Cranio Care Bears

This organizations support of cranio babies has been unwavering. They have brought so much comfort to so many families including my own.

Cranio Care Bears was there our family not once, but twice, when our son had to undergo stressful cranio surgeries. They taught us so much and showered us with so much love that was needed to help families going through a difficult time. Cranio Care Bears really touched our hearts and made such a difference.

So amazing and very caring ! Went above and beyond for my baby girl !!

Cranial Care bears is amazing my daughter has had three surgeries starting at the age of four and a half months old their care packages are above and beyond whatever child and parent could ever imagine my daughter still has the blanket from her last one in 2016 I cannot say enough good things about cranial Care bears.

We love cranio Care Bears. We have received two care packages before my daughters two cranial surgeries. Such a good thing to get before such a big event. Helps family not have to stress.

I am SO thankful for this organization and what they do to help normalize craniosynostosis and support families as they go on this journey. The care package you sent my son in 2018 was something that was SO special! Thank you for all of the invaluable things that you do for this community!

Wonderful charity that helps families through hospital stays with kiddos for skull reconstruction surgery. It's a condition that otherwise gets zero attention and being a mother who was told that her daughter would need this surgery someday; it's a very uplifting group to be in.

So thankful for these guys, they are absolutely amazing!

I am so grateful for Cranio Care Bears. They supported us and made us feel understood when my son had surgeries years ago. They are a vital nonprofit for all who are navigating a craniosynostosis diagnosis. Thank you Cranio Care Bears

The most thoughtful, generous, and supportive group. Getting this care package put a smile on our faces during such scary times.

Such a great resource for parents during a very scary time. The information and support was invaluable. And the care package was a much needed gift.

An incredibly heart-felt and homemade care package sent to parents and caregivers in what can feel like a really heavy and scary time. Receiving our package was a comfort beyond words and we will always be so thankful for and support this group!!!

Cranio Care Bears sent us the most thoughtful package for when my daughter had her surgery. We love this group and everything they do for our little cranio warriors.

The sweetest organization. We felt so loved from their care box in a time that was so scary. I tell so many people about them!
We also have bought their book and a few other items and are very happy with them!

Just the best organization and there for us during a time when our family needed it most. To get the care package right before our daughter went in for surgery was the big warm hug we needed to let us know we’ve got this and have a whole team behind us cheering us on and loving on us. Cranio Care Bears will also hold a special place in our families heart.

Absolutely amazing company that does such amazing things for families going into this unknown territory. Surgery on your babies is absolutely terrifying, especially one as serious as this. They help make it so much easier with words of encouragement, toys for the babies and things you just forget or don’t think of bringing in the midst of the chaos. Truly angels on earth!

This wonderful organization has been offering support and love to families all over the world for over 12 years. They always go above and beyond. It is such a lonely time facing the uncertainty of this surgery and it really is comforting to have this team to support you!

Cranio Care Bears sent a care package to my family when my grandson had cranio surgery. It was a very stressful time, but having the care package made a big difference.

My son was diagnosed with Craniosynostosis and they sent out the cutest care kit to us that we received just in time for our travels to have his surgery. They provided us with essentials and extras that came in so handy. It was good knowing they also provided resources if we needed during this time. I can’t thank them enough.

Great organization to support cranio kids and their families

When my child was diagnosed with craniosynostosis I felt lost and alone. Cranio Care Bears made recovery for my son more enjoyable which put a smile on my face to see him happy. The work this organization does to help bring awareness is remarkable and very much appreciated.

The work that they are doing is amazing! They help family's out in one of the scariest times of their life! I can tell you from experience even just the littlest bit of joy in these scariest time can help!

We love cranio care bears!! When our son had surgery as a baby, they sent a beautiful care package to us here in Canada. We are very thankful to be apart of this community!

We received a wonderful care package before my infant had surgery! It was so uplifting during such a challenging time!

Cranio Care Bears was amazing when my son was about to have surgery for craniosynostosis. The car packages are so thoughtful as are the shout outs on their Facebook page the day of surgery. Post surgery we support cranio care bears whenever we can by sending things to them from their wishlist or wishing others luck on their surgery day.

Cranio-care bears made our experience of going through surgery, much easier!! My son is 6 now and still has his little bear with the stitching on his head....it is so special to him!

My son was having surgery for craniosynostosis and they provided a very helpful and supportive care package right before his surgery. It was filled with lots of great items for my infant son as well as items for us parents as we stayed with him during his PICU stay.
They also help spread knowledge about craniosynostosis. A condition that is not well known to the public.

My daughter charlie had to have cranio surgery from having metopic craniosynostosis. Getting a care package from cranio bears was amazing! They sent items that my daughter was able to use and play with after surgery as well as things for parents.

They have helped my family through one of the hardest times of our lives!

Cranio Care Bears was there for us when we needed them most. They were able to provide us with more information and resources than we received from our medical team. The care package we received before our sons surgery provided us with many items we would not have thought to pack as well as many support items.

Amazing company . When I found out our son was born with saggital craniosynostosis and would need surgery as soon as he hit 11 pounds and was 11 weeks old I was terrified. These guys sent us a care ppackage completely free with items for his hospital stay for parents and baby aswell as info on craniosynostosis in the package. My son still loves his cranio Care Bears crinkle paper and his little soft blanket they sent. I’m so glad this company exists and really helps parents feel a little more comfortable with the hospital stay

I cried when we received our package ❤️ it was put together with so much love !

My son was diagnosed with Craniosynostosis at birth 3 years ago and I found cranio Care Bears shortly after. They offer hope and practical help through their pre surgery care packages and are a great organization!

This is one of the most supportive groups out there. As a mother of two cranio warriors I feel so lucky to have had this outlet to learn more about this condition. You know that every dime donated to Cranio Care Bears is going toward supporting families. You can see how grateful the community is by just the simple donations that members send AFTER their child’s surgery. This group may never receive a million dollar donation, but they have lifted at least a million prayers to keep babies safe in one of the scariest moments in of their young lives. Thank you Cranio Care Bears for giving more than just gifts for a hospital; thank you for the hope and love you spread across the world everyday.

Cranio Care Bears was very supportive and caring during a very hard time. I was very sick, when my son was born with a severe case of metopic craniosynostosis. Cranio Care Bears offered support, prayers and items to help with our hospital stay. So much more then even some family, or friends did— Cranio Care Bears Is amazing and I am thankful for them. Recently a friend of mine, had a baby born with saggital craniosynostosis, and I was able to send her to cranio Care Bears website to get the same help and support too. She felt so much better having their support as well as mine to guide her through surgery.
My son is 4 years post op from endoscopic surgery, and still doing well. Families need Cranio Care Bears during this hard experience.

My son was diagnosed with sagittal craniosynostosis at 3months old and this past year at 4 years with Metopic. Being diagnosed with another type of craniosynostosis really scared me and I began searching more about it. I was led to some amazing women who shared with me Cranio Care Bears. They sent Luke the sweetest package a few days before surgery. The package meant everything to him and helped calm some of his nerves. Their packages are so thoughtful and very practical. We used everything in the package during our 4 day hospital stay. We LOVE Cranio Care Bears and feel extremely blessed to have them be apart of such a scary and difficult time. This is such an amazing organization!

My son Oliver was born with Metopic Craniosynostosis in March 2020. He had his skull reconstruction surgery in October 2020. The Cranio Care bears have been by our side every step of our journey. Their kindness is spread far and wide to families that face difficult days during surgery and hospital stays. The gifts are thoughtful and can serve as a reminder of strength and courage for days to come. We are grateful for the organization and the love they have shown us. We hope to continue to support them as they offer so much light and hope to the families they serve.

My wife and I have had 3 children and unfortunately all 3 have had cranio surgery. This group is a terrific organization that sends out care packages to help the families stay at the hospitals be more manageable. All 3 times we went in for surgery it was always a nice feeling knowing we had these care packages. Outside of the care packages they run an outstanding website which is not only informative but sends prayers out to so many children who have these cranio surgeries on a daily basis.

