Our smaller twin was diagnosed with bilateral coronal craniosynostosis at 12 months old. Everything was happening so fast, he was scheduled for surgery 1 short month later after his diagnosis. Cranio Care Bears sent us a care package filled with such sweet goodies from toys, blankets, and sleepers to toiletries and snacks for us parents. When Aiden had his second surgery just 3 short months later, they sent us another care package. We take his prayer ribbons to all of his surgeries and the hang above his crib. He loves snuggling his blankets he recieved and so does his brother. We couldn't be more thankful for this wonderful organization!
Cranio Care Bears is an amazing nonprofit that supports families who’s children have a condition that most people have never even heard of. I know I didn’t until my son was diagnosed. They not only have ton of educational information to help you but they offer true life stories and journies of other familes who have been in your shoes to offer help. The support I have gotten from the care bear community has helped my family greatly!
Such an amazing group! I love the personal shout outs for the littles who are having surgery so that we can pray for them. The care packages are such a lovely gesture!
When my son was diagnosed with cranio I was devastated, I felt like I was alone. Until his dr mentioned cranio Care Bears! I immediately went home and found them and requested a care package. When it came it was a huge relief, i suddenly realized I wasn’t alone and to get this care package meant the world! The time and dedication these lady’s put into these is astounding. And to do it all off donations and their own money is unbelievable! We love cranio Care Bears
Cranio Care Bears helped us through one of our darkest times, when our 12 week old baby had surgery on his skull. This group provided us with a free care package with thoughtful items to help with our hospital stay and recovery from surgery. The kindness and thoughtfulness of the care package was so uplifting and encouraging in such a worrisome and stressful time. They are such a thoughtful and giving group and they touch so many lives in time of need. I've added a picture of our unopened care package and a picture of my son on our way home from the hospital wearing a hand made hat he received from Cranio Care Bears.
Cranio Care Bears supported my family through a very uncertain time. We had never even heard of craniosynostosis when our son was diagnosed. Being told your baby has to have their skull taken apart and put back together is, to say the least, scary. Summer and Shelby are so accessible and kind. Small things make a huge difference when you are at the hospital - their care package carried us through from surgery day to discharge. We taped his prayer chain to his hospital crib and so many people remarked on how neat it was. I read it many times over on the long nights as he recovered from surgery. Cranio Care Bears is a standout example of a non-profit that truly makes a difference. ❤️
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From shortly after my son was diagnosed with craniosynostosis, through his surgery and recovery, and to this very day - the kindness Cranio Care Bears has shown our family has made such a difference. Their website is an excellent, non-scary, informed source for all families facing it. The moment I found them I felt a wash of relief knowing I had a support network around the world. Summer & Shelby put their hearts into the care packages. We still have our
prayer chain hanging up in our son’s room. And they are easy to reach out to, which is amazing given all that they juggle!
Finding Cranio Care Bears while preparing for our sons son's surgery was a true blessing. The others parents stories gave me so much hope & strength and our care package made me feel taken care of when my complete focus was on our son. I'm forever grateful to this organization and all that they have and continue to do for the cranio warriors and their parents.
Cranio Care Bears is truly amazing!! My son was 11 weeks old when he had to have his first surgery then at 10 months old had a second. It was so scary having such a little one have to go through surgery an not knowing what to expect. Cranio Care Bears does amazing things, hearing their stories, and reading all that they have on their website made things easier. The care packages they sent out for my son Bentley was a blessing. They even write prayers for "child's name" on the out side of every package. And they send these goodies out for FREE! They send things for baby and parents. From hand made beanies, prayer chains, toys, socks and PJs that zip or button (which is a life saver for after), toiletries an candy for the long wait in the waiting room. Cranio Care Bears does amazing things and they make you feel not alone during the journey with prayers and love in every care package they send out. My family have been on this Craniosynostosis rollercoaster for almost a year. Bentley has had two surgery's and recieved a package for each one and I'm still amazed on what all they send each child in the care package. I am a proud Cranio Mom an I love all that Cranio Care Bears does for the Cranio Warriors an their family's.
Our family had never heard the term "craniosynostosis" until the birth of our beautiful granddaughter. We were scared, confused, and felt as though we were completely alone confronting this condition. Cranial surgery? Blood transfusion? It was terrifying. Days before surgery, our daughter and son-in-law received a care package from "Cranio Bears." The package contained items, both personal and practical, that would help them through that overwhelming week. This wonderful support group was founded by two mothers whose children made it through their own surgeries. Their Facebook shout-outs to children and their families all over the world on the eve of their surgeries provide inspiration when it is most needed. The outpouring of support and prayers brought tears of hope and encouragement. We were not alone and we can now pay it forward to support other families. This organization educates and is doing incredible things with grassroots parental initiative. There are all kinds of gift items that raise awareness and raise hope. There are modest funds raised, but they are deserving of so much more recognition and funding. I'm not sure how we would have surmounted that feeling of fear and loneliness without Cranio Bears.
