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Hydrocephalus Support Foundation

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Nonprofit Overview

Causes: Brain Disorders, Health

Mission: Our Mission: "To support and educate on behalf of the hydrocephalus community."

Results: We expanded our reach and changed our name from Hydro Angels Over America to Hydrocephalus Support Foundation to better represent those we serve and our mission.

Target demographics: infants to elderly who are living with Hydrocephalus.

Direct beneficiaries per year: 1000's of people

Geographic areas served: America and globally

Programs: (1) Hydro Health - assisting with emergency medical co-pays, travel assistance to the doctor/hospital, medical equipment, therapy and more. (2) Camp Hydrocephalus - We host the worlds only camp for kids & adults who are living with hydrocephalus. (3) Project Daisy - we assist families with funeral expenses if they suddenly lose a loved one due to hydrocephalus. (4) Hydro Angel Award - We make a "dream come true" for a person living with hydrocephalus. (5) Holiday Miracle - each December Christmas wishes for kids & adults living with Hydrocephalus. (6) We (partnered with Dell Children's Hospital) and offer a FREE Hydro Bear to children who are admitted to the hospital for brain surgery to treat hydrocephalus. (7) We award college scholarship to students living with hydrocephalus

Community Stories

126 Stories from Volunteers, Donors & Supporters

Julie Sutton H.

General Member of the Public

Rating: 5

This organization does so much for the Hydrocephalus community. From books and bears to dreams come true, college scholarships, camp Hydrocephalus and Hydro Santa. They offer support like no other organization can. Someone living with Hydrocephalus knows they aren’t alone because this organization stays in contact. The help they give is amazing and inspiring in time of need.

Bradi B.

Client Served

Rating: 5

Amazing!! So supportive and always there for everyone!!

Previous Stories

Client Served

Rating: 5

Sheri and Hydro Angels Over America are AMAZING!! Sheri is not only so helpful and resourceful but so personable!! She puts her heart into everything!! They provide so many different programs to help all those that are affected by Hydrocephalus!! We were chosen for Hydro Camp 2016. We had the time of our lives!! We made memories that we will cherish forever!! It was so nice to know that there are others that are going through the same things!! We have new friendships that'll last a lifetime!! I'm so thankful for Sheri and Hydto Angels Over America for giving us this opportunity!! Sheri and her staff are truly Angels!!

General Member of the Public

Rating: 5

Hydrocephuls support foundation has brought a smile to my Mickey's face & our Family together with other Hydro Angels we were Blessed the day Sheri & this organization came into our lifes. With Love Maria Suits & Mickey & Family

Nicole134

Client Served

Rating: 5

There isn’t enough time in the world to describe how absolutely amazing this nonprofit is!! They have been extremely helpful in supporting my family from day one and I will be forever greatfull to them!

Alex V.2

General Member of the Public

Rating: 5

While I've never donated to the organization before, due to lacking the means to do so (debit card or credit card.) I have nothing but strong support for Sheri and her crew. Before learning about her or her cause, I felt I was alone in my struggles against Hydrocephalus.

But then, I learned of Baby Klaus and her desire to help him. Upon learning that BOTH of them had Hydro, a great weight had been lifted off my shoulders. Now, she and I are the dearest of friends on Facebook and I do what I can to spread the word about Hydrocephalus Awareness to anyone and everyone I know.

I truly wish I could meet her or any of my Hydro Brothers and Sisters face-to-face and partake in a game of bowling for charity. That way, we'd be helping out a noble cause AND having a good time while doing so.

We Shall Overcome

Kendra L.1

General Member of the Public

Rating: 5

Our hydro journey started 6 years ago when my baby boy was diagnosed at birth with it. We had no idea what hydrocephalus was until my son was diagnosed. After 5 brain surgeries total we are finally 4 years complication free, we pray it stays that way. Thanks to this foundation we get to hear others tell their story which in return helps my 6 year old feel like he’s not alone. We get to meet other children with hydro and other families that are going through similar situations. We absolutely love this foundation and everything it stands for. It definitely opened a new door of life long friendships/motivations for my boy and we love it!

Client Served

Rating: 5

This foundation and it’s founder has been there since day one of birth! I’m beyond thankful for Hydrocephalus Support Foundation. My son is beyond blessed to call Mrs. Sheri a HydroSister. Although she is more like a HydroAunt. She is always available to talk and has met us on a few occasions. Even helped out when we were in the hospital for prolonged stays. Thank you from the bottom of our hearts!

