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The MAGIC Foundation

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Health, Voluntary Health Associations & Medical Disciplines

Mission: The MAGIC Foundation Mission: The MAGIC Foundation is a national non-profit organization created to provide support services for the families of children afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child's growth. Since its inception the Foundation has grown to include support services for adults who were also impacted by these disorders. The MAGIC Foundation Vision: Our commitment and vision is, to reduce the emotional and physical trauma caused by growth disorders, resulting in healthier, happier children and consequently, adults. Our Motto: Children have a short time to grow and a lifetime to live with the results!

Target demographics: Children affected with Endocrine Disorder that affect physical growth, and adults with Endocrine Disorders.

Geographic areas served: Support of parents & affected adults

Programs: An Annual Educational Convention, On-line social media via Facebook, Twitter & Instagram, Physician Referrals, Insurance Appeals Assistance, Medical Brochures for Affected Disorders.

Community Stories

90 Stories from Volunteers, Donors & Supporters

Client Served

Rating: 5

Without MAGIC we would have been so lost and overwhelmed in the face of my sons growth hormone deficiency. I am ever so grateful for them and their tireless volunteers to support parents and families. They truly awesome.

Previous Stories
7

General Member of the Public

Rating: 5

I don’t know what I would have done without the Magic Foundation to help me navigate my son’s growth hormone deficiency diagnosis and treatment. Their website contains invaluable information and the volunteers running the Facebook group are angels on earth for their endless patience and generosity of time, advice, and experience. Without Magic we would have been lost and confused and at the mercy of a system that doesn’t necessarily have the best interest of the patient in mind. I will always be indebted to the Magic Foundation and their volunteers.

Kimberly Martin B.

General Member of the Public

Rating: 5

Becoming a member of the Magic Foundation was one of the best things I have done. Whether it’s the abundance of research articles in the Friday emails or the support of fellow members on Facebook, it has really helped me to navigate through my son’s Cushing’s Disease and subsequent growth hormone deficiency. The shared knowledge has really helped me to understand and make the best informed decisions with his endocrinologist and neurologists where his treatment is concerned! It’s also nice to talk to others who have been through or who are currently going through the same trials. I recommend anyone I come across that is experiencing a child with growth related issues to find and join the Magic Foundation!!!

1

General Member of the Public

Rating: 5

The MAGIC Foundation has been a tremendous support for our family. From researching more about growth hormones, learning about my child's specific growth disorder to getting help with insurance/appeals, it has been priceless!!! So grateful to have MAGIC Foundation as a resource!

2 Stephanie B.12

Client Served

Rating: 5

As a mom, I was so lost and didn’t know half of what the docs were telling me. The nightly shots, the issues that come with it. The help I have received and knowledge is amazing. I now, 6 months in giving shots to my son, am a pro! The support group on Facebook has been a go to for me through this. The information and guidance I have reiceved has made it a lot easier to navigate this disorder. Thank you so much for this resource ❤️

1

Client Served

Rating: 5

The Magic Foundation has been instrumental in understanding my son’s condition. My son’s birth was induced at 37 weeks due to IUGR. At 4 pounds 15 ounces and 18 inches long he was immediately given a diagnosis of SGA. Within the next few months, he would have numerous appointments with a pediatric gastroenterologist which would result in a failure to thrive diagnosis, an invasive procedure, and the threat of a hospital stay. He saw a pediatric cardiologist, an endocrinologist, a urologist, and eventually a geneticist. He eventually received an incorrect diagnosis of RSS. After contacting the Magic Foundation and attending the convention, his RSS diagnosis was removed and he was diagnosed as SGA without catchup. I was able to get growth hormone approved with the help of the wonderful staff of the foundation (specifically Jennifer Salem). I continually have to educate my son’s doctors on his condition and his, often unique, needs. I am only able to do this, as a result of the education I have received through the staff, the convention, the Facebook group (specifically from Megan Donnell) and the guidebook all provided and coordinated by the Magic Foundation. My son is a thriving and healthy 3.5 year old with far less doctors appointments. I believe we would be in a way different place if it weren’t for Magic. I can’t say enough wonderful things.

3 Martina P.

Client Served

Rating: 5

My family and I will forever be grateful to The MAGIC Foundation. The amount of resources made available, the caring founders, the dedication to help...it is amazing in every way imaginable.

My daughter was diagnosed with Hypopituitarism last September, 2018. She met all insurance criteria for growth hormone therapy. At 5 years old, she was the height of a 2 year old. She had all of the classic GH features in Pediatric Growth Hormone Deficiency. We’ve learned so much from our Endocrinologist, but we learned so much more from all of the available articles on The MAGIC Foundation’s site.

