My son was in a car crash in 2011 which resulted in severe TBi. Another mother of a brain injured son told me about this group which had helped her & her son so much. Lisa Moss, the founder, is so supportive & she knows first hand the devastation of having a brain injured loved one. Informative packets are given. Monthly support groups help us feel not so alone. Being with others who understand what this is like is priceless. I always learn something new and receive valuable resource information. This organization is a God send & I am so grateful.
I am a social worker and have lots of experience in working with non profits. Some have the best of intentions but they soon disappear or become corrupt, That is why I have such respect for brainstorming 4 Us, it´s professional, focused on the need of this unique population, and a great system of support for survivors and their families, and political advocates. TBI impacts and changes life journeys....I will continue to advocate for their services and refer clients as needed. Rosa Hurtado MSW
My 19- year old daughter was in a car accident in Fenruary of 2011 and has severe traumatic brain injury. While she was in a sub- acute childrens hosipital in Orange, I met the families of Brainstroming4Us. The founder of the group also has a loved one suffering from TBI. Her tremendous strength and encouragement was probably the thing that kept me going. The families I met were wonderful! and extremely supportive as well! While my daughter is still suffering from TBI and may be for the rest of her young life, this support group will always pick me up when things are tough and they give me hope that doctors don't always provide. I have to believe that my daughter will speak, move, and walk one day, even its's just baby steps, and they encourage and strengthen me to believe this!! They are my extended family and friends for life. The group also helps my family to understand how to deal with everything. They look forward to the meetings as much as I do. Thank you Brainstorming4Us !!!
After sustaining my severe TBI, life was very unpleasant! For the first few years, things looked bleak for me. However, on October 21st, 2006 I attended my first Brainstorming meeting. Since I was unhappy with my current life, I was not too open to becoming a member of any group. I thought no one would be able to relate to me, no way. MY situation was different; I was different. Little did I know Brainstorming would later become a safe haven for me. I love my lady-founders, and couldn't imagine my life without them!
BrainStorming4Us has been an amazing life support for me and my family. On March 22, 2008,I was reborn (T.B.I. survivors refer to their injury date as a rebirth). Due to life basically starting all over again. I was asleep, when my husband heard sounds, and thought I was having a bad dream. When he turned on the lights, he realized I was having a seizure, and had bit my tongue. I also suffered a brain anuerysm, and stroke, before the ambulance arrived at my residence. After being hospitalized, my husband was told, I probably would not survive, due to my critical medical condition. This did not stop "God" from doing what he does best......Granting miracles, when all hope looks blick. From what I'm told there were numerous blick moments. Hospice was called in at one point, but I weathered the storm through God's grace. There was a point in time, when my husband was signing paperwork to have me air lifted to Loma Linda Hospital to have a stint placed in my head to survive. This was when the miracle of "God", and medicine prevailed. My left brain critical bleeding ceased. the doctors stated they have never seen or heard of this process ever occurring. At that point, I no longer needed surgery on my brain to save my life. My husband was told, I would more than likely be in a vegetative state, and or need around the clock care for the rest of my life. I'm here today after learning how to walk, talk,reading, after a second stroke due to receiving vicodin,even though the hospital was advised of my allergic reaction to this medicine. My mouth and rt hand were twisted. Lft side parcial paralysis. Short and long term memory loss, which I haven't overcome. I thank BrainStorming4Us for supporting me, and my family. We love you Lisa Moss.You made a huge impact on our lives.
My husband was in a horse riding accident 12 years ago. We found out about Brainstorming4us a few years ago, and decided to attend a meeting. We have participated in the annual "brain injury awareness walks" and attend most every meeting. Just knowing there are others who share similar experiences has been very helpful to us.
My 18-year old grandson, Chris, was in a car accident almost three years ago. He suffered a traumatic brain injury. When his family brought him home, he was completly dependent on them for all of his care. No one in family really knew what to do to best help him. My daughter contacted Brainstorming 4 Us, Inc, and they helped Chris and all of our family through all the most difficult times by providing volunteers to help, information so that we would know what to expect and how to respond, and continued support as Chris has improved. They also provide an extreemly valuable support network for the injured person and all of family, including people to talk with that have personal experience with brain injuries and supporting people with those injuries. I know from personal experience that Brainstorming 4 Us is an efficient and valuable organization and that they serve a unique service that is not available through any other oranization in Southern California.
