We started our Cranio journey at my 20 week ultrasound. During one of my many informational searches, I stumbled upon Cranio Care Bears, and I’m so happy I did. You can tell their care packages are made with love, being that they were once in our shoes. I am so grateful for Cranio Care Bears
Hi there! So, my son was about 2 months old when I suspected he had an odd shaped head. Doctors told me it just takes a bit to be round. But my gut instinct was telling me otherwise. We did physio. Nothing changed. It was by fluke that my son was throwing up his food a lot because I ended up bringing him into the emergency, where a nurse noticed his left eye didn't shut while he was sleeping and referred us to neuro. It was after his scan that right coronal was confirmed.
I had done a lot of my own research on craniosynostosis but wanted to find support groups in Canada. Found a few on FB but then I found Cranio Care Bears. I didn't know when my sons surgery was going to be, so I guess it would be around 9 or 10 months old, and I signed up for a care package. Given that I am Canadian, I wasn't sure how long it would take to get here so I just wanted to be safe. He ended up having his surgery shortly after his 1st birthday. The care package sent to us was so wonderful. I had requested a prayer chain because although I am not overly religious, it brought my family great comfort. We even shared it with our roommate at the hospital whose little one was having a rough go. Just to give them a little comfort, too.
We still have the prayer chain and hang it in our sons room. He is 3 now, and doing so well. Such a big personality and a wicked sense of humor.
Anytime anyone asks about where to turn when they find out their kid has cranio, i always mention Cranio Care Bears.
Thank you all for the hard work and dedication you do to take care of thousands of parents whose nerves are shot at the idea of their babies having such a major surgery. We are forever grateful for you!!
Mateo and family. Xo
This is one of the most supportive groups out there. As a mother of two cranio warriors I feel so lucky to have had this outlet to learn more about this condition. You know that every dime donated to Cranio Care Bears is going toward supporting families. You can see how grateful the community is by just the simple donations that members send AFTER their child’s surgery. This group may never receive a million dollar donation, but they have lifted at least a million prayers to keep babies safe in one of the scariest moments in of their young lives. Thank you Cranio Care Bears for giving more than just gifts for a hospital; thank you for the hope and love you spread across the world everyday.
Cranio Care Bears was very supportive and caring during a very hard time. I was very sick, when my son was born with a severe case of metopic craniosynostosis. Cranio Care Bears offered support, prayers and items to help with our hospital stay. So much more then even some family, or friends did— Cranio Care Bears Is amazing and I am thankful for them. Recently a friend of mine, had a baby born with saggital craniosynostosis, and I was able to send her to cranio Care Bears website to get the same help and support too. She felt so much better having their support as well as mine to guide her through surgery.
My son is 4 years post op from endoscopic surgery, and still doing well. Families need Cranio Care Bears during this hard experience.
My son was diagnosed with sagittal craniosynostosis at 3months old and this past year at 4 years with Metopic. Being diagnosed with another type of craniosynostosis really scared me and I began searching more about it. I was led to some amazing women who shared with me Cranio Care Bears. They sent Luke the sweetest package a few days before surgery. The package meant everything to him and helped calm some of his nerves. Their packages are so thoughtful and very practical. We used everything in the package during our 4 day hospital stay. We LOVE Cranio Care Bears and feel extremely blessed to have them be apart of such a scary and difficult time. This is such an amazing organization!
Our son was diagnosed with Metopic Craniosynostosis the day he was born. This diagnosis was really scary as a first time mom and I immediately began searching for information. I came across the Cranio Care Bears Facebook page and it was truly such a blessing. Reading about all the success stories on their web page was so comforting. We had Cranial Vault Remodeling surgery in October 2020 and we received one of their care packages. They put so much thought into these packages and you can tell. They were a bright light in such a trying time for our son.
