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Nonprofit Overview
Causes: Birth Defects & Genetic Diseases, Birth Defects & Genetic Diseases Research, Health, Specifically Named Diseases Research
Mission: Offer support and programs geared to families affected by tay-sachs disease and over 40 other fatal degenerative genetic disorders through education research and prevention.
Programs: Grants & nat'l conferences: provide grants for education & family service, referral info, quality control and nat'l conferences.
meetings: provide information, literature & speakers to the public and human services professionals about tay sachs and allied diseases, and referral information.
research: provide research grants to scientists investigating cure and treatement of tay sachs & allied diseases.
other: prevention, carrier testing. Provide geentic counseling surrounding tay sachs & allied diseases. Provide public with community test sites.
Donor & Volunteer Advisory
This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.