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Maitri

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1 reviews

Review for Neurofibromatosis Midwest, St. Charles, IL, USA

Rating: 5 stars  

This organization educates and advocates like most do...and also supports families facing the challenges with a loved one with NF. Met the organization at a trade show. Introduced myself as an aunt of an 8 year old recently diagnosed. The executive director compassionately answered all my questions and settled my fears. Getting information only from doctors and online is not enough. The real life examples, first hand experiences and loving support makes all the difference. The NF Midwest Facebook page, emails, newsletter and most importantly the live fundraising events allow the community to interact in a very personal level. This organization is making an impact on research, public education, legislation, funding and family support...all pieces are integral to success!

Role:  Client Served