These people are the sweetest!! They helped us with a box filled with happy during such a scary time with my little one this October. He was diagnosed with Sagittal Cranio late, at 2.5yrs & this helped us get through such a traumatic in his journey. I can’t say enough great things about this organization
My son Oliver was born with Metopic Craniosynostosis in March 2020. He had his skull reconstruction surgery in October 2020. The Cranio Care bears have been by our side every step of our journey. Their kindness is spread far and wide to families that face difficult days during surgery and hospital stays. The gifts are thoughtful and can serve as a reminder of strength and courage for days to come. We are grateful for the organization and the love they have shown us. We hope to continue to support them as they offer so much light and hope to the families they serve.
My wife and I have had 3 children and unfortunately all 3 have had cranio surgery. This group is a terrific organization that sends out care packages to help the families stay at the hospitals be more manageable. All 3 times we went in for surgery it was always a nice feeling knowing we had these care packages. Outside of the care packages they run an outstanding website which is not only informative but sends prayers out to so many children who have these cranio surgeries on a daily basis.
Cranio Care Bears is an amazing non-profit organization supporting families going through a difficult process. Their love and support that they send through care packages makes families smile and eases emotions knowing that their not alone. Thank you CCB for all you do for cranio kids and their families. Xoxo
My son had CVR at 5 months and this group was so helpful and sent my son A care package that I will cherish forever.
Cranio Care Bears was there during one of the hardest times in our lives. With something as simple as a care package, they made us feel like we weren’t alone during this trying time. These women are amazing for what they do. I can’t thank them enough. We just celebrated my son’s first Cranioversary and we still have a few things that were sent to us in our care package. Thank you again for all that you do cranio Care Bears.
We got a care package the day of my sons surgery . Although we had already left for the hospital early that morning, coming home to the package was such a blessing . My son enjoyed the little toy and pajamas , we felt honored to know that someone made this package specially for us and it was a good feeling to know we have support form a strong community ! Since then we have donated to help support other families going through similar experience
Cranio Care Bears was throughly supportive and encouraging when we had our son’s endoscopic surgery for saggital craniosynostosis in November 2019. We loved the care package they sent to us for surgery time. Thank you CCB!
Cranio Care Bears is such an amazing organization. It is so scary when your little one has to have surgery. They sent a packing list for the hospital. They even sent a care package for my son. It was so thoughtful! Cranio Care Bears is a wonderful resource and I am so thankful it exists.
My son, Jayce, was diagnosed with Craniosynostosis at 1 ½ years old. He had his first cranio surgery at 23 months. We received a care package from the Cranio Care Bears about a week before his surgery. It had all sorts of goodies from hygiene products to tylenol to some PJs for Jayce. My absolute favorite part was the homemade hat and the prayer chain. Jayce had his 2nd cranio surgery when he was 4 ½ years old. Again we received a care package. It too had all sorts of goodies. The work these ladies do is so important because it helps calm the parents for one, and it makes the little ones feel a little more comfortable. I am so thankful for the Cranio Care Bears. It is good to know we are not in this alone!
Cranio Care Bears is an important support group. They gave me a community that I didn’t have where I live. Thank you Cranio Care Bears!
Cranio Care Bears is truly a wonderful organization that not only helps to ease the stress of hospital stays with their thoughtful care packages but also through the immense awareness they spread for Craniosynostosis. Awareness is key!
Cranio Care Bears have always been there for my Cranio warrior and our family. They not only provide care packages for children facing surgery but a safe place full of support and advice. They really are the heart of our Cranio community
Cranio Care Bears was there for me and my family in the scariest thing we have had to go through. Not only did we get a very kind and generous care package, but they also checked on is while we were in the hospital. They made sure we didn't go through this alone.
Such an awesome charity! Sending care packages to kids before they endure major surgery. It’s a great support to the parents in the time they are so scared! And they have become a good support system over the years!!! Love these ladies and all that they do for our Cranio community!!!
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When we were told my son had Craniosynostosis the first thing I did was hit the web to find support. One of the first site I came across was Cranio Care Bears. I read through success stories and was so glad to find that there were others that had been though this around for support. When we recieved the care package prior to surgery, I cried. It was so comforting that they knew what we needed! To this day we have my sons prayer chain in hanging in our house to remind us of the love and support we had!! Thanks Cranio Care Bears!!!!!!
