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Phone: 850-273-6947
PO Box 618
Larchmont
New York 10538
USA
Website
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Geographic areas served: International

Programs:

BSF sponsors a competitive research grant program to facilitate advances in Barth syndrome (BTHS) understanding and to encourage the discovery of new treatments.
 
We are interested in providing “seed grant funding” to young investigators as well as attracting experienced investigators new to the field of BTHS basic science or clinical research. We anticipate that these funds will be used for the testing of initial hypotheses and the collection of preliminary data leading to successful long-term funding by the National Institutes of Health (NIH) and other major granting institutions around the world.

Mission:
The Barth Syndrome Foundation (BSF) is dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome (BTHS).
Results:
Our efforts have provided educational resources to transform families from powerless by-standers to empowered advocates.

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Average rating:
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09/18/14
BSF is an amazing foundation. They are an invaluable resource to those of us with families affected by Barth syndrome... more »
09/18/14
This organization has changed our lives. When my 15 year old son was diagnosed with Barth syndrome, we were overwhelmed and lost. Through finding the Barth Syndrome Foundation, we were able to find specialists and information as to how to treat this extremely rare illness. Within just one week my ... more »
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