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Epilepsy Association of Utah

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Nonprofit Overview

Causes: Epilepsy, Health

Mission: The Epilepsy Association of Utah is a 501(c)(3) nonprofit organization whose mission is to provide support services for people living with epilepsy, educate the community about epilepsy and assist in raising funds for research.

Results: Since 1973, The Association has worked tirelessly to enhance communication with the community, assuring people living with epilepsy no longer have to live in fear that: their seizures will be joked about, they will be discriminated against and/or they are the only ones with the condition. Currently, 106,000 people in Utah have a diagnosis of epilepsy and, it is estimated, this number will increase significantly as the population ages. Epilepsy is, simply put, an electrical disruption in the brain. 1 in 10 people will have a seizure in their lifetime and 1 in 26 (1) will be officially diagnosed with epilepsy. It is the third most common neurological condition behind Alzheimer’s and Stroke. Its prevalence is greater than cerebral palsy, multiple sclerosis and Parkinson’s disease combined (2). The earliest recorded mention of epilepsy dates back to 1067 BC to a Babylonian tablet of medicine (3) housed in the British Museum. It is a condition as old as man himself. The Association holds several fundraisers, an educational conference, support groups, a camp for teens with epilepsy, Seizure Smart complimentary training, and many other events to help raise awareness throughout the year. We thank you for your interest and invite you to read more about our endeavors at http://www.epilepsyut.org. Thank You, The Epilepsy Association of Utah (1)Estimating risk for developing epilepsy, A population-based study in Rochester, Minnesota.D.C. Hesdorffer, PhD, G. Logroscino, MD, E.K.T. Benn, MPH, N. Katri,G. Cascino, MD and W.A. Hauser, MD http://neurology.org/content/76/1/23.abstract (2)Epilepsy Foundation of America. http://www.epilepsyfoundation.org/aboutepilepsy/ (3)A DISEASE ONCE SACRED. A HISTORY OF THE MEDICAL UNDERSTANDING OF EPILEPSYBy Mervyn J. Eadie and Peter F. Bladin2001. Eastleigh: John Libbey. Pp. 248.ISBN 0‐86196‐607‐4.http://brain.oxfordjournals.org/content/125/2/441.full

Target demographics: individuals dealing with the challenges of epilepsy.

Geographic areas served: Utah

Programs: The Epilepsy Association of Utah is the largest Epilepsy organization in Utah. Services include: Support Groups, Camp Neuro Revolution, Artilepsy Exhibit, Annual Educational Conference, Educational and First Aid Programs, College Scholarships, Transportation Assistance, and Medical Costs Assistance.

Community Stories

3 Stories from Volunteers, Donors & Supporters

Jan_36

Client Served

Rating: 5

My 11 year old daughter has epilepsy. Found out about this group in the year 2012, My daughter got to go to Camp Neuro Revolution in July 2012,her first and really enjoyed it and then got to go to it again in 2013. She has made many who have epilepsy just like her. Epilepsy foundation of Utah is great they are always there for my daughter and always leave sweet thoughts. They will be helping me do a presentation at my daughters school for the whole 6th grade about epilepsy and what to do. I love being part of this great and wonderful epilepsy foundation of Utah if it wasn't for them my daughter and I would be lost. They have useful information about epilepsy.

1

Board Member

Rating: 5

Never in my life would I have ever thought I would be a part of such a wonderful organization. As scary as my son's first seizure was, his second was devastating because now it mean it wasn't just a fluke. We moved to Utah to find help for him and within a year, I was on the Board of the Epilepsy Association. I saw the wonderful support they provided to people and I had to help! I can unabashedly say: They are the BEST group of people I have ever known...and I have been around the block a few times. The services they provide to individuals with epilepsy are fabulous: Transportation Assistance Program, Scholarships, Medication Assistance Programs, statewide Support Groups, Camp for teens, Political Awareness among others. There is almost nothing these folks can't do and I am honored to be a part of it!

Epilady

Volunteer

Rating: 5

Now in it's 40th year the Epilepsy Association of Utah is growing and helping thousands of individuals in Utah every month. They are growing all the time and expanding to new areas in Utah all the time. I have loved Camp Neuro Revolution for teens with Epilepsy. Crop Because you care annual Scrapbook fundraiser and Artilepsy (art exhibit) for those who are touched by epilepsy as just the beginning of the things I love about the Epilepsy Association of Utah.