November 19, 2012
I first got in contact with the Barth Syndrome Foundation when my youngest son was born in May 2011. The support we received from the BSF was instantly overwhelming, and we felt blessed in knowing we were not on this terrifying journey alone. We live in Australia, and even though the BSF is based in USA, we felt confident that our questions and concerns in those early days could be addressed at any time of need. I truly appreciate and admire the BSF, and support its values and principles in helping families worldwide in the education about Barth Syndrome and it's complexities.
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MY ROLE:Client Served