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- EIN 52-2000922
- P O Box 145 Upperco MD 21155 USA
- http://www.noonansyndrome.org
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Nonprofit Overview
Causes: Birth Defects & Genetic Diseases, Health, Unknown
Mission: Members share experiences and exchange ideas on how to cope with Noonan syndrome. A Web site at http://www.noonansyndrome.org has a wealth of information. Also available to Internet users is an e-mail list service, offering educational and emotional support to new friends around the globe. Names of medical specialists who have worked with TNSSG in the past, is available upon request. Newsletter - The Noonan Connection is published on a quarterly basis Public Awareness - TNSSG helps fight misconceptions about Noonan syndrome and lets others know that help is available.
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This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.