November 15, 2012
Those who have been touched in any way by this rare (but way underdiagnosed) disease understand how inportant this work and our support are.
Would you volunteer for this group again?
For the time you spent, how much of an impact did you feel your work or activity had?
Did the organization use your time wisely?
Would you recommend this group to a friend?
When was your last experience with this nonprofit?