Cranio Care Bears is an amazing non-profit organization supporting families going through a difficult process. Their love and support that they send through care packages makes families smile and eases emotions knowing that their not alone. Thank you CCB for all you do for cranio kids and their families. Xoxo

My son had CVR at 5 months and this group was so helpful and sent my son A care package that I will cherish forever. ������

Cranio Care Bears was there during one of the hardest times in our lives. With something as simple as a care package, they made us feel like we weren’t alone during this trying time. These women are amazing for what they do. I can’t thank them enough. We just celebrated my son’s first Cranioversary and we still have a few things that were sent to us in our care package. Thank you again for all that you do cranio Care Bears.

We got a care package the day of my sons surgery . Although we had already left for the hospital early that morning, coming home to the package was such a blessing . My son enjoyed the little toy and pajamas , we felt honored to know that someone made this package specially for us and it was a good feeling to know we have support form a strong community ! Since then we have donated to help support other families going through similar experience

Cranio Care Bears was throughly supportive and encouraging when we had our son’s endoscopic surgery for saggital craniosynostosis in November 2019. We loved the care package they sent to us for surgery time. Thank you CCB!

Cranio Care Bears is such an amazing organization. It is so scary when your little one has to have surgery. They sent a packing list for the hospital. They even sent a care package for my son. It was so thoughtful! Cranio Care Bears is a wonderful resource and I am so thankful it exists.

Cranio Care Bears is an important support group. They gave me a community that I didn’t have where I live. Thank you Cranio Care Bears!

Cranio Care Bears is truly a wonderful organization that not only helps to ease the stress of hospital stays with their thoughtful care packages but also through the immense awareness they spread for Craniosynostosis. Awareness is key!

Cranio Care Bears have always been there for my Cranio warrior and our family. They not only provide care packages for children facing surgery but a safe place full of support and advice. They really are the heart of our Cranio community ������

Cranio Care Bears was there for me and my family in the scariest thing we have had to go through. Not only did we get a very kind and generous care package, but they also checked on is while we were in the hospital. They made sure we didn't go through this alone.

Such an awesome charity! Sending care packages to kids before they endure major surgery. It’s a great support to the parents in the time they are so scared! And they have become a good support system over the years!!! Love these ladies and all that they do for our Cranio community!!!

The most loving and kind hearted two mommies ever! The amount of time these two ladies give just to help others is amazing!

They make you feel like you aren't alone in the journey. They brought joy to us in the days leading up to surgery when joy was hard to muster up. Thank you for all you do!

Cranio Care Bears helped our family through a very tough time with such knowledge and understanding of what we were about to encounter. I suggest to anyone I hear that has to go through the cranio process with their child to make sure to sign up with cranio care bears. Their dedication and selflessness is something to be proud of!

Their care packages are so helpful when going into the hospital, I swear they remember everything that you forget. So much of their items for the kids not only are useful, but help the kids feel proud of themselves for what they're going through. Shelby will even come and sit through surgeries with the families.

This group is amazing!
Our daughter was diagnosed shortly after birth with sagital craniosynostosis and just had full CVR on Oct 17th. The care package and support in general from this group has been so helpful. They are the best!

This is the most amazing organization. Two moms who have dedicated their lives in making one of the darkest times for a family, brighter. This organization sent my beautiful baby girl a loving care package just before she had a cranial surgery. The love that goes into each box is obvious. I believe that there are few others that selflessly give their time and dedication long after their child's surgery is in the past. That is not the case with the Shelby & Summer.
Thank you Cranio Care Bears.

Amazing organization! Summer even came to the hospital and was there for me when my little one was in surgery!

Cranio Care Bears was there for me during one of the most difficult times. They send my son a care package for FREE to help help console us while my son was in the hospital!

Amazing ladies! They have helped us by sending care packages for a few of my daughter’s surgeries!

Amazing group! They provide a great support network during very difficult times for families. So grateful for them!

Our smaller twin was diagnosed with bilateral coronal craniosynostosis at 12 months old. Everything was happening so fast, he was scheduled for surgery 1 short month later after his diagnosis. Cranio Care Bears sent us a care package filled with such sweet goodies from toys, blankets, and sleepers to toiletries and snacks for us parents. When Aiden had his second surgery just 3 short months later, they sent us another care package. We take his prayer ribbons to all of his surgeries and the hang above his crib. He loves snuggling his blankets he recieved and so does his brother. We couldn't be more thankful for this wonderful organization!

Cranio Care Bears is an amazing nonprofit that supports families who’s children have a condition that most people have never even heard of. I know I didn’t until my son was diagnosed. They not only have ton of educational information to help you but they offer true life stories and journies of other familes who have been in your shoes to offer help. The support I have gotten from the care bear community has helped my family greatly!

Such an amazing group! I love the personal shout outs for the littles who are having surgery so that we can pray for them. The care packages are such a lovely gesture!

When my son was diagnosed with cranio I was devastated, I felt like I was alone. Until his dr mentioned cranio Care Bears! I immediately went home and found them and requested a care package. When it came it was a huge relief, i suddenly realized I wasn’t alone and to get this care package meant the world! The time and dedication these lady’s put into these is astounding. And to do it all off donations and their own money is unbelievable! We love cranio Care Bears

Cranio Care Bears helped us through one of our darkest times, when our 12 week old baby had surgery on his skull. This group provided us with a free care package with thoughtful items to help with our hospital stay and recovery from surgery. The kindness and thoughtfulness of the care package was so uplifting and encouraging in such a worrisome and stressful time. They are such a thoughtful and giving group and they touch so many lives in time of need. I've added a picture of our unopened care package and a picture of my son on our way home from the hospital wearing a hand made hat he received from Cranio Care Bears.

Cranio Care Bears supported my family through a very uncertain time. We had never even heard of craniosynostosis when our son was diagnosed. Being told your baby has to have their skull taken apart and put back together is, to say the least, scary. Summer and Shelby are so accessible and kind. Small things make a huge difference when you are at the hospital - their care package carried us through from surgery day to discharge. We taped his prayer chain to his hospital crib and so many people remarked on how neat it was. I read it many times over on the long nights as he recovered from surgery. Cranio Care Bears is a standout example of a non-profit that truly makes a difference. ❤️

Finding Cranio Care Bears while preparing for our sons son's surgery was a true blessing. The others parents stories gave me so much hope & strength and our care package made me feel taken care of when my complete focus was on our son. I'm forever grateful to this organization and all that they have and continue to do for the cranio warriors and their parents.

Cranio Care Bears is truly amazing!! My son was 11 weeks old when he had to have his first surgery then at 10 months old had a second. It was so scary having such a little one have to go through surgery an not knowing what to expect. Cranio Care Bears does amazing things, hearing their stories, and reading all that they have on their website made things easier. The care packages they sent out for my son Bentley was a blessing. They even write prayers for "child's name" on the out side of every package. And they send these goodies out for FREE! They send things for baby and parents. From hand made beanies, prayer chains, toys, socks and PJs that zip or button (which is a life saver for after), toiletries an candy for the long wait in the waiting room. Cranio Care Bears does amazing things and they make you feel not alone during the journey with prayers and love in every care package they send out. My family have been on this Craniosynostosis rollercoaster for almost a year. Bentley has had two surgery's and recieved a package for each one and I'm still amazed on what all they send each child in the care package. I am a proud Cranio Mom an I love all that Cranio Care Bears does for the Cranio Warriors an their family's.

Our family had never heard the term "craniosynostosis" until the birth of our beautiful granddaughter. We were scared, confused, and felt as though we were completely alone confronting this condition. Cranial surgery? Blood transfusion? It was terrifying. Days before surgery, our daughter and son-in-law received a care package from "Cranio Bears." The package contained items, both personal and practical, that would help them through that overwhelming week. This wonderful support group was founded by two mothers whose children made it through their own surgeries. Their Facebook shout-outs to children and their families all over the world on the eve of their surgeries provide inspiration when it is most needed. The outpouring of support and prayers brought tears of hope and encouragement. We were not alone and we can now pay it forward to support other families. This organization educates and is doing incredible things with grassroots parental initiative. There are all kinds of gift items that raise awareness and raise hope. There are modest funds raised, but they are deserving of so much more recognition and funding. I'm not sure how we would have surmounted that feeling of fear and loneliness without Cranio Bears.

