Our family has been so blessed to receive information, support and resources through the Magic Foundation's webinars, facebook group, annual convention and website. As a grandparent of a child with CAH, I have developed the confidence and knowledge to give her the best care as we share memorable experiences together.
My family has been a member of MAGIC for 15 years and they have been such a tremendous help to us, especially in the beginning when my daughter was diagnosed with a growth disorder and we didn't know how to proceed. The geneticist handed us a brochure with the MAGIC Foundation's information, and that was a moment in history for us that we can't forget. Since then we have connected with specialized doctors and families in similar situations, as well as attended their yearly convention and learned so many things we wouldn't have been able to do on our own. We owe so much to MAGIC. It is our honor to be a part of their community.
I remember when I found MAGIC: it was November 2002 in the middle of the night-the only opportunity I had time to research online. Back then, Internet resources weren't what they are today. The middle of the night was my only opportunity to research because during the day I was constantly feeding my daughter or taking her to numerous doctor appointments.
The night I found the MAGIC website and read about a child with RSS changed our lives.
Since then, MAGIC is our #1 priority for charitable donations. I hope every parent who is struggling with a child who has a rare growth disorder finds this organization.
We tell people "that is when the clouds parted and the sun came out" for our family. The resources MAGIC has provided us are amazing: medical, emotional, and financial (help with insurance issues) not to mention the life-long relationships!
Thank you MAGIC!
I found the Magic Foundation after it was found that my daughter had a rare form of dwarfism called Meier-Gorlin Syndrome. We attended the annual convention that Magic holds in Lombard, IL the year of our diagnosis. The group welcomed us with open arms. My daughter was 9 years old at the time and was getting to the age where other kids started noticing the difference in her size. Spending the weekend with other kids that had Primordial Dwarfism was great for her. It was a place she felt safe and unjudged. Magic has also been an outstanding resource for me as well. I have received helpful information on insurance matters, education on Growth Hormone use, and many other useful tips and tricks. It is amazing to have a place to turn that truly understands our families struggles. We LOVE the Magic foundation and all it has done for our family.