2023 Top-Rated Nonprofit

CDH International

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases Research, Health, Pediatrics Research

Mission: For a quarter of a century, CDH International (formerly known as CHERUBS) has fought Congenital Diaphragmatic Hernia. Our only mission at CDH International is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions, one patient, one hospital or one country. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 6300 CDH families.

Community Stories

294 Stories from Volunteers, Donors & Supporters

dhamilton31 Donor

Rating: 5

10/20/2023

Very thankful for Dawn and the charity CDH International. After losing our beautiful daughter Juniper in 2020 we felt alone in our loss. Very thankful that there is so much effort and work being put into this disease and preventing further loss

Jessicajordan1974 Donor

Rating: 5

10/11/2023

It has been over 16 years since I lost my baby girl to CDH. The greatest thing is this organization is pushing forward. I raise awareness to total strangers and hope that they will remember who and what CDH is. I will always be grateful for everything that CDH did for me.

krispy15 Client Served

Rating: 5

10/11/2023

This charity was my first contact after learning my daughter had CDH. This charity is the backbone for support for families both caring for a survivor and those grieving the loss of a child.

CMEW062 Client Served

Rating: 5

10/11/2023

CDH INTERNATIONAL is more than a charity ...everyone is family...its how my family feels when my granddaughter was born 14 years ago and given only a 10% chance at life according to doctors at the time we never heard of CDH ..that's when I found our new "famil" of support and hope all iver the world..there are members all o er the world so you are never alone when you need someone to talk to someone is always available..and once you're part of the family you are always part of the family..just recently in the past year my granddaughter had a blockage due to scar tissue from. Her original surgery and as soon as I reached out my cdh family were there !

Gail H. General Member of the Public

Rating: 5

10/11/2023

My son is a survivor of CDH. He will turn 40 in a few days. Back when he was born, we had never heard about CDH until the day he was born. We got very little information and were terrified new parents. Since being a part of CHERUBS, we have learned so much about this condition. I cannot thank Dawn enough for all of her hard work and dedication. This wonderful group has given parents like myself who were basically clueless, information, support, resources and a place to share with others who had never even heard of CDH. It has been a blessing to parents, siblings and extended family as they navigate their way through their own personal journey with CDH.

Previous Stories
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General Member of the Public

Rating: 5

03/04/2017

I am the Mother of a CDH survivor who will be 34 this year. I have been fortunate enough to know CHERUBS through Face Book. I have met some amazing people, shared stories, tears, support and prayers with those who have been touched by CDH. I wish CHERUBS would have been in existence when my son was born. We were given very little information about CDH back in 1983, and as a new Mom, I felt very alone. Dawn Williamson has been a God send to each and every member of this group. She, with the help of her volunteers works tirelessly to aid families touched by CDH, provide a safe place to share worries, give families the information needed as they travel this journey and allow people to access information and awareness where CDH is concerned. I feel blessed and honored to be a part of this wonderful CDH family.

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jenniferm525 Professional with expertise in this field

Rating: 5

10/11/2023

CDH international is a wonderful charity run by the most dedicated people. My 13yo has been involved since birth. Dawn and everyone have been a wealth of knowledge tirelessly advocating to advance the treatment of CDH. As a pediatric medical provider, I am so thankful for all they do participating in research, providing families with up to date treatment. Truly the best charity.

achunt912 General Member of the Public

Rating: 5

10/11/2023

I have been a member since before it hit international. I have done interviews, events and hospital angel. My son has a rcdh and 4x repair. Keith is a miracle. Dawn and cdh international are amazing!

madisonbailey Client Served

Rating: 5

10/11/2023

An amazing nonprofit that helped my family the most when we needed it. From the diagnosis, to now, even after my daughter’s passing we’ve had nothing but support. She is still recognized and they help keep her memory alive. The entire organization for me is a reminder to just keep fighting.

shelbykayg Client Served

Rating: 5

10/11/2023

CDH International was the first charity to reach out to us when we got our daughters diagnosis. They supported us the entire way from pregnancy, and even now she is almost 3 years old. I don’t know where my family would be without their support, information and resources! Thank you, CDHi!!

ainsleighsmom Client Served

Rating: 5

07/23/2023

When it felt like nothing could go right for my pregnancy, this organization helped me stay sane & provided an abundance of information that couldn’t be found elsewhere. My Ainsleigh was diagnosed at our 20 week ultrasound; in the chaos that followed, I was referred to a mfm in NC for further diagnosis and prognosis. It wasn’t good news. Left side CDH with about a 5% chance of survival. I was offered termination 4 times her situation was so dire in utero, per the dr. But CDH international gave logical answers to questions not just percentage guesses. They gave hope instead of extreme choices. I was thankful for calming voices during that time, as our medical team was not very optimistic. For a baby that was only supposed to live 5 minutes after birth, she made it 36 days before medical incompetence cost us her life. CDH international never stopped being there for us, even now 8 years of being an angel mommy. Their group of warrior parents stand fast by all who come to their front. My gratitude can never be enough to this group of caring, helpful, hopeful, inspiring individuals.

gpegasiou1 Client Served

Rating: 5

07/19/2023

My son leonidas had severe left sided cdh . The hospital wasn’t very informative initially when he was diagnosed at 20 and that’s where we found cdh international.

Without them we wouldn’t have learnt knowledge to help on our journey. Hearing people’s stories and talking to people with knowledge and information really helped us .

Thank you cdh international for everything

1

Shereen K. Client Served

Rating: 5

07/19/2023

As a CDH survivor family, we have a tremendous amount of gratitude for the chance at life with our girl. CDH International has helped us to feel like we are of some use in the fight against CDH. Maybe one day, no child will have to suffer with the effects of this birth defect. If that's ever the case, it will be largely due to the charity's efforts all these years.

Previous Stories

Client Served

Rating: 5

03/04/2017

My CDH survivor Micaela is 19 years old now. We didn't find Cherubs until about 5 years ago. Back then, we weren't given the information from the hospital about it. I felt alone in the CDH journey. It would have made all the difference in the world to have the support we receive now from Cherubs back then as a young family. We will forever be dedicated to lending a hand in any way we can to help the new families beginning their journeys with the CDH monster.

dawnbackler General Member of the Public

Rating: 5

07/19/2023

Below is our journey with CDH if you'd like to share it.

At 23 weeks I found out my daughter had CDH. We were told she had a 27% chance of survival and that we should put ourselves forward for the FETO trial. After some research and speaking to the Surgeons at the hospital where our daughter would have her repair we declined FETO and prayed we had done the right thing.

I had scans every 2 weeks from there on. At each scan her Lung to Head ratio improved and it more than doubled from initial diagnosis to 65% 1 week before she was born.

Livia was born via C-Section after a failed induction and was immediately whisked away and intubated and given everything she needed. I met her for the first time 4 hours later. She was on the oscillator ventilator when I first saw her and nothing could have prepared us for that. Each day she got stronger but there were MANY ups and downs. On day 12 she had her surgery at GOSH and she just made it all look so effortless.

She was finally discharged on day 51 but was having terrible reflux and bringing up most feeds so we were asked to return in 3 days for a weight check. We got settled at home and we were just finding our feet as new parents when it was time for the weight check. When they removed her clothes they noticed she was tugging at the ribs a bit so did a precautionary xray and they found she had reherniated, her patch had failed. 3 days she was at home, it was like a cruel joke.

So the surgeon recommended while he was doing the repair that they also carry out a nissens fundoplication as her reflux wouldn't have got any better she was already on max dose of the meds. So the surgery was done and we were home again about 10 days later.

Livia thrived after that, the nissen fundoplication really helped so much. She was at the top of growth charts because she couldn't physically vomit anymore.

At 18 months old Livia was having a barium swallow study to see if she still had silent reflux despite the nissen. During this they told us she had reherniated yet again. We just couldn't believe it, mainly because she had zero symptoms and was as lively as any child that age. Her surgeon decided that we should wait to do the repair this time as she wasn't suffering at all. I remember thinking she is a ticking time bomb and this could go so badly, but it didn't. She continued to thrive. So over a year later when she was 2 and a half she had her third repair. This time a latissmus dorsi flap repair which uses the latissmus dorsi muscle from her back. This was because the patch kept failing.

We are now almost 4 years post surgery, she has only had 2 xrays since and they were all okay. Hoping for another soon because when we didn't know twice before that she had reherniated I find it very difficult to accept everything is okay just because she seems okay.

Livia still has a gastrostomy button, we have never needed it for feeds - just for venting her air as she cannot burp at all since the nissen.

She is starting year 2 this september and we are so proud of her. She is a smart, funny and kind little girl and you would never know to look at her all she has been through. I cry at every achievement no matter how small or "normal" they seem to most people because Id have given anything 6 years ago to know she would just be okay.

I have attached photos of Livia.

Photo 1 was just hours after she was born
Photo 2 was post op when she reherniated at 7 weeks
Photo 3 was post op when she had the latissmus dorsi flap repair
Photo 4 is now in 2023

AmandaP Volunteer

Rating: 5

10/02/2022

CDH International has helped us through our hardest days in PICU. There was always someone to lean and listen when I needed them.
Volunteering at CDH International has helped us make a lot of new friendships and meet so many CDH families, at Charity events. I am very thankful to have found CDH International and for all the amazing volunteers they have.

Previous Stories
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Volunteer

Rating: 5

07/10/2018

Thanks to Cherubs my daughter has met other CDH children and we have made many new friends. Cherubs has helped us find families with similar experiences for support. Most importantly Cherubs has given me hope that my daughter will always have a place to turn as she navigates CDH as an adult.

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sdeweber Volunteer

Rating: 5

10/02/2022

My son was born with RCDH and we were fortunate to live close by an excellent Hospital experienced with his diagnosis. Then we moved and it was like falling into that hole of uncertainty leaving our familiar team of doctors behind. It was then when I started getting more involved with CDHi. We can come with all questions and discuss it with other parents. Having others in similar situations gave us pointers on what to check/ keep an eye on, when doctors were out of their comfort zone.

As a scientist myself I also highly value the impact CDHi has on CDH research. The patient registry is so thorough, I’m certain once enough patients participate, there will be answers.

CDHmommy22 Client Served

Rating: 5

09/28/2022

It has been amazing to watch this charity grow from Cherubs via e-mail to CDH International and publishing research. Dawn has done a tremendous job leading the charity. I am forever grateful to her, Tracy and all the friends we have made at this charity over the years. I can't imagine going through CDH with our daughter without this group by our side.

Mikes-Mom Client Served

Rating: 5

09/26/2022

My son was a teenager before we found this charity. I think it is wonderful that families have such a great resource now.

Junipers_Mommy Volunteer

Rating: 5

09/23/2022

My first experience with CDH International was after our Daughter, Juniper died from complications of an undiagnosed, left-sided Congenital Diaphragmatic Hernia. She was only 5 months old and we didn't know what CDH was.

CDH International helped me understand what CDH even was, and has given me a place for some of the grief. I learned how rare it is for CDH to go undiagnosed, but also learned we were not alone. It's sad to know other families know this grief, but also comforting to know we are not alone. CDH International makes connections like this possible.

CDH International remembers Juniper on special days. They say her name, share her photo and help being awareness. I'm so very grateful for this.

I started Volunteering for CDH International because I noticed how much they care, how much they help the families, and I noticed how important their role is in research and awareness.

My Daughter went undiagnosed until her autopsy so research and awareness are very important to me. It's important so we can help other families who endure a Congenital Diaphragmatic Hernia. These big-little warriors and their families deserve a chance, they deserve hope and survival.

CDH International is vital to the future of Congenital Diaphragmatic Hernias.

I'm incredibly grateful I found CDH International. I support their mission and their global fight against Congenital Diaphragmatic Hernia.

Thank you CDH International, for all you do!

tlmeats04 Board Member

Rating: 5

09/13/2022

I discovered CDH International back in 2007 when the charity was called CHERUBS. This was several years after my son was born with an undiagnosed CDH. I finally had found the support I needed, a place to come and ask questions and to celebrate my son's milestones. In 2009, I took on a volunteer role on their card committee and helping with prayer requests, from there my volunteer roles expanded and eventually turned into a job for me. A job I wholeheartedly love and have passion for. I am currently the Support Department President, and it is my goal to provide support to all families affected by CDH. To not walk this journey alone is very important to me. At CDHi, we make sure no family has to walk this journey alone. I am a personal witness that we have helped 1000's of families walk this journey with CDH.

CDH International focuses diligently on continuing the push for CDH research by running the CDH Patient Registry, eventually accrediting hospitals and charities, publishing studies, lobbying for NIH funding for research, and funding research grants. By working with NIH, the WHO and other research entities, we are on the front line of research while still personally supporting patient families. We work with hospitals, surgeons, researchers, and other charities on a global initiative to stop Congenital Diaphragmatic Hernia. Together we can make a difference! I am honored to work for CDH International to provide a better future for all babies born with Congenital Diaphragmatic Hernia.

shel.jck Volunteer

Rating: 5

09/13/2022

This is a great non-profit with a wonderful vision.

darsl Volunteer

Rating: 5

09/12/2022

CDH International was founded by CEO Dawn Ireland in 1995. Although Dawn's only child, Shane Torrence, at 6 years old sadly passed away in 1999 from complications of CDH, she forged ahead and continued the charity. She was determined to provide much needed information and support to families who were affected by CDH. In addition, CDHi raises funds to contribute to research. CDHi has expanded immensely and presently has branches in numerous countries. I first became aware of CDHi when my grandaughter was born with LCDH 24 years ago. I would be amiss not to mention Tracy Meats, President. Her dedication and hard work has also been instrumental in CDHi's long tenure. I would highly recommend CDHi.