We are members of The MAGIC Foundation, and with membership comes insurance appeal support. Unfortunately, we lost all appeals for receiving treatment for our daughter, and had one final external appeal left. I lost sleep. I lost weight. I physically got ill at the thought of my daughter being denied treatment. The pain of not being able to help your child is unfathomable. We worked with MAGIC and their insurance appeal assistance and with their dedication, support and knowledge, we WON our external appeal. As a mother, I am forever grateful. I’ll never be able to express the true gratitude I have for this foundations work and dedication in helping my sweet little girl.

4

General Member of the Public

Rating: 5

My son was diagnosed with unilateral ONH when he was 3 months old. I was so confused about this diagnosis and what we would have in store for him in the future. I felt so alone learning how rare this condition is and I broke down in tears often thinking this was all my fault somehow. Becoming a member of the MAGIC Foundation FB group page has been life changing! I not only have received proper information to make sure my son gets all the attention and appointments that he needs, but I no longer feel alone. I know I stand tall and strong with a big group of other brave warriors who also struggle with this condition or raise a kiddo with it. My experience with my first born has been so much easier knowing I have support and a group that I can always reach out to for advice and information. This group is HEAVEN SENT! Thank you from the bottom of my heart!

6

Client Served

Rating: 5

These AMAZING people help a tremendously underserved population of people with rare health needs, those with growth disorders. Growth disorders are about HEALTH, not size. This organization helps families and their medical teams with medical, social, emotional, and practical information and assistance. Our pediatrician keeps the guidebook on her desk and refers to it frequently. We routinely use their resources in daily care for our grandson. I'm not sure that he would be alive without the research that MAGIC has funded for his disorder.

7

General Member of the Public

Rating: 5

I found Magic while doing research when my son was diagnosed GHD. He was 11y9m and we were very scared as parents to start therapy and worried were we making the right decisions. The connections we made through Magic helped to reassure us by sharing their own experiences as well as providing research they had done or read. Now almost 4.5 years later my son is healthy and thriving and I get to be there to help other parents as they start their journey.

7 Anne Marie B.

Client Served

Rating: 5

Having a child diagnosed with a chronic disease is very scary and stressful. The Magic Foundation provide a tremendous amount of information and knowledge regarding our son's diagnosis. It made support groups available to us and insurance advise and advocacy. I am so thankful for the Magic Foundation.

7 Grace D.1

General Member of the Public

Rating: 5

I attended a conference by the Magic foundation and accidentally stumbled into a whole world of support! When you’re facing a rare diagnosis, those kinds of connections help you fight, help you hope—help you survive! I’m grateful to this foundation.

7

Client Served

Rating: 5

Magic is an invaluable source for children and families with growth disorders. Doctors often don’t have experience with rare syndromes, but people at Magic have the knowledge, connections, and resources. Thanks, Magic, for giving us the tools to help our daughter thrive!

6 Justin R.2

General Member of the Public

Rating: 5

When you feel lost and no here to turn to aid in your child’s care and future needs the Magic Foundation provides the insight you need.

6 Jess H.3

General Member of the Public

Rating: 5

I found the MAGIC Foundation while researching my newborn son’s chronic condition: congenital hypothyroidism. Their website was full of helpful information that soon lead me to a Facebook support group. I was able to read story after story of families just like mine, learning how to adapt and grow with a growth disorder.

And then my son was diagnosed with a second growth disorder. Being connected with the MAGIC Foundation prepared me for the road ahead. We were able to transition into our new role as parents of a child with growth hormone deficiency seamlessly. The advice from the group and success stories gave us confidence in our decisions.

I would not be as peaceful with these difficult hurdles without the MAGIC Foundation’s support and resources. Thank you, MAGIC, for all you do.

6

General Member of the Public

Rating: 5

Over 20 years ago, doctors began to tell me that my son wasn't growing properly. The internet was just in its beginning stages back then, I had very few places to turn. I found Magic and we were transformed. I met other parents struggling with the same issues, I found people who had already been down my road and were willing to share their knowledge, I found a home. People who cared. People who were truly dedicated to helping me see the light at the end of a very dark and lonely tunnel. It's been over 20 years, my little son is an adult now but I have never stopped touching base with Magic to share, to learn and to be part of a loving family. Magic changed my son's life for the better and I will always be eternally grateful!

6

Client Served

Rating: 5

The Magic Foundation has been invaluable as we work to care for a child with a very rare condition. Everything from their social media networks to the annual convention arm us with more information, resources, and relationships that allow us to better care for our daughter in both the short and long term. We are so thankful for Magic!