The most loving and kind hearted two mommies ever! The amount of time these two ladies give just to help others is amazing!
They make you feel like you aren't alone in the journey. They brought joy to us in the days leading up to surgery when joy was hard to muster up. Thank you for all you do!
Cranio Care Bears helped our family through a very tough time with such knowledge and understanding of what we were about to encounter. I suggest to anyone I hear that has to go through the cranio process with their child to make sure to sign up with cranio care bears. Their dedication and selflessness is something to be proud of!
Their care packages are so helpful when going into the hospital, I swear they remember everything that you forget. So much of their items for the kids not only are useful, but help the kids feel proud of themselves for what they're going through. Shelby will even come and sit through surgeries with the families.
This group is amazing!
Our daughter was diagnosed shortly after birth with sagital craniosynostosis and just had full CVR on Oct 17th. The care package and support in general from this group has been so helpful. They are the best!
This is the most amazing organization. Two moms who have dedicated their lives in making one of the darkest times for a family, brighter. This organization sent my beautiful baby girl a loving care package just before she had a cranial surgery. The love that goes into each box is obvious. I believe that there are few others that selflessly give their time and dedication long after their child's surgery is in the past. That is not the case with the Shelby & Summer.
Thank you Cranio Care Bears.
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Amazing organization! Summer even came to the hospital and was there for me when my little one was in surgery!
Cranio Care Bears was there for me during one of the most difficult times. They send my son a care package for FREE to help help console us while my son was in the hospital!
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When my son was diagnosed with Craniosynostosis at 1 month old my entire life came to a halt. I consumed myself with finding as much information regarding Craniosynostosis as possible when I came across Cranio Care Bears it gave me relief knowing that there are other people that have been through the same thing I was going through and that they wanted to send a care package to help my family and I during the difficult time. Shelby and Summer are both wonderful ladies that have helped our family in so many ways.
Amazing group! They provide a great support network during very difficult times for families. So grateful for them!
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Our daughter was diagnosed with Craniosynostosis at 2 months old and scheduled to have surgery at 8 months old. We had never heard of the condition and immediately began doing research online. We found Cranio Care Bears and immediately had a support group of friends and family that had been through the exact situation we were going through. The care package we received from them a few days before her surgery was a great blessing and comfort and provided much needed relief while we were in the hospital.
Our smaller twin was diagnosed with bilateral coronal craniosynostosis at 12 months old. Everything was happening so fast, he was scheduled for surgery 1 short month later after his diagnosis. Cranio Care Bears sent us a care package filled with such sweet goodies from toys, blankets, and sleepers to toiletries and snacks for us parents. When Aiden had his second surgery just 3 short months later, they sent us another care package. We take his prayer ribbons to all of his surgeries and the hang above his crib. He loves snuggling his blankets he recieved and so does his brother. We couldn't be more thankful for this wonderful organization!
Cranio Care Bears is an amazing nonprofit that supports families who’s children have a condition that most people have never even heard of. I know I didn’t until my son was diagnosed. They not only have ton of educational information to help you but they offer true life stories and journies of other familes who have been in your shoes to offer help. The support I have gotten from the care bear community has helped my family greatly!
Such an amazing group! I love the personal shout outs for the littles who are having surgery so that we can pray for them. The care packages are such a lovely gesture!
When my son was diagnosed with cranio I was devastated, I felt like I was alone. Until his dr mentioned cranio Care Bears! I immediately went home and found them and requested a care package. When it came it was a huge relief, i suddenly realized I wasn’t alone and to get this care package meant the world! The time and dedication these lady’s put into these is astounding. And to do it all off donations and their own money is unbelievable! We love cranio Care Bears
Cranio Care Bears helped us through one of our darkest times, when our 12 week old baby had surgery on his skull. This group provided us with a free care package with thoughtful items to help with our hospital stay and recovery from surgery. The kindness and thoughtfulness of the care package was so uplifting and encouraging in such a worrisome and stressful time. They are such a thoughtful and giving group and they touch so many lives in time of need. I've added a picture of our unopened care package and a picture of my son on our way home from the hospital wearing a hand made hat he received from Cranio Care Bears.