Previous Stories

Volunteer

Rating: 5

09/01/2020

CDHi has been helping families for over 25 years. They are the first and oldest organization solely devoted to CDH. CDHi not only supports families but they also fundraise monies for research. They serve 1,000's of members. They do this on a very low budget. They run CDHi on a fraction of what other rare disease/syndome associations receive from governmental agencies. They have only a few paid employees (can count on one hand) and the remainder are strictly volunteers. Dawn Ireland and Tracy Meats have done a great job of leading CDHi. They are both very dedicated to keeping CDHi going and have been for 25 years. They never give up on discovering ways and implementing them to help CDH families. They are tireless advocates whose hard work truly shows their determination to find the cause of CDH and how to prevent it while supporting families and giving them hope.

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Claymont Volunteer

Rating: 5

09/12/2022

This charity has only and will continue to put the children first, I love volunteering/working here.

shelbygallegos Client Served

Rating: 5

09/01/2022

CDH international is an amazing charity who gave us light in the darkest moments of our journey. You’re not just a number, but are cared for like family!

mommaof3151921 General Member of the Public

Rating: 5

05/29/2021

This charity has been nothing but AMAZING! I lost my son 6 years ago and while we were in the hospital they kept track of us always asking for prayers for my boy and I would see the post from them and I never knew there were so many people going through what we were. It’s always good to have a support system that understands everything you are going through. This charity is by far the best non profit out there. And I hope they can strive to become better known so that no family has to lay their child to rest. Thank you CDH for EVERYTHING and helping me understand more about my sons condition! And thank you for helping me make his memory love on forever ❤️❤️

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mcarroll20653 Donor

Rating: 5

05/25/2021

CDH International is a great organization. When you reach out to them you become a part of the family. No parent or child is alone with CDHI behind them.

1

Becca Henson S. Volunteer

Rating: 5

05/25/2021

Words cannot express how much I love CDH International. Instead of receiving precious 3-D images of our daughter we received the terrifying news that she had CDH. Having this charity to turn to during the one of the hardest moments of my life made a terrifying situation a little more bearable. Knowing that I wasn’t alone gave me hope for a future for my daughter. I am forever grateful for CDH International for all of the love, support and hope through a very, very dark time.

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Zach G.1 Client Served

Rating: 5

05/25/2021

CDHi has been incredible since the day we found out about our daughter's condition. They have countless resources for parents to learn about CDH, a large community support system to help struggling parents, and amazing appearal and accessories to help raise awareness.

At the top of all of this, they spend the majority of their time and money assisting with the research to help end CDH. While doing all of that, the leaders of CDHi spend whatever free time they actually have left, following the unfortunately high number of CDH babies and their families and reach out to the parents and share their stories.

I could go on and on about this wonderful organization but I will end with this. You can not and will not find a better charitable organization than CDHi!

1

shaydz01 Donor

Rating: 5

05/25/2021

I have never seen a more dedicated group that does everything from helping a family throughout their experience to educating doctors in foreign lands that otherwise would never have access to medical info that others have discovered. There is no more caring organization !!!

2

Judye N. Donor

Rating: 5

05/25/2021

I have been part of the CDH Community since May 2002 when my son was diagnosed in utero with Congenital Diaphragmatic Hernia. He only lived for 6 hours when he was born in September 2002. They were there for me during my pregnancy, after I lost my son, and still to this day, my son is remembered! As a grieving parent, having someone and many someones remember your lost child is comforting. I will never be alone in my grief.

3

Shelby Kay G. Client Served

Rating: 5

05/25/2021

One of the first places we found real hope when we found out our daughter had a left cdh at her 20 week scan. Amazing people doing amazing things for cherubs and their families!

2

Denise Cox F. General Member of the Public

Rating: 5

05/25/2021

Thank you CDHi for being such a wonderful, outstanding organization that has loved, supported, educated and continue to share news with all families that have been touched by CDH. Back in 2016 when we first heard our Granddaughter had a LCDH at her 20 week anatomy ultrasound...I went searching and found then Cherbs, which is now CDHi. It gave us HOPE in a very scary time! We are blessed to have a thriving 5 year old CDH Warrior that is a true living miracle!

2

Heidi F. Volunteer

Rating: 5

05/25/2021

Having a child with a birth defect plus many complications means that I have had experience with several different non profits over the years. There are NONE in my opinion that ever met the standards set by CDH International. Not only are the staff and volunteers at CDH I caring, compassionate, and knowledgeable, but the services provided, the awareness, research, and so much more are stellar. For a charity with such a small budget, they go above and beyond to help, making sure to use a minimal amount on overhead so as much money raised as possible goes where it really matters. From an app for families, doctors and hospitals, to volunteers all over the world, speakers and representation at numerous conferences, an annual telethon and when possible a CDH conference, supporting research, so much is done with nothing more than families and children at the heart. I wish I could give CDH International more than 5 stars, because they have surely earned it.

Previous Stories

Volunteer

Rating: 5

09/01/2020

I have never seen a non profit work harder to meet the needs of families and children, while also reaching out to medical professionals and researchers. When choosing where to spend our donations CDH International is one of the standards we use to decide where to send our hard earned funds, because they are one of the few that are able to do an amazing amount of work with the money donated actually going to the families and research rather than to office expenses and further fund raising accounts. Families helping families... for the babies. I am a volunteer for CDH International, as I don’t want other parents to ever feel like they don’t have someone they can talk to when they have a child born with such a complicated birth defect. That is one of the reasons many of us volunteer. Since 50% of our babies don’t even live much past birth, we want to do our part to help.

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2

Heidi30 Client Served

Rating: 5

05/25/2021

By far, the most knowledgeable group, interested purely in the children’s health and the families of those children. Reaching out to, literally thousands of parents- prenatal, survivors and angels, giving information and guidance so the parent can make informed decisions.

Previous Stories
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Client Served

Rating: 5

03/06/2017

Tanina was born during an ice storm in 1995. With 22 years now behind us, there are still so many questions to be asked and answered about CDH. CHERUBS was the first to help parents, those children and their doctors find answers. Giving support to both grieving and survivor parents, holding conferences at low costs and just being there when no one else could be.....thank you for your honest, warm approach, your never ending work, your kindness, your friendship. You amaze me and I am forever grateful.

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2

Laura M.19 Client Served

Rating: 5

03/19/2021

Cant say enough about CDH International or Dawn. From my baby’s diagnosis onward, I felt like I had a trusted community behind me every step of the way.

Shannon Burkoth General Member of the Public

Rating: 5

09/02/2020

Such an amazing organization! CDH is all about the babies and families, dedicated to making progress and save lives. The research and programs are patient centric, led by stellar volunteers and advocates. The passion is real!

Catherine G.5 General Member of the Public

Rating: 5

09/01/2020

Dawn Ireland is a very dedicated advocate for CDH. Her selflessness and drive to create awareness for this childhood disease knows no time limit or distance. The many families that she has helped along the way it’s priceless.

Cheryl S. Client Served

Rating: 5

09/01/2020

CDH has been there for us since 2004 when my son Brandon was born with a congenital diaphragmatic hernia. We found out about his condition two days prior to his birth. Cherubs (CDH International) was the only resource we could find that explained to us his condition and what to expect (good or bad) moving forward. Fifteen years later we still are so grateful for all the support and Information they continue to provide to so many families.

Previous Stories
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Client Served

Rating: 5

10/29/2018

My son was born 13 years ago with CDH! We found out two days before he was born and they sent us to UNC immediately where we were told he most likely would never take his first breath! Well he did take his first breath and spent 4 months in the NICU as well as a year at home on oxygen. During this time we scoured the internet for information and found Cherubs! Dawn was amazing and it was like she was holding our hand every step of this journey we have been on. Even at 13 almost 14 it has been a long and arduous journey. Sometimes Brandon still gets very sick but he has defied many of the odds. He plays saxophone in the band and is a happy relatively healthy normal kid! It would have been extremely hard to do this on our own, but having an organization like Cherubs that understands and helps you to navigate the whole process has been a godsend! For that Dawn and Cherubs will always have a special place in my family’s heart!,,,

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SarahDream07 General Member of the Public

Rating: 5

09/01/2020

CDHI has been there for my family since the day of my son's diagnosis. They are always reaching out and offering guidance and support. I absolutely love that they constantly share prayer requests and keep the public up to date on the current struggling families.

mjcarroll531 Client Served

Rating: 5

09/01/2020

Very tight knit group. Founder still runs the charity and is very easy to reach. Not much is known about CDH, but we are learning more with every effort this charity makes to further our understanding of this condition. Truly a grassroots charity that continues growing 25 years after its founding.

As an adult with CDH, I have benefited from this charity by meeting others with the condition, having opportunities to participate in research that aims to further our understanding of CDH, and using my experiences to help others going through similar experiences.

If you are looking for a charity to support, this should be on your list. Your contributions will not go to waste. Maybe you will save a life!

Tricia M. Client Served

Rating: 5

09/01/2020

CDHi is hands down the most efficiently run non-profit in existence. Everything done, every decision made, every dollar spent is with the babies and families in mind.

shannonstribe Client Served

Rating: 5

09/01/2020

This organization is there when you get news you never knew existed. Parents like me need this kind of support.

Katie R.8 Client Served

Rating: 5

09/01/2020

They were there to help support our family through the diagnosis and treatment of our youngest son. With out their support we would have been very lost!

Morgancdhph23 General Member of the Public

Rating: 5

08/01/2020

Was born with severe left CDH back in July 1993, never was told by parents about my birth defect, I was aware of my 2 scars at a young age think ecmo one little more on neck, then few more issues had that are common for cdh kiddos. Final cdh repair was 13 years old, February 2007. I found CDH cherubs to now cdh international in 2016 at the age of 23, around 24th birthday. Used my baby book as the hints then family albums few I never seen before 5-6 month old me second cdh repair after pneumonia then RSV. This page community has helped me connect final pieces of CDH/ PH, over time I’ve helped fellow families and if there little ones get PH again like myself I help direct them to PH community not just cdh community ❤️

Previous Stories

Volunteer

Rating: 5

08/01/2019

Found CDH international before it was even created, but they help so many families fellow patients like myself. To find a possible cure, while still helping hundreds of families around the world!! Grew up with CDH but didn’t have any connection as a kid with parents, found CDH groups after finding PH ( Pulmonary Hypertension Association) patients and pages, helped few cherubs families join PH side that still shows PH signs. One giant great community!!!

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Mmreaves Donor

Rating: 3

08/02/2019

We have a 4 year old CDH kiddo and we actually didn't learn about CHERUBS or CDH international until about one year after she was born. I had no idea we actually had an organization who cares so much about our kids battles. We have done a few fundraisers and donated to CHERUBS and continue to do so with a Facebook group we created called "Allie's Project Matters". We recently attended tje CDH conference in Nashville and learned alot in our short stay. We look forward to helping out CDH international more in the future!

CWeaver5485 Client Served

Rating: 5

08/02/2019

Cherubs is more than a charity ..its a "family " ..made of people who know exactly how you feel because they have been or are currently on that same journey as you are ..always a shoulder to lean on and an ear to listen ..no better support you can find

Previous Stories
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Volunteer

Rating: 5

04/04/2013

CHERUBS IS NOT JUST A SUPPORT GROUP ~ ONCE A MEMBER YOU BECOME FAMILY ! They are there through the ups and downs of that CDH rollercoaster and always provide support, love and comfort. I dont know where my family would be without them . When my granddaughter was diagnosed at 17 weeks I didnt know where to turn when the doctors were telling my daughter it was best to just abort the pregnancy because the survival rate was not good. They couldnt answer the numerous questions we had so I went to the computer and researched it , there I found my new found "family" , people whom I could tell my fears and ask questions that the doctors couldnt answer , these members were there , and they could respond with HOPE , because they have been on this roller coaster ride themselves and know the journey were were about to take. CHERUBS has members all over the world , so there is always someone to talk to no matter what time of the day it is

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1

Milinda Estes F. Volunteer

Rating: 5

08/02/2019

Almost 13 years ago my husband and I heard the words Congenital Diaphragmatic Hernia for the first time. Our son was not even an hour old and our world had been turned upside down. Thankfully I found CHERUBS and had hope. Dawn and all of the volunteers have been there for us from day one. You become family and you know there is always someone you can talk to and them listen because they know what you’re going through. I’m so grateful for Dawn and our CHERUBS family!!!!