6 Judy S.2

Client Served

Rating: 5

Back in 2012 I failed a growth hormone stimulation test . My level was in the severe range I also replaced several other pituitary hormones. My endocrinologist did the prior auth and was denied . An appeal was also denied . I had a second endocrinologist also apply get denied, appealed denied, also did a peer to peer with the insurance company . She was told I know nothing about growth hormone deficiency I am denying this medication because it is expensive. I kept having more spinal fractures . I contacted the Magic Foundation. I sent them my records. Well they got me approved in no time. I owe so much to them, I will always be so grateful
Judy Sewell

General Member of the Public

Rating: 2

As a parent with child with a rare genetic bone disease, I was eager to learn as much as I could. When I found out about the Magic Conference details my family was super excited about the possibility of going. Unfortunately, that particular year was extremely rough on us financially. Our son had multiple hospital admissions, tests and ultimately his diagnosis. When I heard of possible scholarship funds, I applied, but with hesitation. I'd not ever experienced the hardships we'd had that year, but knew we could not pay for it. I applied. I had talked to my brother about this opportunity. He recognized the strain my family had been under and offered to pay for us to stay an extra day or so. When I contacted Magic about sending a check for the additional days I was admonished, belittled and made to feel embarrassed because "those who can send a check for other days shouldn't be asking for scholarship monies for the conference. Instead those funds should be given to a truly needy family". I was told despite how they felt, our scholarship would still be given. I asked my application to be withdrawn and informed them my family would not attend.
I understand trying to allocate funds to the most needy, but having an overseer of those funds who can use tact is most beneficial.
What I hear of this group is that it does a lot of good. I personally have not received help or information. Because of my experience I give 2 stars.

7

Client Served

Rating: 5

In 1994, when my two-week old son was diagnosed with panhypopituitarism (PHP), there wasn’t much of an Internet. Finding a support group for parents of kids with rare health conditions could be more a matter of luck than anything else. Maybe the new specialists who suddenly filled your days could point you in the direction of a group or two, or maybe they had other patients with the same health concerns. But maybe not, and then you ended up feeling pretty much alone as you navigated these new medical landscapes.

My son was in and out of the hospital a lot before he turned one, so I’ve lost track of many things during that year, including how I found out about MAGIC. But somehow I did, and somehow because of MAGIC I ended up having a long-distance call with another mom in Florida whose infant son had also been diagnosed with PHP. As the years passed, MAGIC helped me figure out how to effectively work with—and occasionally argue with—my son’s healthcare providers. MAGIC was my bridge to other parents who could tell me how they were dealing with their child’s PHP. MAGIC helped me understand how much the effects of PHP could vary from person to person, and why I needed to convey my son’s individual responses and symptoms to his doctors even when they wanted to find easy answers and explanations.

My son was lucky. He has received appropriate care for his PHP ever since he was two weeks old, and the effects of PHP are manageable. But it’s still a rare condition and its effects can look like many other health issues, and it can be easy for a doctor who is not paying attention to dismiss a parent’s concerns. I am appalled when I hear about doctors who still don’t understand that emergency PHP protocols can save a child’s life, that some kids go for years before they receive an accurate PHP diagnosis, that some parents are given incomplete or even wrong information about PHP even after a diagnosis is made. For these parents and their kids (and for the docs who are willing to listen and learn), MAGIC is a vital resource. MAGIC staffers and volunteers know the questions parents have, because they’ve had the same questions. If they don’t know the answers, they do their best to find out. And they let parents know there’s a whole community waiting to help them.

For awhile I was able to help moderate MAGIC’s Facebook group for parent of kids with PHP. There were so many posts from so many moms and dads whose kids had just been diagnosed with PHP. They were scared, they didn’t know what they needed to know, they didn’t know what this diagnosis would mean for their child a week later or five or ten years later. Sometimes, to try and reassure these scared parents, I would ask other members of the group to post pictures of their PHP kids. The response was always overwhelming. The wall would instantly fill up with kids of all ages—kids in holiday clothes or Halloween costumes or pajamas—kids who were happy and busy and active—kids from across the country and across the world--kids who had a rare health condition and who sometimes had setbacks, but who were kids first and PHP patients second.

MAGIC gave me that support almost 25 years ago, and MAGIC still gives that support and encouragement and guidance today. Is MAGIC magic? Yes, it is.
Ann Perry

7

General Member of the Public

Rating: 5

The magic foundation has been a blessing to our family! They have helped answer so many questions and a provided us with many resources to learn more about early puberty. They are my #1 go to. I recommend them any chance i get!

6 Erica S.3

General Member of the Public

Rating: 5

Magic is helping us so much. They're all so helpfull and Nice. I'm in Argentina. They send me the guidebook. they Made the free screening yo help with the diagnosis, and answered all muy question. Also they conected my son's doctors with the especifict especialist. Amazing Job. Amazing people.

