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Causes: Birth Defects & Genetic Diseases Research, Health
Mission: Educate members and medical community; support and connect families with klippel trenaunay syndrome; encourage research and work with research community for patient involvement
Programs: Attended conferences to establish phase 1 trials and recruit researchers, establish relationship with academic research labs $10,188. 52.
assisted with physician education in vascular anomalies at american soc. Of pediatric hematologists and oncologists (aspho) $3,975.
individual member support $465. 44 - ride program for boston children's patients