Cranio Care Bears does such a great thing for families like mine who have children undergoing surgery. We were so happy to receive a package before surgery with hospital necessities, and clothes for our little one. We’re so thankful for this organization.

My son was diagnosed with sagittal craniosynostosis at 4 months of age. It was a very scary time in our lives. First time parents facing a diagnosis we had never heard of. Thankfully I stumbled across a large Facebook community of parents who have had the same or similar experience as my own and they directed me to Cranio Care Bears. Receiving their care package just days before his surgery was so comforting. It was so good to know that there were other people out there who cares and we’re prayinf for our son. We don’t have any capable family near us, so receiving that package was like having a family member watch over us.
Thank you Cranio Care Bears for all you do!

When we received the news that our tiny baby would need cranial surgery we were scared. We found wonderful information, support, and a sweet care package to help our child through their hospital stay! We can not thank them enough for the prayers, support, and encouragement as we went through testing, diagnosis, surgery, and recovery!

Craniosynostosis?What is that you may ask because you have never heard of it before. That is exactly what I thought. Until you deal with this diagnosis you don't know the fear of the surgery and process surrounding it.

This is where Cranio Care Bears comes in. You request for a care package when you get your surgery date. They send out the most amazing package for YOU and your little one. The thought and care that goes into each one is awesome. It includes everything from a prayer chain to ibuprofen and a baby hat.

This organization is run by two moms that have been through the cranio journey. They do it from their homes on their time. They started it because when their children went through it there were no resources or support groups.

I can not say enough great things about this non-profit. They are touching so many lives in such a positive way.

CranioCareBears provided so much support and encouragement in the months leading up to our daughter’s surgery and during her recovery. They connected us to a network of families going through similar things which gave us much comfort and they continue to work to bring the community together!

Cranio Care Bears is an incredible organization. They showed so much concern and care for our family when my son had to have surgery due to Craniosynostosis (premature fusing of the sutures in his skull). They sent a care package to our home a week before his surgery. It was so nice to feel love from other moms who have gone through the same process :)

They provided comfort and excitement in a time of panic and confusion. It inspired me to give to others and made meaning change in my families life as I understood how little it takes to make a substantial difference in the world.

When my son was diagnosed with craniosynostosis I wasnt sure where to begin looking for information. While searching for more information online I came across Cranio Care Bears, there was tons of information and I was able to read the stories of others who have been through this and it gave me so much hope. The care package we received before surgery brightened our day! We are almost two years post op and we still have the prayer chain hanging above my sons bed. Such a wonderful organization!

At two months old, our son was diagnosed with craniosytosis, and underwent a successful surgery two weeks later. My sister-in-law found this non-profit and within a few days, we received a very personal care package. This special gift of support was filled with everything we could have hoped for. The handmade prayer chain still hangs in room next to his bed. Knowing that our son was in so many people’s prayers during this very difficult time was so comforting. Thank you Cranio Care Bears!

My little boy had CVR surgery in march of this year. Cranio Care Bears sent us a care package the week before surgery and it warmed our hearts! Such a selfless act of kindness for those of us who are nervous and scared. God bless them!!

When I was dealing with the diagnosis of my daughter I was lost. I had no idea where to go or what to do. Someone suggested to me cranio care bears as a resource. I connected with Summer and she was simply amazing. It ended up my daughter did not need surgery but Summer was willing to offer support the whole time. This is an amazing charity who I have told many many people about.

My son has not went though surgery yet but i will be ordering a care package when he does and im sure it will be as fabulous and caring and help us though are diffcult journey to the other side they seem like the care and put so much love and time into rhe packages that they do

My niece has Craniosynostosis. She had surgery 1 year ago. and the care package that they sent to her was awesome it let her parents know someone cared. I support Cranio Care Bears

I cannot say enough about Cranio Care Bears and how they helped me and my family during one of the most difficult moments of my life. I happen to live near Shelby and she not only hand delivered my care package, but also spent time with us while my son was in surgery. Our care package was filled with so many wonderful items that made our stay a little easier like deodorant, snacks and a going home outfit. Our prayer chain still hangs in my son's nursery. We are forever thankful for this awesome organization and the amazing women behind it!

Cranio Care Bears sent us a care package before my son's surgery. It was filled with so many meaningful and helpful gifts. We treasure the prayer chain and still keep it hanging on his bed. My son loved the toys and books and little blanket. I loved the handmade scarf because not only was the hospital freezing, but also when I was feeling low and alone, it reminded me that someone took a lot of time to make something really special, and I wasn't really alone at all. The slippers, the candy, the adorable pajamas, all of it was exactly what our family needed. We are grateful!

My grandson, Felix, is a cranio warrior. At a time of anxious and fearful anticipation of his surgery this wonderful non-profit shared comfort, stories, reassurance and a care box with my daughter. What a wonderful service.

Finding out your child had anything wrong with them especially at infant age I s devastating. Being able to find a support system, positive stories and information on this defect is everything. This non profit is able to provid all of that. We are so thankful for everything cranio Care Bears has done for us and does for many families dealing with their sweet cranio children.

When my daughter had to have a cranio surgery these wonderful ladies sent her a care package to help ease the thought off surgery. They go above and beyond to make many families feel so loved, such a wonderful non profit. Truly a blessing!

When our son was diagnosed with Sagittal Craniosynostosis, we were so overwhelmed and nervous. The Cranio Care Bears were an amazing support to us in the months leading up to our son’s surgery date, and the care package they sent us was so thoughtful. It truly helped alleviate some of our worries, and helped us feel like we weren’t alone in this journey. We can’t say enough good things about this incredible organization. Summer and Shelby, you are amazing, and your work is so appreciated.

They are great. When my daughter had surgery they sent her a care package with pajamas, a blanket,hat,socks,and a toy. They also sent small essential toiletries and snacks for my husband and I to pack for the hospital.

During such a hard time learning our child was going to need surgery for craniosynostosis ,it was so special to learn that there was a whole community of people who had been there, and were praying us through. We are beyond thankful for Cranio Care bears!

The Cranio Care Bears provided our family with comforting items for my husband and I and for our son before his surgery at 4 1/2 months old. It helped us feel not so alone in such a scary time.

As soon as my baby was diagnosed with sagital cranyosinostosis I stated looking for information that would clear all the doubts I had. I came across cranio care bears an awesome organization. I found out that what they do apart from spreading awareness about the condition is to send a care package to families. Ours included things for me to bring to the hospital along with pijamas, blanket and toy for my baby which he loved. Receiving our package made me feel special knowing that someone is taking the time to do something this nice to try and make our difficult time more bearable. I really appreciate the prayer chain full of good thoughts for our family and the card we received sending prayers for my baby.

Cranio Care Bears is by far the most generous and caring charity I have encountered. Faced with this terrifying diagnosis with our son, Cranio Care Bears provided such comfort in a huge time of need. Words cannot express my gratitude for this organization

Great organization that provides care packages for free to families with a child undergoing craniosynostosis surgery. The packages have items for you and your baby to use while in the hospital and range from a blanket to toothpaste. So helpful when you’re overwhelmed with you child’s surgery and forget to pack something. By far the best was the prayer chain, we still have it hanging in our child’s room. Shelby & Summer are both very kind and responsive too!

My son Dominic was diagnosed with Craniosynostosis and had a CVR in March, a parent from a support group recommended contacting the Cranio care bears charity which I did, they were very supportive and sent me a care package all the way to UK, the work they do for these kids is fabulous and is good for parents too as it is a worrying time.

