My Nonprofit Reviews

My family has a history of Huntington's Disease. HD is such an unknown disease and the stigma is difficult to live with and share medical history in a way that people understand. Any disease that effects the brain is extraordinarily difficult to live with and to have in your family. This little known disease needs more funding. In combined efforts with those who are researching for other neurological diseases such as Parkinson's and Alzheimers, so much progress can be made. There is much information about prevention and delaying onset that we need more of. We need this help now in time for us to continue raising our families, and most certainly in time for our children. Please put HDSA in the limelight for its superior work and support. They host events through out the year, the HD Run for the Cure is one I participated in last year. It was well run and well attended. We had a great time as a family and helped raise money and awareness for this disease.

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