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hydroharley

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1 reviews

Review for Hydrocephalus Support Foundation, New Braunfels, TX, USA

Rating: 5 stars  

I can not say enough about this organization!!!! Sheri Burdine is the founder and is truly my sons and families guardian angel. My son was born with Hydrocephalus and his Daddy has it as well. About 3 years ago my son started having issues with his shunt when a friend let my know about HAOA. I contacted them via phone and I believe God works in amazing ways and was blessed to have Sheri answer the phone she spent more than a hour on the phone with me and from then on she has been part of our family. She is full of so much knowledge about Hydrocephalus and let me tell you if she is not sure of a answer she wont stop until she can find someone to help. After fighting with doctor after doctor she gave my family the strength we needed to not give up. After talking numerous times with her I finally got the doctors help and my son has been doing very well. One of the amazing thing is organization does it Hydro Santa my son got to write to Hydro Santa (which he thought it was the coolest thing ever that there is a Santa that has Hydro) and was blessed on Christmas morning with a XBOX ONE!!!!! Then another amazing thing happened our family was chosen for Hydro Camp 2016!!! This was a once in a life time trip and was truly the most amazing vacation ever. After years of hearing from my son know one is like me and none of these other kids understand I am the only one..... we had a entire weekend with 11 families that all had a family member with Hydro. A fun filled weekend of no doctors or surgeries. This organization is amazing and the friends and people you meet on the website become part of your family and you always have people to listen and help. We love you Hydro Angels from the bottom of our hearts and saying thank you will never be enough you are truly amazing

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