Cranio Care Bears supported my family through a very uncertain time. We had never even heard of craniosynostosis when our son was diagnosed. Being told your baby has to have their skull taken apart and put back together is, to say the least, scary. Summer and Shelby are so accessible and kind. Small things make a huge difference when you are at the hospital - their care package carried us through from surgery day to discharge. We taped his prayer chain to his hospital crib and so many people remarked on how neat it was. I read it many times over on the long nights as he recovered from surgery. Cranio Care Bears is a standout example of a non-profit that truly makes a difference. ❤️
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From shortly after my son was diagnosed with craniosynostosis, through his surgery and recovery, and to this very day - the kindness Cranio Care Bears has shown our family has made such a difference. Their website is an excellent, non-scary, informed source for all families facing it. The moment I found them I felt a wash of relief knowing I had a support network around the world. Summer & Shelby put their hearts into the care packages. We still have our
prayer chain hanging up in our son’s room. And they are easy to reach out to, which is amazing given all that they juggle!
Finding Cranio Care Bears while preparing for our sons son's surgery was a true blessing. The others parents stories gave me so much hope & strength and our care package made me feel taken care of when my complete focus was on our son. I'm forever grateful to this organization and all that they have and continue to do for the cranio warriors and their parents.
Cranio Care Bears is truly amazing!! My son was 11 weeks old when he had to have his first surgery then at 10 months old had a second. It was so scary having such a little one have to go through surgery an not knowing what to expect. Cranio Care Bears does amazing things, hearing their stories, and reading all that they have on their website made things easier. The care packages they sent out for my son Bentley was a blessing. They even write prayers for "child's name" on the out side of every package. And they send these goodies out for FREE! They send things for baby and parents. From hand made beanies, prayer chains, toys, socks and PJs that zip or button (which is a life saver for after), toiletries an candy for the long wait in the waiting room. Cranio Care Bears does amazing things and they make you feel not alone during the journey with prayers and love in every care package they send out. My family have been on this Craniosynostosis rollercoaster for almost a year. Bentley has had two surgery's and recieved a package for each one and I'm still amazed on what all they send each child in the care package. I am a proud Cranio Mom an I love all that Cranio Care Bears does for the Cranio Warriors an their family's.
Our family had never heard the term "craniosynostosis" until the birth of our beautiful granddaughter. We were scared, confused, and felt as though we were completely alone confronting this condition. Cranial surgery? Blood transfusion? It was terrifying. Days before surgery, our daughter and son-in-law received a care package from "Cranio Bears." The package contained items, both personal and practical, that would help them through that overwhelming week. This wonderful support group was founded by two mothers whose children made it through their own surgeries. Their Facebook shout-outs to children and their families all over the world on the eve of their surgeries provide inspiration when it is most needed. The outpouring of support and prayers brought tears of hope and encouragement. We were not alone and we can now pay it forward to support other families. This organization educates and is doing incredible things with grassroots parental initiative. There are all kinds of gift items that raise awareness and raise hope. There are modest funds raised, but they are deserving of so much more recognition and funding. I'm not sure how we would have surmounted that feeling of fear and loneliness without Cranio Bears.
Cranio Care Bears does such a great thing for families like mine who have children undergoing surgery. We were so happy to receive a package before surgery with hospital necessities, and clothes for our little one. We’re so thankful for this organization.
My son was diagnosed with sagittal craniosynostosis at 4 months of age. It was a very scary time in our lives. First time parents facing a diagnosis we had never heard of. Thankfully I stumbled across a large Facebook community of parents who have had the same or similar experience as my own and they directed me to Cranio Care Bears. Receiving their care package just days before his surgery was so comforting. It was so good to know that there were other people out there who cares and we’re prayinf for our son. We don’t have any capable family near us, so receiving that package was like having a family member watch over us.
Thank you Cranio Care Bears for all you do!
My husband and I first found out about our son's craniosynostosis the day after he was born. The doctors told us all about the possible implications of surgery, recovery, a helmet, and options for treatment. We were terrified and overwhelmed, it was such a punch in the gut to hear this news about our little newborn.
