My Nonprofit Reviews

Hi there! So, my son was about 2 months old when I suspected he had an odd shaped head. Doctors told me it just takes a bit to be round. But my gut instinct was telling me otherwise. We did physio. Nothing changed. It was by fluke that my son was throwing up his food a lot because I ended up bringing him into the emergency, where a nurse noticed his left eye didn't shut while he was sleeping and referred us to neuro. It was after his scan that right coronal was confirmed.

I had done a lot of my own research on craniosynostosis but wanted to find support groups in Canada. Found a few on FB but then I found Cranio Care Bears. I didn't know when my sons surgery was going to be, so I guess it would be around 9 or 10 months old, and I signed up for a care package. Given that I am Canadian, I wasn't sure how long it would take to get here so I just wanted to be safe. He ended up having his surgery shortly after his 1st birthday. The care package sent to us was so wonderful. I had requested a prayer chain because although I am not overly religious, it brought my family great comfort. We even shared it with our roommate at the hospital whose little one was having a rough go. Just to give them a little comfort, too.

We still have the prayer chain and hang it in our sons room. He is 3 now, and doing so well. Such a big personality and a wicked sense of humor.
Anytime anyone asks about where to turn when they find out their kid has cranio, i always mention Cranio Care Bears.
Thank you all for the hard work and dedication you do to take care of thousands of parents whose nerves are shot at the idea of their babies having such a major surgery. We are forever grateful for you!!

Mateo and family. Xo