Mein Kind hatte eine Frontalnahtsynostose. Ich habe von dieser Organisation über Facebook gehört und ein package angefordert. Es waren tolle goodies drin. Ich fand es super, dass man mit dieser Krabkheit nicht alleib ist und so wussten wir immer, es sind noch andere betroffen und es gibt Menschen die uns unterstützen und an uns denken.
Wir haben nur durch Zufall raus gefunden, was unser Sohn hat. Die Kinderärztin hatte davon noch nie gehört. Leider kein Einzelfall in Deutschland.
Ihr seid toll, macht weiter so

This organization got me through one of the worst times of my life. The care package that I received before my sons skull surgery meant more to me than they will ever know. It’s little things like the prayer chain, the journal, the socks that I never would’ve thought about packing for myself, the candy and the card with the prayer on it. What an amazing group of women that want to support fellow crania warriors.

This organization provided comfort for my family during a trying time when my son was diagnosed with a rare skull condition. Their touching generosity is why I give back to this organization - every single year.

We love this group! They were so kind and willing to answer any questions we had before our son’s surgery. They also sent out a free care package that was AMAZING! It had exactly what we needed.

Cranio Care Bears is an amazing non-profit. They provide personal care packages and beautiful linked ribbons decorated in prayers for children having skull surgery. The most amazing thing about this non-profit is that is run by two mom's who's children were affected by craniosynostosis. In addition to the care packages they spread awareness about cranio and connect families and parents in need of support. Most people do not know what craniosynostosis is until it happens to their child or a child they love and its amazing to find this group to lean on for support during hard times. They have put a smile on our face more than once and we are so blessed to have stumbled across them!!!!

They are the best .. When my grand was going to have surgery the package wouldn't make it to the house so they sent it to the hotel the day she arrived. Love these people

My 3 month old son just had surgery for Craniosynostosis. Cranio Care Bears sent me a wonderful care package with things for the baby and for our hospital stay. It helped us feel more prepared and that someone genuinely cared.

This is by far the best thing I have ever done. I found out my daughter needed surgery when she was 2 months old. She didn't get to do surgery until 5 months. During that time I was crazy stressed and just over all a mess. Shelby found me on a Facebook page and I got sent over to this charity. The care package gave us something to look forward too, and when surgery came and we got it, it was worth the wait. We had snacks, tea, hygiene products, and omg socks! While trying to pack I was a wreck and packed all the wrong things and forgot hygiene products and socks. Hospital floors get super cold! It was so helpful in more ways than one, the ladies that do the packages do it from their heart, and it shows. They still reach out to see how we are doing. It's not just a package your getting, it's support! Thank you cranio Care Bears!

This is truly an amazing organization. They helped us get through a tough time. Thank you!

A great organization that has helped my family and 9 week old son who had to have surgery. So thankful

They are very caring and helpful. Thier organization shows love and support to families in need.

Cranio Care Bears offered us a tremendous amount of support at a time when we felt very much alone. Having a child diagnosed with a relatively rare condition is very isolating and it was so nice to have a group pull us in and offer support. The care package they sent for our daughter was a bright spot at a challenging time - it was so nice to have that extra support!

This group is amazing. We found out that our one month old son needed surgery in less than a months notice for something we had never heard of. This group helped educate us, connect us to a community of others who have been through the same thing and to top it all off, sent us the most thoughtful surgery care package that has me crying tears of joy that there are strangers out there willing to help support those in need without any asks back. I am so grateful and they have inspired me to pay it forward. XO

This group helped up get through the most difficult time in our child's life. they went above and beyond what I thought with their website and support package we felt more prepared for our difficult journey. I emailed question about recovery after the fact and was responded to within the day! I love cranio care bears!!

With something so stressful going on with my baby it was extremely comforting to have this care package arrive in time to make me feel prepared, comforted and not alone. These packages are put together by people who have been in my situation, they understand. I can't thank them enough!

My grandson is afflicted with a rare form of craneosynostosis. I consider myself well educated, but I had never heard of this birth defect. Their information is enlightening and the help parents and caregivers receive is invaluable. This group is supportive and giving. I cannot thank them enough for the encouragement and support they have shown my daughter and her family as they navigate an unknown highway called Craneosynostosis.

A beautiful group who send love, help and care to so many.nothing is worse than laying your baby. Into the arms of a surgeon. They sent my grandson a care package free of charge all the way to Australia, filled with toys clothes, prayers and thing for mum too . I was so impressed I reimbursed them the money for postage and have donated in other ways too. They have a book that I have purchased to help my grandson and his big brother can understand craniosynostosid. They are always available with advice.n

When my daughter was diagnosed with craniosynostosis, I researched everything I could on it. I finally found craniocarebears! Through them I was able to see other people's stories and talk with them about their experiences! The creators of this organization kept in contact via email (without automated replies!) which meant so much more getting to know them on a personal level. Their care package meant so much to my daughter and me. The items were everything we would need at the hospital along with items to make my daughter smile in a not so happy time. Everything about this organization is wonderful and they will always hold a special place in our hearts! They are such great people with big hearts!

Cranio Care Bears is an awesome organization. When my son was diagnosed with cranisynostosis they mailed me a care pack with some many useful things. I felt like I had a great support system thatnks to them.

My baby boy was diagnosed with sagittal and left coronal at birth as he was rather disfigured. The care package for his surgery was wonderful and uplifting, to think a charity in the US can send something to the UK for free is amazing. The items arrived when my friend was here and made her cry!! Thankyou for your support! Xx

My son was extremely late being diagnosed with a birth defect that should have been caught and surgically treated in infancy. As a result of it having been missed for almost 9 yrs my son has suffered many struggles from severe speech delay, language based learning disabilities, headaches by 8 yrs old and a serious academic regression at the start of grade three. Now suspected seizures. For yrs we suspected autism and had 3 psychological assessments done. He is nowhere on the spectrum. Almost 9 and still running for answers. Finally the scariest diagnosis. Skull reconstruction is the only thing to release the Internal pressure in his skull, hopefully releaving the pressure and stopping his debilitating headaches and allowing him for the first time, some quality of life.
This organization with their thoughtfulness and outreach of support at the scariest time of our lives, has helped make a scary and uncertain time, one that was a bit more uplifted with a light at the end of the tunnel.
There are no words to express the smile it brings to the face of a Mom facing such a difficult road ahead.
Cranio Care Bears, Thank You.

My daughter was diagnosed with sagittal craniosynostosis at 3 months old. i came across this charity while trying to find some info which is very scarce.As us cranio moms know it is very hard to find information and support and this organization is doing just that, offering valid information to the anxious parents and showing that someone out there genuinely cares and is here to offer support and so much more. I personally know nobody that has gone through what i am with my child so real support is hard to find. These two woman are truly amazing. I am very appreciative!

When our son was diagnosed with sagittal craniosynostosis the day after he was born we were completely overwhelmed and distraught. We found Cranio Care Bears online and that was the beginning of feeling like we were not on this journey alone. Their website had success stories that made us feel supported and loved. Our son received his Cranio Care Bears package 10 days before his surgery and it brought us all to tears with the amount of generosity and caring that went into the package. It had clothes, blankets, toys, snacks for us, chap stick, and many more items. Most amazingly it included hand written ribbons that formed a beautiful prayer chain that we could place on our sons bed as well as advice on what to pack. They really go above and beyond and the love they spread is amazing.

Our son was diagnosed with Craniosynostosis, but we were pretty sure that was what was going on before the diagonisis through our own research. We found Cranio Care Bears and what a great organization it is! The support they give to families during such a stressful and scary time is invaluable. They make it so easy to donate back and when you do it, you know exactly how you are helping others who are in the same boat as you!

They have provided so much information that we need in a time that is very scary. Thank you Cranio Care Bears!

My granddaughter was diagnosed with metopic craniosynotosis when she was 10 months old. She had her operation just after her first birthday. The time in between and shortly after her surgery was very scary. We never knew about Cranio problems but we came across Cranio Care Bears when searching for answers. Not only are they educational but they send care packages that are crammed with items for baby and the parents. Cranio Care Bears is a Godsend to anyone with a family member facing Cranio surgery. They are angels in disguise.