Hola. Soy de Argentina. La gente de Magic nos ayudó muchísimo, no sólo con información sino con la contención. Me enviaron por correo la guia de SSR. Hicieron el screening gratis. Y actualmente están conectando a la genetista de mi hijo con uno de los mayores especialistas. Son increíbles. Ayudan en todo sentido. Muchísimas gracias Magic. Toda la información que tengo y que pude transmitir a los médicos de mi hijo proviene de ustedes.

7 Kathleen O'Connor M.

General Member of the Public

Rating: 5

This organizatiin is great. I had nowhereelse to turn when my son got diagnosed with Growth Hormone Deficiency. They provided tons of education and provided resources so we could afford the medication my sin needed to grow. They continue to be a source if support. When we needed to fi,d a new doctor there they were to point me i the right direction.

5 Brittany E.1

Client Served

Rating: 5

The Magic Foundation has been a great resource for our family! Three out of our five children have been diagnosed with a rare growth disorder and it was very difficult to find information about it. The Magic Foundation gave me the opportunity to attend their annual convention twice through generous scholarships. The conventions had informational sessions hosted by medical experts which helped me gain important knowledge that helped me better understand my children’s condition.

5

Client Served

Rating: 5

In 2012 we got a rare disease diagnosis for our 3 week old son, that included growth hormone deficiency. When you are stuck in the NICU, with all these big, scary sounding words to describe your sweet newborn and lots of unknowns about his future, you feel very alone. We found the MAGIC Foundation when our son was about 4 months old. We were able to speak to a mom whose son had the same diagnosis and she lead us to a social network support group hosted by MAGIC. We found hope! We found families who “got it”. We got to see other children growing and thriving. We were able to attend their children’s convention that summer and it was an absolute blast. We loved what they had for the kids who came, the speakers and specialist were phenomenal, and we made friends with other families with the same diagnosis. We are now 6 1/2 years out from diagnosis day and we still love MAGIC just as much if not more! They have been a foundational pillar of support, encouragement, and current information that we have yet to find anywhere else.

5 Michelle Cook T.

Client Served

Rating: 5

Our son was born very small and had many issues. Even after our genetics Dr tested him several times for another syndrome, we were still unsure and had many questions. Our OT therapist through Early Intervention mentioned Russell Silver (she had 1 other client who reminder our son of him). When I googled Russell Silver Syndrome, I came across the Magic Foundation. As I read so many similar stories so close to home I sat and sobbed knowing this must be it! I took him back to genetics and requested the test... what do you know it was positive! So I immediately contacted Magic Foundation and went to our first convention a few months later! Magic has been a HUGE blessing not only to us but to our son as well. We go to the convention each year for many reasons, but also so that he can be around other kids JUST LIKE HIM!! This is such a rare syndrome (many Drs have never treated an RSS child) that MAGIC truly is the best resource, support and network! I don't know what we would have done without this wonderful group! Love our Magic Family!

6

Client Served

Rating: 5

Wonderful resource for parents! MAGIC has helped in so many ways - education, support, referrals to top notch doctors that help to care for children with rare conditions. So thankful for MAGIC and all they do to support children and families with growth disorders!

Previous Stories
5

Client Served

Rating: 5

Our genetics doctor told us about MAGIC and we have learned so much from their resources in only 3 months time. A robust support system, consisting of guide books, articles, a parent network and an annual convention. We are so fortunate to have found such an amazing resource.

11 Jennifer_M

General Member of the Public

Rating: 5

The Magic Foundation brought so much hope and as well as knowing that we were not alone. At the age of 5 our son just stopped growing. At first we thought he was just growing slower than other children. When he turned 6 is when the doctor said she was concern about him. Just like others we started testing and found out that our son was diagnose with growth hormone deficiency. With the Magic Foundation we learn how to live life differently because of other families. But the best part with the Magic Foundation, it’s like having a huge fan base cheering each other on. My son was fortunate to meet a little girl through the Magic Foundation. Soon they became pen pals and now they are friends. We can’t take the Magic Foundation enough for welcoming our family and for helping us not to feel alone in this journey.

7

General Member of the Public

Rating: 5

One year ago my son had seemed to hardly growing. After researching ISS, I came across the Magic Foundation. After going through the testing process and getting denied by insurance I felt hopeless. Finding the foundation changed my life. I discovered a discounted treatment option in Canada ( antiagingcanada.cc ) through their social media pages, otherwise treatment would have been impossible. Now one year later my son has grown 3 inches! Magic has changed my life, thank you!

Comments ( 1 )

profile

MAGIC Foundation 01/18/2018

We are glad MAGIC was able to help you and your family in your time of need. The MAGIC Foundation only supports the use of FDA approved growth hormones, being obtained directly from a pharmacy or the manufacturer of the drug. Anti-aging clinics have not been known to supply FDA approved growth hormone products so please be cautious about where you obtain your growth hormone.

