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- EIN 36-4413933
- 121 S Estes Dr Ste 205d Chapel Hill NC 27514 USA
- www.fdhope.org
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Nonprofit Overview
Causes: Birth Defects & Genetic Diseases, Birth Defects & Genetic Diseases Research, Health, Specifically Named Diseases Research
Mission: Our mission is to find a cure and new treatment options for Familial Dysautonomia by funding relevant research programs, to provide a support network aimed at addressing the needs of patients and families, and to promote Familial Dysautonomia education and awareness programs in the medical community and the public. We strive to ensure inclusivity of all families affected by Familial Dysautonomia.
Programs: Research: Funding scientific and medical research towards the goal of a cure for Familial DysautonomiaOutreach: Education and awareness program geared towards at risk populations so as to increase use of available carrier screening and decrease the incidence of Familial Dysautonomia.Support: Promoting communication and information sharing for the Familial Dysautonomia community
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This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.