My Nonprofit Reviews
Review for Forever Young Foundation, Mesa, AZ, USA
Madelena underwent chemotherapy and a bone marrow transplant 5 years ago, and the intensive regimen led her to be severely depressed and suicidal. She was being treated for a disease that robbed her of her creative outlets, as she no longer had the physical dexterity to create in the ways that she was accustomed. Her almost daily appointments with the music therapy team at Primary Children's during her month long treatment gave her something to look forward to every day, and drew her out of her depressed isolation. She wrote songs with the music therapists that gave meaning to her suffering, and allowed her to process her grief, anger, and pain in a constructive and healing way. She continued to visit Sophie's Place at Primary Children's after her treatment, and we credit their dedicated, knowledgeable, and loving treatment as the factor that made the difference in Madelena's recovery.
Review for MLD Foundation, West Linn, OR, USA
We have three children who were diagnosed with the juvenile form of MLD in late 2012. The MLD Foundation was our first stop for information, support, and community. They guided us through different treatment options and the yearly conferences that they hold gave us exactly what we needed in terms of information, education, support, and most of all.... hope.
They are developing more programs to suit the needs of families affected by MLD, and we are so grateful for their leadership and their advocacy.
This is a really great non-profit that devotes itself to the needs of families desperate for answers and support for a rare and cruel disease.