The MAGIC Foundation

I cannot say enough positive about this amazing organization. They have been a lifeline for me and my family for almost 3 decades. My experience is with the Russell-Silver Division. When my two daughters were first diagnosed with RSS there was very limited information and research. No RSS growth chart, no standard methods for diagnosing RSS other than visual observations, no consensus on treatments (such as growth hormone), etc. All that has changed because of this dynamic organization and the parents and physicians involved spearheading the drive for research, knowledge, emotional support, and networking opportunities. Thank you MAGIC!

We found Magic Foundation through online search and as new parents from India. It was an eye opener for us with no information was available in our country and fortunately MAGIC was our life saver and with all the information that we received, gave us confidence and courage to start our own support group for similar parents in India. We now have a family of parents who are supporting each others. This would not have happened without MAGIC Foundation. Keep up the Good work MAGIC Foundation. We love you! We have a son with CAH and he is currently 14 years old and doing well.

We found The Magic Foundation right around the time my daughter was being diagnosed with a rare disease. Because of them, we were able to hear the stories of other parents and children. It really helps to not feel so alone.

The MAGIC Foundation has been fabulous for me as a mother and advocate for my son. Their educational and support services allowed me to get the best medical treatment and therapy for my son so that he could be healthy physically and emotionally while also reaching his growth potential. With an uncommon disease like Growth Hormone Deficiency, the workup, diagnosis, and treatment often can be an isolating experience. MAGIC provided us with a caring community of parents and other friends/family who also were traveling the same road as us. We didn’t feel so alone. Through the knowledge I gained from MAGIC, I have been able to help others who now are starting their journeys.

The MAGIC Foundation was so helpful to my family! They gave us insights and advice that was invaluable and helped us understand how to navigate the complicated world of growth hormone disorders.

Our family has been so blessed to receive information, support and resources through the Magic Foundation's webinars, facebook group, annual convention and website. As a grandparent of a child with CAH, I have developed the confidence and knowledge to give her the best care as we share memorable experiences together.

The MAGIC Foundation helped guide us into finding answers for our son’s congenital disorder. Prior to finding MAGIC, we and all of the hospital specialists had no idea why we were going through what we were going through. Once he was diagnosed, everything started to align with his care and this is thanks to MAGIC. They are a godsend. They’ve provided us with community. All the families are just like ours when we thought we were all alone. We’ve received so much guidance from them and we give back to newer families that are seeking answers regarding their children’s diagnosis. We could not do without them. Thank you MAGIC for everything you have done and continue to do for all of our RSS/SGA/etc kids!

If it were not for this organization and its outreach and research my son would not have gotten the medical care he needed and his life might have been forever changed. I am eternally grateful for this organization and its people and ambassadors. The work they have put in to make a rare condition more known and regarded by the medical community will have lasting positive effects for the world.

Fantastic organisation that makes a huge difference to our lived experience with health conditions. Thank you so much!

The MAGIC foundation was truly everything to us. When we were in the dark about my son’s medical condition, MAGIC was there to help guide us. We met our incredible endocrinologist through this foundation and we couldn’t be more thankful. We have learned so much and continue learning so much through MAGIC about our son’s condition. The resources they provide are so valuable. We are incredibly grateful to have found MAGIC.

Amazing resource for rare and little known conditions, more help than actual medical professionals

The Magic Foundation is a one of a kind, go to source for growth disorders. For families stuck in this medical nightmare of insurance denials, endless doctor visits, medication changes, they are an oasis in a desert. They are endlessly dedicated to helping families navigate this confusing world. They create a community where members can share information and network. They have experts on staff who are happy to answer your questions and talk you through difficult issues 24/7. I don't know what i would have done without the magic foundation. I am eternally grateful for all their help through the years.

The Magic Foundation was a light in the wilderness for us. Our endocrinologist said our kid was growth hormone deficient, definitely needed GH, and our insurance denied us. They helped us prepare an appeal, and we were denied again. Doctors told us it was the most egregious denial they had ever seen. Magic put us in touch with a supplier- we applied for relief from them- and it was granted. Made the difference of a second mortgage. Our kid made it to 5'- healthy and happy. They are the best.

The Magic Foundation has been a lifesaver for us. After 2 of our children stopped growing at the age of 3, we felt so alone and helpless. But, we found the Magic Foundation and we found a place where there was great emotional support from people who had been in our shoes, and a great source of information as to how we should proceed. I don't have enough good words to say about this organization.

The MAGIC Foundation is amazing! They offer so much support to parents, without them I would feel so alone dealing with my son's complex medical condition. I am so grateful for them!

If there was no help from MAGIC Foundation, there would be no help. MAGIC has normalised growth deficiency and provided information and routes to solutions. Thank you from a grateful grandma.

We have been connected to Magic since 2011, and are so grateful for all the hard work they put into educating and supporting families over the years!! We would not be where we are today without them.

The support my family receives from The MAGIC Foundation's Facebook group has led me to feel less alone in the fight to advocate for my children. It's heartwarming to know there are volunteers behind all of these groups who feel so strongly about helping families that they are willing to spend their extra hours responding to the emotional needs of others. Thank you for all you do.

MAGIC has been an invaluable resource to my family as we navigated the confusing and challenging world of growth disorders. Doctors vary widely in how they interpret patient data and how they determine treatment plans. MAGIC has provided a place where we can get guidance from those with real-life experience and deep knowledge. The staffers and volunteers are very generous with their time! I’m not sure my son would be undergoing treatment right now if MAGIC hadn’t been around to help us understand the research, the treatment criteria, and the appeals process.

The work they do is priceless! My journey into motherhood was not at all what I expected. I was a first time mom and had to deal with the reality of bringing home a remarkably unique and beautiful baby with a condition I had never heard about. The feelings of being alone in the world of rare disease was overwhelming until I stumbled across the Magic Foundation. The resources they provide are abundant and help better educate caregivers in ways the medical field fails. More importantly, they provide a sense of hope and belonging - they let you know that you are not alone in your journey, your children are not alone.

We would not be where we are unless it was for the Magic Foundation. Our daughter’s PCP has learned so much from them and so have we. The Magic Foundation is absolutely amazing!

MAGIC Foundation has been a spectacular support for my family in the years since my daughter's CAH diagnosis. I've learned so much about my daughter's condition, how to better manage it, and gained confidence every step of the way by learning from my fellow CAH peers and the specialists at the annual convention and webinars. I'm so grateful for this community and the amount of education and emotional support that the organization and members bring.

