BARTH SYNDROME FOUNDATION INC Overview
Geographic areas served: International
BSF sponsors a competitive research grant program to facilitate advances in Barth syndrome (BTHS) understanding and to encourage the discovery of new treatments.
We are interested in providing “seed grant funding” to young investigators as well as attracting experienced investigators new to the field of BTHS basic science or clinical research. We anticipate that these funds will be used for the testing of initial hypotheses and the collection of preliminary data leading to successful long-term funding by the National Institutes of Health (NIH) and other major granting institutions around the world.
The Barth Syndrome Foundation (BSF) is dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome (BTHS).
Our efforts have provided educational resources to transform families from powerless by-standers to empowered advocates.
Invite friends and colleagues to share their experiences with this nonprofit
BSF is both as a family, loving, helpful and supporting, and as a huge source of information. Even if our son is affected by a rare disease, we never feel alone, and BSF give us the strenght to live with Barth Syndrome, and give us hope that the future of our kids will be brighter... more »
When I found out my son had Bath Syndrome it was overwhelming in every way. BSF have been a TOTALLY INVALUABLE resource in so many ways. Clear information for me as a parent, for medical professionals, help with planning school placements and a mine if useful information I didn't even know I would ... more »
Amazing source of support, information and knowledge! BSF is always striving for the good of everyone and for that I can only thank them! It is amazing to see how BSF has helped and changed so many of our lives in a positive way. While it is always wonderful to look to the future I also think it is... more »