1

Lindsey G.1 Client Served

Rating: 5

08/01/2019

We were told to terminate our baby boy. That we needed to think of his quality of life or lack of. At 20 weeks pregnant those were the words a medical doctor sat at her desk and said to my husband and I. We walked out of her office and never looked back. She’d given up on our baby and we weren’t willing to. I immediately took to the Internet and found CHerubs. FINALLY people that got it, had lived it and a community of people that become family. The work that Dawn and all of the volunteers put in for the sake of our babies is truly amazing. This journey isn’t always easy however it’s a little easier knowing you always have someone in your corner that completely understands. My family, especially Aiden who is now 2 1/2 is eternally grateful for CDHi and CHerubs!

hicks5555 Client Served

Rating: 5

08/01/2019

Dawn works tremendously to help raise awareness and finding for CDH research. She is also very active with numerous personal stories and families in our CDH community. Thank you for everything and also for remembering our sweet Brian Earl
Sincerely,
Carah Hicks

Mary Kate B. Volunteer

Rating: 5

08/01/2019

CDH International has been my saving grace. When my world came crashing down they were right there to pick me back up. The community that they have provided is unprecedented. I cannot thank Dawn and ever other member of the CDH International team for everything they have done for the CDH community!

KalleighMarie Client Served

Rating: 5

08/01/2019

CDH International was my saving grace when I learned my first grandchild had CDH. We live in a small town and there was literally no hope! The doctors knew that the baby had CDH but they all said it was a death sentence. A quick google search landed me with this amazing charity. I picked up the phone and made a call to CDHi. Dawn Ireland answered the phone and not only talked this stranger off the ledge but after just a few minutes I had HOPE! She gave me the contact info for doctors that specialized in CDH. I hung up the phone and was able to celebrate the fact that I was going to be a grandmother! My granddaughter will be 7 in September and if it wasn’t for Dawn and CDHi there is no doubt in my mind she wouldn’t be here with us. It takes someone very special to provide HOPE during such a dark time. Dawn does that without giving any false expectations. CDHi and the Cherubs community is very near and dear to my heart!

Wendy B.4 Volunteer

Rating: 5

08/01/2019

20 years ago we were faced with trying to learn as much as we could about CDH as we brought our son home after surgery and with a feeding tube. Had it not been for the Cherubs/CDHI charity, I dont know where we would have turned. We felt as though our Doctors were learning about CDH as we were. 20 years later we attended our first CDH conference and feel so grateful to be a part this incredible charity full of families that have faced such difficult challenges and loss.

miriammedina Volunteer

Rating: 5

08/01/2019

They are amazing when we found out that our son had CDH they sent us all the information about CDH we needed to know.

sherriska Volunteer

Rating: 5

08/01/2019

Full of information pertaining to all aspects of CDH as well as forums and groups for parents to meet other parents in the same situation. Active, concerned, and available pretty much 24/7 so no one ever feels out there by themself if they have a question or issue or need a prayer chain started or want to share a first day of school or graduation photo.

Sara O. Client Served

Rating: 5

08/01/2019

CDHi has been amazing for not only myself, but so many families! After I came home from having my CDHer, we recieved a care package from CDHi filled with so many goodies... it was so nice to have a community supporting us as we went through such a difficult time in our lives!! This organization is also my go to for any and all info I need regarding CDH, because I know all things on their site are facts and comes with data.

McKayla Chaylyn A. Client Served

Rating: 5

08/01/2019

My daughter was born with CDH 8 years ago. She was diagnosed at my 20 week ultra sound and without having these non profit groups to give us the correct info on her diagnosis and the support we have received from them and other families we would have been so lost. We are all so appreciative & grateful to have them!

Previous Stories
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Client Served

Rating: 5

10/28/2018

My daughter was born with left sided CDH, she is now 7 years old & since the time of her diagnosis, my 5 month ultrasound, we have been involved with this non profit, more so over the years as it has grown. It is so nice to be able to connect with other families & know we are not alone. Having their support has made a world of difference to our daughter & us!

Tracy M.3 Board Member

Rating: 5

08/01/2019

Our son was born back in 2004 and from the moment we found CHERUBS, now CDH International, it has been a great source for support, a source to learn about CDH research and help contribute to, a source for amazing CDH awareness and overall an amazing charity that a family can turn to and not walk the CDH journey alone. I help run the CHERUBS support division now and I know that we put every penny to good use and that we are making a difference in the CDH community. I couldn't have walked this journey with my son's CDH without this amazing support community and what they are doing in the research field is so much needed. #savethecherubs #cdhi

Amanda Colleen G. Client Served

Rating: 5

08/01/2019

Dawn Ireland, the founder and president of CHERUBS, is amazing. Everything she does, she does for those affected with CDH and their families. She turned the loss of her son into something that has helped countless CDH families whether it was emotionally or financially. Her organization can back up where every penny goes and has some of the most impressively low overheads compared to better known charities. With CDHi and CHERUBS, you know where your money is going. Dawn has always been a wonderful support system and has provided me with more than one opportunity to share my son’s journey with CDH. I can not say enough positive things about this organization and it’s staff. #savethecherubs

1

Mandy A.1 Volunteer

Rating: 5

10/29/2018

Our daughter was diagnosed with CDH at Birth. Cherubs gave us a community and support to understand her diagnosis. They have given us a place to ask questions, to meet other families, and a chance to meet survivors and give us hope. After the cherubs conference in 2017 I decided I wanted to help and volunteer. I just wanted people to know that there is a community out there who understands what they are going through, and to help give those families hope.

1

Melanie Jensen H. Volunteer

Rating: 5

10/29/2018

We have been involved with Cherubs since after our second daughter died from CDH. Our first 2 children, both girls, past away from this deadly birth defect. We didn’t know about Cherubs until after our second passed away. We are incredibly grateful for them. It was so helpful knowing that others have gone through the same trial. Cherubs has introduced us to many families around the world. My husband and I have been have very involved in Cherubs and adore meeting new family’s. We try not to let our missfourtine destroy our lives. We try to uplift others and cheer them on through the tough times. Cherubs has helped us so much that we want to inspire others to be Cherubs members to support and lift them up.

2

Renci S. General Member of the Public

Rating: 5

10/28/2018

My Lcdh baby girl, Lyric Reign, will be 2 years old in Nov. She spent 5 months in the Nicu, a year and a half on oxygen support even at home, and going from 10+ specialist down to maybe 1! She is truly a miracle and if it wasn't for CHERUBS I would've never been educated on CDH and receiving their support helped me fight this journey with my baby girl. ❤

2

Bobbi T. General Member of the Public

Rating: 5

10/28/2018

The emotional support and world wide family that’s been created has been the utmost importance to our family. To know that we’re not doing this journey alone. To be brought together with others. To know that there’s research being done to support families. To try and save the babies.

1

chuckhess Client Served

Rating: 5

10/28/2018

When we learned that our son was going to be born with CDH, this was the only helpful resource available. In the years since, we've become helpers and supporters. They've been awesome!

1

kingmomof3 Client Served

Rating: 5

10/28/2018

CDHi has been there for us through the years. The support is fantastic, and you always know that there is someone who has been in your shoes.

Previous Stories
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Client Served

Rating: 5

08/01/2013

My daughter was born with CDH 13 years ago. We are blessed to have a survivor! CHERUBS has always been a great support. Our local rep is always ready with a word of encouragement and we've even met with her a few times. My daughter did a service project for CHERUBS and went to meet Dawn. There has been nothing but help and gratitude from CHERUBS! I am so glad that I found this wonderful non-profit, and volunteers. We have met many wonderful families through CHERUBS. Thank you CHERUBS for all that you do!!!

1

Lauren122 Client Served

Rating: 5

10/28/2018

Both my daughter and I were born with CDH. CDHi is so important to our family because more funding for research is greatly needed. I don’t want a 3rd generation of our family to be effected with this devastating birth defect.

Previous Stories
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General Member of the Public

Rating: 5

04/30/2016

CHERUBS has been a wonderful support for my family after my daughter received her CDH diagnosis. They provide opportunities to connect with other families, provide information and resources and prayers.

2

Brenda121 Client Served

Rating: 5

10/28/2018

One of the neonatologists told us about Cherubs after our son was diagnosed in utero. It was been a great resource not only with information but community. It is wonderful to meet other people whose children have had a similar diagnosis.

Previous Stories
2

Client Served

Rating: 5

03/04/2017

I first heard about Cherubs when my son was diagnosed in utero with CDH 14 years ago. I was so glad to learn that I wasn't alone on this journey. I have received wonderful support and made friendships through this group.

1

Shayla Marie A. General Member of the Public

Rating: 5

10/28/2018

My son was born with lcdh, thanks to organizations like this, my son is here and not terminated inutero like originally encouraged! ❤️

1

Josh N Taylor M. Client Served

Rating: 5

10/28/2018

Our LCDH survivor is 3 now. Cherubs helped so much after finding out that our son would be born with CDH. There is so much compassion and understanding from them, they made me feel not so lonely and that there was hope.

1

waynebeall General Member of the Public

Rating: 5

07/12/2018

I am in a relationship with Morgan Nuchols who is a CDH long term survivor. I also encourage and sympathize with patients and their families online. I am a PH patient and understand from a patient view. The Association of Congenital Diaphragmatic Hernia Research is a very helpful and needed nonprofit to the CDH community.

2

Paula102 General Member of the Public

Rating: 5

03/05/2017

Dawn is amazing. After losing my son I did not really even want to be here. This group along with supporters and still living for my son are the only reasons I am here. They are my angel and a blessing for all of our CDH babies and their families. Dawn works with a vengeance to raise awareness and pass new bills for our babies. Dawn knows no boundaries when it comes to compassion and love.


JEREMYS SONG

On St. Patricks day of 2003 a precious little gift was born at 1 am on a Monday morning. No one knew that Jeremy had Congenital Diaphragmatic Hernia. When Jeremy was in the first few seconds of of life he suffered a heart attack, stroke, and his lungs collapsed. They flew him straight to ACH. Once there on ECMO(Life Support) Jeremy had a chance Most CDH is on the left so they do not make it, it smothers the heart. Jeremy’s was central so his liver blocked a lot of it. All of his organs were inverted (Backwards).By the second day he had four major operations. Jeremy had chest tubes, tubes in his little nose, mouth, wrist, feet, naval, and groin for one month. Once in NICU and Jeremy had to have his last five surgeries. Then we were on our way home. I believe I died 10 times while we were in there, But God gave me such a precious . We went home on four machines, three blood pressure meds, seizure meds, potassium. Jeremy thrived……………………… He loved to hear his siblings play. Jeremy loved going to Sea world with NawNaw and PawPaw and dancing with the count. Jeremy loved going to Dallas Aquarium with Mom and Mr. Ray and meeting spongebob. Jeremy loved every moment with his therapist Ms. Donna, Mrs. Virginia, Mrs. Gretchen. He loved all of his ladies, especially Mrs. Linda Walker, Jeremy was her “Bubbagump”. Jeremy adored his little brother CJ, there was never a more loyal love. He loved his sister playing the guitar everyday! There was never just a Dr. appt with Jeremy, it was an adventure! He never knew a stranger, he genuinely loved anyone he cam e in contact with. And for a brief moment in time he would change their life forever. There was no purer soul. He touched their mind with his inspirational soul and made every trip a wondrous joy. He loved his friends and teachers at school and adored his brothers and sisters. Kingsland elementary help make a structured loving environment for my son. They loved him for the Angel he was and is. Jeremy was everybodys buddy. His cousin Vicki was his very best friend. The love between the two was beyond our time. And his best buddy Shawn, who will always be a part of his heart and family forever. Form his PT/OT/ST to the Superintendant Mr. Johnson. However, Jenkins was our 2nd home. From the age of three months on they were my savior. The things pushing they challenged him with really got Jeremy to where he could go to kingsland, they and God got him to me and his family. Is so thankful for the love this town showed to my precious gift. We had done so much for this preceious little man and had so many more plans. Before every procedure Jeremy always gave a thumbs up to lot me know he would be fiend. This last ambulance ride he gave me thumbs up. There are no known causes for CDH. CDC is still researching. That is why Cherubs is so critical. They can do so much so other families so they don’t go through what my family and I went through. The Lord took his highest Angel on high that night. And left his shell of a Mom, empty. I am empty unless I am still doing for my son,Jeremy Tristan-Lee Tribble. 03/07/03/-03/13/16. His plaque will go up at Jenkins in Pine Bluff and he will have a plaque up at kingsland elementary. In his eternal loving memory. This little man is a legend. Faced his own war’s with a smile. Always a thumbs up, thumbs up. Faced over 15 surgeries in his little lifetime, a true legend.

2

Denise170 Professional with expertise in this field

Rating: 5

03/04/2017

I am a NICU nurse and I go to the SDU for deliveries of CDH, I also follow them thru out their hospital stay, because I am on the Surgical team. To see a organization that help parents have support beyond the hospital and that understandi life after having CHD enter into their lives. Priceless memories about courageous people ❤

3

Rhonda47 Client Served

Rating: 5

03/04/2017

December 29, 1992 my son Preston was born with CDH. Jan 1993 I met a couple in the waiting room with their son, Shane, also a CDH newborn. We shared many triumphs and disappointments together. We also shared the inability to research or find any answers of our own. Just a paragraph or two in a very large book written in a way very hard to understand. When my son Preston passed, I had no answers or understanding or support from others. Because of Dawn and her heart for others to be informed, supported and not be alone, Cherubs came to be. I have been there since the birth of this charity. I have seen the heart behind its growth and love. The ups and downs, the fighting for each and every cdh family. Cherubs is what true charities are and should be about. Dawn Ireland has displayed the most incredible dedication I have ever seen in anyone. Cherubs, our sons lives, will live on past our own. Helping others to live their's.

