My Nonprofit Reviews

The HDSA is a group of very caring and sympathetic people who are working hard to fund research to find a cure but just as important to support the HD community’s needs. This is the devil of all diseases in that it is terminal, with no cure and only one compound approved to treat a single symptom. HD is the only genetic neurological disease, meaning if you carry the defective gene you have a 50% chance of passing the disease to your children. This forces those at risk into making choices no one should have to deal with on top of their potential spiral into an untimely death. The Society has done a terrific job of surviving the nation’s second worst economy and updating the vision and mission with input from the HD community at large. I have been to many of their charitable functions and have enjoyed them all I am proud to be one of many passionate volunteers working to support our HD community!

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