Previous Stories
1

Client Served

Rating: 5

There are numerous occasions that make this a 5 star nonprofit. Sheri is beyond helpful and always available when needed. The items purchased are reasonably priced and HAOA has even taken the time to go to the hospital to spend time with my hydro Angel son. I can't thank them enough and I'm beyond grateful for such a wonderful organization.

Linda381

Client Served

Rating: 5

Hydrocephalus Support Foundation does just what the name implies. It supports people who are affected by the condition of Hydrocephalus. Being fairly newly diagnosed, I was extremely frightened and feeling alone. I had heard about Hydrocephalus. In fact, I had more than heard of it. I had worked for years in nursing on the Medical/Surgical unit at our local hospitals. Having surgery to treat the condition, although it saved my life, it also affected my memory to the point that I was no longer able to work. Stumbling upon the Hydrocephalus Support Foundation while looking for information related to Hydro has been a Godsend. Mrs Burdine and this foundation has supported me so many times when I was in need of emotional support. She’s a wonderful advocate for us living with Hydrocephalus. She understand because she too lives her life with the condition Hydrocephalus. Sheri is a wonderful advocate for us. She has done so much to enrich the lives of her fellow Hydro Warriors She deserves to be recognized for the beautiful, kind woman that she is and for all of the support that she has given to myself and others over the many years.

Previous Stories
1

Client Served

Rating: 5

As a senior ( age 64) and having only been diagnosed and shunted a little over 4 years ago, I can’t begin to express how happy that I am to have the return of a non profit Hydrocephalus Support Based Foundation ran by Sheri Burdine. Sheri is an amazing, compassionate and kind woman who genuinely cares about others. As a newly diagnosed women, scared, feeling alone and needing someone who could relate to this terrible condition called Hydrocephalus and what I was going through. Not knowing if what I was experiencing were normal symptoms or something that I should be concerned about I happpened upon Hydro Angels Over America. Finding that web site and meeting Shari literally saved my life. I thank God for Shari and for giving her the strength and ability to start her new foundation. Welcome back with you new organization. We love you.

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Volunteer

Rating: 5

I have been a volunteer for several years for this organization and the great and touching things that I have seen from Sheri Burdine and this organization is incredible to say the least. I have volunteered for Camp Hydrocephalus many a time and it was so very touching. To see children interact with other children that had the same condition they had is so gratifying. There was even a Father and his son that had Hydrocephalus and they were there sharing stories and having fun with all the others. To have a group of families that had no idea who was who, come together as one big family was tearful. No one had any worries because Sheri Burdine was there to answer any and all questions that she could that might ease a families concern about Hydrocephalus. I too interacted with everyone and I will never forget how much fun I had and will continue to have being a volunteer For Sheri Burdine and her organization.

1 Bridget11

Client Served

Rating: 5

I learned of Sheri and her amazing efforts in supporting the Hydro community and hydro warriors like me and her yes she is also a hydro warrior herself but my most precious moments happened in 2014 when I was honored with the hydro angel award not only did I get amazing memories package with my son going to WWE meeting Randy Orton going to Disney World but perhaps even more special she paid our way hotel conference and all to Texas to accept the hydro angel award and be surrounded by hydro warriors and hydro families who know and understand my struggle and to hug and thank Sheri herself in person the amount of hope she gave me at that event money can’t buy

Previous Stories
1

Client Served

Rating: 5

I have had many experiences with this wonderful charity I myself have hydrocephalus and have had a forever treasured dream come true through this charity I love ❤️ it with all my heart and soul

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Board Member

Rating: 5

I am so proud to be the President of the Hydrocephalus Support Foundation. We are the same organization with the same mission, goals and integrity, only the name has changed. Thank you to everyone who supports our organization by taking time to write a review, volunteer at an event, or make a donation. Together we are making a difference!

Sheri Burdine

1

Client Served

Rating: 5

We Love Hydro Angels Over America and all they stand for! They not only raise awarness and support research like many non-profits do, they also focus on the needs of those living with hydrocephalus which makes them beautifully unique in the hydro-community. They bless so many families with hydro friendly events that they would never get to experience if it wasn't for them. Our family attended one of those events (Hydro Camp) and had the time of our lives!! They've met needs as great as a van to accommodate the individuals disability to sending SpongeBob to a little boy, my son, who's only wish was to have SpongeBob bring him a gift. Hydro Angels Over America has touched so many lives in so many different amazing ways and the hydro-community is a much better place with HAOA in it.