Parent of 2 GHD kids who has been relying on the support of the Magic Foundation for 4 years. The resources and community connection facilitated by Magic has given me a community for support and provided me the tools to advocate for my children to receive the care they need and navigate both insurance and medication shortages effectively,

MAGIC is a lifesaver! Local doctors are amazed by our grandson’s health and developmental progress. We attribute that to the education, research, and support from this group. #healthnotheight

This organization hosts a very active and informative support group for families dealing with growth issues. It's so nice to have this resource and interact with other families dealing with the same issues. The foundation provides great educational resources.

I would be lost without the Magic Foundation. My son was diagnosed with a rare growth disorder when he was 8 months old - it was scary, isolating, and just plain hard. Now a year later, we are thriving because of the incredible resources that Magic provides families like mine - easy to understand and incredibly accessible research, a caring and easy to reach team of knowledgable advocates, and active online groups that connects families from around the world. Thank you Magic Foundation!

After years of fighting for a diagnosis as to why my daughter was not growing normally, I finally found a doctor with answers and help. The MAGIC Foundation allowed us to not only find answers but to help share our experiences and help others. The doctors and families in MAGIC are honest, unselfish and very helpful. If families are concerned about their child's growth, this is the best resource for many growth diagnoses.

Very valuable work. Through their Facebook groups, I have learned more about the rare conditions my son has than from his doctors.

The MAGIC Foundation is a fabulous foundation that provides thorough information on various growth disorders. The divisions leaders go above and beyond to support the parents. Navigating care and insurance for children is tricky. The team at MAGIC goes above and beyond to help us.

It is not an understatement when I say that The MAGIC Foundation has been life-changing for our family and THE key factor to getting the proper health care for our boys. We had twin boys born 7 weeks early in 2014. After a month of being in the NICU, we were sent home with no advice. None of the doctors at that time told us that our boys were diagnosed with Small for Gestational Age (SGA) and Interuterine Growth Restriction (IUGR), even though we found out years later that it was documented in their charts. At Age 2, our geneticist diagnosed our boys with the rare growth disorder called Russell Silver Syndrome (RSS) even though no genetic cause was found. We were then sent to a Pediatric Endocrine Doctor for follow-up. All of these doctors that we worked with were excellent doctors and worked hard for our family, but none of them had the answers to our questions. We had issues with reflux, eating, throwing up on a daily basis for years, slow growth, etc. Any time we talked to our doctors about these issues, we were told "that's interesting" and no help was given. At age 5, our boys had their first bone age x-ray done which showed their bone growth to be advanced in age. Our doctor told us there was nothing we could do about it. At age 6, our boys started to have body odor. Again, we were told there was nothing we could do. It was at this point that a friend told me about The MAGIC Foundation and I attended their first virtual convention. In listening to the convention speakers, I learned about the issues that SGA/IUGR/RSS children have -- why they have reflux, all about their eating issues, to monitor for early advanced bone age and early signs of puberty, etc. ALL of my questions were answered in these convention talks. I sat at my computer and cried -- out of relief for finally learning the answers to my questions, but also out of frustration that I could have known all these answers at the boys' birth. We had suffered through all these eating issues for 6 years with no help. Now my boys were starting puberty early and I learned from MAGIC the actions we needed to take immediately before it was too late to act. I immediately got on the phone to our Endocrine Doctor and started asking for the specialized medicines that MAGIC recommended. MAGIC gave us names of doctors that were even more specialized in children's growth disorders and we soon switched doctors. At age 6, for the first time in our boys' lives, my husband and I talked face-to-face with an endocrine doctor who knew all about SGA/IUGR/RSS and could tell us all of the issues we were facing. This doctor is on the medical board for MAGIC. I cannot describe the immense amount of relief in finding a doctor that understood all of our boys' issues. In the past two years, we have gotten the boys on the proper medicines needed to slow down puberty. They are monitored closely for signs of puberty. All of our eating issues have been correctly answered and resolved by our new Endocrine Doctor. MAGIC also did a screening of our boys and recommended that we go back to genetics for further testing. MAGIC did not think our boys had RSS. In the past two years, with further testing, the genetic results have come back that the boys do not, in fact, have RSS, but instead have a different rare disorder with a variation in the ACAN gene. At Age 8, we finally have the proper diagnosis! It is all due to MAGIC's expertise and recommendations. Thankfully we have had doctors willing to learn and take the advice of MAGIC. We are literally indebted to the expertise of MAGIC. Without them, we would still be struggling and going through puberty way too early, thinking there was nothing we could do when, in fact, there was much we could do to slow down the process and give our boys more time to grow. As if all of this wasn't enough, MAGIC has also had our boys' medical charts reviewed by 3 expert doctors in growth disorders around the world who have given us their recommendations. I am speechless and in awe of the help MAGIC has given us. I can never repay them for their help!

The Magic Foundation was a lifeline when my daughter was diagnosed with a rare Endocrinology disorder right after birth - our doctor even pointed us to the Foundation for information about her chronic condition. It makes me feel connected to others experiencing similar challenges when most people don't even know how to pronounce the name of the disorder!

The MAGIC Foundation and its associated social media forums (Facebook) has been incredible. My son was diagnosed with Growth Hormone Deficiency (GHD) at the age of 20 months back in 2020. The resources that the MAGIC Foundation has provided were helpful when trying to go through approval processes for insurance and learning about GHD and what it meant for my son and our family. The Facebook group is a supportive community - I have posted many questions, as well as responded to the questions of others. It is nice to know that there is a community of parents and caregivers available 24/7, from all over the world, who are happy to provide support when we need to vent about insurance and doctors, who answer our questions about processes, and who are willing to share their personal stories so that we all know we are not alone in this. There are very few resources for families related to GHD - the MAGIC Foundation is crucial for anyone who is going through GHD with their children or family members. I am so grateful to the MAGIC Foundation and the community that it has provided for me and my family.

At 20 weeks gestation I found out that my baby has Temple Syndrome. The genetics department didn’t know much about it, they printed out some papers for me to review that had some information regarding TS. However they suggested that I connect with the Magic Foundation. Words cannot describe how much I appreciate all the support I got from them. They prepared me with everything I need to know to advocate for my daughter and make sure that she gets the best care possible. Jennifer Salem has always been there for any questions I have. I would have been lost without their guidance.

I'm a member of the Facebook CAH group run by The MAGIC Foundation and I am so thankful for that. This is the most active and helpful group that I know of that discusses the CAH condition that my 1 year old boy was born with, and that I knew nothing of before he was diagnosed. This group is way more helpful than my son's doctor. Even though we are not in the USA, we benefit from this beautiful group. Thank you!

As a mother with ACH child, I am constantly looking at this FB page and other ACH group for support and sharing. I have no experience in raising a child with this condition, and the sharing and support from this group has been tremendously helpful. I learn so much from other ACH parents and am so happy to have found this support group.

