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clare2

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CRANIOSYNOSTOSIS & POSITIONAL PLAGIOCEPHALY SUPPORT INC.
May 4, 2010

As someone from the uk, I only wish I had found CAPPS sooner. My son had an operation for Metopic Cranio back in March 2004. I had never heard of such a condition and was really scared. Although this was 6 years ago, I still feel very strongly about the lack of support that some people receive and that fact that there are delays in children being diagnosed. In my case, my son wasn't diagnosed until he was 18 months and was operated on at 2 years old. Thanks to CAPPS, questions can be answered and families can share their stories and support each other. A truly wonderfull organisation.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback

If this organization had 10 million bucks, it could...

raise greater awarness sooner so that Doctors make checking for Cranio compulsary.

Ways to make it better...

i had heard about it sooner

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

MY ROLE:
General Member of the Public & share my experiences with other parents.

Review from Guidestar