1

Lizz L. Volunteer

Rating: 5

03/04/2017

As a CDH survivor, I went the first 36 years of my life thinking I was an anomaly. Then I found CHERUBS. Now, eight years later I have met other survivors and grieving families who have become like family to me. Some of my best friends now are ones I met through CHERUBS. Now, at a volunteer, I have the chance to give back and give hope.

Previous Stories
2

Volunteer

Rating: 5

08/02/2013

As an adult CDH survivor, I had never in my life known anyone else who had heard of the condition, much less had experienced it. As far as I knew, I stood alone. When I found CHERUBS, I immediately became connected to thousands of families who had been through the nightmare of CDH and gave me insight into what my own parents went through.
As a parent myself, I have had to face the possibility that my own children may also be victims of CDH. Thankfully, they were all born perfectly healthy. This also enables me to give hope to other survivors that they will be able to become parents themselves and lead "normal" lives.
Through CHERUBS I have made some of the best friends a person could ask for and I cherish that.

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1

Jamie R. Client Served

Rating: 5

03/04/2017

I found CHERUBS shortly after my son passed away from CDH. The love, compassion, understanding, and honest desire to help is apparent from the get go.

Previous Stories
2

Volunteer

Rating: 5

04/30/2016

After losing my son to CDH, CHERUBS had been there in every way possible to love, support and educate me.

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1

Writer Client Served

Rating: 5

03/04/2017

My daughter was diagnosed with a left-sided hernia while I was still pregnant with her. I had 15 weeks to research and find out everything I needed to know. CHERUBS had the most easy to understand information and support group. 7 years later and I am still in awe of this group of people and their commitment to CHERUBS!

1

Stephanie100 Client Served

Rating: 5

03/04/2017

This charity has helped me understand more of what I go through and let me feel like part of a family that will support you through anything. I was born with cdh 28 years ago and never knew what was wrong with me or how to take care of my health.

Previous Stories
2

Volunteer

Rating: 5

08/02/2013

When I found out about CHERUBS a year ago I thought it was so amazing that people are helping families know what they are about to go through and give support! This meant a lot since my family didn't have anyone when I was born with it 24 years ago. Everyone at the CHERUBS is amazing and helpful and reall knows what you are going through so you know you are not alone.

1

armywifecheryl Client Served

Rating: 5

03/04/2017

My son was born in 2004 with a left sided CDH! Cherubs was the only place we could find any information regarding our situation! The support during that time and even for years after helped us through the toughest time of our lives.

lar2005 Volunteer

Rating: 5

07/24/2016

I am a CDH mom and I volunteer for CHERUBS. I am proud of the work being done at CHERUBS and the transparency of the charity. I know that I am helping people through their journey because others helped me through ours. Thank you CHERUBS for being such a great charity.

Writer Donor

Rating: 5

05/01/2016

My son is a 22 yr old RCDH survivor, ECMO x 2 and we were like Dawn in the very beginning not having a place to go for information. I have supported Dawn's efforts since she began.
Please keep up the good work! She is amazing!!!

Writer Client Served

Rating: 5

04/30/2016

Wonderful nonprofit charity. They were extremely helpful in supporting affected family and creating awareness!!

Sara Y. Volunteer

Rating: 5

04/30/2016

We love the cherubs!! They have help my family out in so many ways when I found out my daughter would be born with CDH

Debbie197 Client Served

Rating: 5

04/30/2016

Our LCDH survivor is 2 now. Cherubs helped so much. Finding support and information in a time of fear was such a blessing.

1

Sara140 Volunteer

Rating: 5

04/30/2016

Love them and the work they do fro CDH families! I have been blessed to see a local family helped with the CDH journey of their angel, who was here for 12 days.

1

Bethany P. Volunteer

Rating: 5

04/30/2016

I have a RCDH survivor who is 3 years old. Cherubs has been a awesome support for myself and my family so glad I have them!!

1

Writer Client Served

Rating: 5

04/30/2016

Cherubs has been an amazing support for us since getting our son's diagnosis of CDH!❤

1

Writer General Member of the Public

Rating: 5

04/30/2016

CHERUBS has been a blessing to our 19 month old LCDH and ECMO survivor!

1

Writer General Member of the Public

Rating: 5

04/30/2016

My daughter was born with LCDH. This organization helped us in many ways before she was born, and when she passed. Thank you all for what you do. Your hard word doesn't go unseen!

1

Chelsearyanharrington Client Served

Rating: 5

04/30/2016

My son was born with CDH and this charity welcomed us and made us feel like we had answers, support and someone we could go to just to listen in a very tough time. They sent us a care kit with a handmade hat and adjusted baby's first book to explain the time he had in the nicu. It's thoughtful things like that that make this charity above all others!

Lisa540 General Member of the Public

Rating: 5

04/30/2016

When our son was first diagnosed with CDH in 2002 the Cherubs organization provided us with support and education. We are grateful for all that they do to spread the word about CDH. Providing a way to connect families has also been a blessing.

1

Writer Volunteer

Rating: 5

04/30/2016

This charity supported my family and I through the loss of my son. It is filled with amazing supportive people. They have given us opportunities to raise awareness about a horrible birth defect that many do not know about as well as allow us to participate and be a part of the family.

1

Holly82 General Member of the Public

Rating: 5

04/30/2016

I've not had a personal experience but I have a friend who's had to go through this. It's mentally exhausting and so scary for them. I believe this needs to be better known.

1

Katerina M. Client Served

Rating: 5

04/30/2016

Without Cherubs this journey would be so much harder. I learned most of it I know today about CDH because of Cherubs.

Writer General Member of the Public

Rating: 5

04/30/2016

CHERUBS has helped our family find out more about CDH when there was hardly any information online about it. Our son was born 10 years ago with CDH. We continue to support CHERUBS and network with other CDH families through them.

Allie6 Volunteer

Rating: 5

04/30/2016

Cherubs has given me the opportunity to fulfill a promise to my daughter that I made to her as she was dying in my arms; the promise to continue to fight for her as I knew she couldn't fight anymore. They have paved the way to join a movement of strong brave courageous parents and children that live the unimaginable. I am deeply grateful for this organization and everything they do.

Lindsey33 Client Served

Rating: 5

04/30/2016

They have been so caring and supportive since our daughter was born with undiagnosed CDH. They sent a totebag with goodies for us and EK while she was in the hospital. The most in depth information I was able to find while after our daughter was born!

Nannie2b Client Served

Rating: 5

04/30/2016

I'm a Nannie to a 2 yr old survivor who is still fighting!! Without CHERUBS we would have been LOST!! Love love love the SUPPORT they GIVE TO EACH FAMILY!! CDH is a VERY LONELEY DIAGNOSIS until you get contacted and supported by CHERUBS!! They are the BEST!!

Writer Client Served

Rating: 5

04/30/2016

The tote bag project is amazing for expectant mothers. Such a relief to have a community to connect with while going through pregnancy and life with a CDH child. We also received a financial grant that really helped with the cost of making a daily 200 mile commute to see our child.

Writer Client Served

Rating: 5

04/30/2016

Cherubs is a wonderful organization. We are forever grateful for them always being there to answer our questions.

Writer General Member of the Public

Rating: 5

04/30/2016

This is our sweet baby Christian. He survived 40 days in the NICU at Children's Hospital in Dallas. He is our Angel and there is not a day that goes by that I do not miss him. ❤

2

Big-Mama General Member of the Public

Rating: 5

04/29/2016

A few years ago 3 little boys were beyond excited to welcome a little sister! "Our FIRST sister!" they happily exclaimed to anyone who'd listen. The day finally arrived and they anxiously awaited pictures of their "finally a girl". She was born a robust 8.6 lbs and 21" long, yet, layed on my belly
purple,
still,
SILENT.
The silence was suffocating.
I was frozen with terror and could only repeat, "She isn't crying. She isn't crying." Thankfully nurses were able to get her responding. We knew something was off, but the nurse blew off all of our expressed concerns. We went home KNOWING something was wrong. A mere 13 days later we landed in the ER with our first baby girl in desperate trouble. Her oxygen had been at 80% for the first 13 days of her life, we'd found her not breathing several times each night, and she turned purple every time she cried. We heard the words Congenital Diaphragmatic Hernia for the first time in our lives. Words like she's stable at the moment, and emergency surgery were being flung at us faster than we could process.
It was harrowing!!
We were stunned to numbness, yet, wildly terrified all at once. We had no idea the long term implications to such a diagnosis. We were later discharged with NO warnings or long term information regarding a Diaphragmatic Hernia survivor. We muddled along for nearly 2 years with NO idea what was typical versus cause for concern.
We were alone.
It was a terrible way to try and provide what your baby needs. Then, one day, I stumbled across CHERUBS and found an entire community navigating the same path we were on. We were no longer alone. We had hope. We found wisdom. We found support from those who really get it. We found a second home! We're forever grateful for this amazing group of dedicated people.

Review from Guidestar

jillie11 Client Served

Rating: 5

04/21/2015

I love CHERUBS and would be lost with out them! It's nice to connect with families that understand what you are going through and who can share their experience. I had never heard of CDH until the day my son was born and the NICU doctor told me he was born with this birth defect. I love that they are taking ACTION raising awareness and funds for more research. CHERUBS has made the scariest times of our life much easier with the volunteers support and love! We will be forever grateful!

Hope C. Client Served

Rating: 5

04/20/2015

Our son was diagnosed with CDH in 2001. Our high risk pregnancy specialist told us to go to the CHERUBS website for "anything CDH related. They will have the most up to date and accurate information." CHERUBS was our guiding light from day 1 and still are. We have connected with families on a personal level because of CHERUBS. We have participated in research studies and felt endless support from the charity. Our lives were forever changed for the better because of CHERUBS and it continues! What a blessing! We have a 13 year old survivor of CDH and we are so grateful for all the love, support and guidance we have had through our CDH journey.

Previous Stories
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Client Served

Rating: 5

08/02/2013

It will be 12 years ago this coming October that we got the devastating diagnosis of CDH in our unborn child. At our first visit with the high risk pregnancy specialist, he gave us all the information about CDH. We were so completely overwhelmed. At the end if our appointment with him, he said, "when you get home, Google 'CHERUBS', as in angels, cherubs". It was a life changing moment for us when we found CHEUBS. We are so grateful for the up to date information we always get from them and for the outpouring of support we have always felt. We knew we were never alone in the struggles we faced with a survivor of this horrible birth defect. Last year we got to meet Dawn and it was honestly one of the most amazing experiences of our lives. CHERUBS cares about their members and everyone that CDH touches. Our lives are truly blessed by being directed to CHERUBS. I have life long friends that I only know because of CHERUBS. I am so very grateful for this charity and all of the people in it that have so deeply effected our lives. Thank you CHERUBS!

Danielle72 Donor

Rating: 5

04/20/2015

I gave birth to an undiagnosed cdh child. I felt so alone because I knew no one who had a child with this condition. After I discovered Cherubs, I learned of many people and now have many cdh families for friends! It's nice having people who you can relate to.

hyj2679045 Client Served

Rating: 5

04/20/2015

Phenomenal organization. Compassionate, educational, supportive, dependable communication. Thank heavens they have been available for us.

CJsMommy31213 Client Served

Rating: 5

04/20/2015

The best charity I could have ever come across after my sons diagnosis. They were there before birth, during his life, and after his death. The President, Dawn Williamson and VP, Ashley Berry took the time to meet my son too. I owe them more than I can say!

1

Brennens-grandma Client Served

Rating: 5

04/20/2015

When my grandson was born with cdh we were lost. CHERUBS stepped up with information and care that was amazing. It's been 8 years now and we still never feel alone. Their state reps and anyone in the organization is always there to help. We've never felt like we were unwanted or an inconvenience. We've only had wonderful interactions with everyone. Still today we are so impressed with them that we do every thing we can to bring awareness not only to the birth defect but to the organization.

1

Cici1gm Volunteer

Rating: 5

04/20/2015

My daughter is a 28 year old survivor and I wish we had ha CHERUBS when she was born. We were alone in our journey. When she had to have surgery several years ago for a vowel obstruction related to her CDH diagnosis, we found CHERUBS. This is not just a charity. This is a family where there is so much information, compassion, love and prayers for all. My daughter and I now volunteer for CHERUBS. I am just so thankful they are there so no family will ever walk this journey alone again.

Previous Stories
1

Volunteer

Rating: 5

09/04/2014

There was no CHERUBS when mydaughterwas born in 1986. We found CHERUBS a few years ago when I was researching adults with CDH. This is when I found CHERUBS. We have learned more since finding other families through CHERUBS than adult family practice doctors ever knew. Thank you all!!!! Love our CHERUBS!!!

Review from Guidestar

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Juliey Volunteer

Rating: 5

04/20/2015

My son Aaron was born 15 years ago with CDH. Cherubs has been there for us from the beginning. Through our repairs and recovery in recent years and still there through our hard times as well as our praises! We would be lost without them.

