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Review for Neurofibromatosis Midwest, St. Charles, IL, USA

Rating: 5 stars  

Without NF Midwest I wouldn’t know of anyone else that had or even knew had NF or anything about it. Thanks NF MIDWEST. They have symposiums each year for more information and get to know the doctors and researchers.

Role:  Client Served
 

Review for Neurofibromatosis Midwest, St. Charles, IL, USA

Rating: 5 stars  

NF Midwest has been a true blessing. My husband and my son have Neurofibromatosis .
We didn't know who to talk to, doctors and support.
My husband has NF 1, he is a Veteran . And goes to VA hospital. Our son has NF 1. He has had to have surgeries to remove fibros . We have run into many obsticals.
As NF family we need to talk to people who have gone threw what we where, emotionally. Physical and financially .
Without Support of NF Midwest
I don't know where we be now.

Role:  General Member of the Public