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Phone: 5162327015
114 N Elm Street
New York 11758

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Geographic areas served: Worldwide

Craniosynostosis and Positional Plagiocephaly Support, Inc. is an international nonprofit organization established in 1999 and headquartered in Massapequa, NY.  We are dedicated to helping families find support and information to help deal with craniosynostosis and positional plagiocephaly.

Our goals include raising awareness with the general public, doctors, health care organizations, parent’s and loved ones.

Offering support and information to all the families to all the families out there dealing with these two conditions so they can have as much information to help them with their many options.

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When my child got diagnosed with Craniosynostosis, we were terrified. Craniosynostosis and Positional Plagiocephely Support (CAPPS) had a great website and facebook page with tons of guidance and support. It really made things easier on our family going through surgery... more »
My daughter was diagnosed with Craniosynostosis at birth. Having never heard of it before a lot of researching was required. I found CAPPS and was immediately welcomed and made to feel like my questions/concerns were valid and normal. The support, love and knowledge of all the women and families I ... more »
Review from Guidestar
There for me every step of the way. I never heard of Craniosynotosis until my baby was born with it and these people had all the information that I was looking for. I couldn't have made it through surgery without the support from people that knew what I was going up against. They perpared me and ... more »
Review from Guidestar
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