I hope that more awareness can be raised in this world, to know that LOVE does not discriminate my child and others with special needs.

Magic foundation has been a great guide for us after our son was diagnosed with Russell Silver Syndrome and was SGA. Without them we would be so clueless. We appreciate every bit of knowledge, research and information that comes out of this non profit organization. Thank you Magic Foundation.

My child was diagnosed with a rare genetic growth disorder. I was left with a diagnosis and very little education or information. Finding the Magic Foundation was the only thing that enabled me to understand much of anything about my child’s condition. I’ve come to learn that The Magic Foundation is the leading authority on growth disorders. Without their continued research and dissemination of information, so many families would be left scrambling, full of questions with no answers. We owe so much of our peace of mind to Magic.

The Magic Foundation has taught my family so much about growth hormone disorders. The support of its members has been a game changer for managing my son’s care. Thank you so much Magic Foundation!

This is a magical foundation!! It helped me understand many aspects of the GH treatment. To be in contact with other families with kids like my daughter,Martina, it is a great help . I am far away from the USA but their magical words and work are spread worldwide! My name is josefina Brady i am from lujan Buenos Aires Argentina my daughter is 5 years old and on GH treatment for SGA.

The magic foundation work with families to spread awareness of rare conditions and connect them to other families so they can share their journeys and concerns and help them to not feel so alone. They are a valuable resource.

Nothing has eased my momma heart and ensured we are getting my son the care he deserves more than the kind and supportive leaders at the Magic Foundation.

MAGIC has been a wealth of knowledge for my sons condition. Nothing can beat their convention for families. Not only do they have the best doctors in the field, the networking with other parents is a true support AND it’s a family convention!! It’s so much fun for the kids. MAGIC was and is a lifesaver for our family.

The MAGIC Foundation is sn invaluable resource for our family. Our son has a rare growth disorder called Russell-Silver Syndrome and MAGIC provides us with resources to share with his doctors and keeps us updated of the best treatment options.

I don’t find the magic foundation to be helpful an in fact I find their rejection of established science (despite not being medical professionals as they clearly state on their website) to be incredibly negligent. Further one of the cofounders is extremely rude and on a power trip. I wouldn’t donate to this charity with many other worthy causes out there with administrators and founders who truly care.

As the mom of a fragile newborn and I was unsure of our road ahead but MAGIC was there for us. This wonderful foundation has changed our lives. I was scared and apprehensive with many late nights full of worry, but once I found this amazing nonprofit I was connected to a network of families just like mine and this has made all the difference. Words could never explain how truly fortunate we are to have the support of this nonprofit behind us for the health of our son’s future.

Without the support of the amazing folks at Magic Foundation, my son would not have had the proper medical care he needed. This is absolutely the best foundation for families in need of their resources. We will be forever grateful for The Magic Foundation.

Magic does amazing things for those with growth disorders. As a child I went to the Magic Convention for over 10 years. I got to be with kids my age that had the same growth disorder, and my parents got to go to the educational sessions to learn how to help me best! It was a highlight of every summer. Magic continues to help families day in and day out through research and support.

The MAGIC foundation is a lifeline for so many of us. They provide information, connect parents with expert physicians and have an incredible annual conference which is an opportunity to learn and meet other families. Its not hyperbole to say that MAGIC has enabled our daughter to grow and thrive!

The MAGIC Foundation is a wonderful organization for families that have children experiencing a range of growth problems. I am particularly grateful for their annual conventions which provide a wealth of information. Attending the convention was truly transformative for us when our daughter was young.

We are so thankful to jave stumbled across the Magic Foundation years ago. It has provided years of support, education, and friendship to my family. At a time when life was uncertain and our daughter's health was very unstable, we came across this organization and were led to consult with a leading specialist who was able to get our daughter's health on track. She is now thriving. We will forever be a part of the Magic family.

The magic foundation has been an a breath of fresh air during a very overwhelming time. Knowing your child is falling off the curve and getting a growth hormone deficiency diagnosis, although similar, are very different. The magic foundation has been a safe haven of sorts to find answers and to connect with other parents going through the same thing. We share our struggles as well as our triumphs in this journey with those who understand. The magic foundation and their connection with professionals around the country has opened up my ability to learn more about endocrine disorders, especially in relation to growth. It is simply part of my everyday life.

I was totally lost when my daughter was diagnosed with precocious puberty. The treatment seemed scary and I had no one to help. The Magic Foundation provided great support. I did not feel alone anymoe.

My daughter was diagnosed with GHD. There's so little resources available that I had absolutely no one to turn to. Google was even limited on advice and resources. I turned to magic foundation who made a world of difference. Seeing other parents in my my situation offer support and advice made it journey a lot less difficult. Although GHD is so rare it made me feel not alone

My child was diagnosed with CPP at 3 years old. Overwhelmed, I was referred to this group. It helped me navigate what was to come. 6 years later and I'm still learning new things and connecting with other families. It wouldn't be possible without The MAGIC Foundation.

The magic foundation has been a life saver when finding information about my daughter's genetic condition seemed impossible. All the people working in the Russell silver syndrome division have been so very helpful and have gone above and beyond to answer my numerous questions. I am very thankful to have found the magic foundation and will continue to support them as they help support other families.

Because of the Magic Foundation, my daughter is now THRIVING! The group helped me, as a parent, than anyone else (aside form our fantastic doctor, who was found through the group). My daughter was stuck and not growing. Her low muscle tone prevented her from walking and joining in with the other kids. Now I understand and know why. Now we have the proper medicine. Now my daughter is jumping and running along side her peers. We love the Magic Foundation!

When our grandson was first diagnosed with OND, I started doing research and looking for resources. The best I found was the Magic Foundation. Our family depends on the information available, their receommdations for everything from toys for children with blindness to new programs and education opportunities. I read the postings of other interested parties every day! It is such a great blessing to read about others that are on this journey.

The MAGIC Foundation has been a PRICELESS resource to our family. My son was diagnosed with RSS this past January, and I could not be more grateful to the folks at MAGIC for all the assistance and resources they provided prior to and after his diagnosis. These people really CARE about our kids and it makes a world of difference!

Essential organisation for parents of kids with these rare disorders. Helpful and knowledgable.

My family has been a member of MAGIC for 15 years and they have been such a tremendous help to us, especially in the beginning when my daughter was diagnosed with a growth disorder and we didn't know how to proceed. The geneticist handed us a brochure with the MAGIC Foundation's information, and that was a moment in history for us that we can't forget. Since then we have connected with specialized doctors and families in similar situations, as well as attended their yearly convention and learned so many things we wouldn't have been able to do on our own. We owe so much to MAGIC. It is our honor to be a part of their community.

