Administrative expenses are wildly out of wack! Look at the publicly available 990 returns yourself, you will see office expenses in excess of 8% and fundraising expenses in excess of 30%! There are also a number of questionable choices made around categorizing expenses, such as storage as a program service expense. $432 for telephone and internet and $483 in rent on average per month for an organization run out of a home office is suspect at best. I have been involved with organizations with $8 million plus in assets that spend less on fundraising! Pair that with the fact that the "board" is all one family and anyone can see that something is VERY wrong here.
After seeing all the fabulous things over the years this amazing charity do, not only the Epidermolysis Bullosa community but for sick children around America i simply must give them a 5* I applaud your transparency & huge hearts!! If anyone out there is reading this then i recommend them highly and urge you to assist where possible in their works.
Review from Guidestar