Craniosynostosis?What is that you may ask because you have never heard of it before. That is exactly what I thought. Until you deal with this diagnosis you don't know the fear of the surgery and process surrounding it.
This is where Cranio Care Bears comes in. You request for a care package when you get your surgery date. They send out the most amazing package for YOU and your little one. The thought and care that goes into each one is awesome. It includes everything from a prayer chain to ibuprofen and a baby hat.
This organization is run by two moms that have been through the cranio journey. They do it from their homes on their time. They started it because when their children went through it there were no resources or support groups.
I can not say enough great things about this non-profit. They are touching so many lives in such a positive way.
This organization is angelic. They send an amazing care package filled with all the little things you need before, during, and after your child’s surgery. The ladies that run it are loving, compassionate, and very organized. I am so grateful to this organization and highly recommend them if you are ever in our situation.
CranioCareBears provided so much support and encouragement in the months leading up to our daughter’s surgery and during her recovery. They connected us to a network of families going through similar things which gave us much comfort and they continue to work to bring the community together!
Cranio Care Bears is an incredible organization. They showed so much concern and care for our family when my son had to have surgery due to Craniosynostosis (premature fusing of the sutures in his skull). They sent a care package to our home a week before his surgery. It was so nice to feel love from other moms who have gone through the same process :)
When I found out that my son had Sagittal Craniosynostosis I was overwhelmed. I found Cranio Care Bears and immediately felt so much love and support during this uncertain and scary time for our family. The Care package was so thoughtful for out little Jackson and they have such great products on their shop to support and show awareness for Craniosynostosis.
Such an uplifting package to receive as we were packing for my son’s surgery—it was filled with goodies for both him and my husband and me, and we were so thankful!
Was such a gift to receive the care package so quickly for my son's surgery. Such a needed comfort to know we were being prayed for and to have treats, distractions, clothes, etc. It was just such an amazing service in the midst of a horrible time. We are now in recovery and still enjoying the wonderful gifts from Cranio Care Bears!
They provided comfort and excitement in a time of panic and confusion. It inspired me to give to others and made meaning change in my families life as I understood how little it takes to make a substantial difference in the world.
When my son was diagnosed with craniosynostosis I wasnt sure where to begin looking for information. While searching for more information online I came across Cranio Care Bears, there was tons of information and I was able to read the stories of others who have been through this and it gave me so much hope. The care package we received before surgery brightened our day! We are almost two years post op and we still have the prayer chain hanging above my sons bed. Such a wonderful organization!
At two months old, our son was diagnosed with craniosytosis, and underwent a successful surgery two weeks later. My sister-in-law found this non-profit and within a few days, we received a very personal care package. This special gift of support was filled with everything we could have hoped for. The handmade prayer chain still hangs in room next to his bed. Knowing that our son was in so many people’s prayers during this very difficult time was so comforting. Thank you Cranio Care Bears!
My little boy had CVR surgery in march of this year. Cranio Care Bears sent us a care package the week before surgery and it warmed our hearts! Such a selfless act of kindness for those of us who are nervous and scared. God bless them!!
My son had a cranial vault remodel surgery done this past June (2017). With such a scary surgery and time in our lives it was great receiving a care package for the hospital stay that made us feel like we weren’t alone in this scary time. I love cranio Care Bears!
From shortly after my son was diagnosed with craniosynostosis, through his surgery and recovery, and to this very day - the kindness Cranio Care Bears has shown our family has made such a difference. Their website is an excellent, non-scary, informed source for all families facing it. The moment I found them I felt a wash of relief knowing I had a support network around the world. Summer & Shelby put their hearts into the care packages. We still have our
prayer chain hanging up in our son’s room. And they are easy to reach out to, which is amazing given all that they juggle!
When I was dealing with the diagnosis of my daughter I was lost. I had no idea where to go or what to do. Someone suggested to me cranio care bears as a resource. I connected with Summer and she was simply amazing. It ended up my daughter did not need surgery but Summer was willing to offer support the whole time. This is an amazing charity who I have told many many people about.
Thank you cranio Care Bears for sending my son and I a care package full of supportive supplies and best wishes for our hospital stay. Henry had skull surgery at 3 months old. I found out the day after he was born that he needed surgery. The pediatrician on call handed me a post it note with a date and name of the neurosurgeon. I cried buckets of tears alone in my hospital room not knowing what the fire might hold for my son. Then I got online and started reading about his condition. Cranio Care Bears is the site that came up first. Without the education and support of Care Bears site I would have been crying many more tears for my baby. Thank you for all you do to support babies with craniosynostosis and their families. Amy & Henry
My son has not went though surgery yet but i will be ordering a care package when he does and im sure it will be as fabulous and caring and help us though are diffcult journey to the other side they seem like the care and put so much love and time into rhe packages that they do
My niece has Craniosynostosis. She had surgery 1 year ago. and the care package that they sent to her was awesome it let her parents know someone cared. I support Cranio Care Bears
I cannot say enough about Cranio Care Bears and how they helped me and my family during one of the most difficult moments of my life. I happen to live near Shelby and she not only hand delivered my care package, but also spent time with us while my son was in surgery. Our care package was filled with so many wonderful items that made our stay a little easier like deodorant, snacks and a going home outfit. Our prayer chain still hangs in my son's nursery. We are forever thankful for this awesome organization and the amazing women behind it!
Cranio Care Bears sent us a care package before my son's surgery. It was filled with so many meaningful and helpful gifts. We treasure the prayer chain and still keep it hanging on his bed. My son loved the toys and books and little blanket. I loved the handmade scarf because not only was the hospital freezing, but also when I was feeling low and alone, it reminded me that someone took a lot of time to make something really special, and I wasn't really alone at all. The slippers, the candy, the adorable pajamas, all of it was exactly what our family needed. We are grateful!
My grandson, Felix, is a cranio warrior. At a time of anxious and fearful anticipation of his surgery this wonderful non-profit shared comfort, stories, reassurance and a care box with my daughter. What a wonderful service.
Finding out your child had anything wrong with them especially at infant age I s devastating. Being able to find a support system, positive stories and information on this defect is everything. This non profit is able to provid all of that. We are so thankful for everything cranio Care Bears has done for us and does for many families dealing with their sweet cranio children.