and families struggling with Neurofibromatosis or NF. NF, a disease for which there no cure and only limited treatment, can have multiple manifestations ranging from unsightly, benign tumors,... more »

  Elizabeth173 wrote:

We have two grandchildren with SMA type 1. SMA is the number 1 genetic killer of children under the age of 2. Our grandchildren have outlived their life expectancy and are now 12 & 14 years old. They take 24/7 365 care and their parents are... more »

  perelle wrote:

Volunteering with the Heil Luthringer Foundation is always a wonderful way to support the Multiple Sclerosis community in SWFL. The leaders are caring and compassionate and their services support so many individuals and families within our local community.... more »

  chinitzpc wrote:

Using an all volunteer staff the American Dysautonomia Institute has made a variety of research grants, including to the National Institutes of Health, Mayo Clinic, and Medical College of Wisconsin. We also participate in reducing misdiagnosis... more »

  SyngapRF wrote:

This is a wonderful organization doing all they can to fight for ALS patients. The CEO is passionate and brilliant. They are lucky to have her. more »

  DRGS wrote:

Familial Dysautonomia is a rare genetic disorder that causes severe problems to the gastrointestinal, cardiac, pulmonary, orthopedic, renal, and ophthalmological systems. The Foundation has funded research and treatment leading to the identification of... more »

  DRESQMEYN wrote:

Brian and the staff at the PDRI would pick my dad up once mom couldn't, drive him all three days. Mainly in the Jeep with the top off. I don't think he cared about missing a day, but he was never sick on a Thursday. They did good work, getting to ride... more »

  FoxyAdvocate wrote:

The Lupus and Allied Diseases Association, Inc. was founded in 1978 in Utica, N.Y. and is now a national non-profit organization dedicated to enhancing quality of life by enlightening and empowering those impacted by lupus and allied diseases and other... more »

  Writer wrote:

I am very poor and ran up a substantial hospital bill at Barton Health and they helped cover the cost. I can not say Thank You enough. Thank You from the bottom of my heart. I didn't know how I was going to survive and pay all the bills I concerned because... more »

  unclep wrote:

After receiving the diagnosis for my child, I was in shock. I found this organization, I found answers. The President of the organization was a wealth of information. She had all the answers I needed, and was able to go back to tell my doctor. I am very... more »

  Jonny Imerman CLOZTALK ImermanAngels wrote:

ALS Assoc-Chicago has such an important mission of care, advocacy, & research to fight ALS!! GREAT org, GREAT team, & the CLOZTALK team is honored to call ALS-A-Chicago our partner!! CLOZTALK team >> Jonny Imerman, co-founder more »

  sunshineforyou wrote:

A very horrible disease. Help a patient be comfortable and help the caretaker to be free once in a while to deal with what she or he watches each moment. Caress the pain per say. Do a bit of research before you show up on the details. Good luck to all... more »

  briankoonz wrote:

I am a newspaper columnist in Connecticut and I have written about "Voice for Joanie" several times over the past few years. I have found Shirley Fredlund and her husband, Frank, to be tireless and selfless in everything they do to help people with... more »

  Brandy Crago wrote:

I wanted to find a way to help families with special needs enjoy horses and experience healing through these amazing animals. Shining Stars not only helps provide for physical and emotional needs but gives individuals a chance to connect to a healing... more »

  rglang wrote:

My niece was diagnosed in 2019 with MS. A very sweet loving mother wife daughter cousin niece and friend. She has a son 12 who has autism which is a full time job in itself and a son 7. She worked full time at an Animal Control Shelter. She had compassion... more »

  Alley wrote:

This is the Best' ALS support plus group in Florida You can count on your donation going to Pals " People living with ALS " Cals," their caregiver" and research. No paid employees , no wasted money. more »

  Annette36 wrote:

This organization is amazing. It is wonderful to meet others who can answer all of your questions and support you through your journey. more »

We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by ms. more »