Nicole123 Client Served

Rating: 5

04/20/2015

At my 20 week ultrasound my world was turned upside down. My fist child was diagnosed with a birth defect. This birth defect was Congenital Diaphragmatic Hernia and he was given 50% chance of surviving. I then googled information about CDH and found Cherubs. I signed up their forums and was instantly connected to support system that has helped me through my whole journey, expecting, birth, and grief, when we lost him. They have created a whole connected CDH community that is very supportive. They are very active in all aspects of raising funds for research and support and everything under sun in raising awareness. They help many families not feel alone and fight hard to get progress in helping CDH families and future CDH babies.

MG81 Donor

Rating: 5

04/20/2015

My wife and I felt so alone and helpless when our son was diagnosed with CDH. We were both so pleasantly surprised and comforted when we found CHERUBS. Such an absolutely phenomenal charity to help other CDH families connect for support and resources that surely helped us for information and comfort. God Bless CHERUBS!

Janice15 Volunteer

Rating: 5

04/20/2015

I have a 24 year old survivour my daughter Angel I have been involved with CHERUBS from the beginning and this charity does all it can for kids and families that deal with CDH it is a long hard road that is made easier knowing that there are other families that you can connect with

Previous Stories

Volunteer

Rating: 5

07/25/2013

Being the mother of a 22 year-old daughter who was born with CDH I only wish that CHERUBS would have been there when she was born. After talking to Dawn after she had Shane and joining and volunteering with this great support group I wouldnt take anything for the experience realizing that we are not alone in this fight with this horrible defect and even at this stage learning more has helped me become a better mother not only to my daughter but to her older brother as well. I would and do recomined this support group to other.

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1

brouwer Client Served

Rating: 5

04/20/2015

I was born with congenital diaphragmatic hernia jn 1965. For almost 40 years I thought I was the only survivor. Thanks to the internet I found Cherubs, a thriving support group. Not only did I meet fellow cherubs online, but one parent came from Belgium to visit with me in The Netherlands. Cherubs has given me support like no other support group has. Contact with other Cherubs and parents is valuable. They know how I feel, they know what it's like to live with the limitations that CDH brings. And when I needed more information about a possible reherniation, there were people who provided the much needed information. Cherubs provides support and knowledge. I am very thankful that this group exists and try to give back as much as I can.

Samantha65 Client Served

Rating: 5

04/20/2015

Our family can not say enough good things about Cherubs! The information, support, and most importantly the hope they provided to is when one of our twins was diagnosed with CDH was one of the main things that helped us get through such a tough time. Our daughter Emily is a 14m old fighter and we our so blessed.

faerynsmom Client Served

Rating: 5

04/20/2015

I am a mother to a angel cherub just in 2014. I have lots to thank for helping me keep my sanity, but Cherubs was the first place every doctor referred me to in reference to this birth defect. They offered comfort and answers when things were so confusing. I can't say they do everything right, but for a one woman show with volunteers they do accomplish a lot. Many thanks to being there for me and my family.

2

outofideas Client Served

Rating: 5

09/06/2014

Gave us a ray of hope and comfort when my son was born.

Review from Guidestar

3

Tracie S. Client Served

Rating: 5

09/05/2014

Absolutely love cherubs!! I joined as soon as I found out my baby had CDH and it prepared me in many ways for his birth. Unfortunately baby Brody didn't make it but I've continued to visit this site for support and everyone is just that... supportive!! I've even decided to volunteer as much as I can. We need to get the word out about this group and CDH in general!!! Thank you CHERUBS for all of the help along the way.

Review from Guidestar

2

Alma G. General Member of the Public

Rating: 5

09/05/2014

I became a member of cherubs a few months ago, I love the support and love you receive from everyone in this page, reading other families journeys and knowing that your not alone in this difficult road is a true blessing!!

Review from Guidestar

2

Hannah27 Client Served

Rating: 5

09/05/2014

My daughter was born with CDH. The doctor had no idea why she couldn't breath on her own, only knew her lungs wern't developed. She passed away 4 and a half hours later. I got home, started researching the symptoms and CDH was the first thing to pop up. The only real indepth page I could find was Cherubs. They were very helpful in helping me to understand what happened. I'm currently wearing the awareness wristband they sent me with the huge amount of documentation they sent me on the condition. I'd have been completely alone if it wern't for them.

Review from Guidestar

1

Patricia108 General Member of the Public

Rating: 5

09/05/2014

I love CHERUBS. My daughter has CDH and when I found out I was pregnant I immediately started the research. I really had to look no farther than CHERUBS. They sent me my tote and in it was all about what I was getting ready to go through what to expect. I am also part of the forums and this organization has become my new found family. Anytime I have had a question or needed advise, or even just someone to talk to CHERUBS has been there. I do not like CDH but I can say that out of a terrible defect I and my daughter Moriah have gained a new family. This family loves, supports but above all understands what I am going through as a parent and what she will go through as a survivor. Moriah will always be fighting CDH but at least with CHERUBS she will not be fighting alone. GO TEAM MORIAH! GO TEAM CDH! GO TEAM CHERUBS!!!!! Thank you all so much for everything. Our love always, Patricia and Moriah

Review from Guidestar

1

Nay2883 Client Served

Rating: 5

09/05/2014

I was born with CDH in 1976 and until I came across Cherubs several years ago I did not know much about CDH. Cherubs has been the most caring and personable charity I have come across. I am so happy that families affected today have a place to get the knowledge and support my family did not have access to years ago. Cherubs is amazing charity filled with wonderful people.

1

Sarah200 Volunteer

Rating: 5

09/05/2014

Wish I'd found CHERUBS when my son was here! Great people doing an amazing job simply because it needs done and they love doing it! Everyone has one goal; helping CDH families. Wait; make that two goals. We also want to put CDH on the map, like breast cancer and autism. We want the recognition, the awareness, and the research!

Review from Guidestar

1

April48 General Member of the Public

Rating: 5

09/04/2014

My daughter was born with LCDH. I wish I would have found the support then I see now on cherubs. They are amazing! Always bringing awareness and supporting all the family's with positive messages.

Review from Guidestar

1

Judy113 Client Served

Rating: 5

09/04/2014

CHERUBS has been at the forefront of spreading CDH awareness since I found them over sixteen years ago when my son was born with R sided CDH. They were the only information available on the web back then and it was so comforting to find a group and forum that I could relate to and knew what I was going through. Dawn has tirelessly and passionately kept up this charity for all these years and has brought awareness and support to countless families.

2

Maria F. Client Served

Rating: 5

12/07/2013

After losing our precious grandson, Liam Anthony Hunt after 33 days to right-sided CDH, our family found CHERUBS. What a wonderful, compassionate organization filled with fabulous people who are knowledgeable, know what your going through, and are always always there for you. There are not enough words to describe this organization or express my sincerest gratitude. When my grief even 2 years later gets too much, I know I can always blog on CHERUBS and I know that I will always get responses that comfort me.

Previous Stories

Client Served

Rating: 5

08/13/2012

We found CHERUBS after our precious grandson received his Angel wings due to right-sided CDH. What a compassionate, wonderful group of people who never forget those milestone dates and never fail to check with you during those times. We have learned so very much and now work in earnest to provide donations and support to other CDH families. CHERUBS is VERY deserving of this award. Dawn Torrence Williamson is THE most amazing woman and I am honored to have met her.

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3

AliciaG Volunteer

Rating: 5

08/13/2013

I volunteer for CHERUBS as a Hospital Angel. I am very proud to give back to them as I am eternally grateful for all they have done for me & my family in the last 3-1/2 years!

CHERUBS is more than just a group to me, they are truly like a second family. After my son Jayden died I was so devastated I locked myself away and was on the verge of wanting to end everything, but just when I was at my worst, my mom showed me CHERUBS. Once I saw what they were about and got to know some of the AMAZING people who not only TRULY knew my pain and wanted to help me in my time of need and beyond, I found that because of the support and LOVE of these selfless, caring, open, and understanding people I had truly found a renewed sense of purpose and reason to live!

Now because of finding this WONDERFUL community I now have a passion and drive for life and have met some of the most amazing, wonderful, and close friends I have EVER had that I NEVER would have met would it not have been for CHERUBS! I also now have a new mission and goal in my life to help other families like us and let them know they are not alone, and we will be there for them in ANY way they may want/need just like all the amazing families before me did for my family in this wonderful group.

My biggest hope and goal for this charity is to raise enough money and awareness to put to more research to help us someday find the answers, and in return find an end so no more babies die or suffer... pure and simple.

Thank you for listening and THANK YOU TO CHERUBS FOR ALWAYS BEING THERE AND HELPING TO SAVE MY LIFE WHEN IT COUNTED MOST .

4

Heidi62 Client Served

Rating: 5

08/12/2013

This is the most professional and kindest charity I have met on my CDH journey. They are very focused on helping CDH families and being the best charity possible. I am proud to be a part of this charity and watch it grow.

I have known Dawn for many years and I second everything her husband said about her. She is a lady. When people sling mud at her she protects CDH families and doesn't throw it back. She makes it into pies and serves them with a smile. This woman is my hero.

Comments ( 1 )

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CHERUBS 08/12/2013

Thank you for your review and support of our charity. We hope that you have a great day!

CHERUBS
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OhioH64 Client Served

Rating: 1

08/12/2013

I wasn't aware of the huge wages that the president was taking. After looking on guidestar I feel decived that this wasnt previously mentioned on fb. When I donate I want it to go to helping babies not into someones pocket. Taking 1/3 of annual takings is not justifiyable in my mind. I really think this is needs re-thinking.
But at least I Guess they are trying to help.

Comments ( 1 )

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CHERUBS 08/12/2013

Thank you for your comment and allowing us to correct misinformation:

One third of our charity income is not spent on employee income. That is a rumor posted on Facebook to try to deter donations to our charity. Our President makes less than a waitress while working 60+ hours a week so it's not a huge salary by any means. Most non-profit executives make 5 times her salary. She works at CHERUBS to help families, not to make a large salary as she gave up a career and took a pay cut to work at our charity. Again, it's just a false rumor with bad motives. We are sorry that you have been exposed to such negativity.

The Guidestar numbers reflect our first 990 return for that year. When we were audited, the auditor fixed an error in which we made to our own disadvantage. The amended 990 is posted on Guidestar, as well as our audit. Anyone seeking the full information and documentation should easily find all our financials on Guidestar. We feel it is important to be an honest, transparent charity that posts everything for our donors to see and that is reflected in our Gold Level, 5 star charity status.

In fact, we are happy to say that for 2013 it is projected that less than 15% will be spent on all overhead (salary, office rent, etc). With 4500+ families to help now, our charity is too large and offers too many services to run out of a home or with no employees. It's simply too big to be run as a small "mom and pop" support group. We did so for 15 years but now we are growing. That is a good thing so that we can help more babies and families.

Please rest assured that the percentages being posted on Facebook are false and a manipulation of the numbers reported on our 990. We would be happy to explain how a 990 is filled out and what the numbers mean and the percentages are, as well as to point out that we have a full Board of Directors, including an accountant (Treasurer) and attorney (Secretary) to help explain this. We also voluntarily pay to undergo an independent audit to be eligible to be listed in the CFC so we are meticulous in our accounting and go above and beyond most charities in being transparent with our funds so that our donors know where money is spent. We are the only CDH charity to voluntarily post all of our financials and to undergo audits.

When you see rumors posted, please question the motives of who is posting them and why they would want you to not donate to our good charity. If you have any questions please know you can always come to us. You can reach our CPAB at cpab@cherubs-cdh.org

Sincerely,
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ABarry Board Member

Rating: 5

08/09/2013

I am the mom to an 8 year old CDH survivor. I have been a member of CHERUBS since she was born, started serving on committees approximately 5 years ago, and have been a member of the board for almost 3 years. I served as the Treasurer for CHERUBS for about 2 years, and then moved to the role of Vice-President about a year ago. Through volunteering in these roles, I have had an inside view of CHERUBS for many years and am aware of all facets of the charity- the volunteers, the members of all 3 boards, and the finances. I am proud to say that CHERUBS is run by a team of wonderfully dedicated volunteers led by the charity's sole employee, the President of CHERUBS, Dawn Williamson. It takes a lot of hours, and people from many areas of the world, and with many talents to serve the CDH community. All of the volunteers that I have come in contact with from State Representatives, to Hospital Angels, to those who work on the various committees, to the Parent Advisory Board, and the Executive Board serve dutifully with professionalism and respect to see that families get the help they need while working to raise awareness of CDH and money to further research that is so desperately needed. From my role as Treasurer, and with continued knowledge of the finances of the charity as an executive board member, I can assure you that every donated dollar is used to the best of its ability to help the cause. Meticulous care is taken to see that donations are spent only in the manner with which the donor specifies (research, family assistance, awareness, etc.), and that money is never wasted. I am proud to count myself as a member of the CHERUBS team.

