My Nonprofit Reviews
Shells2006
Review for Huntington's Disease Society of America, Inc., New York, NY, USA
I am on the board of the Huntington's Disease Washington DC Metro Chapter. I became involved a couple of years ago, because I wanted to find a way to share my experience with HD with others. My mom was diagnosed with HD when I was 4 years old. She inherited HD from her mother, but when she was a child she was told her mom had MS. My mom married and had my sister and I, all without the knowledge of 50% chance that she could inherit HD. Her family kept this disease a secret, like so many other families. It has become so important to me to increase awareness about this disease so that others will fund research and support services for those that are affected. Please help us inform others of this horrible disease!
More Feedback
I've personally experienced the results of this organization in...
We raised $30,000 from our first walk.
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