Through the process of his diagnosis, I joined a Facebook group for Craniosynostosis parents. The group was incredible; so much support, up-lifting stories, questions answered, and best of all, we found Cranio Care Bears. I was in awe of the work of the group and immediately signed up for a Cranio Care Bear care package.
Our care package arrived in the mail a few weeks before his surgery and instantly made us feel at ease about what we were going through. Knowing that there were so many others who had gone through similar experiences and that we had so much support from people we never met was just amazing. The care package had clothes for him, a prayer chain (which hung over his hospital bed and now hangs over his crib), blankets, toys, and personal care items for my husband and I. The generosity of this group and care that they put into each delivery moved me to tears. The group is so wonderful for the support of kids with craniosynostosis and for parents and loved one of these little warriors.
Our little guy's surgery went perfectly. The surgeons and nurses could not have been more compassionate and communicated so well with us throughout the whole process. I'm proud to say that our little guy graduated from his helmet after only 5 months of wear (typically is closer to one year) and is just the happiest little guy around!
When we received the news that our tiny baby would need cranial surgery we were scared. We found wonderful information, support, and a sweet care package to help our child through their hospital stay! We can not thank them enough for the prayers, support, and encouragement as we went through testing, diagnosis, surgery, and recovery!
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Our son was diagnosed at 4 months with a rare form of Craniosynostosis. Cranio Care Bears sent us the sweetest care package for our son’s hospital stay. It was so comforting to know others had walked this painful road before us and their children came out well on the other side! They included items I wouldn’t have thought of to bring for the hospital stay. I’ve been able to pass on their information other families facing this surgery!
Craniosynostosis?What is that you may ask because you have never heard of it before. That is exactly what I thought. Until you deal with this diagnosis you don't know the fear of the surgery and process surrounding it.
This is where Cranio Care Bears comes in. You request for a care package when you get your surgery date. They send out the most amazing package for YOU and your little one. The thought and care that goes into each one is awesome. It includes everything from a prayer chain to ibuprofen and a baby hat.
This organization is run by two moms that have been through the cranio journey. They do it from their homes on their time. They started it because when their children went through it there were no resources or support groups.
I can not say enough great things about this non-profit. They are touching so many lives in such a positive way.
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This organization is angelic. They send an amazing care package filled with all the little things you need before, during, and after your child’s surgery. The ladies that run it are loving, compassionate, and very organized. I am so grateful to this organization and highly recommend them if you are ever in our situation.
CranioCareBears provided so much support and encouragement in the months leading up to our daughter’s surgery and during her recovery. They connected us to a network of families going through similar things which gave us much comfort and they continue to work to bring the community together!
Cranio Care Bears is an incredible organization. They showed so much concern and care for our family when my son had to have surgery due to Craniosynostosis (premature fusing of the sutures in his skull). They sent a care package to our home a week before his surgery. It was so nice to feel love from other moms who have gone through the same process :)
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When I found out that my son had Sagittal Craniosynostosis I was overwhelmed. I found Cranio Care Bears and immediately felt so much love and support during this uncertain and scary time for our family. The Care package was so thoughtful for out little Jackson and they have such great products on their shop to support and show awareness for Craniosynostosis.
Such an uplifting package to receive as we were packing for my son’s surgery—it was filled with goodies for both him and my husband and me, and we were so thankful!
Was such a gift to receive the care package so quickly for my son's surgery. Such a needed comfort to know we were being prayed for and to have treats, distractions, clothes, etc. It was just such an amazing service in the midst of a horrible time. We are now in recovery and still enjoying the wonderful gifts from Cranio Care Bears!
They provided comfort and excitement in a time of panic and confusion. It inspired me to give to others and made meaning change in my families life as I understood how little it takes to make a substantial difference in the world.
When my son was diagnosed with craniosynostosis I wasnt sure where to begin looking for information. While searching for more information online I came across Cranio Care Bears, there was tons of information and I was able to read the stories of others who have been through this and it gave me so much hope. The care package we received before surgery brightened our day! We are almost two years post op and we still have the prayer chain hanging above my sons bed. Such a wonderful organization!