5 Jean-billie M.

Client Served

Rating: 5

When my daughter was under a year old they diagnosed her with mccune albright/pfd . I was so lost and I came across this organization magic foundation they sent me information about the disease cleared so much up for me and I had spent endless hours on Google looking this all up I was terrified through this group I found proper information and not only that I found so many people that supported me to get through it all and find our peace in it.

4

General Member of the Public

Rating: 5

I live in Australia, and giving birth to a son with AHC Adrenal Hypoplasia Congenital, not alot of help and information available to me. Then I found Magic Foundation. All of a sudden, on the other side of the world, there were people who could help, inform and educate me. Without this wonderful people who work tirelessly to raise awareness for our rare gene babies, people all over the world, wouldn't be able to connect with each other. God bless Magic Foundation.

2

Client Served

Rating: 4

The MAGIC Foundation has been so helpful as I navigate my health issues. I have a pituitary tumor and am testing for adult growth hormone deficiency (AGHD) and Cushing's disease. If it weren't for the MAGIC Foundation, I may have believed my (inexperienced) doctors who said that I am just overweight and need to eat less and exercise more. One of those doctors even recommended bariatric surgery, which will not help if either of these are diagnosed. I will continue to support this foundation with time and money!

2

Client Served

Rating: 4

MAGIC Foundation has been a wealth of information for us as we navigate a couple of new diagnoses for our kiddo. Very grateful for the online resources and the support forums.

4

General Member of the Public

Rating: 5

Despite our local genetics trying to give him another diagnosis, our early intervention therapist mentioned Russell Silver because she had 1 other child who he resembled... when I googled this syndrome, I discovered Magic Foundation!! As I sat and cried reading so many similar stories by parents, I knew this is what he had and was later confirmed by the genetics dr. Magic Foundation is the only resource available for our son's syndrome and we are so very thankful to this foundation that works so hard for our families. We attend the annual conference to learn research updates, meet other families who relate and support this wonderful foundation! They truly are magical in our eyes! Without their experience, support, information and research.. I don't know what we would do!! You are family and we love you Magic Foundation!

5 Cindy149

Client Served

Rating: 5

When my daughter was diagnosed with Turner Syndrome and GHD I had a hard time finding resources to help navigate our new diagnosis. The MAGIC Foundation was a life saver. They helped me find doctors in the area, assisted with insurance issues, and just listened when I needed someone to talk to. Today, I am able to return the favor by helping new families find resources and tools when they are newly diagnosed. The first resource I give to new families struggling with a growth disorder is MAGIC. I know when they log into the website they will find what they need.

Previous Stories
5

Client Served

Rating: 5

I found MAGIC in my search for answers to my daughters growth. When I had questions, they were there to help and guide me in the right direction. When I had insurance problems, MAGIC made phone calls and didn't stop advocating until I got the results I needed. I am so proud to be a member of the MAGIC family.

4 michigangrl

Client Served

Rating: 5

I found MAGIC by chance while one night frantically searching for information on my newly diagnosed daughter. I was terrified and had no clue what to expect out of the diagnosis of ONH/SOD. The ophthalmologist that diagnosed her was horrible and had nothing positive to say! Once I found MAGIC I found a group of people that have become a second family to me! We have gone to the conventions every year since and have made life long friendships. My daughter has a chance to be a part of a community of children/adults that we never would have met otherwise. The Facebook groups are an amazing resource. The conventions bring to us parents experts in the issues that we deal with daily. Most of us would not be able to see these experts otherwise and since most regular doctors don't know how to deal with her condition, this is invaluable! Thank you MAGIC!!

Previous Stories
4

Client Served

Rating: 5

MAGIC has been a lifeline in a turbulent sea of fear for my family and many others. The conditions that MAGIC supports and compiles information and experts on are rare even to the doctors treating our children. The annual conference is an invaluable experience to gain information and meet people 'just like us'.

Read more
3 MeganCE

Client Served

Rating: 5

When my husband and I learned our 5-day-old son was born with Congenital Hypothyroidism, we had so much anxiety and so many questions. Our pediatric endocrinologist connected us with The MAGIC Foundation and it was a HUGE source of information and support. Not only were we able to get relevant information, specific to our son's condition, but I was able to learn about other growth disorders and read testimonies from parents and others who were experiencing the same feelings of worry, confusion, and anxiety about their child's future. I was able to connect with other parents of children with CH through the closed Facebook group run by MAGIC which has been a lifesaver. Knowing there are so many other parents out there in our exact shoes is so comforting and the support I've found has been overwhelming. It has reassured us so much that with treatment, our son will grow into a normal, healthy child and adult. I'm so thankful for The MAGIC Foundation and all of the wonderful information and support it provides. Because of MAGIC, I've gone from an anxious parent with a million questions to a fierce advocate for CH, armed with the knowledge to educate others and raise awareness. Thank you MAGIC!

