I was able to attend an HDSA National Youth Alliance retreat recently. I was able to share with a group of people that could relate to what I was going through. I am grateful that these retreats exists.
I attended the HDSA convention for the first time ever this summer and I have found a family that gets me. It is great to share with a community that understands exactly what I am going through.
Thank you for everything that you do. We have received so much guidance. My family and I really appreciate it.
This nonprofit is absolutely amazing. I've seen the work they do with patient outreach, scientific research as well as fundraising. Their job in uniting all different kinds of people involved is truly inspiring. The people behind it all are so motivated, friendly and willing to reach out. It's an honor to volunteer for them.
HDSA has been a critical resource for my family. We've benefited from their services that I started volunteering and now sit on the board of the Albany Chapter. I'm proud to work with the local team on fundraising, advocacy, and awareness building.
I have worked with many nonprofits over the years. For the past 3 years I have been diligently working with HDSA. I have been impressed with how professional this organization is run. The heart of HDSA is our members and volunteers and this may be the Biggest Heart I have ever worked with.
This is my favorite charity. They play a critical role in raising awareness and hopefully a cure for Huntington’s.
My mom was diagnosed with Huntington's Disease a little over a year ago. This organization has helped me reach out to many people and make this rare disease more well known!
I am working with HD families from time to time and I am glad to be able to have the HDSA website to connect them to as a resource.
I am very happy with the support i have received recently. I was able to talk with someone who understood what i was going through. They were able to guide me in the right direction on how to get care for my mom.
My family and i are grateful for attending convention for the first time this year. It has brough us hope.
You have a very resourceful website that has helped us find more information about the disease. We appreciate the local resources available, it has allowed us to connect locally.
We are grateful for the support we have received. Connecting us to our local community has been very helpful. Our closest COE has helped us navigate through all of our questions.
Thank you for raising awareness of this disease. People need to have access to as much information as possible and your website is a great resource.
Thank you for adding educational programs for professionals. We have been able to educate our "team" about how to provide better and comprehensive care to our families.
Thank you for offering so many online resources. We have used online support groups and it has been helpful.
Thank you for the hard work that you do. My children now have a network of support that can relate to them.
HDSA goes above and beyond with advocacy efforts. They are always helping the community have their voice heard.
I attended the convention for the first time this summer and was very pleased with how much information was available to me. thank you so much, keep up the good work!
Thank you for providing so much information. All the literature we have receied has been really helpful.
Thank you for all of the support you offer. I have participated in the new online support groups. It is a very exciting opportunity to be able to connect with other families that are going through this.
Without the HDSA and the NYA, I would have felt all alone in this fight against Huntington's Disease. These organizations brought me closer to others affected and made me really understand the disease so much better. They provide so much hope for our community and do such great things!
HDSA and the NYA have done so much for myself and so many that are affected by HD. Being able to be a part of such an amazing community with so many inspirational individuals affected by HD makes me realize I am not alone, it gives me hope, and pushes me even further in my journey to fight. xoxo
HDSA is a nonprofit organization that takes a grass roots approach to spreading awareness and raising money to deal with different issues that affect the families who affected by this debilitating disease. From the establishment of unique medical facilities that help individuals to understand and address the unique psychological and physical conditions created by the disease to fighting on Capital Hill to have bills passed to get people affect by HD the proper health care at the right time, HDSA and its members are at the forefront of trying to help provide the "hope" and "help" need in the the HD community. I am proud to be a part of it!
I love that they have outreach for young people affected by the condition. I found several other people that were also taking care of their dying parents all while facing the possibility of their own diagnosis. It helped me not to feel so alone, which is invaluable.
The HDSA has changed my life in so many ways. I have been introduced to other great HD organizations through them. I have new found family because of the HD community and all that the HDSA has done for us over the years and I have gained SO much knowledge. Without the HDSA, I would never have found all the love and support I needed to get through the hardships of this disease.
I don't know where I would be without HDSA, they've educated me and at the same time helped me move forward in my time of need.
Thank you HDSA for introducing me to other youth in the HD community me and allowing me to gain great experience as a volunteer.
The HDSA and the NYA have done tremendous things to connect me with others going through similar struggles and to ultimately make my life better.