At two months old, our son was diagnosed with craniosytosis, and underwent a successful surgery two weeks later. My sister-in-law found this non-profit and within a few days, we received a very personal care package. This special gift of support was filled with everything we could have hoped for. The handmade prayer chain still hangs in room next to his bed. Knowing that our son was in so many people’s prayers during this very difficult time was so comforting. Thank you Cranio Care Bears!
My little boy had CVR surgery in march of this year. Cranio Care Bears sent us a care package the week before surgery and it warmed our hearts! Such a selfless act of kindness for those of us who are nervous and scared. God bless them!!
My son had a cranial vault remodel surgery done this past June (2017). With such a scary surgery and time in our lives it was great receiving a care package for the hospital stay that made us feel like we weren’t alone in this scary time. I love cranio Care Bears!
When I was dealing with the diagnosis of my daughter I was lost. I had no idea where to go or what to do. Someone suggested to me cranio care bears as a resource. I connected with Summer and she was simply amazing. It ended up my daughter did not need surgery but Summer was willing to offer support the whole time. This is an amazing charity who I have told many many people about.
Thank you cranio Care Bears for sending my son and I a care package full of supportive supplies and best wishes for our hospital stay. Henry had skull surgery at 3 months old. I found out the day after he was born that he needed surgery. The pediatrician on call handed me a post it note with a date and name of the neurosurgeon. I cried buckets of tears alone in my hospital room not knowing what the fire might hold for my son. Then I got online and started reading about his condition. Cranio Care Bears is the site that came up first. Without the education and support of Care Bears site I would have been crying many more tears for my baby. Thank you for all you do to support babies with craniosynostosis and their families. Amy & Henry
My son has not went though surgery yet but i will be ordering a care package when he does and im sure it will be as fabulous and caring and help us though are diffcult journey to the other side they seem like the care and put so much love and time into rhe packages that they do
My niece has Craniosynostosis. She had surgery 1 year ago. and the care package that they sent to her was awesome it let her parents know someone cared. I support Cranio Care Bears
I cannot say enough about Cranio Care Bears and how they helped me and my family during one of the most difficult moments of my life. I happen to live near Shelby and she not only hand delivered my care package, but also spent time with us while my son was in surgery. Our care package was filled with so many wonderful items that made our stay a little easier like deodorant, snacks and a going home outfit. Our prayer chain still hangs in my son's nursery. We are forever thankful for this awesome organization and the amazing women behind it!
Cranio Care Bears sent us a care package before my son's surgery. It was filled with so many meaningful and helpful gifts. We treasure the prayer chain and still keep it hanging on his bed. My son loved the toys and books and little blanket. I loved the handmade scarf because not only was the hospital freezing, but also when I was feeling low and alone, it reminded me that someone took a lot of time to make something really special, and I wasn't really alone at all. The slippers, the candy, the adorable pajamas, all of it was exactly what our family needed. We are grateful!
My grandson, Felix, is a cranio warrior. At a time of anxious and fearful anticipation of his surgery this wonderful non-profit shared comfort, stories, reassurance and a care box with my daughter. What a wonderful service.
Finding out your child had anything wrong with them especially at infant age I s devastating. Being able to find a support system, positive stories and information on this defect is everything. This non profit is able to provid all of that. We are so thankful for everything cranio Care Bears has done for us and does for many families dealing with their sweet cranio children.
When my daughter had to have a cranio surgery these wonderful ladies sent her a care package to help ease the thought off surgery. They go above and beyond to make many families feel so loved, such a wonderful non profit. Truly a blessing!
When our son was diagnosed with Sagittal Craniosynostosis, we were so overwhelmed and nervous. The Cranio Care Bears were an amazing support to us in the months leading up to our son’s surgery date, and the care package they sent us was so thoughtful. It truly helped alleviate some of our worries, and helped us feel like we weren’t alone in this journey. We can’t say enough good things about this incredible organization. Summer and Shelby, you are amazing, and your work is so appreciated.
