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2017 Top-Rated Nonprofit

Cranio Care Bears

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Children & Youth, Children & Youth Services, Health, Patient & Family Support, Surgical Specialties

Mission: Cranio Care Bears goal is to spread awareness, support & compassion through loving care packages to families of children facing surgery for craniosynostosis. Our care packages include items for the child & family to relieve the stress accompanying this very serious surgery. Cranio Care Bears also offers one on one support before, during & after surgery. We also strive to bring awareness of craniosynostosis to families & the medical community for early detection.

Results: We send out around 80-100 care packages every month all over the world. We also mentor and support families before, during and after surgery. We have sent care packages to every state in the US and around 30+ countries.

Target demographics: Worldwide babies and children from ages 0-15 years old with Craniosynostosis.

Direct beneficiaries per year: 500-1,000

Geographic areas served: Worldwide

Community Stories

154 Stories from Volunteers, Donors & Supporters

Joy Hunter M.

Client Served

Rating: 5

They provided comfort and excitement in a time of panic and confusion. It inspired me to give to others and made meaning change in my families life as I understood how little it takes to make a substantial difference in the world.

Client Served

Rating: 5

When my son was diagnosed with craniosynostosis I wasnt sure where to begin looking for information. While searching for more information online I came across Cranio Care Bears, there was tons of information and I was able to read the stories of others who have been through this and it gave me so much hope. The care package we received before surgery brightened our day! We are almost two years post op and we still have the prayer chain hanging above my sons bed. Such a wonderful organization!

1 Julie S.1

Client Served

Rating: 5

At two months old, our son was diagnosed with craniosytosis, and underwent a successful surgery two weeks later. My sister-in-law found this non-profit and within a few days, we received a very personal care package. This special gift of support was filled with everything we could have hoped for. The handmade prayer chain still hangs in room next to his bed. Knowing that our son was in so many people’s prayers during this very difficult time was so comforting. Thank you Cranio Care Bears!

Keagan L.

Client Served

Rating: 5

My little boy had CVR surgery in march of this year. Cranio Care Bears sent us a care package the week before surgery and it warmed our hearts! Such a selfless act of kindness for those of us who are nervous and scared. God bless them!!

Kylie M.1

Client Served

Rating: 5

My son had a cranial vault remodel surgery done this past June (2017). With such a scary surgery and time in our lives it was great receiving a care package for the hospital stay that made us feel like we weren’t alone in this scary time. I love cranio Care Bears!

Elizabeth Chandler H.

Client Served

Rating: 5

From shortly after my son was diagnosed with craniosynostosis, through his surgery and recovery, and to this very day - the kindness Cranio Care Bears has shown our family has made such a difference. Their website is an excellent, non-scary, informed source for all families facing it. The moment I found them I felt a wash of relief knowing I had a support network around the world. Summer & Shelby put their hearts into the care packages. We still have our
prayer chain hanging up in our son’s room. And they are easy to reach out to, which is amazing given all that they juggle!

Client Served

Rating: 5

When I was dealing with the diagnosis of my daughter I was lost. I had no idea where to go or what to do. Someone suggested to me cranio care bears as a resource. I connected with Summer and she was simply amazing. It ended up my daughter did not need surgery but Summer was willing to offer support the whole time. This is an amazing charity who I have told many many people about.

Amy Elizabeth S.

Client Served

Rating: 5

Thank you cranio Care Bears for sending my son and I a care package full of supportive supplies and best wishes for our hospital stay. Henry had skull surgery at 3 months old. I found out the day after he was born that he needed surgery. The pediatrician on call handed me a post it note with a date and name of the neurosurgeon. I cried buckets of tears alone in my hospital room not knowing what the fire might hold for my son. Then I got online and started reading about his condition. Cranio Care Bears is the site that came up first. Without the education and support of Care Bears site I would have been crying many more tears for my baby. Thank you for all you do to support babies with craniosynostosis and their families. Amy & Henry

Krystle T.