Amazing organization! They help out cranio families by sending packages with prayer chains, candy, toiletries, pjs for kiddos, and many other things at no cost

Their care packages not only come with a lot of hospital essentials, they come full of love and hope. My husband and I were both brought to tears when we received our package. We were both so scared, but receiving this package, and reading the countless Cranio journeys assured us that we were not alone, & that our baby boy would be okay! THANK YOU FOR ALL YOU DO!

I can't thank Cranio Care Bears enough for the prayer, support, and our awesome care package during this time in my family's life. Cranio Care Bears was one of the first sites I stumbled upon while researching my son's craniosysnostosis--which I had never even heard of prior to his diagnosis. It was a pretty frightening time for us. Their site had links to support groups and info on Cranio. They prayed for my son from the very beginning when we were getting the confirmation CT scan to the day he actually had his surgery. I can't explain how important that support was for us--we weren't alone in any of this. The care packages are phenomenal! They are so thoughtful and practical. Our family has never had to experience a surgery before, this was all new. The packages include items for during and after the surgery that only an experienced parent would know you'd need--and so generous, and filled to the brim with encouragement and love. In our particular case, we were in a bit of a financial bind at the time of our son's surgery, so our package was a real blessing to us. I will always hold Cranio Care Bears dear. Thank you to everyone--from the donors, to the volunteers, to the fellow families who offer thoughts and prayers for each others' children through their surgeries. This is wonderful non-profit group.

I was lucky to find this website. My son was diagnosed at 2 and half months. The doctor didn't want to wait long. He wanted the surgery done within two weeks. I looked on pinterest to see if I could helmet decorations idea and I stumble on the cranio care bear website. It was so helpful to find other mom who had gone through what I was about to go through. The care package was so nice and sweet. Kolton is now 10 months post op and he is the wildest little boy. He will climb on anything.

I was lucky enough to stumble upon this website the day of my sons cranio surgery. Summer replied to my care package request very quickly with kind words and blessings for my sons surgery and quick recovery. The package they sent is so amazing and appreciated. It is so amazing to me all the work these two angels put into the packages and emails that they send to families all over the world. What a wonderful program this is.

I hold Cranio Care Bears near and dear to my heart! I have been extremely fortunate to have met both of the founders. They have the most huge hearts! The care package was packed with so much love and was tremendously useful during our hospital stay. I cannot say enough good things about them! If I could give them more than 5 stars, I would!

Cranio Care Bears was the friend my family most needed during the weeks and months surrounding my son, Calvin's, diagnosis and surgery. The website shared success stories that gave us hope, the care package was delivered full of useful items for us, Cal's parents, for Calvin, and a prayer chain that we all needed for strength. This is an amazing organization and I can't imagine how we would have coped without them.

I cannot begin to express how grateful I am to Cranio Care Bears. There was so much support both emotionally and educationally... I don't know how I would have gotten through the wait from diagnosis to surgery without the support. The care package with recommended packing list for surgery was great too!

The Cranio Care Bears organization...I get choked up just thinking about the comfort they brought to me and my family in the months leading up to my sons CVR surgery. The success stories, the before and after pictures and the informative tabs on their web page prepared me for the Cranio surgery and the care package, the care package was the most beautiful gift I have ever received.

I open the mail and here in this little box are all these small incredibly meaningful items. As I took each one out I knew a parent/caregiver made this box or made the box possible. There were tea packets and chap-stick, pain reliever and socks. The list goes on. It may not seem like much if I list the items to you but trust me when I tell you it grabs a hold of your heart. Just knowing that at some point the person who put this box together felt the same exact anxiety, fear, hope and pain that you feel in anticipation of your child's surgery is comforting.

The prayer chain is beautiful, it provides a sort of strength that I cannot describe. It went up on his hospital bed then onto his stroller as we made it home. It now hangs in his nursery. It is cherished.

I will never forget the support that made its way out of that little box. Thank you! Thank you! Thank you!

Cranio Care Bears was amazing during a very difficult time for our family, what they do really makes a difference. The care packages are great!!

So thankful for the awesome care package they sent prior to my son's surgery!

The most amazingly helpful and supportive group! Cranio Care Bares helped us during the toughest time of our lives - our 2 month old baby's skull surgery! Cranio Care Bears sent us a wonderful care package filled with goodies that we used during our hospital stay while our baby was in surgery and later recovering. They also have a facebook page, which is updated daily. The people running Cranio Care Bears are the most caring, selfless, and hardworking people I've met. Thank you, Cranio Care Bears! You bring hope and inspiration to all of us!!

Cranio Care Bears helped us during the toughest time in our lives as first time parents to a precious baby girl. Our daughter was diagnosed with multiple suture craniosynostosis soon after her birth and the shock and fear was total. She had her surgery, which was a success, when she was four months old. The care package we received from Cranio Care Bears was touching in many ways; what an amazing feeling to know that people across the world were thinking and praying for our little daughter and us!

We got an amazing care package from these amazing women prior to our son's surgery. Not only did we receive products we would need while in the hospital (toiletries, snacks, pjs,) we also got a list of suggested items to pack, toys for our son, a prayer chain, and a notepad to journal in. The care package was such a thoughtful way to show we were not alone and provide things we would need! They asked for prayer the day of surgery via Facebook and followed up with an email after surgery to see how he was! Family donated to cranio bears and they sent us an email letting us know. I also love being able to buy bibs, coffee traveling mug etc in honor of what our little man and to know the money goes to a great cause. I think they go above and beyond caring for other moms who were in their same situation years ago!!!

My William had cranial surgery about 8 months ago. My husband and I were extremely worried and in dread of all our child would have to face. This wonderful organization provided love, support, prayers, awareness, a forum for connection with other parents and a sweet care package including a prayer chain which we treasured. The support, love, caring helped us get through this incredibly hard time.

my son had cranio surgery and the kind ladies of the cranio Care Bears sent a care package that far exceeded my expectations! cranio Care Bears is the best organization I've ever had the privilege of knowing about! so grateful for all they do for famiies like mine!!

Cranio Care Bears is a wonderful organization run by people who truly care about each "care bear" they serve. My nephew is a cranio kid and had his surgery several months ago. Cranio Care Bears sent my nephew, brother and sister-in-law some goodies and words of wisdom before his surgery. I know my brother and sister-in-law truly appreciated the support, advice and encouragement they received from this organization. Each child is treated with love and you can feel what an inclusive and warm family this organization creates. I love this organization and will be donating to them each year in my godson's honor. Thank you, Cranio Care Bears!!

Cranio Care Bears is an absolutely incredible organization there for our family in the scariest time of our lives. The volunteers behind the scenes do an incredible job creating the care packages and sending such love and support during the darkest days. We couldn't have made it through our craniostynosis diagnosis if it weren't for the support of Cranio Care Bears

The organization Cranio Care Bears is so special! From the support, to the care package, and follow ups they have been great! The email that I just received from them was so sweet, they truly care about you and your child! You don't find people like this in the world these days. I just wanted to make a shout out to such amazing people! Thank you so much for everything Cranio Care Bears! SO Happy to have had your support to help make this journey easier! Happy to be on the other side! ~From Metopic Cranio Mom.

The ladies at CCB are wonderful! When my daughter was diagnosed in 2008 it was probably the scariest moment of my life that far and i faced it alone with no one who could be a listening ear on the many nights i cried wondering why my baby, but she made it thru just fine and our life continued on as normal as it shouldve. then in spring of 2012 she started having severe headaches and back to the drs we went only to find out that she would have to undergo not only one more skull surgery but 2 and that overwhelming feeling that id felt 4yrs earlier returned but thus time i yped into the search box on Facebook "cranio" and up popped an entire screen full of pages that were set up as support bwtwoeks for parents of cranio kids. it is there i git in touch with the ladies at CCB and they were absolutely wonderful, when i had questions they were always quit k to help did an answer if they didn't know it already and the day that my little girl went in fir surgery they made sure to talk to me to see how things were going...they were a great support system! They also sent my little girl a wonderful care package before her surgery that had lots of cool things for her to do during her stay at the hospital and goodies that she loved so much....My emotional well being during my daughters 2nd and 3rd and ICP bolt surgery was so much better than the first time around and that is all because of the wonderful ladies at CCB and all the other wonderful families i have met because of the network of support that is now there....