5

Client Served

Rating: 5

You would think that as a parent you would know if something was wrong or off... You may think your doctor would notice... We thought he was just going to be short (like his Momma). We always asked, "is this normal?" And were told by the doctor (at every appointment), "He will grow, we will just keep an eye on him." Finally, when he was 12 years old and "heads and shoulders" shorter than his peers, I pushed the doctor to test for something and I wouldn't take no for an answer. It was then that Jordan was diagnosed with a growth disorder. And it was The Magic Foundation and the great people that we met through them - that have helped us understand and to not feel alone on this journey. I don't know what we would have done without them. We look forward to the convention every year - there's always something new to learn. They have been an extremely valuable resource for our family.

Previous Stories
4

Client Served

Rating: 5

The Magic Foundation gave me my sanity back. Our 13 y/o son was diagnosed with panhypopituitarism last year. Our endocrinologist is great, but finding The Magic Foundation and thru them, meeting other families dealing with the same or similar issues have given us additional information and the confidence we needed to get thru the initial emotions of his diagnosis. The people are fantastic and the yearly convention is a must. So thankful for this organization and the people behind it. I'll forever be grateful.

4

Client Served

Rating: 5

Almost two years ago my child had stopped growing, and I was looking for answers. Through researching GHD, I was lucky enough to find the Magic Foundation. Through their Facebook page, we found a doctor who finally listened to us, was willing to test my son for GHD, and got us started on treatment. Since starting treatment, my 15 year old son has almost grown 7 inches and gained 33 lbs. Magic gave me the resources and knowledge to advocate for and help my child!

3

Client Served

Rating: 5

My son was diagnosed with growth hormone deficiency 7 years ago. The MAGIC Foundation has been an invaluable source of information and support, whether through their web page, their annual educational convention (which we've attended three times), or their very active Facebook groups. We were fortunate to have health insurance that covered my son's treatment without dispute, so we didn't need to call on MAGIC's insurance specialist; but it was nice to know help was available if we had needed it.

2 Fatima B.

General Member of the Public

Rating: 5

My son had just finished his last test to confirm diagnosis & determine treatment options when our Dr. gave me a list of support groups. "Magic Foundation" stuck out to me. I didn't call any for a few months. Then the bullying started. The questions & pressure of treatment options & schedules became overwhelming. I reached out to this foundation via fb. They called me immediately. The instant response & feedback made me feel better. Then they understood me. That made a world of a difference. They were moms just like me. They had little ones just like me. They were able to support & celebrate with me. We began following their videos & discussions. Even my son felt consoled knowing he wasn't alone. This foundation literally kept us sane & together. It has been an up to down to up journey. We are so grateful for the Magic Foundation!

4

Donor

Rating: 5

I remember when I found MAGIC: it was November 2002 in the middle of the night-the only opportunity I had time to research online. Back then, Internet resources weren't what they are today. The middle of the night was my only opportunity to research because during the day I was constantly feeding my daughter or taking her to numerous doctor appointments.
The night I found the MAGIC website and read about a child with RSS changed our lives.
Since then, MAGIC is our #1 priority for charitable donations. I hope every parent who is struggling with a child who has a rare growth disorder finds this organization.
We tell people "that is when the clouds parted and the sun came out" for our family. The resources MAGIC has provided us are amazing: medical, emotional, and financial (help with insurance issues) not to mention the life-long relationships!
Thank you MAGIC!

3 Oli K.

Client Served

Rating: 5

The information provided by magic in relation to our daughters diagnosis of russell silver syndrome has been invaluable. Helped us argue for appropriate protocols to be followed for treatments and much less stressful hospital admissions as a result. Being able to link in with other families going through similar experiences has literally been a life saver! Thanks for the handbook...the website...the social media and all that you do for families like us MAGIC xx

3 Annamaria G.

Client Served

Rating: 5

The MAGIC Foundation has given my family so much information and support regarding our daughter's growth hormone deficiency. Without it this foundation I would have felt very overwhelmed.

3

Former staff

Rating: 5

MAGIC Foundation has changed my life. I first went to a convention for adults with growth hormone deficiency about 10 years ago. Before that I had never met anyone with panhypopituitarism. The support and friends I have found through them has been incredible, I no longer feel alone in this. Over the years I have come to depend on their annual convention to help me feel good about myself again. I realize that others experience the same issues I do and they truly understand! I worked as a division consultant for them for a couple of years and saw first hand the difference it made in other people's lives.

3

Client Served

Rating: 5

My daughter was born premature. She has struggled to gain weight since day one. She's been tested for so many things trying to get answers. It was until I found MAGIC when she was 4 that I found help. My daughter is considered SGA. They are a wonderful support for advice with my daughter's healthcare. A wonderful resource. I'm so grateful for their service. I try to share whenever I can!

