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Phone: 850-273-6947
PO Box 618
New York 10538
2013 Top-rated nonprofits and charities

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Geographic areas served: International


BSF sponsors a competitive research grant program to facilitate advances in Barth syndrome (BTHS) understanding and to encourage the discovery of new treatments.
We are interested in providing “seed grant funding” to young investigators as well as attracting experienced investigators new to the field of BTHS basic science or clinical research. We anticipate that these funds will be used for the testing of initial hypotheses and the collection of preliminary data leading to successful long-term funding by the National Institutes of Health (NIH) and other major granting institutions around the world.

The Barth Syndrome Foundation (BSF) is dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome (BTHS).
Our efforts have provided educational resources to transform families from powerless by-standers to empowered advocates.

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As a physician-scientist working in the field, I cannot say enough good things about the Barth Syndrome Foundation. Like many worthy non-profit organizations, they focus on a rare but devastating disease. Like many non-profits, they raise money for research and heighten awareness. Like many other... more »
Amazing association, extremely active in fund raising, in raising awarness on a rare disease, on supporting affected families and promoting medical research... more »
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