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Open Medicine Foundation

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Nonprofit Overview

Causes: Health, Medical Disciplines Research

Mission: Our Mission Supports collaborative medical research to find effective treatments and diagnostic markers for ME/CFS and related illnesses. Keeps the community informed by disseminating information on current research projects and results. Brings together thought leaders from around the world to brainstorm and participate in targeted initiatives. Encourages and engages the patient community to take an active role in research.

Results: Funded Research projects and new Research projects are underway.

Target demographics: Find diagnostic tests, effective treatments and a cure for ME/CFS and related illnesses

Direct beneficiaries per year: Medical Research for ME/CFS

Geographic areas served: Collaborative Research and Fundraising for ME/CFS and related illnesses.

Programs: Collaborative Medical Research

Community Stories

174 Stories from Volunteers, Donors & Supporters

Jerry W.3

Volunteer

Rating: 5

continuously researching ME/CFS and giving patients hope!

General Member of the Public

Rating: 5

OMF have given me and my partner (who has ME) the most hope. We could be years off a cure yet, but to see the work they are putting in, and to trust they are giving it everything they have means the world to us. We are in our late 20s, everyday we wish with all our heart that a cure will come soon, so we can still enjoy being young together and start thinking about having a family of our own one day.

Volunteer

Rating: 5

COLLABORATION. A powerful way to achieve results, when researching a disease so complex such as ME/CFS - and collaboration is in the core of the work at OMF. This NGO has already achieved groundbreaking discoveries and will continue to do so, aiming at finding treatment for the symptoms and hopefully a cure. My son and millions of other patients follow OMF’s work, which they share with their community on a weekly basis. I am part of their translator’s team, who help them reach patients, caregivers and the public in general in many countries around the world.

General Member of the Public

Rating: 5

In the 24 years I have had ME/CFS OMF has given us the most hope. They share their research openly, use their funds as well as they can to maximise the value they get from them, have people involved who have a personal interest in seeing a diagnostic test and cure for this devastating disease. They are working for their loved ones as well as all of us. They work tirelessly, take every opportunity to raise awareness and bring help to a substantial number of people who have had lives devastated by this horrible illness. My daughter is 30 and has had the illness since 13. All her dreams on hold. We are both house and bedbound. To know that OMF are tireless and dedicated to helping us gives us more hope than we've ever had. Thank you OMF.

1

General Member of the Public

Rating: 5

I am a mother of two small children- a preschooler and a baby. This disease has devastated my health, some days I can barely walk. I now need help caring for my precious children. I was young, fit, and very healthy when I got this disease. It can happen to anyone! Yet there is a horrific lack of understanding and no treatments available. Suicide is 8x higher for us. We need help! Our lives are passing us by. OMF is the only organization that I know of that is dedicated to a cure. Forget politics, forget who gets “credit”- OMF cares solely about a cure because the people that run the organization both have severely ill children. The organization is “open” meaning anyone can see their data and help solve this disease. Their recently published study brings us closer to a bio marker. The research coming out of this organization is some of the most important of our time.

Ingrid S.1

Volunteer

Rating: 5

Open Medicine Foundation are taking my health seriously with their excellent hard working projects, while others goes in circles and arguing about old missfeild arguments.
They listen to the patients experience, where other doctors choose to not listen. And from that OMF find importante emperi and ideas for there work and goals.

Sylvia R.2

General Member of the Public

Rating: 5

OMF have great scientists that are willing to fast track research with their open data policy. They give me hope there will be a cure for ME during my lifetime, even though I'm 48 and ME patients have a 13 year shorter lifespan. I've had ME since early childhood and want to experience a life where walking, eating, breathing and sleeping aren't as exhausting and painful.

General Member of the Public

Rating: 5

I am a 32 year old male with ME/CFS. I can barely walk much during the day, I push myself to work some small part-time jobs where I can sit and work, which still tires me out. This itself is difficult due to the cognitive dysfunction cfs causes patients, such as in my case.

Every day is like climbing a mountain, as soon as I wake up the morning stiffness is so severe my body almost can’t keep up with the pain.

The researchers investigating, finding, and presenting bio-markers that have validated CFS are all directly affiliated with the Open medicine foundation.

Their published scientific research and articles demonstrate the hard work and innovation they are bringing to the table to deal with this difficult challenge.