2 Whitney14

General Member of the Public

Rating: 5

Magic has been an incredible resource. It's provided information a about my son's diagnosis that would of taken months to find out, connected me to other parents for support and even physicians that our knowledgeable of the his rare growth disorder.

4

General Member of the Public

Rating: 5

Before I found the MAGIC Foundation, I was lost. My daughter was "just a preemie" and we were continually being told to "wait and see" well I had a feeling there was something more. Once I found Magic, I found my answers, I found community and I found acceptance.

4

Client Served

Rating: 5

The Magic Foundation has been a LIFESEND!!!! My son was diagnosed with a rare disorder and not only did they offer me help but their department head of his condition actually called me to help me. And the have helped me with EVERY problem we have ever had! Our 1 year old has been hospitalized 2x so far and Magic was there answering all our questions and we there for us during some of our VERY HARDEST times and continue to be there for us. I would literally be lost with them and all their incredible knowledge on what we're going through. You would think every doctor you see for your child can help you but that's NOT true. The Magic Foundation has known more about how to treat my son than 90% of the doctors he has seen!!

6 Jodi35

General Member of the Public

Rating: 5

Because of MAGIC, my son is thriving today. He was one of the first members with Russell-Silver Syndrome and, now, Growth Hormone Deficiency. We have all learned so much about his syndrome and found support from people all over the world. The yearly convention used to be a great way for him to see others just like him. (He is older now, so he does not want to attend anymore.) There have been many ups and downs, but the people at MAGIC and its members are like a big family to us. And the guidebook from the RSS/SGA Research and Education Fund is a timeless resource with everything we need to know. MAGIC will always be a part of our lives.

1

General Member of the Public

Rating: 5

The Magic Foundation provides support and information to families struggling to learn about their child's growth hormone deficiencies (GHD). There is no other group out there that does what they do, so we rely on them a great deal. Most people think GHD is just about height, but don't realize it's so much more - it affects all of a child's organs. Having a child with many other serious health issues (some life-threatening), we have spent over 16 years learning about many medical issues, but were lost when the GHD diagnosis came in... Until we found Magic Foundation. Please keep supporting this amazing resource for so many families!

4 Deacon S.

General Member of the Public

Rating: 5

My adult daughter with GHD attended a MAGIC convention with me about ten years ago. It was such an encouragement to her to meet other adults who had similar health challenges. Also, we got very good information about the latest medical research on Adult Growth Hormone Deficiency. MAGIC doesn't put boundaries on the assistance that they give to families. They try to help with whatever challenge we are facing: insurance, medical, social.

4

Client Served

Rating: 5

I have two daughters with RSS and now a granddaughter. MAGIC has been invaluable to my family for the emotional support, practical tips on daily challenges, and advances in research in understanding and treating RSS. It is parents of affected children and adults who are affected by having RSS working together. There can be no purer and stronger motivation, and that translates into an amazing not for profit!!!!!

3 Dayna2

Client Served

Rating: 5

The MAGIC foundation is a wonderful source of support and education for many families! I don't know where we would be without them!

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2

Client Served

Rating: 5

The MAGIC Foundation is a wonderful organization dedicated to supporting and educating families and children affected by various growth disorders. Their annual convention is an amazing time of education, networking and an opportunity for kids to feel "just like everyone else" when the rest of their experiences tell them they are "different". MAGIC's Russell Silver Syndrome Division is the only source of education and support for families affected with RSS. Without the dedication of this organization, many families would feel lost and alone. I applaud their ongoing efforts to provide top notch information and recently their steps into making long lasting changes in our nation's legislation.

4 Writer

Client Served

Rating: 5

Magic foundation has help our family for the last 13 year with support for Russell silver syndrome. I don't know where we would be without them. My daughter is now going down a much healthier road. We have also attended 3 or 4 conventions and gained a wealth of information.

3 Michelle340

Client Served

Rating: 5

MAGIC is a priceless resource for our family and countless others. In our daughters first few months of life, doctors had no idea why she was not growing. A diagnosis was a relief yet also very scary. The MAGIC community of families and doctors augments the the medical care that we receive in a manner that has supported us in our darkest moments. I am forever grateful.

2

Client Served

Rating: 5

Our daughter was undiagnosed for 2 1/2 years and then we found The Magic Foundation. The doctors were helpful but Magic gave us the answers we needed. Russell-Silver was not so scary when we found Magic. Not only did it help our daughter but also helped her brother and sisters deal with her syndrome. We are forever grateful to the staff and families that helped us in so many ways. The annual convention was a family adventure and not just for our daughter affected by R-S.