The Magic Foundation has provided great support for or family, who has two children with growth issues. Parent to parent support is very important and Magic Foundation our idea a safe and regulated platform to support families with growth issues, plus an extremely informative conference with industry leading experts as speakers. They do a great job helping and supporting families who are on a complicated medical journey.

Magic has been instrumental in helping our child from the time he was 6 months old and we were really struggling to find answers for him. Magic offered a free screening that has propelled us to a diagnosis and proper medical treatment. The hands on care from the Magic volunteers is incredible. So incredibly grateful we found them.

Fantastic organization. When my son was given his diagnosis of panhypopituitarism we were lost. We needed help and didn’t know where to turn. The MAGIC Foundation was a lifesaver for us. The guidance, resources, support and knowledge are crucial and they are an advocate for your child. I truly do not know how we would have made it without them. Forever grateful!

Thanks to The Magic Foundation I can get in contact with families that are going in the same journey than us. We feel not alone anymore. lots of information about my daughter condition and lots of support if we have questions. God Bless You.

The people who work with Magic are always extremely helpful and kind. Thank you!

Without MAGIC we would have been so lost and overwhelmed in the face of my sons growth hormone deficiency. I am ever so grateful for them and their tireless volunteers to support parents and families. They truly awesome.

Becoming a member of the Magic Foundation was one of the best things I have done. Whether it’s the abundance of research articles in the Friday emails or the support of fellow members on Facebook, it has really helped me to navigate through my son’s Cushing’s Disease and subsequent growth hormone deficiency. The shared knowledge has really helped me to understand and make the best informed decisions with his endocrinologist and neurologists where his treatment is concerned! It’s also nice to talk to others who have been through or who are currently going through the same trials. I recommend anyone I come across that is experiencing a child with growth related issues to find and join the Magic Foundation!!!

The MAGIC Foundation has been a tremendous support for our family. From researching more about growth hormones, learning about my child's specific growth disorder to getting help with insurance/appeals, it has been priceless!!! So grateful to have MAGIC Foundation as a resource!

The Magic Foundation has been instrumental in understanding my son’s condition. My son’s birth was induced at 37 weeks due to IUGR. At 4 pounds 15 ounces and 18 inches long he was immediately given a diagnosis of SGA. Within the next few months, he would have numerous appointments with a pediatric gastroenterologist which would result in a failure to thrive diagnosis, an invasive procedure, and the threat of a hospital stay. He saw a pediatric cardiologist, an endocrinologist, a urologist, and eventually a geneticist. He eventually received an incorrect diagnosis of RSS. After contacting the Magic Foundation and attending the convention, his RSS diagnosis was removed and he was diagnosed as SGA without catchup. I was able to get growth hormone approved with the help of the wonderful staff of the foundation (specifically Jennifer Salem). I continually have to educate my son’s doctors on his condition and his, often unique, needs. I am only able to do this, as a result of the education I have received through the staff, the convention, the Facebook group (specifically from Megan Donnell) and the guidebook all provided and coordinated by the Magic Foundation. My son is a thriving and healthy 3.5 year old with far less doctors appointments. I believe we would be in a way different place if it weren’t for Magic. I can’t say enough wonderful things.

My son was diagnosed with unilateral ONH when he was 3 months old. I was so confused about this diagnosis and what we would have in store for him in the future. I felt so alone learning how rare this condition is and I broke down in tears often thinking this was all my fault somehow. Becoming a member of the MAGIC Foundation FB group page has been life changing! I not only have received proper information to make sure my son gets all the attention and appointments that he needs, but I no longer feel alone. I know I stand tall and strong with a big group of other brave warriors who also struggle with this condition or raise a kiddo with it. My experience with my first born has been so much easier knowing I have support and a group that I can always reach out to for advice and information. This group is HEAVEN SENT! Thank you from the bottom of my heart! ������

I found Magic while doing research when my son was diagnosed GHD. He was 11y9m and we were very scared as parents to start therapy and worried were we making the right decisions. The connections we made through Magic helped to reassure us by sharing their own experiences as well as providing research they had done or read. Now almost 4.5 years later my son is healthy and thriving and I get to be there to help other parents as they start their journey.

Having a child diagnosed with a chronic disease is very scary and stressful. The Magic Foundation provide a tremendous amount of information and knowledge regarding our son's diagnosis. It made support groups available to us and insurance advise and advocacy. I am so thankful for the Magic Foundation.

I attended a conference by the Magic foundation and accidentally stumbled into a whole world of support! When you’re facing a rare diagnosis, those kinds of connections help you fight, help you hope—help you survive! I’m grateful to this foundation.

Magic is an invaluable source for children and families with growth disorders. Doctors often don’t have experience with rare syndromes, but people at Magic have the knowledge, connections, and resources. Thanks, Magic, for giving us the tools to help our daughter thrive!

When you feel lost and no here to turn to aid in your child’s care and future needs the Magic Foundation provides the insight you need.

Over 20 years ago, doctors began to tell me that my son wasn't growing properly. The internet was just in its beginning stages back then, I had very few places to turn. I found Magic and we were transformed. I met other parents struggling with the same issues, I found people who had already been down my road and were willing to share their knowledge, I found a home. People who cared. People who were truly dedicated to helping me see the light at the end of a very dark and lonely tunnel. It's been over 20 years, my little son is an adult now but I have never stopped touching base with Magic to share, to learn and to be part of a loving family. Magic changed my son's life for the better and I will always be eternally grateful!

The Magic Foundation has been invaluable as we work to care for a child with a very rare condition. Everything from their social media networks to the annual convention arm us with more information, resources, and relationships that allow us to better care for our daughter in both the short and long term. We are so thankful for Magic!

Back in 2012 I failed a growth hormone stimulation test . My level was in the severe range I also replaced several other pituitary hormones. My endocrinologist did the prior auth and was denied . An appeal was also denied . I had a second endocrinologist also apply get denied, appealed denied, also did a peer to peer with the insurance company . She was told I know nothing about growth hormone deficiency I am denying this medication because it is expensive. I kept having more spinal fractures . I contacted the Magic Foundation. I sent them my records. Well they got me approved in no time. I owe so much to them, I will always be so grateful
Judy Sewell

As a parent with child with a rare genetic bone disease, I was eager to learn as much as I could. When I found out about the Magic Conference details my family was super excited about the possibility of going. Unfortunately, that particular year was extremely rough on us financially. Our son had multiple hospital admissions, tests and ultimately his diagnosis. When I heard of possible scholarship funds, I applied, but with hesitation. I'd not ever experienced the hardships we'd had that year, but knew we could not pay for it. I applied. I had talked to my brother about this opportunity. He recognized the strain my family had been under and offered to pay for us to stay an extra day or so. When I contacted Magic about sending a check for the additional days I was admonished, belittled and made to feel embarrassed because "those who can send a check for other days shouldn't be asking for scholarship monies for the conference. Instead those funds should be given to a truly needy family". I was told despite how they felt, our scholarship would still be given. I asked my application to be withdrawn and informed them my family would not attend.
I understand trying to allocate funds to the most needy, but having an overseer of those funds who can use tact is most beneficial.
What I hear of this group is that it does a lot of good. I personally have not received help or information. Because of my experience I give 2 stars.