They are also actively looking for a cure, sympathetic to the needs of the CFS patient community.

In a way for many, OMF serves as a beacon of hope, or even our last bastion.

They have taken blood samples from me (and even my healthy relatives) many times and have run tests on them for their comparative studies, so I can personally say they are actively working on a day to day basis for the needs of the CFS community.

Please donate generously. Hopefully your funds can lead to a break through in one of the most devastating and debilitating sicknesses a person can deal with.

Thank you.

Hanna C.2

Donor

Rating: 5

OMF is the organisation that brings hope for so many people :)

Donor

Rating: 5

This organisation is conducting much needed biomedical research into ME/CFS. the work that they're doing gives hope to be and millions of other sufferers that I've day there maybe be treatment or even a cure.

General Member of the Public

Rating: 5

I am a mother of two young children struggling with this very debilitating and devastating disease, OMF brings real hope and understanding to my life. Thank you, thank you OMF.

Kathy B.6

General Member of the Public

Rating: 5

After 37 years of this illness, we finally have an advocate with power. Thank you, OMF, for bringing hope to this forgotten population.

Donor

Rating: 5

The Open Medicine Foundation is comprised of the best and most dedicated scientists, bringing hope to millions of people.

General Member of the Public

Rating: 5

I was 28 when I got this horrible disease ME/CFS. That is now 2 years ago. I can´t work and live the life I want to have. OMF is the onliest Organisation who has the power and knowledge to help us. But they need more funding!!!!

Donor

Rating: 5

My wife has been sick with ME for about 5 years. Like most people with ME, she cannot work and has had to give up most things from her previous life. There is no diagnostic test, no cure and no FDA-approved treatments. Government funding for ME is next to nothing. OMF does top quality and groundbreaking research and is the leading the way and is the standard-bearer for ME research. They are by far the best hope for the millions of people who have had their lives trashed by ME/CFS.

Anton K.

General Member of the Public

Rating: 5

My brother is tortured by this terrible disease. OMF are giving a little hope to him and his close ones, by their research. Their scientists seem really great, both competent and having an honest desire to solve the mystery of ME/CFS.

1

Volunteer

Rating: 5

I Will Tell You This
About Myalgic Encephalomyelitis:

When the pain is unbearable and my muscles cannot take anymore I am too exhausted. I need to lay down away from sounds, light or any distress. Seeking comfort and try to relax. Hoping for better days and results from OMF biomedic research...
Because there is no cure yet!

WE WANT TO LIVE! So please join in for more biomedical research in M.E.!

Petra

Joanne S.2

General Member of the Public

Rating: 5

I have suffered from ME for 28 years. Due to this illness I have lost a career, the chance to get married and have a family. I spend most of my time housebound, and alone. This is not the life I envisaged in my twenties. My life effectively came to an abrupt stop at the age of 27.
During the last 28 years there has been very little research into ME/CFS, particularly biomedical research. The Open Medicine Foundation are one of the few groups of researchers working in this field. Research gives ME patients hope, the OMF gives us hope.
Please let's not loose yet another generation to this dreadful illness because of lack of research. Support the OMF.

Client Served

Rating: 5

The OMF is dedicated to rigorous biomedical research into the much neglected illness ME/CFS. It does this very ethically, sharing data and reaching out to a wide range of disciplines. Most of all it giveaways HOPE

Professional with expertise in this field

Rating: 5

The Open Medicine Foundation funds top scientists to study one of the most neglected diseases of our time.

Myalgic Encephalomyelitis (ME) is often called chronic fatigue syndrome (CFS) even though it is recognized by the World Health Organization as a debilitating neurological condition. Research has shown that ME/CFS is more disabling than MS, congestive heart failure and end-stage renal disease. It is estimated that more than 1 million Americans have the disease and several millions worldwide. There is currently no FDA-approved treatment for ME/CFS and little is known about the illness.

The Open Medicine Foundation is dedicated to change that. It engages with the ME community and brings patients and researchers together in their quest for knowledge and answers. Most importantly: it brings high quality science to the field of medicine that needs it the most. I myself have been ill because of ME/CFS for more than 10 years. It has left me disabled, uneducated and homebound. There are millions like me suffering. Please support the Open Medicine Foundation and help find a cure for ME/CFS.