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Pectus Deformities Support Group

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2 Stories from Volunteers, Donors & Supporters

1 Aaron K.

Board Member

Rating: 1

They claim to want to help people with Pectus deformities, but you can't post unless you pay $10. They even went so far to disable the accounts of people who joined before the $10 dollar fee was required. These people are extremely greedy. This alienates many people who do not have the means to pay. They don't mind helping you, but they want your money first.


Client Served

Rating: 1

No stars... I attemped to join this organizations web message board which is supposedly set up to benefit people like myself who suffer from a particular medical condition. I found one could not use the message board unless one paid a fee, which they call a 'donation'. I wrote the contact person,Zsuzsanna Olson(who calls herself the CEO)to inquire why it was charging a fee of the people it claims to serve, i.e. medically and psychlogically disfigured persons, the contact person responded with a very nasty letter attacking me as a human being and stating she "didnt want my kind" there....I found this response to be profoundly disturbing and inquired about the qualifications of the staff in dealing with disfigurements (and the ramifications in light of her attitude in relation to that) I received no response to this second contact. I presume they have no background in any of the healing arts and her attack upon me in response to what seemed a legitimate question was unnerving to say the least, leading me to question both the qualifications of their personal, and their honesty.