My husband was injured with a traumatic brain injury in a motorcycle accident in August 2005. Our family found no resources or educational information for families when you are sitting in the ICU/CCU units of a trauma hospital. It became our mission to help our family and other families understand what happens to the survivor of a brain injury and their families. Brainstorming 4 Us is a non-profit that places our Brain Injury Resource Bags into trauma hospitals in California and beyond. Our bags are filled with 24- hour grooming items, journal, pen, book on Traumatic Brain Injury injuries, rehabilitation, medical team and a glossary of medical terms. We now offer monthly support groups, online support, outings, meals delivered to families and our annual " Walk/4 Thought" to bring awareness and education to the public. We also speak with law enforcement and schools to educate on behaviors associated with a brain injury.
Brainstorming was a true God send for us when our son suffered a serious TBI. We had just moved to the area and were completely lost and devestated in the world of TBI. Brainstorming was like a lighthouse, leading us to hope and understanding. They anwer questions, offer serious support, brought us prepared meals, and they give us a place to belong.
I participated in the annual walk for thought and was able to personally see the help and hope this amazing organization has given to people suffering from TBI, and also their family members. Without this group the High Desert would have MANY people with TBI or with a loved on with TBI without a place to turn to. This group has helped give resources, help and hope to those who without it would feel lost and confused, and maybe even give up all hope. But with this group people who have suffered from TBI either recently or over a period of years now have their hopes restored.
Having a brain injury myself and having run atbi support group at a non-profit org for 10 years, I know the great service that is provided it's participants; this is particularily true for brain injury survivors and their caregivers as they are part of a very low served disability population. Brainstorming4us provides an excellent service by providing very helpful educational materials,a monthly support group,an excellent web sight,positive public awareness, and devoted friendships. Wish I could do more personally, but that is why I am writing and thanking you.
I have worked in the field of brain injury rehab for about 20 years. I am very aware of the struggle that families face following the diagnosis of one of their members with brain injury - it can be a devistating and life changing diagnosis. I met the founders of Brainstorming 4 Us a number of years ago and since that time I have come to admire and respect the tireless efforts of the founders and their volunteers towards making the lives better for family and patient following this diagnosis. They have raised awareness, raised money,developed a wonderful support group and have developed notebooks full of valuable information that they provide to hospitals for families. There is such a great need for services particularly for those without adequate insurance and Brainstorming 4 Us helps when families don't know where to turn. The founders have personal knowledge of the devistation of brain injury and through their committment to those also walking that pathway they have made a big difference in many lives. They certainly have touched my life and continue to have my complete admiration for what they do and what they have accomplished. I hope they continue to find support for their efforts.
Well, the story of my accdient, which occured when I was just 17 years, 4 months and 4 days old took place on Monday, July 19th, 2004. I was returning home from work, working in a local law firm, the summer before my senior year in high school. I actually missed the entire first semester of my senior year, but was still able to graduate on time with the rest of my class mainly because I had basically graduated by 11th grade. I was on my way to accomplishing everything I wanted, and was headed down the path I wished to be walking down. Then, things took a dramatic turn for the worse when I was T-boned on the driver-side door of my 2002 KIA Rio by a Ford F-150 when I was just a few miles from my house. I was sent spiraling directly into a coma upon impact, staying in this helpless state for approximately 2 1/2 months, and sustained a severe Traumatic Brain Injury (TBI) with shearing and a ventricular bleed. My brain began to swell and bleed and a shunt had to inserted in order to relieve the pressure that was building up. I was lucky, if you can find any "luck" in this horrible incident because an ambulance was in-route to somewhere and the paramedics were able to give me life-saving treatment with the "One Golden Hour Rule" that is applied to all severe injuries. I was also cursed with HO (Heterotopic Ossification) in my left knee and theigh, and still suffer from memory loss, poor balance, and a plethora of other disabilities. However, I have not let that take over my life. I am a fighter and have always done what needs to be done in order for me to succeed. It may take me twice as long, if not longer, to accomplish what I would have done in months in the past, however, I hope that I will be able to accomplish all my goals in the future.
Our son Anthony, had a tramatic brain injury from a motocross accident. He was in a coma when brought in from the track and was unresponsive for over 1 month. We got this briefcase from the hospital that came from Brainstorming4us with alot of info regarding brain injuries. It took me a little while to absorb the info, I was in such shock. I was like the info was written for us, easy to read and understand. My husband and I knew nothing about brain injuries. We were hoping he would just wake up. This information helped us more than the doctors ever could. We had a hard time understanding them. Our son spent 6 months in the hospital and more than a year in rehab. I am happy to announce he just graduated from high school a little less than two years after his accident. We thank Brainstorming 4 us so much!!
