Find Nerve Muscle & Bone Diseases Nonprofits and Charities

  cilla wrote:

I have many friends who have been touched by lupus, and want to do all I can to help. The Lupus Foundation has brought awareness to my community by humbly but confidently asking for specific support through donations, education, and many other services. more »

  Julie134 wrote:

I just wanted to say how much our family appreciates you guys. My grand daughter Alexis Harding has gone without being diagnosed for almost 4 years , now we know what her health issues are and how to deal with this. you guys have been very supportive... more »

  lynnmanning54 wrote:

Although my family member has myositis, I say please, please do not donate to the Myositis Association. It is an outrage that they get three stars. The Director's lofty salary represents 20% of the revenues! It's shameful how a few people who control... more »

  khealey43 wrote:

Without the help of this forum, I would not have found a better treatment option for my daughter. I have always found the advice to be candid and unbiased, while also giving legitimate supporting evidence for all sides of the equation. They led me toward... more »

  FD Mom wrote:

Kudos to the FD NOW researchers! Since 2000, Dr. Berish Rubin and Dr. Sylvia Anderson have solely dedicated themselves to the FD community, discovering many safe treatments for the 300 children that battle daily with the ravages of Familial Dysautonomia.... more »

  lostberrypicker wrote:

I helped in the planning stages of forming this organization. Was at first ever meeting. Met others who are dealing with this horrible illness and continue to talk with families on how things have worked/not worked for us as a family living with someone... more »

  Alexis W. wrote:

Best organization ever. Period. I won't be the only glowing testimonial so I'll keep it short. This organization has helped encourage and support me through the worst trials of my new life with a very special daughter. There were times I was at my worst... more »

  MirandaM wrote:

All the ladies on the board of directors are wonderful, compassionate and so helpful. Especially Cathy she has gone above and beyond to educate me on all aspects of EDS, so that I could advocate for my child. I am forever grateful. This knowledge that... more »

  Petad wrote:

What an incredible organization, doing great work to help children, young adults, parents, and schools. I have volunteered with this organization for seven years and every day I continue to be impressed with their work. Key members of the staff have been... more »

  Charles Goslee wrote:

Dear Friends of ALS WORLD WIDE: I would like to provide you with a testimonial to both the incredible Organization of ALS Worldwide, and most importantly the dear souls , the Byers, who have dedicated their entire lives of "Devotion" to the... more »

  DavidGoad13 wrote:

I got involved in fundraising for MMRF because my brother is a Multiple Myeloma survivor, but I continue to put my heart and soul into fundraising with them because I know a majority of the funds are going directly to research, and because I have such... more »

  grace wrote:

When i was first diagnosed, it was helpful to get all of the information that they had availaable. I also went to the support sessions for a few years. One of the best things they did was to send patient information packets to 2 people who had been... more »

  Jeannie Hardesty M. wrote:

This Non-profit Society has given me something no one else could: the co-pay for my new power wheelchair. I cannot express how grateful I am for this gift, or grant, you call it. It is a GIFT to me, AND NOW SUPPLEMENTS TO BOOT! The cost of the supplements... more »

  Cherie Hrusovsky wrote:

GLASA lets kids and adults with serious physical disabilities take part in year-long sports and recreation activities. Able bodied people understand how sports and exercise play a very important role in building not only strong bodies but providing opportunties... more »

  Todd J. wrote:

As the parent of a ten-year-old boy with spina bifida, I find SBAA to be an indispensable source of information and support. They provide some of the most valuable services imaginable to families who are dealing with spina bifida. They are a very important... more »

  Howard Jablonski wrote:

Poorly lead national leadership. Local chapters are independently run and are led by competent local leaders. Unfortunately, the local chapters are required to provide "tribute" of 80% of their fundraising donations to the national office. What do local... more »

  bgaughr wrote:

Back in the late 1990s, I felt alone. I had just been diagnosed with Kennedy's Disease. There was no treatment or cure and none of my regular doctors knew anything about the disease. I had originally been diagnosed with ALS, but fortunately found a... more »

  humanitarian-poet wrote:

Thank You MDA! What About The MDA Sometimes to understand the functions, Of an organization like MDA... We need to hear from people they've helped. I have a poem with something to say. Six months after I married my bride,... more »

  Sam M.3 wrote:

As someone who has an L1 spinal cord injury, spinecore has allowed me to stay active, try new things and push my limits Outdoors. First with water skiing and then kayaking and biking. I would highly recommend to anybody with a disability that if you want... more »

  Donaldo wrote:

This non-profit was founded in 2005 by one of the bravest women I have ever met. After struggling with CRPS (Complex Regional Pain Syndrome) for several years Helen Freemyer founded Rocky Mountan CRPS/RSD in 2005. The organization has steadily grown and... more »

  amycaseyrdh wrote:

I have had amazing experiences with Cure VCP Disease. The members of this group are helpful, positive, knowledgable, and hopeful! The drive and desire to find a treatment or cure for VCP Disease is evident in all of the work that this group is doing. more »

  infantryman71 wrote:

My son was diagnosed with MG while he was a cadet at West Point in the summer of his junior year. West Point provided minimal help Walter Reed was outstanding and they recommended, along with others, the MG Association. We asked for, and received,... more »

  jean4 wrote:

Provides education and support services for adults & children with spina bifida. Offers annual benefit to help pay for equipment that is not covered by insurance. Great way to meet people who also have spina bifida. Contacts greatly help assist with... more »

  jvenitz wrote:

This is a very patient-oriented, all-volunteer patient advocacy organization for a rare disease, myasthenia gravis. more »

  Charles Hummer Jr wrote:

Good mission, badly needed services for its clients made up of terminally ill ALS patients. Disappointing trend in all aspects and particularly in view of the superb performance of some of the chapters who are more successful in demonstrating responsible... more »