4

Zoe B. Volunteer

Rating: 5

08/08/2013

In 2010 our Daughter, (Angel Cherub) Libby, was diagnosed with CDH at the 20 week scan. We came home and Googled CDH and thankfully found CHERUBS! Over the past 3 years we have received the most amazing support from people that we now regard as Family. We will be forever grateful for all the hard work that CHERUBS members do. We have made some great friends! I have recently decided to Volunteer in the hope to help other families and am really looking forward to working with so many kind and inspirational people xx

3

LaurenCampbell Board Member

Rating: 5

08/08/2013

I have been a board member of CHERUBS for the past year and I continue to be moved and inspired by all of the good work done by our volunteers, our President, our parent advisory board and our executive board. I look forward to the future, continuing to support families, raise awareness and funding research.

Comments ( 1 )

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CHERUBS 08/12/2013

Thank you for your review and support of our charity. We hope that you have a great day!

CHERUBS
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Board Member

Rating: 5

04/03/2013

I have been involved with CHERUBS for over a year now and am continually amazed with the wonderful work that is done to support families, raise awareness, and fund research. I am proud to be a part of CHERUBS after working closely with and witnessing the passion of the president, Dawn Williamson, first hand.

3 JadeHunt

JadeHunt Volunteer

Rating: 5

08/08/2013

Since finding CHERUBS aafter the passing of my son, Liam Anthony Hunt, I have been blessed to connect with a network of incredible people! Members of CHERUBS have reached out to me and my family in a number of ways and have inspired us to find positive ways to give back and reach out to others affected by CDH. This will be my second year as the Vermont State Representative and I hope to continue in this role for many years to come to not only honor the memory of my gorgeous Angel CHERUB, Liam, but to help to many families that are affected by this devastating defect in my home state and nationwide. It is my honor and priviledge to be apart of such an incredible organization!

10

Craig WiIIiamson Donor

Rating: 5

08/08/2013

I first learned about CDH when I met my wife, Dawn, who is the founder of CHERUBS. She lost her only child to CDH in 1999. My first experience with the charity was helping to plan a conference and ball in North Carolina. I was able to meet families and I am always impressed at the dedication and impact my wife has had with her work at CHERUBS. I taunt her about being a "CDH celebrity" because everyone knows her name and because of the internet attacks she deals with as if she wasn't a person. People around the world know her and she works with politicians and celebrities to help these kids. No one else has done that and I am very proud of her.

I attend events and I support Dawn and CHERUBS and I have seen it grow from a small charity into a global one in the 7 years we have been together. When we first got married baby items were all over our home. They were stacked in our guest room, in our children's closets, under their beds and filled our attic. After 2 years I made the decision that CHERUBS had to leave our home because there was not room and because Dawn needed time off of work. At the time she was working 2 full time jobs and we had no time with her. I asked her to make a choice between jobs and I asked that she choose her company to contribute to our family. She chose CHERUBS because she wouldn't abandon CDH families. Her Board took a risk and hired her rather than lose her 3 years ago. With an office and 1 job, Dawn has done more in 3 years than 15 years. Instead of congratulating her and CHERUBS on all their accomplishments, her salary is being put on the internet and people are shaming her. She does not make $40,000 but what if she did? Most NPO execs make over $60,000 a year. Most company execs who oversee 4000 people make well over $100,000. Dawn is paid pennies of what she is worth and she would still be volunteering if she had her say. If she is successfully running the charity she should be duly compensated. What she makes is no one's business but hers and the Boards. If you think she is greedy or after money then you have never met my wife. She would turn our home into a homeless shelter and give away everything we have if I let her.

In the 7 years we have been together I have seen the dark side of CDH. I have watched my wife cry for her son and visit his grave. I have sat beside her in court many times when she had to take out a restraining order against a "competitor". I was there at the entire trial and I have watched my wife and my family be a victim time and again simply because she choose to help CDH families. That woman looks at my Linked In page, she contacted Dawn's ex-husband, she even had IRS auditors in our home in front of our kids because she filed a false complaint to try to shut CHERUBS down. For 10 years she has tried to harm my wife and our family in any way possible. I have read the blogs she posts about our family, our finances and our life that are not only none of her business but not even close to true. The only person coming between her and my lawyer is my wife and this person should be very grateful. My wife has too much class to do the same to this person or her family and she should be very grateful for that as well. Because my wife started a charity out of the goodness of her heart in memory of our son it does not give anyone the right to pry into our private lives, to publicly slander my wife or to stalk our family.

I won't comment on what type of man I think the British man whose wife runs a charity for the things he's done to my wife. What type of man accosts a woman alone by herself in another country and then writes such trash for the world to see? She has a very soft heart and I know she was proud to help you as much as she could. To pay her back her kindness you've betrayed her and the charity. She is a good woman and you are no man. I will be more of a gentleman to your wife than you have been to mine and not name either of you so harm doesn't come to your reputations. You owe my wife an apology and gratitude.

For everyone that thinks my wife runs CHERUBS alone and makes all the decisions, you haven't seen the committee meetings she holds or the volunteers she has had in our home. You don't know the conference calls she takes late at night or e-mails she responds to all evening long. My wife is the most honest person I have ever known. If she says something it is true and she always has proof of everything she says. I know, I've tried arguing with her. She is also the hardest worker I have ever met and loyal to the extreme. She has tried to help every single person who started their own charities. Some took advantage of her and now attack her but she still acts like a lady. I have never seen anyone give more of themselves or have the dedication and passion she does for CHERUBS. Having a wife so involved in CDH and grief every day is not easy on our family. Having her attacked for her charity work makes me want to make her quit and find a job that pays more with less stress. She never will. I am proud of all she has done and proud to be married to such a beautiful woman inside and out. My only regret is not having the opportunity to meet Shane.

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CHERUBS 08/12/2013

Thank you for your review and support of our charity. We hope that you have a great day!

CHERUBS
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Dawn29 Client Served

Rating: 5

08/08/2013

I have NEVER been involved with a more compassionate group of caring individuals as Cherubs. I have found many times that when I am in need of support or answers - Cherubs has been there for us -ALWAYS!

I do not personally know any of the people who run this charity yet I have found that I have a real family within Cherubs. From the board members to the CDH families I can ask a question, seek support, ask for guidance or even if I find myself falling apart, I always know that I will find the compassion, resources, support and love readily available at all times - day or night. Their sincerity and continual pledge to bring awareness is second to no other organization.

CDH is a heartbreaking journey and never could any of us have even remotely pulled through this journey without the support and compassion of Cherubs, Dawn, support staff and the many other CDH families that really rally around each and every parent.

I know we are not the only ones on this roller coast of emotions but it is the compassion that is so freely provided through Cherubs that allows us to continually know that in those dark quiet moments of despair we are not alone and that help is always very close. Whether we seek encouragement, hope or prayers, I am continually reassured that I am not EVER alone and have never felt let down.

We are not just one family, unfortunately we are one of 144 families born every 24 hours yet the Cherubs family rallies around each and every parent as if they are the only family. From early morning posts to very late night screams for help to care packages and most importantly of all - raising CDH Awareness – Cherubs is there and hope is always found within Cherubs.

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2

General Member of the Public

Rating: 5

08/13/2012

having lost our beautiful granddaughter Olivia Faith on Dec 18, 2011 after just 7.2 weeks on this earth, we will always be grateful to this organization for not only their hardwork but the vast amount of information we have learned to rely upon. Having never heard of CDH prior to June 2011, I am simply amazed at how "commom" this monster is and will always be grateful for how much work this group puts forth in trying constantly to get the word out in a valiant effort to help these unborn children have a chance.

2

mommyof3tob Client Served

Rating: 5

08/08/2013

Our family received your care package yesterday and we are overwhelmed with gratitude. There is so much information and love in this box. All the labels with all the children's names are so touching. Thank you for all you have done for us and for others. We feel more prepared and not alone. We can't tell you how much this means to us. Bless you all.

2

Megan50 Volunteer

Rating: 5

08/06/2013

With my CDHer being my first child. I had never heard of CDH until she was officially diagnosed with it. It was great to find a charity that had so much support and love. They treat you like family and after being a part of the charity for the past 9 years they have become family. What a wonderful thing to be a part of!

2

amycschlueter Volunteer

Rating: 5

08/06/2013

CHERUBS has been a blessing to both me and thousands of other families. If CHERUBS had been around when I was born, my parents would have been able to relate to others going through the same situation as well as get answers to questions that the Dr's could not answer. The amount of support that each volunteer and member gives is overwhelming. I am honored to be a state rep and honored to pay it forward to each new member. CHERUBS also has the most kind hearted CEO. Dawn gives and gives. The love she has for her son carries over to the members of CHERUBS.

2 nyoung

nyoung Volunteer

Rating: 5

08/06/2013

CHERUBS has been such a wonderful organization for not only myself, but my large family. Unlike most families, I was aware of what CDH was, as I lost my oldest brother to it in 1973. However, I did not know to the extent of just how critical this birth defect was. My 18 week ultrasound showed nothing wrong. I didn't find out my son was going to have CDH until 8 days before his birth. I found myself not sleeping and searching for anyone who would talk to me and understand what I was feeling and going through. All I kept seeing online was the negative side to CDH. Then, I came across CHERUBS. I met and had an instant bond to all these families who knew exactly that I was feeling and going through. I remember posting something brief on the FB page explaining that I was due any day and just had barely found out, and the next morning I had several friend requests instantly from members.

CHERUBS has given me support and has given me the opportunity to serve others in the CDH community. I'm very grateful for the service, love, support and friendship I find with CHERUBS. I'm grateful that I can now call myself an official HOSPITAL ANGEL volunteer for CHERUBS and visit other CHERUB (CDH) families in need.

2 Somer Ball

Somer Ball Volunteer

Rating: 5

08/03/2013

I found out about my baby having CDH when I was 35 wks pregnant. I was devastated. Everything after that went so fast it was a blur. Then I found CHERUBS. I finally had a support team and someone to turn to. At CHERUBS I feel like I always have a friend who truly understands what I'm feeling and going through. I love what CHERUBS does so much that I became a state rep so I could help out people who have helpe me & be there for CDH families who need support. I want to do what has been done for me plus so much more. I can't think of a better group to be a part of! We are all CDH family and raise CDH awareness together as a team! And I LOVE IT!! Thank you Dawn and EVERYBODY that is apart of CHERUBS! Our members are truly amazing and inspirational!

2

Elizabeth106 General Member of the Public

Rating: 5

08/02/2013

Breath of Hope and Cherubs were both there for me when I was pregnant with our daughter. I tell everyone to go to them and Global CDH for support along with other groups on Facebook. The best way to get through a CDH pregnancy is support! The more the better!

5

Neil R. Volunteer

Rating: 5

08/02/2013

This is my 2nd term as the Co-chair of the CHERUBS Parent Advisory Board. I am also the Illinois and Wisconsin State rep along with being on a number of other committees. As an extremely active volunteer, I can honestly say that CHERUBS is a team effort. A team that consists of 1 extremely overworked full time employee and countless other volunteers.

I unfortunately didn't get very involved in CHERUBS until after my 1st son came home after graduating from the NICU. He is my first miracle. We found out at 37 weeks that our son would have CDH, so we were sent into such a tailspin that I just couldn't even process all the information in time to reach out to CHERUBS before my son was born. However, once I officially joined. OMG, did I feel welcomed and understood. The family and friendships I gained were invaluable.

Now that my 2nd son (who also has CDH) is due in just over a month, I am overwhelmed once again by the support. I have worked so hard as a volunteer to provide support to others. Considering how devastated my wife and I were to find out we had to ride this roller coaster again, I am glad we don't have to do it alone...again.

Previous Stories

Volunteer

Rating: 5

06/20/2012

My son was diagnosed with CDH at 37 weeks. My wife and I had to scramble to find a new doctor and surgeon with CDH experience. In the end, my son was only in the hospital for 29 days even though he was born without a diaphragm at all. When my son was born the most important service CHERUBS could provide was support. Now that my son is doing so well, I've come to appreciate everything else they do from awareness of this birth defect to raising funds for much needed research.

1

Patricia72 Volunteer

Rating: 5

08/01/2013

I first learned about CHERUBS 3 years ago when my grand daughter was diagnosed with CDH. I had never heard of CDH before this. I called and spoke with Dawn and she was awesome at listening to all my concerns and fears. It was nice to have someone to talk to who had already embarked on this horrifying journey. Two days after Maddie was born my daughter received a tote bag of hope in the mail it was great and very generous. I decided to become the Nevada State Representative volunteer in January 2012. CHERUBS website is the most comprehensive site with information on CDH!

2

joshoshensley Volunteer

Rating: 5

08/01/2013

Hello my name is Josh Hensley and I am a proud volunteer for CHERUBS. My first two children were born with and taken from me by CDH. It wasn't until after our second daughter died that I found CHERUBS. The experience has been truly unbelievable. From instantly connecting to hundreds of people who understood my situation to helping new people affected by this awful defect. Because of CHERUBS I have met people who I now consider some of my greatest friends. I have been able to go to the hospital and support parents of other CDH babies. I have traveled to San Francisco and Boston to learn more about CDH and lend a helping hand to others affected by CDH. I traveled to Washington D.C. and lobbied on Capitol Hill for recognition of our babies.

