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2019 Top-Rated Nonprofit

Cranio Care Bears

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Children & Youth, Children & Youth Services, Health, Patient & Family Support, Surgical Specialties

Mission: Cranio Care Bears goal is to spread awareness, support & compassion through loving care packages to families of children facing surgery for craniosynostosis. Our care packages include items for the child & family to relieve the stress accompanying this very serious surgery. Cranio Care Bears also offers one on one support before, during & after surgery. We also strive to bring awareness of craniosynostosis to families & the medical community for early detection.

Results: We send out around 80-100 care packages every month all over the world. We also mentor and support families before, during and after surgery. We have sent care packages to every state in the US and around 30+ countries.

Target demographics: Worldwide babies and children from ages 0-15 years old with Craniosynostosis.

Direct beneficiaries per year: 500-1,000

Geographic areas served: Worldwide

Programs: Sending loving care packages to families going through surgery for Craniosynostosis. Attending surgeries to one on one support.

Community Stories

184 Stories from Volunteers, Donors & Supporters

Client Served

Rating: 5

Cranio Care Bears was there for me and my family in the scariest thing we have had to go through. Not only did we get a very kind and generous care package, but they also checked on is while we were in the hospital. They made sure we didn't go through this alone.

Joleen G.

Client Served

Rating: 5

Such an awesome charity! Sending care packages to kids before they endure major surgery. It’s a great support to the parents in the time they are so scared! And they have become a good support system over the years!!! Love these ladies and all that they do for our Cranio community!!!

Previous Stories
1

Client Served

Rating: 5

When we were told my son had Craniosynostosis the first thing I did was hit the web to find support. One of the first site I came across was Cranio Care Bears. I read through success stories and was so glad to find that there were others that had been though this around for support. When we recieved the care package prior to surgery, I cried. It was so comforting that they knew what we needed! To this day we have my sons prayer chain in hanging in our house to remind us of the love and support we had!! Thanks Cranio Care Bears!!!!!!

Tricia Kelley B.

General Member of the Public

Rating: 5

The most loving and kind hearted two mommies ever! The amount of time these two ladies give just to help others is amazing!

Emylee C.

General Member of the Public

Rating: 5

They make you feel like you aren't alone in the journey. They brought joy to us in the days leading up to surgery when joy was hard to muster up. Thank you for all you do!

2

Client Served

Rating: 5

Cranio Care Bears helped our family through a very tough time with such knowledge and understanding of what we were about to encounter. I suggest to anyone I hear that has to go through the cranio process with their child to make sure to sign up with cranio care bears. Their dedication and selflessness is something to be proud of!

1

Client Served

Rating: 5

Their care packages are so helpful when going into the hospital, I swear they remember everything that you forget. So much of their items for the kids not only are useful, but help the kids feel proud of themselves for what they're going through. Shelby will even come and sit through surgeries with the families.

1 April E.1

Client Served

Rating: 5

This group is amazing!
Our daughter was diagnosed shortly after birth with sagital craniosynostosis and just had full CVR on Oct 17th. The care package and support in general from this group has been so helpful. They are the best!

1 Amy_74

Professional with expertise in this field

Rating: 5

This is the most amazing organization. Two moms who have dedicated their lives in making one of the darkest times for a family, brighter. This organization sent my beautiful baby girl a loving care package just before she had a cranial surgery. The love that goes into each box is obvious. I believe that there are few others that selflessly give their time and dedication long after their child's surgery is in the past. That is not the case with the Shelby & Summer.
Thank you Cranio Care Bears.

Previous Stories
1

Professional with expertise in this field

Rating: 5

The ladies at CCB are a fabulous resource for support and understanding of this condition. They have managed to help families across the globe and we support them 100% in their efforts. Bravo on a job well done.

-Amy Galm-
Director
Craniosynostosis and Positional Plagiocephaly Support Inc

1

Client Served

Rating: 5

Amazing organization! Summer even came to the hospital and was there for me when my little one was in surgery!

1 Amber S.2

Client Served

Rating: 5

Cranio Care Bears was there for me during one of the most difficult times. They send my son a care package for FREE to help help console us while my son was in the hospital!

Previous Stories
1

General Member of the Public

Rating: 5

When my son was diagnosed with Craniosynostosis at 1 month old my entire life came to a halt. I consumed myself with finding as much information regarding Craniosynostosis as possible when I came across Cranio Care Bears it gave me relief knowing that there are other people that have been through the same thing I was going through and that they wanted to send a care package to help my family and I during the difficult time. Shelby and Summer are both wonderful ladies that have helped our family in so many ways.

McKayla M.

Client Served

Rating: 5

Amazing ladies! They have helped us by sending care packages for a few of my daughter’s surgeries!

1 Ana n'Dusty A.

Client Served

Rating: 5

Amazing group! They provide a great support network during very difficult times for families. So grateful for them!