1 Julie151

Volunteer

Rating: 5

I have been a HAOA volunteer for the past 3 years. And oh how this has changed my life!! I live with hydrocephalus and I have seen first hand all the good they have done for the hydro community. I have been a part of giving a hydro miracle and a part of giving help through project daisy, there is no other organization that gives from the heart. I love Sheri and Hydro Angels and I am honored to be a part of it.

Previous Stories
1

Volunteer

Rating: 5

Hydro Angels Over America is a wonderful organization to volunteer and be a part of. This organization not only gives funding for Hydrocephalus research they are the only organization that helps the individual living with Hydrocephalus. Hydro Angels Over America offers scholarships to graduating Seniors living with Hydrocephalus to continue their education, they offer a weekend camp at Jellystone National Park in Canyon Lake, TX for children living with Hydrocephalus just to be a kid. They offer Holiday Miracles to young children at Christmas and Dream Comes True Miracles for adults living with Hydrocephalus. This organization has hand delivered thousands of stuffed Hydro Bears to Hydrocephalus patients who are under going shunt revisions and shunt placements. Hydro Angels Over America has helped so many people with medical necessities such as eye care, therapy sessions, gas money for far away appointments and has paid rent for those who have been out of work due to a shunt related surgery. And the best part is Hydro Angels Over America will help with funeral expenses for a fallen "Hydro Angel". This organization was started by Sheri Burdine because she herself is living with Hydrocephalus. The organization's motto is "You are Never Alone" and being a volunteer and also a Hydro Warrior I have learned I am never alone.

1 Ashlee U.

Client Served

Rating: 5

My daughter was diagnosed with severe Hydrocephalus when I was still pendant with her. Haoa has been not just a great support when I have had questions or needed virtual hugs, it's connected me to loads off others just like my daughter ave they even donated more to its when we were traveling 500 miles away for cord blood infusions that our insurance wasn't paying for.
Haoa is an amazing organization, we even chose them to donate to for our daughters birthday. It was awesome to give back to a group that I know gives do much.

1 Elizabeth236

Client Served

Rating: 5

HAOA is a tremendous organization. They really made us feel welcome, and like we had a family that knew what we were going through. The founder Sheri Burdine is a compassionate, amazing, and generous human being. I've had the pleasure of meeting her and consider myself lucky to call her a friend.

1

Donor

Rating: 5

Hydro Angels Over America is a FABULOUS and compassionate organization in spreading awareness and helping families and patients like myself who live daily with the condition of hydrocephalus.

1

Volunteer

Rating: 5

I have been a volunteer of Hydro Angels Over America since I was born. My name is Hydro Bear. I have seen Sheri Burdine, founder pour her heart and soul out for Hydro Angels not every once in a while but every single day. She want's to make every person adult or child be happy, make dreams come true, you name it. As Hydro Bear, I also see the smiles that I, Hydro Bear brings to children and even adults. I have gone to Hydro Camp, Walks and Hospitals as well as me and my good friend Sponge Bob surprised a boy at Christmas with a Holiday miracle. It has been a wonderful journey being Hydro Bear. Sheri thinks of everybody but herself because that is the person that she is. I have been to funerals of both adults and children that Hydro Angels either paid for or helped pay for. I could not be anymore proud of Sheri and her organization and what it stands for. Don't forget to read my books, "The Journey of Hydro Bear", starring me! They can be found on the website.
Love Hydro Bear, "(AKA Keith Burdine, Husband)".

1 Kevin157

General Member of the Public

Rating: 5

Hydro Angels Over America (HAOA)is a stellar organization, connecting those effected by hydrocephalus while spreading awareness internationally. There are a plethora of facets that are remarkable about HAOA, but I want to touch on one; esprit de corps. HAOA connects people from around the world. The diverse following has allowed my son, wife and I to communicate and learn with a rich group of people. Those who persevere with hydrocephalus are bestowed the title of Hydro Warriors, but everyone a part of HAOA is a warrior; with or without hydrocephalus.

1

Donor

Rating: 5

Hydro Angels Over America is a wonderful organization providing support to families and those living with Hydrocephalus. I'm a Hydro mom whose daughter has suffered from Hydrocephalus since she was 8 weeks old. She's now 32 and we fully support this organization. This is a great support group and does outstanding things for those living with Hydrocephalus such as bowling events, camp, college scholarships, walk-a-thons and granting wishes. Sheri Burdine is wonderful. She also has Hydrocephalus and fully understands what others are going through. This is a wonderful organization and I'm proud to be a supporter of this group. May God bless Sheri and Hydro Angels Over America!

