Oops! You must enter a search term greater than 3 characters.

Profile moreless )

Phone: 850-273-6947
PO Box 618
Larchmont
New York 10538
USA
Website
2013 Top-rated nonprofits and charities

Please to add this organization to your favorites.

Add to my favorites Added to favorites!

Geographic areas served: International

Programs:

BSF sponsors a competitive research grant program to facilitate advances in Barth syndrome (BTHS) understanding and to encourage the discovery of new treatments.
 
We are interested in providing “seed grant funding” to young investigators as well as attracting experienced investigators new to the field of BTHS basic science or clinical research. We anticipate that these funds will be used for the testing of initial hypotheses and the collection of preliminary data leading to successful long-term funding by the National Institutes of Health (NIH) and other major granting institutions around the world.

Mission:
The Barth Syndrome Foundation (BSF) is dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome (BTHS).
Results:
Our efforts have provided educational resources to transform families from powerless by-standers to empowered advocates.

Invite reviews

Invite friends and colleagues to share their experiences with this nonprofit
61 Reviews
See all »
Average rating:
1234.983615
Write A Review
07/31/14
As a physician-scientist working in the field, I cannot say enough good things about the Barth Syndrome Foundation. Like many worthy non-profit organizations, they focus on a rare but devastating disease. Like many non-profits, they raise money for research and heighten awareness. Like many other... more »
07/31/14
Amazing association, extremely active in fund raising, in raising awarness on a rare disease, on supporting affected families and promoting medical research... more »
See all 61 reviews »

Photos & Video


See all »

Support This Nonprofit

Promote This Nonprofit

Great Nonprofits badges allow you to raise awareness of your favorite organizations on your own web sites. for text link or graphic badge.

Get badge
By registering you agree to the site's Terms and Conditions.