November 15, 2012
Those who have been touched in any way by this rare (but way underdiagnosed) disease understand how inportant this work and our support are.
More feedback
Would you volunteer for this group again?
Unsure
For the time you spent, how much of an impact did you feel your work or activity had?
Some
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Likely
When was your last experience with this nonprofit?
2012
MY ROLE:
Volunteer