Mission: NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis. Our continued focus and foundation is on Clinics, Awareness, Research, Education and Support in the states of Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri.
Results: We are able to fund vital research and clinical trials. Also, approximately 12-14 kids get to attend Camp New Friends for one week in the summer.
Target demographics: All races and ages and both genders.
Geographic areas served: Families affected by neurofibromatosis living in Illinois, Wisconsin, Indiana, Iowa, Kentucky and Eastern Missouri
Programs: Annual Family Symposium, Ask the Doctor Sessions, Local Chapters, and Camp New Friends
NF Midwest is an amazing group full of support, information and most importantly, acceptance and understanding. They do so much to promote awareness about Neurofibromatosis, and provide support to families that don't know what to do, or where to go when they are given the diagnosis.
4 years ago, my daughter was diagnosed with Neurofibromatosis at the age of 4 months. I had never heard of it. I was given a brochure for NF Midwest from her doctor and I signed up for their symposium. Shortly thereafter, I received a call from the Director, Diana. She let me know that her husband and two children have NF as well. She asked if I had any questions, and let me know that they were there for us. I had just received shocking, frightening news about my infant child. I didn't know where to turn, and suddenly I had a place to go for answers and help. NF Midwest has been there for my family every step of the way. We are so grateful for the work they do, and proud to support it.
NF midwest is a wonderful organization. When my son was diagnosed, they gave me more information than any doctors ever did. 5 years later, I still look to them for help.