(a) to enable individuals with spinal cord injury and disease to achieve their highest level of independence, health and personal... more »

To help coachella valley residents live with multiple sclerosis, its symptoms and debilities by providing the tools and resources... more »

To empower individuals with neurological conditions to reach their highest potential through innovative rehabilitation, community... more »

Prevention and cure of osteoporosis more »

The mission of the nsta is to support the needs and well being of affected individuals and families;to promote awareness and education;... more »

Our Mission: To Serve Individuals with Multiple Sclerosis Through their Lives: The mission of the Multiple Sclerosis Service... more »

The Tourette Syndrome Association of Greater Washington (TSAGW) is a non-profit (501C3) agency and chapter of the National Tourette... more »

The organization strives to promote awareness of melorheostosis and it's treatment and to provide moral support for families of... more »

To build a supportive network of families to reduce isolation and empower those who car for minors with duchenne muscular dystrophy/... more »

To serve our fellow man with respect, honor and goodwill, to uphold the values of a gentleman and select men with vision and drive... more »

The purpose of the middlesex gps cidp support group inc. Is tp provide an atmosphere in which we can share our stories in an open... more »

The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of... more »

Funraising to raise awareness, fund research and offer support for those affected by sma, spinal muscular atrophy. more »

Physical, social and emotional well being of those affected by MS. more »

The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of... more »

To provide education to orthopedic surgeons-in-training and funding for clinical and biomechanical research. more »

By collecting and sharing the information we obtain from our members as well as the medical and scientific communities, The MHE... more »

To raise funds for the purpose of driving and supporting research and trials toward the ultimate goal of irradicating batten disease.... more »

We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by ms. more »

To bring healing and help to those victims of leprosy and minister to its residual effects. more »

Cure CMD’s mission is to advance research toward treatments for the congenital muscular dystrophies, and improve the lives of... more »

To promote the study and research of treatments for crippling pain & orthopedic-related afflictions associated with the musculoskeletal... more »

   Neurofibromatosis, Inc.-Mid-Atlantic was established in 1979 as a support organization to provide information... more »

D.R.E.A.M. is non-profit foundation that is dedicated to helping children and families with physical disabilities. D.R.E.A.M.... more »

The Amyotrophic Lateral Sclerosis Association (ALSA) was founded in 1985. The mission of ALSA is to find a cause and cure for... more »

Our vision is a world free of ms. more »

To organize open water swimming events in or around the city of new york and similar events. more »

Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou... more »

This organization is organized for the purpose of (1) raising global awareness of duchenne muscular dystrophy ("dmd") which mainly... more »

To enhance wellness for people with multiple sclerosis. more »

The american academy for cerebral palsy and developmental medicine is a multidisciplinary scientific society devoted to the study... more »

Improve the quality of life for those living with multiple sclerosis, including family members and caregivers. more »

To improve access and quality of spine care delivery in the united states. more »

The purpose of the multiple sclerosis center of south texas is to empower individuals and families living with ms to achieve their... more »

The mission of the National Multiple Sclerosis Society is to end the devastating effects of multiple sclerosis. more »

Clinical services and research on osteoporosis more »

The foundation for a cure for mitochondrial disease, inc. Exists to support research to find medical hope for children and adults... more »

To find solutions for people living with als now and for the future by utilizing knowledge of patients, leading researchers and... more »

Provide medical education and research programs to the the public. more »

The Mission of the Spina Bifida Wisconsin, Ltd. is to promote the prevention of spina bifida and to enhance the lives of all affected.... more »

To advance opportunities for people with disabilities and their families. more »

Batten disease support & research association's mission is to be an international support and research networking organization... more »

The Savannah Parkinson's Support Group is the local network for those living with Parkinson's. Interact with others like you,... more »

Mission of sefc the southeastern fracture consortium holds as it core mission to: 1) sponsor an annual cme accredited trauma education... more »

Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with als... more »

ALS was founded in 1978 to assist people with ALS, their families and caregivers. Today, we provide services to people with ALS... more »