NF Midwest has been a resourceful piece of information at various times. Pamphlets and more for schools & doctors. Plus they helped fund my daughters way to NF camp. Without their notifying us it existed & paying her scholarship to attend, my daughter would have missed this wonderful opportunity. She has attended 2 yrs with their help.
This is one of the best organization. They have been a great help to me. Sending information to me for school and for helping me to educate Dr. about this disease. Could not have made this progress without there help.
NF Midwest has helped me spread awareness through fundraising opportunities, allowing me to speak at events, and even encouraging me to write an article published in a local newspaper. Thanks to NF Midwest, more and more people are learning about one of the most common genetic disorders.
A Great organization that is always up to date with their information. Very helpful, informative and a great supportive community.
They have been a great sourceof information and support. My son has NF1 and the group has been there when we need help. The work on getting the word out about NF, fundraising for research and scholarships for kids to go on to college.
I won a scholarship from NF Midwest before starting college, and I love hearing about their involvement and support for Neurofibromatosis.
NF Midwest has been a blessing to our family. My daughter and son have both been diagnosed with NF1. They have offered acceptance and understanding. They provide up to date information regarding issues that we face. They provided information that helped us talk to the school and get the support the kids needed. Thanks for everything.
NF Midwest is an amazing group full of support, information and most importantly, acceptance and understanding.
They do so much to promote awareness about Neurofibromatosis, and provide support to families that don't know what to do, or where to go when they are given the diagnosis.
4 years ago, my daughter was diagnosed with Neurofibromatosis at the age of 4 months. I had never heard of it. I was given a brochure for NF Midwest from her doctor and I signed up for their symposium. Shortly thereafter, I received a call from the Director, Diana. She let me know that her husband and two children have NF as well. She asked if I had any questions, and let me know that they were there for us. I had just received shocking, frightening news about my infant child. I didn't know where to turn, and suddenly I had a place to go for answers and help. NF Midwest has been there for my family every step of the way. We are so grateful for the work they do, and proud to support it.
NF Midwest has helped my daughter be able to have experiences in life because of their generosity. I give many thanks to the workers.