In 1994, when my two-week old son was diagnosed with panhypopituitarism (PHP), there wasn’t much of an Internet. Finding a support group for parents of kids with rare health conditions could be more a matter of luck than anything else. Maybe the new specialists who suddenly filled your days could point you in the direction of a group or two, or maybe they had other patients with the same health concerns. But maybe not, and then you ended up feeling pretty much alone as you navigated these new medical landscapes.

My son was in and out of the hospital a lot before he turned one, so I’ve lost track of many things during that year, including how I found out about MAGIC. But somehow I did, and somehow because of MAGIC I ended up having a long-distance call with another mom in Florida whose infant son had also been diagnosed with PHP. As the years passed, MAGIC helped me figure out how to effectively work with—and occasionally argue with—my son’s healthcare providers. MAGIC was my bridge to other parents who could tell me how they were dealing with their child’s PHP. MAGIC helped me understand how much the effects of PHP could vary from person to person, and why I needed to convey my son’s individual responses and symptoms to his doctors even when they wanted to find easy answers and explanations.

My son was lucky. He has received appropriate care for his PHP ever since he was two weeks old, and the effects of PHP are manageable. But it’s still a rare condition and its effects can look like many other health issues, and it can be easy for a doctor who is not paying attention to dismiss a parent’s concerns. I am appalled when I hear about doctors who still don’t understand that emergency PHP protocols can save a child’s life, that some kids go for years before they receive an accurate PHP diagnosis, that some parents are given incomplete or even wrong information about PHP even after a diagnosis is made. For these parents and their kids (and for the docs who are willing to listen and learn), MAGIC is a vital resource. MAGIC staffers and volunteers know the questions parents have, because they’ve had the same questions. If they don’t know the answers, they do their best to find out. And they let parents know there’s a whole community waiting to help them.

For awhile I was able to help moderate MAGIC’s Facebook group for parent of kids with PHP. There were so many posts from so many moms and dads whose kids had just been diagnosed with PHP. They were scared, they didn’t know what they needed to know, they didn’t know what this diagnosis would mean for their child a week later or five or ten years later. Sometimes, to try and reassure these scared parents, I would ask other members of the group to post pictures of their PHP kids. The response was always overwhelming. The wall would instantly fill up with kids of all ages—kids in holiday clothes or Halloween costumes or pajamas—kids who were happy and busy and active—kids from across the country and across the world--kids who had a rare health condition and who sometimes had setbacks, but who were kids first and PHP patients second.

MAGIC gave me that support almost 25 years ago, and MAGIC still gives that support and encouragement and guidance today. Is MAGIC magic? Yes, it is.
Ann Perry

The magic foundation has been a blessing to our family! They have helped answer so many questions and a provided us with many resources to learn more about early puberty. They are my #1 go to. I recommend them any chance i get!

Magic is helping us so much. They're all so helpfull and Nice. I'm in Argentina. They send me the guidebook. they Made the free screening yo help with the diagnosis, and answered all muy question. Also they conected my son's doctors with the especifict especialist. Amazing Job. Amazing people.

Hola. Soy de Argentina. La gente de Magic nos ayudó muchísimo, no sólo con información sino con la contención. Me enviaron por correo la guia de SSR. Hicieron el screening gratis. Y actualmente están conectando a la genetista de mi hijo con uno de los mayores especialistas. Son increíbles. Ayudan en todo sentido. Muchísimas gracias Magic. Toda la información que tengo y que pude transmitir a los médicos de mi hijo proviene de ustedes.

The Magic Foundation has been a great resource for our family! Three out of our five children have been diagnosed with a rare growth disorder and it was very difficult to find information about it. The Magic Foundation gave me the opportunity to attend their annual convention twice through generous scholarships. The conventions had informational sessions hosted by medical experts which helped me gain important knowledge that helped me better understand my children’s condition.

In 2012 we got a rare disease diagnosis for our 3 week old son, that included growth hormone deficiency. When you are stuck in the NICU, with all these big, scary sounding words to describe your sweet newborn and lots of unknowns about his future, you feel very alone. We found the MAGIC Foundation when our son was about 4 months old. We were able to speak to a mom whose son had the same diagnosis and she lead us to a social network support group hosted by MAGIC. We found hope! We found families who “got it”. We got to see other children growing and thriving. We were able to attend their children’s convention that summer and it was an absolute blast. We loved what they had for the kids who came, the speakers and specialist were phenomenal, and we made friends with other families with the same diagnosis. We are now 6 1/2 years out from diagnosis day and we still love MAGIC just as much if not more! They have been a foundational pillar of support, encouragement, and current information that we have yet to find anywhere else.

Our son was born very small and had many issues. Even after our genetics Dr tested him several times for another syndrome, we were still unsure and had many questions. Our OT therapist through Early Intervention mentioned Russell Silver (she had 1 other client who reminder our son of him). When I googled Russell Silver Syndrome, I came across the Magic Foundation. As I read so many similar stories so close to home I sat and sobbed knowing this must be it! I took him back to genetics and requested the test... what do you know it was positive! So I immediately contacted Magic Foundation and went to our first convention a few months later! Magic has been a HUGE blessing not only to us but to our son as well. We go to the convention each year for many reasons, but also so that he can be around other kids JUST LIKE HIM!! This is such a rare syndrome (many Drs have never treated an RSS child) that MAGIC truly is the best resource, support and network! I don't know what we would have done without this wonderful group! Love our Magic Family!

Wonderful resource for parents! MAGIC has helped in so many ways - education, support, referrals to top notch doctors that help to care for children with rare conditions. So thankful for MAGIC and all they do to support children and families with growth disorders!

One year ago my son had seemed to hardly growing. After researching ISS, I came across the Magic Foundation. After going through the testing process and getting denied by insurance I felt hopeless. Finding the foundation changed my life. I discovered a discounted treatment option in Canada ( antiagingcanada.cc ) through their social media pages, otherwise treatment would have been impossible. Now one year later my son has grown 3 inches! Magic has changed my life, thank you!