When a loved one suffers a traumatic brain injury life as it was once known is instantly changed. At first there is only extreme fear and confusion, it is as though you cannot take in all the information at once, you have entered a stage of your life so filled with grief and fear that you can barely function. Brainstorming4Us was filled with people who understood and more importantly were ready and able to help with compassion and knowledge. There were so many members who reached out with love and real life answers to all of the questions we had regarding medications, therapies etc.. My family entered the world of TBI when my 17 year old son was horribly injured in a car accident and suffered his severe brain injury. The support group Brainstorming4Us has been a blessing to my family and especially to my son. Cathy Santos
My son was in a serious motorcycle accident in August of 2007. He suffered a traumatic brain injury as well as fracturing his C4 and C5 vertebrae. The experience was overwhelming! The gift of the essential items included in the Survival Bags brought more than just a little comfort in a horrific setting, it also made me realize that I was not alone and that there were others that knew exactly what I was dealing with. That knowledge gave me the strength to seek out those that supplied the Survival Bags and ultimately led me to the support group meetings that I attend regularly at Loma Linda University Medical Center. Although my son was admitted to Loma Linda Hospital I had not been informed about the support group. Once my son was home I realized that my entire family needed help with coping with my son's recovery from his TBI. The Survival Bag I received provided me with not only some initial comfort in the hospital, but also a link to a lifetime of assistance. I want to extend my deepest gratitude to the founders of this wonderful organization. Their efforts provide a ray of sunshine into the lives of those in their darkest hours!
Loma Linda Hospital In August 2005 Arthur Moss husband of Lisa Moss received a Severe Traumatic Brain Injury while riding his motorcycle with a group of friends in Hanksville, Utah. Arthur was flown to the University of Utah Trauma Hospital where Author laid in a deep coma. When Lisa arrived she was given the medical update, assigned a social worker and informed he was in a coma. Feeling helpless she began researching information on the internet with her sister-in-law, Tayna Ison to learn the complications, medications, and long term effects of a traumatic brain injury. Lisa and Tonya soon realized there was little information readily available for families when they were thrown into the unknown world of Traumatic Brain Injury. Within a year Brainstorming 4 Us was born a non-profit agency that provides education, support and brain injury resource bags to Trauma Centers throughout Southern California. Brainstorming 4 Us brain injury resource bags are offered to families at no charge to answer questions pertaining to different types of brain injuries, glossary of terms to help the families understand the medical terms that are being delivered to them during a crisis, diagrams of medical machines, toiletries for the first 24 hours, pad of paper and a pen to write notes or changes in the patient’s recovery. Loma Linda University Medical Center and Children’s Hospital, (LLUMC & CH), began distributing the brain injury bags in 2006 and has placed over 150 bags in the hands of families dealing with a Traumatic Brain Injury. The brain injury resource bags have been an asset for families, friends, patients, nurses and physicians. Allowing the families the opportunity to understand the injury and terminology has made the staff’s job at LLUMC & CH a little easier. One of the Brainstorming bags was taken by a physician of LLUMC to another state when one of his family members received a traumatic brain injury. A testimonial to the impact and power the bags deliver. The vision of Brainstorming 4 Us has proven time and again to be a gift of love hope, support and inspiration. Sincerely, Michael May Adult Trauma Nurse Coordinator Loma Linda University Medical Center and Children’s Hospital
The husband of a dear friend suffered a traumatic brain injury as the result of a motorcycle accident. After years of struggle my dear friend was introduced to Brainstorming4Us. They provided vital information and, more importantly, support for the caregiver. After seeing my friends hopelessness turn to hope, and then to strength, and then to help for others, I was moved to become a supporter and a donor.
Brainstorming4us is an amazing non profit organization that helps families deal with TBI. Not only is it helping survivors deal with day to day struggles there also providing continuous support to the care givers and family members. once again brainstorming4us is an awsome organization and I reccoment them to anyone who needs support.
I'm a TBI survivor for going on 14 years this September, & last fall I was having a VERY hard time going on with life & kept having suicidal thoughts that I just couldn't shake off. I've heard of Brainstorming 4 Us, Inc. through my other group PossAbilities but didn't have the time to go. Well this group Brainstorming 4 Us, Inc. helped me with coping & support to keep going I make time to go to their meetings(1st Saturday of every month normally) & help others with my infamous BIG HUGS :D