My son was diagnosed with sagittal craniosynostosis at 4 months of age. It was a very scary time in our lives. First time parents facing a diagnosis we had never heard of. Thankfully I stumbled across a large Facebook community of parents who have had the same or similar experience as my own and they directed me to Cranio Care Bears. Receiving their care package just days before his surgery was so comforting. It was so good to know that there were other people out there who cares and we’re prayinf for our son. We don’t have any capable family near us, so receiving that package was like having a family member watch over us.
Thank you Cranio Care Bears for all you do!
My husband and I first found out about our son's craniosynostosis the day after he was born. The doctors told us all about the possible implications of surgery, recovery, a helmet, and options for treatment. We were terrified and overwhelmed, it was such a punch in the gut to hear this news about our little newborn.
Through the process of his diagnosis, I joined a Facebook group for Craniosynostosis parents. The group was incredible; so much support, up-lifting stories, questions answered, and best of all, we found Cranio Care Bears. I was in awe of the work of the group and immediately signed up for a Cranio Care Bear care package.
Our care package arrived in the mail a few weeks before his surgery and instantly made us feel at ease about what we were going through. Knowing that there were so many others who had gone through similar experiences and that we had so much support from people we never met was just amazing. The care package had clothes for him, a prayer chain (which hung over his hospital bed and now hangs over his crib), blankets, toys, and personal care items for my husband and I. The generosity of this group and care that they put into each delivery moved me to tears. The group is so wonderful for the support of kids with craniosynostosis and for parents and loved one of these little warriors.
Our little guy's surgery went perfectly. The surgeons and nurses could not have been more compassionate and communicated so well with us throughout the whole process. I'm proud to say that our little guy graduated from his helmet after only 5 months of wear (typically is closer to one year) and is just the happiest little guy around!
When we received the news that our tiny baby would need cranial surgery we were scared. We found wonderful information, support, and a sweet care package to help our child through their hospital stay! We can not thank them enough for the prayers, support, and encouragement as we went through testing, diagnosis, surgery, and recovery!
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Our son was diagnosed at 4 months with a rare form of Craniosynostosis. Cranio Care Bears sent us the sweetest care package for our son’s hospital stay. It was so comforting to know others had walked this painful road before us and their children came out well on the other side! They included items I wouldn’t have thought of to bring for the hospital stay. I’ve been able to pass on their information other families facing this surgery!
Craniosynostosis?What is that you may ask because you have never heard of it before. That is exactly what I thought. Until you deal with this diagnosis you don't know the fear of the surgery and process surrounding it.
This is where Cranio Care Bears comes in. You request for a care package when you get your surgery date. They send out the most amazing package for YOU and your little one. The thought and care that goes into each one is awesome. It includes everything from a prayer chain to ibuprofen and a baby hat.
This organization is run by two moms that have been through the cranio journey. They do it from their homes on their time. They started it because when their children went through it there were no resources or support groups.
I can not say enough great things about this non-profit. They are touching so many lives in such a positive way.
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This organization is angelic. They send an amazing care package filled with all the little things you need before, during, and after your child’s surgery. The ladies that run it are loving, compassionate, and very organized. I am so grateful to this organization and highly recommend them if you are ever in our situation.
CranioCareBears provided so much support and encouragement in the months leading up to our daughter’s surgery and during her recovery. They connected us to a network of families going through similar things which gave us much comfort and they continue to work to bring the community together!
Cranio Care Bears is an incredible organization. They showed so much concern and care for our family when my son had to have surgery due to Craniosynostosis (premature fusing of the sutures in his skull). They sent a care package to our home a week before his surgery. It was so nice to feel love from other moms who have gone through the same process :)
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When I found out that my son had Sagittal Craniosynostosis I was overwhelmed. I found Cranio Care Bears and immediately felt so much love and support during this uncertain and scary time for our family. The Care package was so thoughtful for out little Jackson and they have such great products on their shop to support and show awareness for Craniosynostosis.
Such an uplifting package to receive as we were packing for my son’s surgery—it was filled with goodies for both him and my husband and me, and we were so thankful!
Was such a gift to receive the care package so quickly for my son's surgery. Such a needed comfort to know we were being prayed for and to have treats, distractions, clothes, etc. It was just such an amazing service in the midst of a horrible time. We are now in recovery and still enjoying the wonderful gifts from Cranio Care Bears!
They provided comfort and excitement in a time of panic and confusion. It inspired me to give to others and made meaning change in my families life as I understood how little it takes to make a substantial difference in the world.
When my son was diagnosed with craniosynostosis I wasnt sure where to begin looking for information. While searching for more information online I came across Cranio Care Bears, there was tons of information and I was able to read the stories of others who have been through this and it gave me so much hope. The care package we received before surgery brightened our day! We are almost two years post op and we still have the prayer chain hanging above my sons bed. Such a wonderful organization!