What a wonderful organization! We received a care package last summer when our son had his 2nd surgery. Not only do they send care packages to patients undergoing surgery, they are an amazing resource for information for the various cranio conditions and support!

Cranio Care Bears is by far the top resource moms like myself have for not just support for families with cranio kids but as a place to reach out and share experiences with other families. Before my daughter was diagnosed I had never heard of craniosyntosis. This organization was a life saver to me when I felt the most lost I had ever been in my lifetime. I can not imagine what I would of some without the wealth of information they provided and the love they share for all kids and families going thru this same process.

I don't even know where to begin on writing a review about how WONDERFUL CCB's is. I was born with craniosynostosis 25 years ago and my parents had no knowledge or support during such a tough time with surgery. One year ago I gave birth to a beautiful baby boy who was also diagnosed with cranio. I fortunately had CCB's to turn to for information, care, and support. While on the toughest journey of our lives, CCB's showed us that there are many more families facing the same troubles and that they would be there for us!

This charity gives hope to those who are effected by a condition that is at first scary, and hard to understand. They spread awareness, connect families with other resources, and offer emotional support. I am so grateful for the cranio care bears, and all that they do. Giving a parent hope over their child's condition has more value then words can ever express. It enabled me to for-see a a bright future for my son, when certain doctors even were unclear. Thank you!

Cranio Care Bears are an absolutely amazing organization. I feel blessed to have found them when I was scared out of my mind at the thought of my son having Cranio. The care package we received brought us such joy in such a dark time . I just can't say enough wonderful things about them!

Carenio Care Bears is an organization dear to my hear...I thank them everyday being there for me every step of the way when i needed someone the most...my baby was diagnozed with saggital craniosynostosis at 2 months old and underwent surgery at 4 months...when we found out that she was diagnozed with craniosynostosis we had no idea what to expect thanks to cranio care bears and their support we were able to get through the surgery...their care packeges are amazing and brought nothing but warm and secure feelings to our heartsl...even after my baby's surgery cranio care bear was there for me to answer questions and just to make us feel better when i break down....thank you cranio care bears for everything you do and what you stand for.... the most amazing thing in their care packages is deffenatly the prayer chain....you hold a spacial place in my heart....thank you, from the Lopez Family from New Haven, CT

This charity has been a wealth of support,knowledge sharing and preperation for our family while we deal with our sons craniosynostosis.

When our son was diagnosed with right Lambdoid Craniosynostosis I did what any parent does in that situation and Googled everything I could get my hands on. When I came across Cranio Care Bears it was so full of information and support! Then when I heard they provide care packages for families going through surgery I was thankful to know that someone cared enough to think of my son and our family through the process. I was overwhelmed by the beautiful care package we received. Summer and Shelby were godsends for us at a time we really needed them! Thank you ~ Amy Greathouse

As a new mother, the thought of your child having a major surgery at just a few months old is terrifying. I am so glad I found Cranio Care Bears online! I was inspired by the strength of the families that had already gone through what we were about to experience. The support we received from these families and from Summer was incredible! Summer brought an amazing care package to the hospital. She was so encouraging and positive during her visit. We are so grateful for Cranio Care Bears!

Cranio Care Bears is such a fabulous orginaziation. When my son was diagnosed earlier this year I had no idea what Sagittal metopic was. Because of their time and dedication my sweet baby had an awesome care package, and I learn so much.

Cranio Care Bears are amazing! We were given a week's notice for my son, Liam's, surgery. The care package arrived two days prior to his surgery date. Everything in the care package was very nice.

These ladies are truly a gift!! Seeing first hand the comfort they bring to not only the child but to the family as well. Being a cranio uncle myself, my sister found a lot of comfort and support through Cranio Care Bears. We have donated several times and will continue to donate so they can help others as they helped us through a really hard time. Thanks again to all involved!!!

Words can not express how this organization has helped me in to many ways. They were there to listen and just be there during the hardest time in my life. They sent my son who was diagnosed with sagittal Craniosynostosis, a care package before his surgery filled with stuff for him and I to make the waiting and recovery a little bit better. I will always hold them close to heart and I don't know what I would have done without them. There is not enough "thank you's" in the world that can thank them enough.

Cranio care bears is fabulous. We have found great comfort from them in our sons diagnosis of metopic cranio, unfortunately here in the UK we don't have many support groups for this little unknown/undiagnosed condition. We have made many new friends and have found much support through you guys. Thank you so much. From the Goss family in the UK.

Genuinely caring people who like to help babies going through surgery for Craniosynostosis and their families. What an awesome organization.

there are no words to describe just how great this organization has been. They are truly caring and very sensitive to those facing cranio surgery.receiving a care package from this non-profit organization was definitely life changing and got us through one of the most difficult things and our lives.

Cranio Care Bears provides information, support and care packages for infants/children (and their families) going through surgery for Craniosynostosis. It is a common, often undiagnosed, condition and it's important for folks to be able to find support. My son went through this. It's not an easy time for anyone. CCB is there with kind words, support and awesome merchandise (proceeds go to care packages).

my daughter was diagnosed with craniosynstosis and i was at a loss where to look for genuine help - my sister found the cranio care bears and requested a care package for us which was amazing and so so thoughtful - particularly the prayer chain. All the items were really well thought out and just made me smile, as well as my older daughter who was convinced the package was for her (she ate the candy) and she enjoyed 'sharing' things with her sister in hospital!
we follow all their posts on facebook and their website and the stories form other parents are really helpful, just knowing other people are going through the same as you is calming

Cranio Care Bears is amazing! Our son's surgery was scheduled so fast (1 week notice), I was scrambling online doing research and found this organization. I reached out to them for a care pakcage and never imagined it would make it in time... but it did!!! It was exactly what I needed to make it though - especially the prayer chain. That lifted us all up and got us through the worst experience of our lives. I can't tell you how much it helped knowing there are complete strangers out there that had gone through this and cared so much about us! They are the BEST!

The day our doctor told us our 3 month old son had craniosynostosis it felt like my world was crumbling. I couldn't even say the word, let alone understand what it meant for our family! Finding Cranio Care Bears was a true gift - almost immediately we began to understand that we would make it through this. It was going to be difficult, for sure, (and it was!!!) but the testimony of so many others that our beautiful boy would be just fine was lifechanging. The love of total strangers to send us a care package full of thoughtfulness and prayers was a true gift. I loved hanging the prayer ribbon over little Luke's crib in the hospital - so many people remarked on how special it was, and I loved being able to tell them how many people were praying for him - including all the network from CCB! Thank you!

Cranio Care Bears provided my them 5 month old daughter a wonderful care package for her cranio surgery. The ladies also provided much needed and greatly appreciated support to me during and after surgery. They are awesome. My daughter is almost 6 months post op and still uses the blankie they provided her in her care pack.

Thank you Cranio Care Bears for your help getting us through our surgery. Cranio Care Bears are an amazing organization, with members that truly care about what they do to help. The gifts that we received helped us understand that the organization knows what they are doing and has been in our shoes. From the stress ball that we held during surgery to the toiletries that we forgot because our mind was somewhere else. The prayer chain that we received still hangs in our daughter’s room. Summer was so helpful helping us understanding next steps. It was wonderful to have her visit us in the hospital. Thank you for everything.

When my son had a 7 hour cranial surgery last month, Cranio Care Bears sent us the most wonderful care package. It made such a difference with our hospital stay. There were snacks and toiletries for us parents, and there were little toys and kid toiletries for my son. There was a handmade hat for him and a scarf for me, and a really cool "tough guy" pj set for him. We received a prayer chain with messages on each ribbon link, and all our nurses commented on the wonderful chain. When our family was feeling stressed and miserable, this packaged helped us remember that people from around the country cared about our son and were sending us love and prayers. It gave us strength to make it through a tough time. Thank you, Cranio Care Bears!

