My Nonprofit Reviews

iljsg - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

iljsg

80 profile views
1 reviews

Review for BARTH SYNDROME FOUNDATION INC, Larchmont, NY, USA

Rating: 5 stars  

BSF has helped so much with so many issues. Being able to discuss with other parents issues that we face everyday and over time, makes dealing with this disease more manageable. Support, Information and a personal touch go a long way in helping to ease the stress you feel when you child is critically ill. The president has been there for me and my family for 13 years, the first of which were very critical, and now will be there for me and my family once again as we got through another critical medical issue with our son. I am so thankful for the Barth Syndrome Foundation and the list serve that keeps us together and keeps us strong for our children. A very fine group with a very great mission!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served