When my daughter was under a year old they diagnosed her with mccune albright/pfd . I was so lost and I came across this organization magic foundation they sent me information about the disease cleared so much up for me and I had spent endless hours on Google looking this all up I was terrified through this group I found proper information and not only that I found so many people that supported me to get through it all and find our peace in it.

The MAGIC Foundation has been so helpful as I navigate my health issues. I have a pituitary tumor and am testing for adult growth hormone deficiency (AGHD) and Cushing's disease. If it weren't for the MAGIC Foundation, I may have believed my (inexperienced) doctors who said that I am just overweight and need to eat less and exercise more. One of those doctors even recommended bariatric surgery, which will not help if either of these are diagnosed. I will continue to support this foundation with time and money!

MAGIC Foundation has been a wealth of information for us as we navigate a couple of new diagnoses for our kiddo. Very grateful for the online resources and the support forums.

Despite our local genetics trying to give him another diagnosis, our early intervention therapist mentioned Russell Silver because she had 1 other child who he resembled... when I googled this syndrome, I discovered Magic Foundation!! As I sat and cried reading so many similar stories by parents, I knew this is what he had and was later confirmed by the genetics dr. Magic Foundation is the only resource available for our son's syndrome and we are so very thankful to this foundation that works so hard for our families. We attend the annual conference to learn research updates, meet other families who relate and support this wonderful foundation! They truly are magical in our eyes! Without their experience, support, information and research.. I don't know what we would do!! You are family and we love you Magic Foundation!

When my daughter was diagnosed with Turner Syndrome and GHD I had a hard time finding resources to help navigate our new diagnosis. The MAGIC Foundation was a life saver. They helped me find doctors in the area, assisted with insurance issues, and just listened when I needed someone to talk to. Today, I am able to return the favor by helping new families find resources and tools when they are newly diagnosed. The first resource I give to new families struggling with a growth disorder is MAGIC. I know when they log into the website they will find what they need.

Almost two years ago my child had stopped growing, and I was looking for answers. Through researching GHD, I was lucky enough to find the Magic Foundation. Through their Facebook page, we found a doctor who finally listened to us, was willing to test my son for GHD, and got us started on treatment. Since starting treatment, my 15 year old son has almost grown 7 inches and gained 33 lbs. Magic gave me the resources and knowledge to advocate for and help my child!

My son was diagnosed with growth hormone deficiency 7 years ago. The MAGIC Foundation has been an invaluable source of information and support, whether through their web page, their annual educational convention (which we've attended three times), or their very active Facebook groups. We were fortunate to have health insurance that covered my son's treatment without dispute, so we didn't need to call on MAGIC's insurance specialist; but it was nice to know help was available if we had needed it.

My son had just finished his last test to confirm diagnosis & determine treatment options when our Dr. gave me a list of support groups. "Magic Foundation" stuck out to me. I didn't call any for a few months. Then the bullying started. The questions & pressure of treatment options & schedules became overwhelming. I reached out to this foundation via fb. They called me immediately. The instant response & feedback made me feel better. Then they understood me. That made a world of a difference. They were moms just like me. They had little ones just like me. They were able to support & celebrate with me. We began following their videos & discussions. Even my son felt consoled knowing he wasn't alone. This foundation literally kept us sane & together. It has been an up to down to up journey. We are so grateful for the Magic Foundation!

I remember when I found MAGIC: it was November 2002 in the middle of the night-the only opportunity I had time to research online. Back then, Internet resources weren't what they are today. The middle of the night was my only opportunity to research because during the day I was constantly feeding my daughter or taking her to numerous doctor appointments.
The night I found the MAGIC website and read about a child with RSS changed our lives.
Since then, MAGIC is our #1 priority for charitable donations. I hope every parent who is struggling with a child who has a rare growth disorder finds this organization.
We tell people "that is when the clouds parted and the sun came out" for our family. The resources MAGIC has provided us are amazing: medical, emotional, and financial (help with insurance issues) not to mention the life-long relationships!
Thank you MAGIC!

The information provided by magic in relation to our daughters diagnosis of russell silver syndrome has been invaluable. Helped us argue for appropriate protocols to be followed for treatments and much less stressful hospital admissions as a result. Being able to link in with other families going through similar experiences has literally been a life saver! Thanks for the handbook...the website...the social media and all that you do for families like us MAGIC xx

The MAGIC Foundation has given my family so much information and support regarding our daughter's growth hormone deficiency. Without it this foundation I would have felt very overwhelmed.

MAGIC Foundation has changed my life. I first went to a convention for adults with growth hormone deficiency about 10 years ago. Before that I had never met anyone with panhypopituitarism. The support and friends I have found through them has been incredible, I no longer feel alone in this. Over the years I have come to depend on their annual convention to help me feel good about myself again. I realize that others experience the same issues I do and they truly understand! I worked as a division consultant for them for a couple of years and saw first hand the difference it made in other people's lives.

My daughter was born premature. She has struggled to gain weight since day one. She's been tested for so many things trying to get answers. It was until I found MAGIC when she was 4 that I found help. My daughter is considered SGA. They are a wonderful support for advice with my daughter's healthcare. A wonderful resource. I'm so grateful for their service. I try to share whenever I can!

Magic has been an incredible resource. It's provided information a about my son's diagnosis that would of taken months to find out, connected me to other parents for support and even physicians that our knowledgeable of the his rare growth disorder.

Before I found the MAGIC Foundation, I was lost. My daughter was "just a preemie" and we were continually being told to "wait and see" well I had a feeling there was something more. Once I found Magic, I found my answers, I found community and I found acceptance.

The Magic Foundation has been a LIFESEND!!!! My son was diagnosed with a rare disorder and not only did they offer me help but their department head of his condition actually called me to help me. And the have helped me with EVERY problem we have ever had! Our 1 year old has been hospitalized 2x so far and Magic was there answering all our questions and we there for us during some of our VERY HARDEST times and continue to be there for us. I would literally be lost with them and all their incredible knowledge on what we're going through. You would think every doctor you see for your child can help you but that's NOT true. The Magic Foundation has known more about how to treat my son than 90% of the doctors he has seen!!

Because of MAGIC, my son is thriving today. He was one of the first members with Russell-Silver Syndrome and, now, Growth Hormone Deficiency. We have all learned so much about his syndrome and found support from people all over the world. The yearly convention used to be a great way for him to see others just like him. (He is older now, so he does not want to attend anymore.) There have been many ups and downs, but the people at MAGIC and its members are like a big family to us. And the guidebook from the RSS/SGA Research and Education Fund is a timeless resource with everything we need to know. MAGIC will always be a part of our lives.