Cranio Care Bears are an amazing organisation, helping families in need all around the world. They not only provide products for the child and parents but also assist families to understand what Craniosynostis is and how it can affect a child's health.

Cranio Care Bears was there for me for support and they sent my family a wonderful care package. It was a difficult time and when a mother is told your child will have to have surgery for crainiosynostosis- the world around you stops. After that I went on the web to research what I could to better understand what was about to happen to my little baby girl and how will this impact my family. Cranio Care Bears was teh first web site I came across and then i was forwarded to others. This is the most caring organization and I dont think they will ever know how they helped me.

This is the most caring and genorous group of women I have ever had the privilege to know. They help so many scared and worried kids and FAMILIES. They spend countless hours putting together prayer chains, packages and so much more. They try and send a care package to each and every child who is affected by this deformity. I love to watch them post pray request for each child facing surgery the next day. They also post updates on the childrens progress. They are so willing to answer ANY question you may have and if they dont have an answer then they point you in the direction to where you can find the answers. Thank you guys so much for all the love and support. This journey would be very scared, dark and lonley without you guys. Truly a blessing from above!!!!!

my daughter is having surgery for right coronal craniosynostosis and since i found out and found cranio care bears they have been amazing!! ive never met two women, people for that matter, that care so much about other people, their children, what their going through, and making them feel that their not alone and that people are there for them, as much as these two ladies that started cranio care bears do!! if it wasnt for them, idk where id be or how id feel. im scared about her upcoming surgery tomorrow but because of them i feel better, not alone, and ive learned so much about what craniosynostosis is and the surgery for it. ive met lots of other parents that are there with me! other then the support they give, cranio care bears sends out these awesome care packages and they are huge full of so much stuff all for free for anyone all over the world that has a child/baby going through surgery!! they truly are amazing!! we love u cranio care bears!! thank u so much!!

Cranio care bears are amazing!! They sent us a care package to Mexico, the package arrived one day before the surgery, all the stuff in the package was perfect, and the prayer chain made us feel so special in every way, Thank you cranio care bears!

We love Cranio Care Bears. We received a care package before our daughter's surgery and it was wonderful. They try to provide some necessities for the hospital stay and some personal, encouraging, and thoughtful items for the child and parent - support and hope in a box. Beautiful.

Cranio Care Bears helped my child and I get through a tough time by making it a little brighter and to know others are out there!

Cranio Care Bears is a cranio parent's dream. They are personal, geniune, and super caring. Their care packages are sweet, convenient and helpful, and they offer a TON of support in any way possible. I love that my son and I can also order clothing and other items to bring awareness! CCB is wonderful and I have never had a less than perfect interaction with them!

Cranio Care Bears, what a wonderful human initiative! To parents awaiting surgery of their precious children, Cranio Care Bears send packages with carefully selected items that will be needed in the first couple of post-surgery days. Each of the items - hand made baby cap, colorful blanket, baby slippers or lip conditioner and socks for mommy - is a token of care of mothers who have been there, who know from their own experience what are parents whose children are going through a craniosynostosis surgery going through, both physically and mentally. Thank you again for sending my son a simple yet important package as a sign of human care that lacks so much these days...it felt like it was a package send from a dear cousin living far away, and yet knowing what we need and caring for us...You are really great!

A few days after my daughter was diagnosed with lambdoid and coronal synostosis I was so lost and fearful. While searching on the web I found Cranio Care Bears and immediately found comfort in knowing that their was a non-profit that truly cares about our little ones. Finding other families stories on their website that were on the healing side of the process of surgical correction provided me with such comfort. A few weeks before my daughters surgery I requested a care package for the hospital. When it came in the mail I was incredibly touched and the products that were provided were just what i needed to take with me while we stayed in the hospital for 5 days. It was one of the toughest days of my families life and definitely for my little Dyllan, but i new that we would get through it because I saw other families through Cranio Care Bears that had beautiful success. They do Gods work and I am eternally grateful. I will never forget looking up at Dyllan's prayer chain and thinking about the people that were behind the prayers. It gave such comfort. I still wear my fuzzy pink socks that were provided. Dyllan wore her Carters sunsuit until just a few weeks ago in California. God bless Cranio Care Bears for all of their love they show to all of our families that face this scary process.

My twin boys were both diagnosed with Craniosynostosis. Cranio Care Bears provide much support via a care package but also through messaging, their Facebook group and website. This group is wonderful and and is run with much love and very organization. They assisted us so much in our journey. Thank you!

Cranio Care Bears is an amazing organization. We were so thankful to have found them when my daughter Ellee was having her surgery to repair her cranial synostosis. Another mom told me about them, and even though we were in surgery at that moment, they still sent her a care package and made sure to pray for her and support us through the recovery time. Thank you all so much for what you do! May God continue to bless this ministry!

Cranio Care Bears was the first support source that I found when I learned at my son's birth that he would need surgery on his skull for a condition I had never even heard of. I reached out and this amazing group of people helped me through the scariest time of my life. What Shelby and Summer do is so inspiring and just so wonderful because although the items found inside of the care packages are so nice and thoughtful, what I felt when I opened that box was hope, and you can't put a price on that! It is a beautiful thing they do for cranio kids and families!

Cranio Care Bears was a tremendous support to me when I learned that my son would need skull surgery.. They mailed me the most amazing care package before his surgery and they are extremely helpful in raising awareness of craniosynostosis.

The Cranio Care Bears are truly remarkable. They have brought to light a condition that most people have never even heard of, let alone affected by it. For the many people they help with spreading awareness and in shipping care packages, they have shown these people that they are not alone....that there is an amazing support group out there for people just like them. Not only have the Cranio Care Bears made very difficult situations for families easier to take on, they truly care and want to show the world that. Can't thank them enough for what they do!

We were the happy and thankful recipients of one of Cranio Care Bears care packages. It was so thoughtful and useful and the prayer chain was just what I needed. It was eventually passed onto another mommy who needed it more. Having been there themselves, Shelby & Summer get it and know just what to say, and what little goodies mean the most when you're stuck in the hospital with head surgery.

My daughter was born with Metopic Craniosynostosis. If nobody has been through receiving any type of diagnosis like this before, they are unaware of how suddenly alone you feel in the situation just handed to you. Cranio Care Bears sent us a care package, and all of the little personal items in it for my daughter and even a few for me, let me know that we were indeed not alone. So many loving hearts are involved in this!

It was the day before we left for my son surgery, which we had to travel over 1200 miles for. I remember sitting in the living room and there was a knock at the door. It was the post man with a package from Cranio Care Bears. The tears flowed as my son and I opened the box. Summer and Shebly have true life experience with our cranio kids and they knew exactly what to send. To receive a package, the day before you leave, that is filled with so much love, is truly a blessing! We have the prayer chain on my son's crib now but followed us on our journey and the CD is played every night and was put on repeat in the hospital and days following. The little gifts in the box were very helpful and much needed in a time like ours. Cranio Care Bears are a blessing to all.

My son was born with Metopic craniosynostosis. This means that the front two plates of his skull fused too early. He had to have major surgery to correct his skull and give his brain the right amount of room to grow. Cranio Care Bears was there every step of the way! We were lucky enough to have Shelby from cranio care bears with us the day of our sons surgery. Having some one there who understood exactly what we were going through, was wonderful. The care packages they mail out to families are full of thoughtful goodies that made our hospital stay a little easier at such a hard time. I can't explain how much these women's continued support means to our family.

When my son Connor had his Cranio Synostosis surgery in April of 2012, we were so lost and confused and had absolutely no idea what to expect other than what we were told. My wife found Cranio Care Bears and Shelby Davidson a couple of weeks before and started getting a lot of first hand information. Then on the day of the surgery, there was Shelby, right there, to sit with me and my wife for the entire day, with calming and encouraging words, letting us know it was all normal. The care package for Michelle was just the icing on the cake. What could have been a horrible, confusing time for us, was still difficult, but not terribly so. Shelby and the Cranio Care Bears are STILL doing so much to spread awareness of Cranio Synostosis and bring some needed sunshine to the hospitals and families they encounter. We are still involved with CCB and will tell everyone we know just how great Shelby and Summer are.