CHERUBS has over 4400 members worldwide and is in the process of establishing chapters in Europe. With an organization of this size, it is impossible to please everyone and I understand there are probably some who feel they were wronged in some way by CHERUBS. This is regrettable, but rest assured, this is not the case. CHERUBS tries very hard to recognize every member and their children; from birthdays to angelversaries. The work done at CHERUBS is for the benefit of the entire CDH community, not just a select few who work with us. Our work on Capitol Hill does not have CHERUBS in the wording, it is for all CDH victims!

In the past year CHERUBS made $20,000 in donations to CDH Research projects, awarded two $1,000 scholarships, and shipped an immense number of H.O.P.E. (Help Other Parents Expecting) totebags to families of diagnosed or newborn CDH babies to let the family know there is someone who cares! This is only the beginning of what CHERUBS does for the CDH community!

I am beyond proud to call myself a member of CHERUBS and will continue to volunteer with them in any and every way I can. At the end of the day, I know there are people suffering with CDH and its many complications. I will not engage in slander or take the time to be negative toward individuals or other CDH groups, we should all be working for a common goal. I will help and support these people in any way I can and continue to fight for the CDH community!

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Volunteer

Rating: 5

05/01/2011

I lost my first two children to CDH. Unfortunately it wasn't until after our second passed away that I discovered CHERUBS. Since becoming a member of the CHERUBS family I have connected with well over 100 other CDH families. We have shared our laughs, joys, sorrows, fears, and hopes with each other. CHERUBS and its volunteers continually go out of their way to organize fundraisers and other events to raise money for CDH research and to increase CDH awareness altogether. I praise Dawn Williamson for her vision in founding CHERUBS and her continued passion to fight for our babies. Until recently the phrase "CDH Awareness" was copyrighted! Unbelievable. How could another organization who claims to care about critically ill children copyright such a vague statement! CDH and awareness of it belongs to those who have experienced it, not an organization attempting to monopolize grieving parents! CHERUBS also holds an annual conference for CDH families, but unlike other organizations who hold similar events, CHERUBS does NOT charge a fee to attend the conference. Simply pay to get there and cover the cost of the hotel room (which CHERUBS works with the hotel to get a discounted rate). The CHERUBS conference includes doctors and research specialists who are well versed in CDH. CHERUBS is not dedicated solely to research. CHERUBS sponsors awareness events as well to simply tell people about CDH. Awareness campaigns have costs associated with them as do almost any activity. Using funds on these activities is as worth while as any cause. CHERUBS volunteers spend countless hours sending birthday and anniversary reminders to CDH families. They put together CHERUBS Totebags with care packages for CDH families. CHERUBS has hospital kits designed to help educate local hospitals about CDH and make even the medical community aware of a relatively common birth defect. I have met several doctors who were unfamiliar with CDH, so projects such as this are essential. I have found the information contained on CHERUBS website and in their brochures accurate and informative. Having dealt with CDH twice and one of the best respiratory doctors in the country (he patented the oscillating vent) I know a thing or two about CDH. Through CHERUBS website forums and social media networking CHERUBS members are quick to pass along prayer requests for CDH babies and families who are having a difficult time. Also, the members are quick to give a listening ear or offer advice and share experiences with families who are new to having a child afflicted with CDH. All in all Dawn and her loyal army of volunteers do nothing but strive to help CDH babies and their families. Personally, I could not be more greatful to the CHERUBS organization!

Review from Guidestar

2 mom5

mom5 Volunteer

Rating: 5

08/01/2013

Hello my name is Freedom Green and I’m a proud volunteer of CHERUBS. I have been doing so for 10 years. I serve on CHERUBS Parent Advisory Board - ( CPAB ) anyone can reach out to us by sending an e-mail to cpab@cherubs-cdh.org and we are happy to answer everyone’s questions, On-Call for Grieving Families, Facebook Admin. I also raise funds and CDH awareness through running marathons in Maryland for CHERUBS that goes towards the CDH Research fund. I’ve been able to attend 2 CHERUBS marches in DC to celebrate April 19th – Congenital Diaphragmatic Hernia Awareness month and happy to assist members old and new whenever I can. I love working with our large group of volunteer’s who are all ready and willing to help out members in timely manor. Looking forward to another exciting year in 2013 and watching CHERUBS grow to do bigger and better things.

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Volunteer

Rating: 5

05/01/2011

We found CHERUBS 11 years ago when we were expecting our 1st baby. At our 18 week ultrasound we were told our baby girl had CDH. We had never heard of this before. Our OB at the time told us to go see a high risk OB to get more answers as their office didn't know to much about CDH either. We went right home hit the internet and found CHERUBS. I can't say enough great things about this group of people who I have been connected with. Wow!!!! Dawn gives it her all & then some for so many people. I feel like as a group of CDH parents I have seen so many wonderful things happen to help spread the word about CDH. I'm proud to be able to volunteer for CHERUBS and look forward to doing what I can to help raise awarness & help other families who are just finding out for the 1st time about CDH. We lost our daughter, but my family will do all we can to help CHERUBS. Thank you Dawn for connecting us ALL over the internet. I look forward to the day their is more research $$$$ given to hospitals to help find the cause/cure.

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CDHmom Volunteer

Rating: 5

08/01/2013

Hello My name is Melissa Larrison and I am the fundraising coordinator as well as being on the CHERUBS Parent Advisory Board. We try our very best to support all parents and family members who come our way needing support. I found CHERUBS in 2008 and they have become my family. Anytime I'm down or needing a friend someone is there to help you. We are run by a multitude of wonderful volunteers not one person. Together, with all the groups in the ACDHO, are helping to fund CDH research. I personally lobbied in Washington D.C. for more funding for CDH research and we have come a long way, but there is still lots left to do. Lets all work together for this common goal.

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Board Member

Rating: 5

04/03/2013

I have been involved with Cherubs for four years and they have become such a family to me. It started off just as a member and felt nothing but support and kindness throughout the charity. Then I started to volunteer to help me work through my grief and support others. The services Cherubs offers are nothing but the best. They make you feel included and loved, no matter what state you live in. Finally I was asked to be a board member. I have never been so honored in my life. I enjoy working with everyone from the top to all our members all over the US an abroad. Cherubs has changed my life for the better.

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Lisa T. Volunteer

Rating: 5

08/01/2013

I am the Louisiana state rep. When my son was born 10 years ago Cherubs was the only place to go for support. It was Dawn and a loving group of people that helped us through the worst. The same people whp rejoiced with us. We are blessed to be a part of the wonderful organization.
As far as donations go if you are looking for a thank you then you are giving for the wrong purpose. I don't give for acknowledgement fir a good deed I give to help the charity I love._I've always recieved a thank you by the way.

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Volunteer

Rating: 5

08/09/2012

I am the State Rep for Louisiana. I started volunteering with Cherubs early this year (2012) because I believe in the mission we are on, raising awareness and advocating for research for infants born with CDH and supporting the families that are struck with this devastating condition. My son was born with CDH in 2002 and the only place to turn to at the time was Cherubs. I was welcomed with so much love and support from them that I wanted to be a part. Whenever I have a CDH related question they are the first place I turn to. Whenever we find a new challenge Cherubs is who I have turned to. In joy and fear I have always been able to turn to the fantastic people at Cherubs.

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JSchmaltz Volunteer

Rating: 5

08/01/2013

I found out about CDH and CHERUBS about 7 years ago. In those 7 years, I have seen this charity grow from a small informational group, to an international charity. CHERUBS is a charity without borders and they continue to grow, raising awareness one step at a time. I finally decided to become a volunteer when I saw that I could personally make a difference and do something that I enjoy, helping in anyway shape or form. CHERUBS is more than a charity it is an extended family.

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Jenna12 General Member of the Public

Rating: 5

08/01/2013

When our first daughter Chloe was diagnosed with CDH in utero at our 20 week scan, we felt lost and alone. We had no idea what CDH was, didn't know a soul who had been affected by CDH. Through the wonders of google search I found Cherubs, and boy am I glad I did.

Dawn, Cherubs founder, has been a huge support for us ever since. She supported us through our pregnancy, delivery, through losing out previous daughter and she has continued to do so ever since. We since established our own foundation which she has supported and so for any body to believe Cherubs is the only charity she supports is rediculous. In my opinion, without Cherubs there would have been no support for us, Cherubs started it all and continues to do an amazing job.

Through Cherubs I have met lots of wonderful people (many I now consider to be good friends) who have been affected by CDH. I love Cherubs, Dawn and Cherubs will always hold a special place in my heart.

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angelaknight80 General Member of the Public

Rating: 4

08/01/2013

In 2006 we had a baby boy born undiagnosed with LCDH, I had never heard of it and felt so very alone. My son Jordan passed away after 21 days on ECMO, I found CHERUBS after doing some online searching and it was a life saver. I had another son in 2007 also born with LCDH, Caleb and he too was not meant for this earth, I received so much support even if it was just over the internet. I was so broken after having one, but two? I must be the only one? No, I have found that there are many families that went through the same heartache that my family and I have. I would not have made so many friends, so many "partners in pain" if it was not for CHERUBS. I am saddened by the reviews that state how they feel about Dawn, I have never had any run ins with her and if I did it would not change the way I feel about CHERUBS. It is not called "DAWN" for a reason! CHERUBS is an organization that is made up of families of survivers and non, of researchers, volunteers and just amazing people who want to bring about awareness! So my review on CHERUBS is that if you have ever been through this horrible heartbreak or you know someone who has, or you just want to bring awareness to CDH then this is a wonderful group to be a part of. Please I ask one thing, I have pictures of my sons on CHERUBS and they do wonderful things in my sons memory...if you have a problem with Dawn take it elsewhere, please don't slander this Organization that has done so many wonderful things for CDH families

1 CDHmom2

CDHmom2 Client Served

Rating: 5

08/01/2013

This charity has been a miracle to my family since before my baby was even born. They have been kind and supportive. If it was not for this charity our children would not have any awareness or support. I have been in several CDH groups and CHERUBS is the only one that does not attack others and it is the only one that seems to be doing anything to really help. I am proud to a part of this group. Soon as my baby is home I will volunteer and do anything I can to give back. Thank you Dawn and everyone. God bless.

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Christina19 Board Member

Rating: 5

08/01/2013

My name is Christina. I am on the CHERUBS Parent Advisory Board. I will not throughout any of my comments, emails, etc. Bash, Downgrade, Commit Libel or Slander directed towards ANY CDH Organization. I believe it truly takes a heart filled with anger and hatred to do something like that. I choose not to posses those traits and make the conscience decision to Believe in the Positive and Hope that one day All CDH Organizations will Work Together for THE COMMON CAUSE THAT BROUGHT US ALL HERE IN THE FIRST PLACE!!!!! Do you Remember how CDH was brought into your life, Do you remember why you chose to Volunteer to help raise Awareness of CDH and Funds for Research for CDH?? Instead of the insults I am seeing on this page (which are making me ill), why don't we try lifting each other up with Positive aspects of the Organizations. We are here for one purpose CDH and our children!!! Who Cares what Organization your with, Who cares WHO you support. JUST FOCUS ON SUPPORTING CDH RESEARCH AND AWARENESS!!!!!!! I found CHERUBS while doing Research on CDH, which like many of you, I had never heard of. I was supplied with a Plethora of information and support from the Forums, Before, during and After my Son was born. There were days I felt so alone in that NICU, I knew all I had to do was turn on my computer and go to those Forums and I could talk to someone else that was going through that too! After we got home and settled into a routine (the CDH kid routine) I decided I wanted to be there for those Mom's in my State, I never wanted any of them to feel alone or just feel the darkness creep up on them in that cave of a NICU room. I Chose to Support the Organization that was there for me, I stand by that decision to this day. I have met so many wonderful people throughout this time, many support several different CDH Orgs, The one thing these PARENTS that support several different orgs are doing is SUPPORTING CDH RESEARCH AND AWARENESS and in return receiving support from all different aspects of organizations. I sometimes wish I didn't know how all these organizations treat each other and could look at all Orgs with innocent eyes. All I know is this, CHERUBS was and Is there for me. I SUPPORT CDH AWARENESS AND RESEARCH and everyday, that is what CHERUBS does as well. Thank you for hearing me out and lets just try and be nice and respect each other.

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CHERUBS 08/01/2013

Thank you for all you do for our charity and families affected by CDH, Christina! We are so very, very proud of how compassionate and professional all of our volunteers are. CDH families deserve nothing less!

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Volunteer

Rating: 5

05/04/2012

I am a Mother to a 4 year old CDH Warrior. I was devistated by a disease I had never heard of at my 20 week ultrasound. For two weeks I was in a deep dark depression and as I lay in bed I felt my Son kicking me from within. I thought to myself, this is a Fighter, I had better follow suit. I logged into my computer and quickly found CHERUBS. I have to admit, I was a voyer for a bit of time. I celebrated the life of the warriors and sympathized with the families that lost their babies to this disease. CHERUBS gave me hope when I had none, an ear to listen when I needed one, and a hug when I least expected one. In honor of my Son and to help other families on their CDH journey, I have become State Rep of Wa. I hope one day, with enough research bills passed, we will release balloons in celebration of LIFE after CDH.