The Magic Foundation provides support and information to families struggling to learn about their child's growth hormone deficiencies (GHD). There is no other group out there that does what they do, so we rely on them a great deal. Most people think GHD is just about height, but don't realize it's so much more - it affects all of a child's organs. Having a child with many other serious health issues (some life-threatening), we have spent over 16 years learning about many medical issues, but were lost when the GHD diagnosis came in... Until we found Magic Foundation. Please keep supporting this amazing resource for so many families!

My adult daughter with GHD attended a MAGIC convention with me about ten years ago. It was such an encouragement to her to meet other adults who had similar health challenges. Also, we got very good information about the latest medical research on Adult Growth Hormone Deficiency. MAGIC doesn't put boundaries on the assistance that they give to families. They try to help with whatever challenge we are facing: insurance, medical, social.

I have two daughters with RSS and now a granddaughter. MAGIC has been invaluable to my family for the emotional support, practical tips on daily challenges, and advances in research in understanding and treating RSS. It is parents of affected children and adults who are affected by having RSS working together. There can be no purer and stronger motivation, and that translates into an amazing not for profit!!!!!

The MAGIC foundation is a wonderful source of support and education for many families! I don't know where we would be without them!

Magic foundation has help our family for the last 13 year with support for Russell silver syndrome. I don't know where we would be without them. My daughter is now going down a much healthier road. We have also attended 3 or 4 conventions and gained a wealth of information.

MAGIC is a priceless resource for our family and countless others. In our daughters first few months of life, doctors had no idea why she was not growing. A diagnosis was a relief yet also very scary. The MAGIC community of families and doctors augments the the medical care that we receive in a manner that has supported us in our darkest moments. I am forever grateful.

Our daughter was undiagnosed for 2 1/2 years and then we found The Magic Foundation. The doctors were helpful but Magic gave us the answers we needed. Russell-Silver was not so scary when we found Magic. Not only did it help our daughter but also helped her brother and sisters deal with her syndrome. We are forever grateful to the staff and families that helped us in so many ways. The annual convention was a family adventure and not just for our daughter affected by R-S.

I found the Magic Foundation after it was found that my daughter had a rare form of dwarfism called Meier-Gorlin Syndrome. We attended the annual convention that Magic holds in Lombard, IL the year of our diagnosis. The group welcomed us with open arms. My daughter was 9 years old at the time and was getting to the age where other kids started noticing the difference in her size. Spending the weekend with other kids that had Primordial Dwarfism was great for her. It was a place she felt safe and unjudged. Magic has also been an outstanding resource for me as well. I have received helpful information on insurance matters, education on Growth Hormone use, and many other useful tips and tricks. It is amazing to have a place to turn that truly understands our families struggles. We LOVE the Magic foundation and all it has done for our family.

I was introduced to the Magic Foundation soon after my son was born and diagnosed with Congenital Panhypopituitarism. I remember feeling very overwhelmed in learning about his medical condition and it was such a relief to talk to other parents and people who understood what I was going through and that everything would be fine. We've only gone to one convention so far but it was great to MEET others and learn more together. "Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has." - Margaret Mead

I have been a parent member of MAGIC for over 10 years and have been a Division Consultant for about 6 months. When my daughter was first diagnosed 10 years ago, there wasn't anywhere to go or anyone to talk to - and we go to one of the top children's hospitals in the world! I appreciate how much people care about providing information and support to our members. In the 10 years, I haven't found anything close. We strive to continually learn and help educate our members and if requested, education their doctors too! Some of the disorders are really rare and some physicians are very grateful to have all the research consolidated and provided to them to help them better treat their patient. Thank you MAGIC for 10 years - happy to be helping to pay it forward!

I found the Magic Foundation a few weeks after my son was diagnosed with Panhypopititurism. I search thru many sites and support groups before finding this foundation, and I must say that the Magic Foundation has the best information, definitions and resources available to parents of children with disorders and special needs and adults with medical conditions as well. The Magic Foundation also put me in touch with an awesome support group! Thank you Magic Foundation for all that you do for our kiddos!!!

I am an adult who is panhypopituitary (PHP) (no endocrine function), including growth hormone deficiency (GHD). This was caused from TBI when I was 18 & hit by a drunk driver. It was 1967, and I spent most of my adult life never knowing another person with my condition. It is the "invisible illness" and most of my friends & family did not understand my challenges.

The MAGIC Foundation changed everything for me when I went to my first Adult Convention for people who are PHP & GHD. I was surrounded by people who understood the challenges and were willing to listen, share and support one another. The MAGIC Foundation is so well respected that it is able to enroll outstanding Endocrinologists to speak at the conventions. I have gained so much information & knowledge to improve my life. I try to pass it on.

The MAGIC Foundation offers and monitors Facebook Groups where people can get support from the experience of others. Magic continues to improve my life and the lives of both children and adults with endocrine disease. Thank you MAGIC!

My son was diagnosed with Growth Hormone Disorder this year. I came across this non-profit when searching for information to educate myself. They've provided a wealth of information and support. I feel blessed to have found them. They even go to bat for people when they need help navigating the insurance waters for medication benefits.

I cannot express how much this foundation has helped our family. My son has Russell Silver Syndrome and it is not well known where we live. Most medical professionals do not know about it or know very little. There are no local support groups, no information. We received the diagnosis and one small sheet of paper with a lot of medical jargon that I didn't understand about the condition. I immediately got online and found the Magic Foundation - THANK GOD! They sent me a book, a volunteer called and counseled me, they directed me to the support group on FACEBOOK and I ask the volunteers questions ALL THE TIME! It is a great resource and we would be lost without it!

Magic Foundation changes my world. My son was born at 28 weeks at 1 lb. 14oz. He was 3% on the growth charts and not catching up. My pediatrician said he was "on his own growth curve". Fortunately, I discovered Magic Foundation one night at 2am as I was desparately looking for answers. As a result, I knew to contact a pediatric endocrinologist and our lives changed. Our son Jarod went from 3% at age 5 to 50th % on the growth charts in 3 years as a result of needing growth hormone injections. This affected other areas as well including immunity, muscle tone, eating, and development. Magic also answered insurance questions that we had. I am so grateful and thankful that I discovered Magic.

My son was diagnosed with Russell Silver Syndrome 6 years ago. We live in Ireland and being a small country there was no resource for us, no one for us to talk to and very little medical information available. Overwhelmed by the diagnosis we turned to the internet for information and found The Magic Foundation. It literally changed our lives. We became informed and hence, armed. The information we received (all free by the way) enabled us to challenge decisions being made by medical professionals and win! We received the RSS Handbook from Magic and it became our bible. We are constantly engaging with other parents through Magic and sharing our stories. Today our son is doing extremely well and we are far less stressed thanks to everything we have learned. Thank you Magic!