Previous Stories

Client Served

Rating: 5

Our daughter was diagnosed with Craniosynostosis at 2 months old and scheduled to have surgery at 8 months old. We had never heard of the condition and immediately began doing research online. We found Cranio Care Bears and immediately had a support group of friends and family that had been through the exact situation we were going through. The care package we received from them a few days before her surgery was a great blessing and comfort and provided much needed relief while we were in the hospital.

Lacey T.

Client Served

Rating: 5

Our smaller twin was diagnosed with bilateral coronal craniosynostosis at 12 months old. Everything was happening so fast, he was scheduled for surgery 1 short month later after his diagnosis. Cranio Care Bears sent us a care package filled with such sweet goodies from toys, blankets, and sleepers to toiletries and snacks for us parents. When Aiden had his second surgery just 3 short months later, they sent us another care package. We take his prayer ribbons to all of his surgeries and the hang above his crib. He loves snuggling his blankets he recieved and so does his brother. We couldn't be more thankful for this wonderful organization!

Brianna L.1

Client Served

Rating: 5

Cranio Care Bears is an amazing nonprofit that supports families who’s children have a condition that most people have never even heard of. I know I didn’t until my son was diagnosed. They not only have ton of educational information to help you but they offer true life stories and journies of other familes who have been in your shoes to offer help. The support I have gotten from the care bear community has helped my family greatly!

1 Jenni Tyler B.

General Member of the Public

Rating: 5

Such an amazing group! I love the personal shout outs for the littles who are having surgery so that we can pray for them. The care packages are such a lovely gesture!

1

Client Served

Rating: 5

When my son was diagnosed with cranio I was devastated, I felt like I was alone. Until his dr mentioned cranio Care Bears! I immediately went home and found them and requested a care package. When it came it was a huge relief, i suddenly realized I wasn’t alone and to get this care package meant the world! The time and dedication these lady’s put into these is astounding. And to do it all off donations and their own money is unbelievable! We love cranio Care Bears

1

Client Served

Rating: 5

Cranio Care Bears helped us through one of our darkest times, when our 12 week old baby had surgery on his skull. This group provided us with a free care package with thoughtful items to help with our hospital stay and recovery from surgery. The kindness and thoughtfulness of the care package was so uplifting and encouraging in such a worrisome and stressful time. They are such a thoughtful and giving group and they touch so many lives in time of need. I've added a picture of our unopened care package and a picture of my son on our way home from the hospital wearing a hand made hat he received from Cranio Care Bears.

1 Elizabeth Chandler H.

Client Served

Rating: 5

Cranio Care Bears supported my family through a very uncertain time. We had never even heard of craniosynostosis when our son was diagnosed. Being told your baby has to have their skull taken apart and put back together is, to say the least, scary. Summer and Shelby are so accessible and kind. Small things make a huge difference when you are at the hospital - their care package carried us through from surgery day to discharge. We taped his prayer chain to his hospital crib and so many people remarked on how neat it was. I read it many times over on the long nights as he recovered from surgery. Cranio Care Bears is a standout example of a non-profit that truly makes a difference. ❤️

Previous Stories
1

Client Served

Rating: 5

From shortly after my son was diagnosed with craniosynostosis, through his surgery and recovery, and to this very day - the kindness Cranio Care Bears has shown our family has made such a difference. Their website is an excellent, non-scary, informed source for all families facing it. The moment I found them I felt a wash of relief knowing I had a support network around the world. Summer & Shelby put their hearts into the care packages. We still have our
prayer chain hanging up in our son’s room. And they are easy to reach out to, which is amazing given all that they juggle!

Client Served

Rating: 5

Finding Cranio Care Bears while preparing for our sons son's surgery was a true blessing. The others parents stories gave me so much hope & strength and our care package made me feel taken care of when my complete focus was on our son. I'm forever grateful to this organization and all that they have and continue to do for the cranio warriors and their parents.

1 Sierra H.1

Client Served

Rating: 5

Cranio Care Bears is truly amazing!! My son was 11 weeks old when he had to have his first surgery then at 10 months old had a second. It was so scary having such a little one have to go through surgery an not knowing what to expect. Cranio Care Bears does amazing things, hearing their stories, and reading all that they have on their website made things easier. The care packages they sent out for my son Bentley was a blessing. They even write prayers for "child's name" on the out side of every package. And they send these goodies out for FREE! They send things for baby and parents. From hand made beanies, prayer chains, toys, socks and PJs that zip or button (which is a life saver for after), toiletries an candy for the long wait in the waiting room. Cranio Care Bears does amazing things and they make you feel not alone during the journey with prayers and love in every care package they send out. My family have been on this Craniosynostosis rollercoaster for almost a year. Bentley has had two surgery's and recieved a package for each one and I'm still amazed on what all they send each child in the care package. I am a proud Cranio Mom an I love all that Cranio Care Bears does for the Cranio Warriors an their family's.