My Nonprofit Reviews

My husband and I first found out about our son's craniosynostosis the day after he was born. The doctors told us all about the possible implications of surgery, recovery, a helmet, and options for treatment. We were terrified and overwhelmed, it was such a punch in the gut to hear this news about our little newborn.

Through the process of his diagnosis, I joined a Facebook group for Craniosynostosis parents. The group was incredible; so much support, up-lifting stories, questions answered, and best of all, we found Cranio Care Bears. I was in awe of the work of the group and immediately signed up for a Cranio Care Bear care package.

Our care package arrived in the mail a few weeks before his surgery and instantly made us feel at ease about what we were going through. Knowing that there were so many others who had gone through similar experiences and that we had so much support from people we never met was just amazing. The care package had clothes for him, a prayer chain (which hung over his hospital bed and now hangs over his crib), blankets, toys, and personal care items for my husband and I. The generosity of this group and care that they put into each delivery moved me to tears. The group is so wonderful for the support of kids with craniosynostosis and for parents and loved one of these little warriors.

Our little guy's surgery went perfectly. The surgeons and nurses could not have been more compassionate and communicated so well with us throughout the whole process. I'm proud to say that our little guy graduated from his helmet after only 5 months of wear (typically is closer to one year) and is just the happiest little guy around!