I truly love Cranio Care Bears. After my surgery in December, I received the most amazing care package. I was so thankful to have everything that I might need in order to have a good recovery. Now, 8 months later, Shelby and Summer have become truly some of my closest friends. I have been able to come to them several times and ask for a care package on behalf of some of my friends that have not heard of this organization. I truly love Summer, Shelby, and cranio care bears. XOXO

I cannot thank this organization enough! Everything in the care package was important to us during the surgery from the hat to the snacks to the CD of lullabies. i will be sure to support Cranio Care Bears in the future.

Such a thoughtful care package from people who understood what we were going through was very touching to me. Having your baby go through a major surgery is very scary. I didn't know anyone who had been through this so the package was very comforting. It is amazing that these moms spend their personal time and effort creating these packages.

Words cannot express our heartfelt gratitude to Cranio Care Bears. Finding out about our daughters diagnosis was overwhelming. The thought of this type of surgery was unthinkable. Knowing it was our only option, we eturned for support and could not have received a more personal, thoughtful and meaningful package from this amazing organization. The care that goes into each and every item is so evident that it really touches your heart to know that complete strangers are supporting you and your family. We will never forget you and our appreciation goes beyond words. Thank you for all that you do!!!

This is a terrific non profit. They helped me through a difficult time by providing a wonderful care package for our hospital stay. It truly meant so much to me.

Cranio Care Bears is a wonderful group! It's amazing how a little package in the mail from someone who has been thru what you are going thru can help your spirit during such a scary time. From the items that cover your basic needs during a hospital stay to the personal prayer chain created by so many families. Truly an awesome organization!

These gals will never fully know what their support through their care box meant. Even now, 5 months post op, tears come as I recall my daughter in laws face as she read the prayer chain prior to Andrews surgery and then hung it in his IC room. Because it came from people with first hand experience, this personal touch was even more special! Thank you is just not enough, not only to the gals who put the boxes together but also to the folks who provide the items. Just Amazing....

The amount of support given to us was so great as we headed into surgery with our 11 week old son. I can not express the gratitude we have for this group. Thank you from the bottom of our hearts.

When our daughter was diagnosed with Craniocynostosis we had never heard of it before. I immediately went online to look for information. Through Facebook I found Cranio Care Bears and I am so fortunate that I did. These moms are amazing and have been such a great source of information, support and encouragement. The care package that they sent before her surgery in March was amazing. The prayer chain alone was such a great gift that we will always cherish and make sure our baby girl knows where it came from. Thanks for all you do to support cranio families and bring awareness to the condition.

Cranio Care Bears is an AMAZING support to families whose children are facing surgery for Craniosynostosis. My 3 month old son was diagnosed with Sagittal Cranio and just had surgery 2 weeks ago. The ladies from Cranio Care Bears offered such kind words of support and guidance. They also offered prayers for my little guy and their own experiences, which was so comforting. The care package they sent for me and my baby was absolutely the most heart-warming and incredible gesture. We so appreciated all of the little items, like snacks and toiletries for the hospital. By far the best thing in the package was a prayer chain to hang on his hospital crib, which is now hanging in his nursery. Other really great items in the package were a hat for my baby boy's sensitive head after surgery, soft socks for me and for him, a soft blanket for him, a soft book and teething toy for him, and lotion and chapstick for me. Those are just a few of the great items in the package.

Don't know what we would have done without CCB and the ladies involved!!! The care package was amazing and the continous support is unbelievable!

My son had his surgery March 24, 2011. The site was down when I went to request a care package, and messaged Summer directly on facebook, and she cared enough to put one together that night and get it in the mail the next morning, even though that morning was the day of my son's surgery. We got the care package the day after surgery, and it was just as important to me, as if I would have received it earlier, if not more. The efforts that Summer and Shelby goes through to help others and make others feel much better about this most difficult experience, is completely outstanding. I can not say enough good things about them. I have since put things together and sent one box already to CCB to be divided into care packages, and I hope to continue to be able to do so. These ladies do so much for others, they are truly heroes!

These ladies are amazing! Not only do they send care packages to families before difficult surgeries, but they actually go to the hospital to be with families that live in their area! They are incredibly supportive of families having to go through a difficult time in their lives!

My daughter had her surgery for sagittal craniosynostosis in November 2011. The care package was great and more than that I felt like I had support in dealing with everything. I didn't feel so alone and I wad so touched by their kindness

My son had his surgery February 14,2012 and I found this group when my son was born in April 2011. These ladies have been so nice caring and supportive. I would not have gotten through this without them. I was very lucky to have Shelby with me this whole entire time we've been on this journey. I hope more people find this group and see how amazing these ladies really are and start donating to this amazing group. - Trine and Skyler

OUR SON HAD SURGERY JAN 19TH 2012. WE FOUND CRANIO CARE BEARS AND WITH THEIR LOVE, SUPPORT, AND GUIDANCE OUR JOURNEY BECAME SO MUCH EASIER. THEIR CARE PACKAGE HELPED US AND BRYCEN THROUGH THE ENTIRE HOSPITAL STAY, AND THEY EVEN SENT US EXTRA HATS BECAUSE I COULDN'T FIND ANY TO FIT BRYCEN THE WAY THEIRS DID. THIS ORGANIZATION IS AMAZING AND WE LOVE THEM!!!

My son has sagittal craniosynostosis and had surgery in January 2012. I found Cranio Care Bears only a week and half before surgery. Summer was prompt and so incredubly nice about offering support and help. She even offered to hand deliver our care package! She did everything possible to get our package to us before the surgery. It landed in our mailbox with a day to spare. We waited until we got to the hospital to open our care package, to help distract us while waiting for our son. Inside, we found a special cranio blanket, various (nice!) toiletries, a first aid kit, some tylenol (yay!), and most importantly, a very special Cranio build-a-bear Teddy. This will be our son's favorite Teddy for sure. It really meant a lot to us that people we didn't even know cared enough to make sure that we felt support through such a heavy experiance. Thank you Summer!

My son has had 3 surgeries to help alleviate his crynostonosis. This was definitely a well thought of program. As a mom, I cried knowing others truly cared about what my family and I are facing and they actually know how hard it is to deal with. Wonderful items sent that were very age appropriate! My son really loved the care package and wants to donate to the organization! To put a smile on someone elses face during this time!

My daughter was diagnosed with metopic craniosynostosis at borth. I found craniocarebears.org when I was looking for information. The care package was wonderful! I put the prayer chain on her crib and the nurses loved it! I gave my friends and family the website to learn more about what we were going through. I highly recommend craniocarebears.org!

My son was diagnosed with Craniosynostosis in April of this year and to say I was overwhelmed would be an understatement. I had never heard of this condition, much less the surgical process required to "fix" it. A friend mentioned this site and from the beginning I felt loved. Within a few weeks of reading about this condition and filling out a form for a care package I received the most tender and sweet box of gifts for both me and my son! I was touched beyond words. The lovely items inside, including comfy slippers and a lovely blanket for my son, both made me feel loved, cared for, special and thought about. They packed things inside (like mints and gum) that I never would have thought to pack, but totally needed for my 3 day stay with my son. The cranio community has shown me such compassion, love, understand, and offered me real life answers and insights ... I can never begin to repay them for the joy and peace they brought to me during such a difficult season of life. I cannot wait to share with my son the love he received from "strangers" who now feel very much like family.
Thank you Shelby and Summer! You're amazing and the work you do an incredible and undescibable gift and expression of love. May the work you do come back 10-fold with moments of joy, peace and blessing to you!

My son felt so blessed to receive such a blessing before his surgery. We hvae had such anxiety with this and what great thing to do to help take our focus off of the surgery and realize we are loved and prayed for. THANK YOU!!! Landon felt so blessed to get his package today.