My daughter was diagnosed with growth hormone deficency last year. The beginning was overwhelming but thanks to the awesome parents that make up MAGIC we navigated our way. I am so grateful for all the support we get. There are not a lot of resources for rare diseases so thanks to MAGIC, we always have a support network to turn to :)

This foundation, who I did not know about this time last year, has possibly saved my daughters life.
What a supportive group of volunteers.
My daughter received an earlier diagnosis than most children with her disorder and will be medicated sooner as well because of what I've learned at the Magic Convention and through their support networks and volunteers.

As a first time mother and a mother of a child with soRussell Silver, the Magic Foundation has
Given me accurate , valid information, helpful resourses and and great support!!
Thank you Magic!

In early 2000, we found the MAGIC Foundation ... and that introduction has changed our daughter's life, and our family's, for the better. With a relatively small budget, small staff in Chicago, and wide base of volunteers, the MAGIC organization is able to help thousands of families whose children are not growing well, for one reason or another. From practical treatment information to talking on the phone with a volunteer who has "been there, done that", from lobbying on behalf of our children at the federal and state levels to providing an annual national convention in Chicago every where -- MAGIC does it all and covers so many bases. Thank you, thank you, thank you from the bottom of our hearts.

Our son Mason was born in November, 2011. No indications were given throughout the full term of pregnancy that any issues were prevalent. After delivery, Mason had difficulty breathing and was in Pediatric ICU for several days. After several tests it was determined that Mason was suffering from multiple abnormalities, one being congenital Panhypopituitarism. All of these thrust upon us a young couple with no indication of any issues along the term of the pregnancy is quite overwhelming. It requires a very quick lesson in medical terms, medical conditions, multiple doctors’ visits, administering medication, giving Mason daily shots, physical therapy, and educated family and our self’s. Struggles for our family are the rarity of PHP and information that is not available, The MAGIC Foundation was one place I turned to. I’m so thankful they are here.

When our son was born with a very rare disease we had nowhere to turn for support. When we found MAGIC, this all changed. The MAGIC Foundation has been there for us for the past 22 years. We attend their convention every single year. MAGIC is amazing!

My now 25 year-old daughter was a medical "mystery" when she was born in 1988.
Great doctors and nurses at an awesome NICU here in Portland, Oregon, but they were just
unfamiliar with Russel-Silver Syndrome (RSS).
Mary at MAGIC was incredibly helpful helping us get to all of the limited-- very limited--
knowledge available back then.
We were, have been, are, and will always be SOOO grateful!
Ellie's Daddy

MAGIC helps keep our family going! It is the only source of good info about our RSS child and the best place for the support I need from parents who truly understand. MAGIC enriches the lives of all who are involved with it!

The MAGIC Foundation came into my life during a very difficult time... Just after my sweet baby was diagnosed with a rare disorder known as Septo-Optic Dysplasia. I didn't know up from down, and their friendly staff and members comforted me and shared their experiences and knowledge. MAGIC is one of few places to get accurate and reliable information pertaining to this information and the only place to find hundreds of other parents like myself. Everyone is so kind, and dedicated to what they do! I am honored to be a part of this organization. I have met so many wonderful people, and watched some amazing kids grow, and even though the goal is to help kids grow I am even more amazed at how much MAGIC has helped the parents grow! There just isn't another place like it

The MAGIC Foundation is a resource for families that is unmatched by any other organization that deals with growth disorders. From providing educational materials & an annual conference, to hosting more than 15 Facebook groups for the variety of disorders we deal with, to giving parents a one on one opportunity to hear from someone who truly understands what they are experiencing. This foundation has evolved over the past 25 years to become the worlds leader in growth related Endocrine disorders. There is nowhere else you can go to find the resources, education & information that is available from The MAGIC Foundation.

Have been involved with this organization since its inception in 1989. Cannot explain how it has changed the lives for so many affected families of children with growth disorders and affected adults. Their educational and support systems are beyond magnificent.

I know i wrote a review last year as well but MAGIC plays such a large part in my life and this year as been hard. I have had lots of doctor appointments, surgery and am still unable to work. MAGIC to me is an amazing support system that has been able to help me through the bad days and pick me up when i needed it. On the same turn, i am able to be there for other families who need me and have questions for me being that i have 29 years of experience living with Fibrous Dysplasia. It is a great joy to be able to be a part of such an awesome organization.

My son was just newly diagnosed a with Growth Hormone deficiency a couple months ago and this foundation has been such a great help. The first week I knew so much about his condition his doctors were amazed! It's nice have so many supportive individual to go to any time of the day to ask questions or vent or post pictures or to just share. It's a wonderful foundation.

We have been with the Magic Foundation for a little over a year now. WE LOVE THEM. They all have been so helpful with our sons GHD. When Ethan stopped growing and things turned south it was all so scary. We felt like no one really understood. Then through our great doctor we found The Magic Foundation. Ever since we don't feel alone anymore. Thank you so much Magic Foundation for helping us along our way. Thank you for helping us see that we are not alone! :)

Magic Foundation from the start has been our back bone in dealing with our sons condition. He is GHD and was diagnosed 9 years ago, his pituitary gland is not producing enough hormones to keep his body healthy. Once we had a diagnoses, everything else fell into place, we had answers. The foundation was instrumental in providing us with the answers we were not receiving from the doctors or in terms we could understand. They assured us that we are not alone and that they are there for us whenever we need them, and they were. They continue to help us as our insurances change in knowing ways to provide the proper information to our insurance company so that we could obtain the best coverage possible. They have been our support for the past 9 years and I know I can count on them in the future as well. Thank you Magic Foundation, we appreciate everything you do!

I just found the MAGIC Foundation this year when I was faced with a medical mystery with my son who is now 3. He stopped growing properly when he was less than six months old and after a parade of doctors I realized that it was up to me to find out how to help him. This has been my philosophy until this year when I discovered MAGIC and began to communicate with an amazing parent who volunteers her time to help newbees like me understand this very rare disorder, Russell Silver Syndrome. My son is finally diagnosed officially and now, again, I am turning to MAGIC for the most current information on what I can do to help him grow and prevent damage to his development due to the complicated effects of this disorder. I am finding one doctor after the next that DOES NOT KNOW what we are dealing with. But thanks to MAGIC I have a network of parents to communicate with, the awesome volunteer who has given me her cell phone, and a 300 page book that they produced to tell me what I need to know right now. They have given me an important road map and an ongoing resource to continue helping my son and it is extremely reassuring.