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2

Volunteer

Rating: 5

When our daughter was born with a growth disorder, the MAGIC Foundation provided us with reassurance that we were not alone. They answered the questions the doctors couldnt. We've met many great families through this organization and we continue to support it now that our daughter is an adult.

2 Amanda159

Donor

Rating: 5

I found the Magic Foundation after it was found that my daughter had a rare form of dwarfism called Meier-Gorlin Syndrome. We attended the annual convention that Magic holds in Lombard, IL the year of our diagnosis. The group welcomed us with open arms. My daughter was 9 years old at the time and was getting to the age where other kids started noticing the difference in her size. Spending the weekend with other kids that had Primordial Dwarfism was great for her. It was a place she felt safe and unjudged. Magic has also been an outstanding resource for me as well. I have received helpful information on insurance matters, education on Growth Hormone use, and many other useful tips and tricks. It is amazing to have a place to turn that truly understands our families struggles. We LOVE the Magic foundation and all it has done for our family.

2 Dana46

Client Served

Rating: 5

I was introduced to the Magic Foundation soon after my son was born and diagnosed with Congenital Panhypopituitarism. I remember feeling very overwhelmed in learning about his medical condition and it was such a relief to talk to other parents and people who understood what I was going through and that everything would be fine. We've only gone to one convention so far but it was great to MEET others and learn more together. "Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has." - Margaret Mead

4 Megan74

Volunteer

Rating: 5

I have been a parent member of MAGIC for over 10 years and have been a Division Consultant for about 6 months. When my daughter was first diagnosed 10 years ago, there wasn't anywhere to go or anyone to talk to - and we go to one of the top children's hospitals in the world! I appreciate how much people care about providing information and support to our members. In the 10 years, I haven't found anything close. We strive to continually learn and help educate our members and if requested, education their doctors too! Some of the disorders are really rare and some physicians are very grateful to have all the research consolidated and provided to them to help them better treat their patient. Thank you MAGIC for 10 years - happy to be helping to pay it forward!

2 Dawn91

Client Served

Rating: 5

I found the Magic Foundation a few weeks after my son was diagnosed with Panhypopititurism. I search thru many sites and support groups before finding this foundation, and I must say that the Magic Foundation has the best information, definitions and resources available to parents of children with disorders and special needs and adults with medical conditions as well. The Magic Foundation also put me in touch with an awesome support group! Thank you Magic Foundation for all that you do for our kiddos!!!

2

Client Served

Rating: 5

I am an adult who is panhypopituitary (PHP) (no endocrine function), including growth hormone deficiency (GHD). This was caused from TBI when I was 18 & hit by a drunk driver. It was 1967, and I spent most of my adult life never knowing another person with my condition. It is the "invisible illness" and most of my friends & family did not understand my challenges.

The MAGIC Foundation changed everything for me when I went to my first Adult Convention for people who are PHP & GHD. I was surrounded by people who understood the challenges and were willing to listen, share and support one another. The MAGIC Foundation is so well respected that it is able to enroll outstanding Endocrinologists to speak at the conventions. I have gained so much information & knowledge to improve my life. I try to pass it on.

The MAGIC Foundation offers and monitors Facebook Groups where people can get support from the experience of others. Magic continues to improve my life and the lives of both children and adults with endocrine disease. Thank you MAGIC!



2

Client Served

Rating: 5

My son was diagnosed with Growth Hormone Disorder this year. I came across this non-profit when searching for information to educate myself. They've provided a wealth of information and support. I feel blessed to have found them. They even go to bat for people when they need help navigating the insurance waters for medication benefits.

2

Client Served

Rating: 5

I cannot express how much this foundation has helped our family. My son has Russell Silver Syndrome and it is not well known where we live. Most medical professionals do not know about it or know very little. There are no local support groups, no information. We received the diagnosis and one small sheet of paper with a lot of medical jargon that I didn't understand about the condition. I immediately got online and found the Magic Foundation - THANK GOD! They sent me a book, a volunteer called and counseled me, they directed me to the support group on FACEBOOK and I ask the volunteers questions ALL THE TIME! It is a great resource and we would be lost without it!

3

General Member of the Public

Rating: 5

Magic Foundation changes my world. My son was born at 28 weeks at 1 lb. 14oz. He was 3% on the growth charts and not catching up. My pediatrician said he was "on his own growth curve". Fortunately, I discovered Magic Foundation one night at 2am as I was desparately looking for answers. As a result, I knew to contact a pediatric endocrinologist and our lives changed. Our son Jarod went from 3% at age 5 to 50th % on the growth charts in 3 years as a result of needing growth hormone injections. This affected other areas as well including immunity, muscle tone, eating, and development. Magic also answered insurance questions that we had. I am so grateful and thankful that I discovered Magic.