In 2013, I was diagnosed with CRPS, the news was devastating-I lost my career, my purpose in life, friends and so much more. I found RMRSD in my search to learn more about this evil disease and to find support in my area-I accomplished this and found so much more!!! After learning about RSD/CRPS and making new friends on line, I participated in one of the studies that RMRSD was funding and I am happy to say it had made my world a better place! Now, I am a Board Member hoping to give back a piece of the gift I have been given through Helen's hard work and dedication!
This is a wonderful non-profit run by unpaid board members who either suffer from this disease or have family members who do. They are 100% devoted to funding desperately needed research for this horrible pain condition!!!
In December of 2011 our family changed forever, our 8yr old daughter was diagnosed with CRPS/RSD. We were happy to have a diagnosis finally, however once we had that we felt like we were alone on an island. When I found this group summer of 2012 I was thrilled to find others out their with this monster and also saddened by how many people it affects. My husband and I learned so much about CRPS/RSD after our diagnosis that it just seemed like a perfect fit to become a board member so I can continue my quest for not only a cure but have a medium to use for awareness for others. I became secretary and now I am president. This organization has done an amazing job thus far and our founder Helen never ceases to amaze me with how she can get so much done while being in so much pain. Our organization has a fantastic board made up of other moms on a mission like me or who suffer greatly themselves with this monster. None of us get paid and we all do it because we want to make sure no one else has to suffer and we work hard to raise funds to help doctors fund their research. We haven't been around that long but we have sure started to make a dent in our community.
I am an RSD sufferer and I am always so impressed with Ms Hilliard and her group of Volunteers at Rocky Mountain RSD. These folks have raised a very respectable sum for research with their PEPSI campaign. While raising awareness as well. Additionally, the database on their Facebook page is full of informative info relating to our syndrome.
Thanks to Helen and her team for all they do.
I am truly amazed at the unselfishness and love of the volunteers give to this group, they offer any and all support they give to all who ask, who endure this horrible disease. There is always all kinds of information available. Our daughter has CRPS/RSD and it has helped us so much to understand what she goes through daily.
This is an all volunteer organization that has worked tirelessly to raise funds for research to find a cure for this debilitating disease. It has been an honor to work on the Board of Directors for RMRSD. We will continue to do all we can to find help for those who suffer from the most painful nerve disease known. I am lucky to be in remission, which is extremely rare, and have not forgotten what it like to suffer every day.
As someone who admins groups on facebook, if I am unable to find things for my group members I always look to Rocky Mountain CRPS/RSD. I know I can trust and rely on the information they provide, and there is never any competition involved. They are truly in this for all the right reasons, and it shows in the dedication and support.
After finding out that i have RSD rocky mountain rsd has been the one group i always turn to. the people who run it are amazing and the network they have set up for help and with everything from finding doctors to just a helpful hand from other members. having this group has made couping a lot easier not just for me but my whole family.
I am a physician who has been treating CRPS for many years. Rocky Mountain RSD CRPS has been an organization that has been at the forefront of helping patients, educating physicians and patients with this condition and supporting research. There is no doubt that this is one of the best organizations for patients with CRPS.
This organization works tirelessly to fund research for a cure for a little known disease that effects a possible 10 million people. It is an all volunteer BOD, no pay, so you know your dollars are going to research. If you want to help us develop more stamina, and exposure to the world as a whole, please help us by writing a review. Thanks for the support! Helen
This non-profit was founded in 2005 by one of the bravest women I have ever met. After struggling with CRPS (Complex Regional Pain Syndrome) for several years Helen Freemyer founded Rocky Mountan CRPS/RSD in 2005. The organization has steadily grown and has recently been featured in a promotion by a Pepsi-Cola bottler. For 2 months stickers were applied to packaging and Diet Pepsi cans were highlighted with a panel about the organization and the fight against CRPS. The rmrsd face book page has around 800 members and still growing, rmrsd is currently funding a research study at Stanford University and 2014 plans include a far more aggresive fund raising initiative.
All of us on the board are looking forward to next year and an all out attack to raise awareness and find a cure!