Client Served

Rating: 5

My son has not went though surgery yet but i will be ordering a care package when he does and im sure it will be as fabulous and caring and help us though are diffcult journey to the other side they seem like the care and put so much love and time into rhe packages that they do

General Member of the Public

Rating: 5

My niece has Craniosynostosis. She had surgery 1 year ago. and the care package that they sent to her was awesome it let her parents know someone cared. I support Cranio Care Bears

Client Served

Rating: 5

I cannot say enough about Cranio Care Bears and how they helped me and my family during one of the most difficult moments of my life. I happen to live near Shelby and she not only hand delivered my care package, but also spent time with us while my son was in surgery. Our care package was filled with so many wonderful items that made our stay a little easier like deodorant, snacks and a going home outfit. Our prayer chain still hangs in my son's nursery. We are forever thankful for this awesome organization and the amazing women behind it!

Client Served

Rating: 5

Cranio Care Bears sent us a care package before my son's surgery. It was filled with so many meaningful and helpful gifts. We treasure the prayer chain and still keep it hanging on his bed. My son loved the toys and books and little blanket. I loved the handmade scarf because not only was the hospital freezing, but also when I was feeling low and alone, it reminded me that someone took a lot of time to make something really special, and I wasn't really alone at all. The slippers, the candy, the adorable pajamas, all of it was exactly what our family needed. We are grateful!

Diana R.2

Donor

Rating: 5

My grandson, Felix, is a cranio warrior. At a time of anxious and fearful anticipation of his surgery this wonderful non-profit shared comfort, stories, reassurance and a care box with my daughter. What a wonderful service.

General Member of the Public

Rating: 5

Finding out your child had anything wrong with them especially at infant age I s devastating. Being able to find a support system, positive stories and information on this defect is everything. This non profit is able to provid all of that. We are so thankful for everything cranio Care Bears has done for us and does for many families dealing with their sweet cranio children.

General Member of the Public

Rating: 5

When my daughter had to have a cranio surgery these wonderful ladies sent her a care package to help ease the thought off surgery. They go above and beyond to make many families feel so loved, such a wonderful non profit. Truly a blessing!

Client Served

Rating: 5

When our son was diagnosed with Sagittal Craniosynostosis, we were so overwhelmed and nervous. The Cranio Care Bears were an amazing support to us in the months leading up to our son’s surgery date, and the care package they sent us was so thoughtful. It truly helped alleviate some of our worries, and helped us feel like we weren’t alone in this journey. We can’t say enough good things about this incredible organization. Summer and Shelby, you are amazing, and your work is so appreciated.

Client Served

Rating: 5

They are great. When my daughter had surgery they sent her a care package with pajamas, a blanket,hat,socks,and a toy. They also sent small essential toiletries and snacks for my husband and I to pack for the hospital.

Tricia R.1

General Member of the Public

Rating: 5

During such a hard time learning our child was going to need surgery for craniosynostosis ,it was so special to learn that there was a whole community of people who had been there, and were praying us through. We are beyond thankful for Cranio Care bears!

Kelly L.1

Client Served

Rating: 5

Our son was diagnosed at 4 months with a rare form of Craniosynostosis. Cranio Care Bears sent us the sweetest care package for our son’s hospital stay. It was so comforting to know others had walked this painful road before us and their children came out well on the other side! They included items I wouldn’t have thought of to bring for the hospital stay. I’ve been able to pass on their information other families facing this surgery!

Amanda243

Client Served

Rating: 5

The Cranio Care Bears provided our family with comforting items for my husband and I and for our son before his surgery at 4 1/2 months old. It helped us feel not so alone in such a scary time.

Previous Stories
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Client Served

Rating: 5

This is a fantastic nonprofit group! These moms give so much time and support to each and everyone of us that need support going through tough times before, during and after our journey with our kids that have craniosynostosis and other anomalies of the skull. They give us so much comfort and the care packages just help encourage us before the surgical journey begins.