1 Annette36

Client Served

Rating: 5

We were invited to join the Hydrocephalus Camp this past summer. It was such a blessing to us. We met other children and adults with hydrocephalus. I learned so much and formed so many new friendships. This organization went above and beyond for my family and daughter, who has multiple diagnosis. I am so thankful to have found them.

1 Dawn128

Client Served

Rating: 5

My son is a Hydro warrior. Hydro Angels over America reached out to my son Christmas of 2014. They granted him a Christmas wish and was absolutely amazing! They are such an amazing and supportive group of people. Always there to support in spirit, or in person. Helping so many with information, Christmas wishes and in bereavement.

Previous Stories

Client Served

Rating: 5

Hydro Angels over America is the best! Firstly they are such a wealth of information. They work so hard to raise awarness for Hydrocephalus and to lobby for research for better treatments. But more than that they work to know all of the people in their group on a personal level. Last year my son was Granted a hydro miracle at Christmas. It was truly amazing. They are the reason he had a great Christmas! I can't say enough good about these people...

1

General Member of the Public

Rating: 5

Having been born with Congenital Hydrocephalus back in '72,I am so happy to see all the National awareness the Hydrocephalus community has been receiving as of late.Being a part of the Hydro Angels Over America family has meant so much to me.It's so wonderful to know we're not alone & we are all in this together.To have others out there that know what you're going through & hear so many stories of our fellow warriors is very heartfelt & uplifting.I look forward everyday to reading all the posts of the HAOA & all the members of our wonderful community.Thank you Sheri & the HAOA community.Much love to you all.

1

Volunteer

Rating: 5

Amazing charity! They give Hydro bears, pay costs for hydro families in need, and offer excellent support and knowledge!

1 Sarah339

General Member of the Public

Rating: 5

This organization is amazing. They do so much for the hydrocephalus community. My daughter is 9 and was born with hydrocephalus. Last year the Hydro Angels granted her Christmas wish and our family felt truly blessed. Always going above and beyond to make Hydro warriors feel special.

1 Dominique C.

General Member of the Public

Rating: 5

Hydro Angels are the best! They're always putting current update info about the condition. They do great things for the communities & always raising awareness. My son Matthew has had hydrocephalus since birth. When he was hospitalized they checked on him through messages. Matthew has also received Christmas presents from them.

Previous Stories
1

General Member of the Public

Rating: 4

It's great knowing that this organization is out there to help families who suffers hydrocephalus.

bstrong

Client Served

Rating: 5

My husband is here today thanks to the help and support we have received from Hydro Angels Over America. When people wrote us of Sheri said to keep fighting. This guy has been loved on so much by HAOA. From hospital visits, to getting his dream come true, to phone calls, prayers and letters letting us know we aren't alone.

Penny35

General Member of the Public

Rating: 5

It is great to see the ways that they have helped families thru the years

Sherry75

Client Served

Rating: 5

Great organization that is a great support for hydro families and truly cares

Client Served

Rating: 5

HydroAngels is amazing!! The love and support I have received here has been incredible! I received a Christmas package last year, and HydroBear helped me through a tough surgery in August! Thank you to Sheri and all who make HydroAngels possible!!

salberts22

General Member of the Public

Rating: 5

My family fell on hard times last year. We were shocked to learn both our twins, fraternal boy and girl, had hydrocephalus. Since they've been born we've made countless trips to the hospital. So naturally around Christmas we were worried we wouldn't be able to afford anything for our kids. Hydro angels blessed us by choosing our kids to receive gifts from hydro Santa. Without them I'm not sure what we would have done. Hydro angels shows daily love and works so hard for those young and old affected by hydrocephalus. Thank you!!!!

Previous Stories

General Member of the Public

Rating: 5

Hydro angels is amazing! We had our fraternal hydro twins in July of 2015. With all of our hospital trips and unexpected surgeries we weren't sure how we were going to make a Christmas for them and their older sister. Hydro angels chose the twins for hydro Santa and the twins received some amazing gifts that they not only love But help them developmentally! And we were able to in turn surprise their older sister with a special gift that made her feel special.

Whenever we feel like we need to be reminded we aren't alone in this crazy hydro ride! We also love the hydro store..the twins sure love their hydro bears!

