Cranio Care Bears is an amazing non-profit. They provide personal care packages and beautiful linked ribbons decorated in prayers for children having skull surgery. The most amazing thing about this non-profit is that is run by two mom's who's children were affected by craniosynostosis. In addition to the care packages they spread awareness about cranio and connect families and parents in need of support. Most people do not know what craniosynostosis is until it happens to their child or a child they love and its amazing to find this group to lean on for support during hard times. They have put a smile on our face more than once and we are so blessed to have stumbled across them!!!!
They are the best .. When my grand was going to have surgery the package wouldn't make it to the house so they sent it to the hotel the day she arrived. Love these people
My 3 month old son just had surgery for Craniosynostosis. Cranio Care Bears sent me a wonderful care package with things for the baby and for our hospital stay. It helped us feel more prepared and that someone genuinely cared.
This is by far the best thing I have ever done. I found out my daughter needed surgery when she was 2 months old. She didn't get to do surgery until 5 months. During that time I was crazy stressed and just over all a mess. Shelby found me on a Facebook page and I got sent over to this charity. The care package gave us something to look forward too, and when surgery came and we got it, it was worth the wait. We had snacks, tea, hygiene products, and omg socks! While trying to pack I was a wreck and packed all the wrong things and forgot hygiene products and socks. Hospital floors get super cold! It was so helpful in more ways than one, the ladies that do the packages do it from their heart, and it shows. They still reach out to see how we are doing. It's not just a package your getting, it's support! Thank you cranio Care Bears!
We were blessed to learn of Cranio Care Bears. Our grandson has Craniosynotosis. He had no soft spot on his head, the sutures had already grown together. He required a Sagital CVR surgery to repair and reshape his skull, to give his brain room to grow. Through Cranio Care Bears we were able to learn more about procedures and what to expect from other parents who had Been down this path. A week before the surgery Jaxon and his Momma received a care package FULL of items to help during his hospital stay. A prayer chain, books, toys, a blanket, an outfit and little hat that fit his larger then normal head, for Jaxon. There was personal hygiene items, footies, snacks, gum, mints, and breakfast bars, for his Momma. These items really did make the stay better. Most of all we knew they were there for us if we had questions and that the power of prayers from the others on the site were with Jaxon.
We found out that my daughter was going to be born with Craniosynostosis when I was 37 weeks along! Searching for support was on my first mind after finding this out. I came across cranio Care Bears and they have been great! We ordered a care package before her surgery at one month! What we got was astonishing! Anything I needed and it beat the hospitals stuff along with things for my daughter! A sleeper a blanket a few toys :-) we have since bought items to show how proud we are of our baby girl who has sagittal craniosynostosis! This group is amazing and has helped us through a tough time in our lives!
This is a fantastic nonprofit group! These moms give so much time and support to each and everyone of us that need support going through tough times before, during and after our journey with our kids that have craniosynostosis and other anomalies of the skull. They give us so much comfort and the care packages just help encourage us before the surgical journey begins.
After having my twins at 28 weeks and a 3 month stay in the NICU we found out one twin had Sagital crainosynisyosis and would require yet another surgery. The Craino Care Bares sent us a wonderful care package. This package included pj's, blanky, toys, a purple hat, pacifiers, and some things I sure I am forgetting for my son. Plus personal care items, snacks and gum for myself. Up until I found this organization I felt so alone. The Craino Care Bares made me feel like I was part of a community and actually had some support. Regardless of how rare crainosynisyosis is I did not feel alone any more. My son's surgery went very well and he has recovered well. Thank you Craino Care Bares you are amazing!!
Our son, Heath, was born with a very rare form of craniosynostosis, his was frontosphenoidal. After doing some research on craniosynostosis, we found Cranio Care Bears and what a blessing it was. Summer, one of the founders of the organization, her son had the same type of craniosynostosis. I emailed her our story and the next day I received an email back with encouraging words. A few days before Heath's surgery we received his care package. In the midst of fear, this package of goodies made our hearts happy. Heath will always have his prayer chain to look back on, and pictures of him in his handmade hat they provided, as well as all the other items they had that was so helpful for his hospital stay. We can not thank Cranio Care Bears enough for the support they provided in the most fearful time in our lives. Thank you, thank you, thank you!
