I was able to attend an HDSA National Youth Alliance retreat recently. I was able to share with a group of people that could relate to what I was going through. I am grateful that these retreats exists.
I attended the HDSA convention for the first time ever this summer and I have found a family that gets me. It is great to share with a community that understands exactly what I am going through.
Thank you for everything that you do. We have received so much guidance. My family and I really appreciate it.
This nonprofit is absolutely amazing. I've seen the work they do with patient outreach, scientific research as well as fundraising. Their job in uniting all different kinds of people involved is truly inspiring. The people behind it all are so motivated, friendly and willing to reach out. It's an honor to volunteer for them.
HDSA has been a critical resource for my family. We've benefited from their services that I started volunteering and now sit on the board of the Albany Chapter. I'm proud to work with the local team on fundraising, advocacy, and awareness building.
I have worked with many nonprofits over the years. For the past 3 years I have been diligently working with HDSA. I have been impressed with how professional this organization is run. The heart of HDSA is our members and volunteers and this may be the Biggest Heart I have ever worked with.
This is my favorite charity. They play a critical role in raising awareness and hopefully a cure for Huntington’s.
My mom was diagnosed with Huntington's Disease a little over a year ago. This organization has helped me reach out to many people and make this rare disease more well known!
I am very happy with the support i have received recently. I was able to talk with someone who understood what i was going through. They were able to guide me in the right direction on how to get care for my mom.
My family and i are grateful for attending convention for the first time this year. It has brough us hope.
You have a very resourceful website that has helped us find more information about the disease. We appreciate the local resources available, it has allowed us to connect locally.
We are grateful for the support we have received. Connecting us to our local community has been very helpful. Our closest COE has helped us navigate through all of our questions.
Thank you for raising awareness of this disease. People need to have access to as much information as possible and your website is a great resource.
Thank you for adding educational programs for professionals. We have been able to educate our "team" about how to provide better and comprehensive care to our families.
Thank you for offering so many online resources. We have used online support groups and it has been helpful.
Thank you for the hard work that you do. My children now have a network of support that can relate to them.