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Cheryl S.

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2 reviews

Review for CDH International, Wake Forest, NC, USA

Rating: 5 stars  

My son was born 13 years ago with CDH! We found out two days before he was born and they sent us to UNC immediately where we were told he most likely would never take his first breath! Well he did take his first breath and spent 4 months in the NICU as well as a year at home on oxygen. During this time we scoured the internet for information and found Cherubs! Dawn was amazing and it was like she was holding our hand every step of this journey we have been on. Even at 13 almost 14 it has been a long and arduous journey. Sometimes Brandon still gets very sick but he has defied many of the odds. He plays saxophone in the band and is a happy relatively healthy normal kid! It would have been extremely hard to do this on our own, but having an organization like Cherubs that understands and helps you to navigate the whole process has been a godsend! For that Dawn and Cherubs will always have a special place in my family’s heart!,,,

Role:  Client Served

Review for CDH International, Wake Forest, NC, USA

Rating: 5 stars  

My son was born December 17, 2004. We found out two days before his birth that he had a condition known as a Congenital Diaphragmatic Hernia or (CDH). He was only given a fifty percent chance of survival, and that was only in the event thathe was able to take his first breath after birth. We were fortunate to be transferred to UNC Childrens Hospital and the staff tried to assist us with our son and this condition.

Once Brandon was born, we scoured the internet for any information that we could find. The only information out there at that time were case studies and this site that we found called Cherubs. They gave us vital information and was the only venue we could find that gave us a glimmer of hope. Since Brandons birth they have reached out to us and many families who have be devestated by this horrible birth defect.

I cannot say enough good things about all the great work that Dawn and all the volunteers do for these babies and families. They have devoted their life to ANYONE world wide who has a child, or family member born with this. Not only do they offer hope and emotional support to those families, but they reach out to those who have lost a child to this condition. They fight to to give these babies a voice, and they are driven to find a cause so that no other baby might be born with this.

I cannot speak strongly enough about how my family feels about Dawn and CHERUBS. Thank you just doesn't say enough for all that they did and do for so many families including ours.

I've personally experienced the results of this organization in...

I have personally experienced the results of this organization after the birth of our son Brandon. They provided us with a wealth of much needed information on CDH, and they also have given my family the gift of friendship and emotional support through many of their vast support services.

If I had to make changes to this organization, I would...

There are no changes I would make to this organization. The only thing we could hope for is that the good things they have done would grow to even larger level. So much research needs to be done so that no baby in the future might have to experiece this. This is one of the many aspects that this organization tackles on a daily basis. Most people such as myself do not even know what a Congential Diaphragmatic Hernia is until it happens to someone they know or to their baby.

Role:  Volunteer & I received support and I now volunteer as the CO-NC State Rep for Living CHERUBS.