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kaci

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1 reviews

Review for CRANIOSYNOSTOSIS & POSITIONAL PLAGIOCEPHALY SUPPORT INC., Massapequa, NY, USA

Rating: 5 stars  

Prior to my son being diagnosed I googled every term I could think of. CAPPS was the first thing to show up in a search. It was my lifeline and armed me with the information I needed to appropriately advocate for him when so many doctors didn't know what was wrong or how to help. In raising awareness, families will not have to search so fiercly like we had to in order to find help. Every OB/GYN, every pediatrician and most definitely every pediatric neurosurgeon needs to fully understand this condition and the affects. And CAPPS is on a wonderful mission to raise awareness and support families going through it. Amy Galm is amazing and puts cranio families needs ahead of her own.

If this organization had 10 million bucks, it could...

spread awareness on a much, much larger scale...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  Volunteer & support Amy and families.