2

Client Served

Rating: 5

I can not say enough about this organization!!!! Sheri Burdine is the founder and is truly my sons and families guardian angel. My son was born with Hydrocephalus and his Daddy has it as well. About 3 years ago my son started having issues with his shunt when a friend let my know about HAOA. I contacted them via phone and I believe God works in amazing ways and was blessed to have Sheri answer the phone she spent more than a hour on the phone with me and from then on she has been part of our family. She is full of so much knowledge about Hydrocephalus and let me tell you if she is not sure of a answer she wont stop until she can find someone to help. After fighting with doctor after doctor she gave my family the strength we needed to not give up. After talking numerous times with her I finally got the doctors help and my son has been doing very well. One of the amazing thing is organization does it Hydro Santa my son got to write to Hydro Santa (which he thought it was the coolest thing ever that there is a Santa that has Hydro) and was blessed on Christmas morning with a XBOX ONE!!!!! Then another amazing thing happened our family was chosen for Hydro Camp 2016!!! This was a once in a life time trip and was truly the most amazing vacation ever. After years of hearing from my son know one is like me and none of these other kids understand I am the only one..... we had a entire weekend with 11 families that all had a family member with Hydro. A fun filled weekend of no doctors or surgeries. This organization is amazing and the friends and people you meet on the website become part of your family and you always have people to listen and help. We love you Hydro Angels from the bottom of our hearts and saying thank you will never be enough you are truly amazing

2 Lizzy A.

Volunteer

Rating: 5

My name is Lizzy Aranibar and I am the Volunteer Outreach Coordinator for San Antonio, Texas. I am living with Hydrocephalus. Sheri Burdine was the first person I ever met with Hydrocephalus. She made me aware that I was not alone, that there were many (ONE MILLION) other people just like me living with this chronic, incurable condition. When I began connecting with other people through Hydro Angels Over America, I quickly realized that the pain I feel is shared with my "Hydro Family." We understand each other's symptoms and we are there for each other at the other end of the phone or on the other end of an email. I attended my first Hydro Angels conference in Austin, Texas where I heard from pysicians and shunt manufacturers and I learned many new things and also got to make new friends that have become my brothers and sisters. I have volunteered at our annual Charity Golf Tournament in Austin, Texas and I plan to host one this year. I have been the host of our annual Bowling to Strike Out Hydrocephalus Tournament in San Antonio where my family and friends came out to support me and this organization that means so much to me. I have answered calls and emails from people who feel alone, and others who just need someone to talk to. Some who want to know how they can get involved. I've loved every minute of every conversation.
Thank you Sheri Burdine and Hydro Angels Over America for all you do, all you are doing, and all you have done for those of us living with Hydrocephalus.

2 Misti S.

Volunteer

Rating: 5

Hydro Angels is such a wonderful organization!! I cannot say enough about it to truly express how much they go above and beyond to help others. They have been there for me multiple times and I cannot thank them enough. They are more personable than any other organization that I've ever dealt with and that's what separates them above all the others!

Previous Stories
1

Volunteer

Rating: 5

Hydro Angels Over America is an excellent organization. The thing that stands out the most to me is the founder who also has Hydrocephalus and how personable she is to everyone. She really lets you know how much she cares and it's genuine! This organization has helped so many people and all of the fundraisers I've attended have been fun and encouraging to let me know I am not alone. I believe that Hydro Angels Over America should be voted best of the Great Nonprofits because that's truly what it is, a Great Nonprofit!

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1

General Member of the Public

Rating: 5

I can't say enough about this organization. They have truly been a Blessing to my family. Our sweet daughter who is now 3yrs old was born with severe Hydrocephalus. She was granted one of the Holiday Miracles and got a "rocking rider pony" it's her absolute favorite gift that we will always cherish. Thank you Hydro Angels for all your love and support over the years. You're the BEST!!

2 Kelly196

Client Served

Rating: 5

When my daughter was born very ill, she acquired Hydrocephalus. I can remember the day very clearly when a doctor came into the PICU room to explain to me what my daughter had and what type of surgery was required. I felt so lost and alone, I thought certainly I am the only one whose child has this. I had so many questions, and one day I found Hydro Angels Over America and Sheri Burdine and I could finally exhale. She was able to answer so many questions I had. HAOA, offered us the ability to meet others just like us and show my daughter that she is not alone. I honestly do not know what I would do had I not found this organization. They continue to be such a great source of information for me and so many others.