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Aubin B. General Member of the Public

Rating: 1

07/31/2013

My son was born with CDH in 2011. Our hospital gave us information on both CHERUBS and Breath Of Hope. I never once felt like I got support from CHERUBS. When I started a page for my son Dawn started bashing me. I felt it was petty and self serving on her part. My goal at the time had been to spread awareness and give emotional support to other families affected by CDH. After her childish behavior, I with drew from CHERUBS and no longer would post about them or tell my friends and family to donate to them. I felt it better that way. A year later Dawn started bashing me again. She bashed my CDH awareness page and my personal Boutique because of their logos and names. She told everyone on CHERUBS facebook page that I was trying to profit off CHERUBS name. I couldn't believe how childish she was being. She out right attacked me. Dawn condemns all other CDH organizations that are not attacked to CHERUBS. She condemns those who use a cherub as their logo or the word cherub in any form. Never have any of my logo's looked ANYTHING like theirs, I wouldn't want anyone to mistake anything I do as associated with CHERUBS, an "non-profit" with a president who attack you if your not with her. The board of directors needs to monitor their president more. Its public record that she doesn't follow guidelines in following the proper paperwork. Who wants to support a charity where the president pays herself more than she donates to Research or families. Go to Guidestar.org and you can view CHERUBS IRS paperwork for yourself. And in researching I came along this little blog http://deceitfulnessofcherubs.blogspot.com/search/label/Dawn%20Williamson Shame on you Dawn for attacking people. Just because you don't have good intentions doesn't mean you have to try and discredit those who actually try to make a difference.

**I am NOT a chapter president. Paperwork for becoming a chapter president hasn't even been filed. Officially I am just a general member of BOH and supporter of their work. If Dawn bothered to do her homework she would be able to tell via IRS and the state of CA that there is no CA chapter as of yet. I fully support BOH. They are mature about their workings and don't try and conceal the true fact about their charity. They are there for parents who need them, like me, when no one else is.

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CHERUBS 08/01/2013

Dear Chapter President of Breath of Hope,

Thank you for your comments, but we respectfully disagree with the entirety of your review. Please forward any proof of any public or private bashing of you, your charity, your personal business or your name to cpab@cherubs-cdh.org because we are unable to find one ounce of proof of your accusations. As a charity which has invested 18 years in our name and logo, we simply pointed out that any "cherub" items to do with CDH would not be official to our charity unless through our sites. Your company and name were not mentioned. Yet you have repeatedly posted publicly professional and public attacks on our charity and Dawn. Such behavior is not professional and in no way helps the CDH community.

We do appreciate you taking the time to go out of your way to post on our charity's Great NonProfits page.

Our Board members have been notified of your latest public accusations and our lawyer, Lauren Campbell, or our CHERUBS Parent Advisory Board would be happy to speak with you regarding your questions, concerns and other issues. You can reach them at cpab@cherubs-cdh.org

As always, thank you for being professional and working towards a positive, productive CDH Community.

Sincerely, Dawn Williamson, CHERUBS President and Founder var sc_project=9167094; var sc_invisible=1; var sc_security="4a5f7dad"; var scJsHost = (("https:" == document.location.protocol) ? "https://secure." : "http://www."); document.write("");

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Heidi20 Donor

Rating: 1

07/30/2013

When a donation is given an acknowledgement is usually sent. Cherubs never sends a thank you. My mom's church sent a donation in my daughters name and never received a note of thanks. Same thing happened to me and several of my friends. Cherubs PAYS its CEO nearly $40.000 a year. Dawn should have plenty of time to send simple thank you notes. SHAME ON CHERUBS BOARD OF DIRECTORS FOR NOT MONITORING THEIR CEO!

First off thank you so much for threatening yet again with your lawyers. It seems you do threaten people with them when you are backed into corners. In FACT my mothers church DID donate to your organization and when I recently visited her house a couple of them were visiting. They ASKED me why they NEVER got an acknowledgement for the donation they made. I then informed them to NEVER donate to you again because it just goes to pay your salary Dawn. They were SHOCKED that you drew such a large salary and agreed CHERUBS would never again get a donation from them! I can in FACT get a COPY of the CHECK sent to Cherubs and post it online if you wish. So be careful who you call a liar.

Second I am NOT a volunteer at Breath of Hope. I have stated that I am a turquoise kool-aid advocate for Breath of Hope as you have referred to me. I just figured why not announce it to everyone on Facebook. Since you have me blocked on Facebook I wonder how you trolled to discover that out. Oh I know you used a vulnerable CDH parent to find out for you!

Third a person has to wonder why all the sudden Breath of Hope was getting false reviews on GreatNonProfits. Could the answer be that you have been pushing for reviews on your Cherubs facebook page???? Coincidence? I think NOT! You better hurry and delete them before people realize I'm right! Also why are all the negative reviews on BOH left anonymously? Probably because you wrote them and are a coward not to leave your name. As you may notice bad reviews left for Cherubs are from real people who leave real names.

Also check out this website: http://deceitfulnessofcherubs.blogspot.com/
Dawn is so deceitful! This site has proof of the drama Dawn continues to create and it also shows how she is deceitful with her finances.

Comments ( 1 )

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CHERUBS 08/01/2013

Dear Volunteer/Mouthpiece for Breath of Hope,

Thank you for your comments, but we respectfully disagree with the entirety of your review.

Your "facts" are far from true without any proof are merely slander to further your own motives and your own charity. It's neither constructive nor supportive of the CDH community to so aggressively, repeatedly, dishonestly and callously attack a charity and those who work there. It is not helpful to the CDH community to be competitive and malicious towards another charity. You have never and will never see CHERUBS or anyone at our charity behave in such a way publicly or privately yet you seem to do so on a weekly and sometimes daily basis. This obsession with us has to stop. It only hurts the entire CDH community and it is not professional.

We do not post reviews on other charity pages, nor do we bash other charities on ours. If you have negative reviews, that has nothing to do with us. We are professional and focused on our own charity work instead of any negativity. There was no need to bring our charity into your issues with others. People are allowed their opinions and reviews and in the future, we hope that if you receive a negative review that you can be more professional and compassionate towards the families who write the reviews. Such behavior as attacking grieving families, slandering charities to try to prevent donations and personally attacking others only makes the entire CDH community look bad. We are here to help children, not act like children.

To set the record straight, Dawn does not make that amount of money or even close to that amount. After 15 years of volunteering she gets a small paycheck to work 60+ hours a week for the charity. She deserves much more as her salary is not commiserate with an executive at a non-profit with her experience. Many at your charity have had paid positions at non-profits so it's very confusing as to why you so object to Dawn having a salary when she works very hard and does the work of 3 full time people and currently without any office help. Every large, successful charity has paid employees that run operations. Please rest assured that if your charity reaches the same status as ours that no one from CHERUBS will harass, question or publicly try to ridicule anyone there who earns a living. We should hope that others would be happy that our CDH charity is so successful instead of resentful because at the end of the day, the families are getting more help and that should be what is most important.

We would also like to make clear that our 3 Boards are very active. As you can see from their reviews here, work with families, our newsletter postings, newspaper and tv interviews, etc. It takes a team to run CHERUBS and we do that well. We also have an attorney and an accountant on Board and your accusations are not only untrue, but impossible. CHERUBS is a Gold Level charity, audited annually, is very successful and highly respected. If any one of your accusations were true, our charity would not be running. We hope that any intelligent person would realize this and see how transparent your motives are in posting such untruths. We hope that any CDH parent who has read your blogs and other libelous postings can see that your motives are to harm our charity and Dawn.

We are sorry for whatever issues you have or whatever goals you can't seem to accomplish without trying to tear us down... but we ask, yet again... please leave our charity alone and let us continue to do our good and successful work at helping CDH families. We suggest that you find other more positive things to occupy your time with and to try to help CDH families as well.

Again, there is no record of a donation from anyone in honor of your daughter. If there had been, of course you would have received an acknowledgement. Perhaps they made donations elsewhere? It makes no sense that they would donate to a charity that you so adamantly do not support.

We do appreciate you taking the time to go out of your way to post on our charity's Great NonProfits page and all the time and energy you spend towards our charity.

Our Board members have been notified of your latest public accusations and our lawyer, Lauren Campbell, or our CHERUBS Parent Advisory Board would be happy to speak with you regarding your questions, concerns and other issues. You can reach them at cpab@cherubs-cdh.org

As always, we extend the olive branch yet again and hope for a professional, positive, productive CDH Community.

Sincerely, CHERUBS var sc_project=9167094; var sc_invisible=1; var sc_security="4a5f7dad"; var scJsHost = (("https:" == document.location.protocol) ? "https://secure." : "http://www."); document.write("");

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General Member of the Public

Rating: 2

05/03/2012

My daughter was born with CDH in 2006. Immediately I wanted to get as much information as possible so I went to the internet. CHERUBS is the organization that first came up. I was able to get information from the website about CDH that was great. However I never was acknowledged by Dawn the founder or anyone else. Desperate for more information I sent the "requested" $20 membership fee. I never did receive acknowledgement from CHERUBS. I later learned the founder was going through some "life" struggles and abandoned her website. Perhaps she could have asked someone to fill in for her on her website but she did not(she does however continue to draw funds from Cherubs for expenses during this time). I was disappointed and let down by the organization during the hardest time in my life but I'm aware that life does go on. I found my support elsewhere.

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CHERUBS 05/03/2012

CHERUBS has never charged a membership fee in 17 years or any other fees. As any other charity, we do ask for voluntary donations but it is never required or requested in exchange for service. We are sorry you misunderstood and wish you would have attempted to clear up any misunderstanding at the time rather than post here 6 years later. We are sorry you felt unsupported. The forums are there for 24/7 support, on-call volunteers, State Representatives and our Board are always available for support and information. As with any organization, there is always more than 1 person to help and we post that on our site and forums. If we can do anything else for you, please let us know.

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Melanie P. Volunteer

Rating: 5

07/29/2013

I'm from England and when my son was born with CDH and we looked for help cherubs was there to offer us support and still gives us this 12 years down the line. I don't know how we would have found the information and understanding if it wasn't for cherubs

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Volunteer

Rating: 5

04/04/2013

I'm a co-rep in the uk for cherubs. My son was born in 2001 with left sided CDH. Cherubs helped us a great deal. We never felt alone with our cherubs family x

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Rochelle M. Volunteer

Rating: 5

07/27/2013

When our Jayden was diagnosed with CDH we looked all over for support and found CHERUBS just before delivery. Although we had great family support there was so much they could not relate to that our CHERUBS family could.

When we lost Jayden to CDH they again stepped up to the plate with comfort & support that you could feel across the miles. We are proud to part such a great group of folks and are looking forward to many more years supporting this GREAT organization!

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momto6 Client Served

Rating: 5

07/27/2013

Cherubs has been amazing over the last 14 years. My son was diagnosed before he was born and I had no clue what to expect. They were there for me, giving me information I couldn't find anywhere else. My son has been through many surgeries over the years and Dawn and other parents where there with me or just a phone call away.

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Client Served

Rating: 5

04/03/2013

I found Cherubs when my son was diagnosed with CDH when I was 19 weeks pregnant. I came straight home and called them and got some answers to what CDH actually was and how it affected my child. My child is now 13 years old and I couldn't have made it through all of surgeries , scares, and diagnosis without them!!

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Cara11 Client Served

Rating: 5

07/27/2013

CHERUBS are a wonderful organisation, i live in the UK and they have been a huge support to me, before i found CHERUBS i had no one who understood my journey with CDH, it is like a huge family ,always someone around to talk to, i'd be lost without them and the many friends i have made

Gemma V. Client Served

Rating: 5

07/27/2013

Outstanding service and support from this charity. Always someone there to help, support, answer questions. We have just moved and Cherubs helped me find doctors and other cdh families. I have no criticism whatsover for this charity just admiration and appreciation!

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Client Served

Rating: 5

04/03/2013

CHERUBS has supported me whilst living in Belgium and as we prepare to move again CHERuBS has helped us to find specialists and hospitals in the UAE. The support i have received from CHERUBS is immense and goes on way past diagnosis and initial support. The friends I have made, the support I have received and the advice is all thanks to CHERUBS :-)

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cdhmama93 General Member of the Public

Rating: 1

07/27/2013

When I found out my son was going to be born with CDH and I looked it up I also found this organization. I tried to apply for their forums and had to wait nearly a whole month to be accepted. then when I was trying to get cnn to do a story on CDH and use my son they tried to take over the comments for their own thing and never got anywhere. Then Dawn kept saying my mother-n-law was my sons mom after I told her I was his mom 3 times. I didnt really feel support. They also like to attack all other organizations when really they need to realize that its not about their selfish wants ITS ABOUT THE BABIES!!! They kick people out and get mad if people have fundraisers and dont give the money to CHERUBS.

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CHERUBS 07/29/2013

We are sorry that you had trouble with the forums and yes, you were called by the wrong name but were apologized to and I am sincerely sorry. It was an honest mistake, not one meant to hurt you or make you feel unwelcome. I am human and make mistakes.

We tried to help promote your CNN post and fully supported you in your quest to raise awareness. When you misunderstood our support and got offended, we backed off so to not upset you.

Please question where you hear false rumors and gossip and what others have to gain by telling you such things. Because it is simply not true. There is no attacking from our end... please show us what you mean as that is not how our charity operates. You will not find anything on or off-line that our charity is involved in attacking anyone or anything. We have a record of standing up against those who do. Quite honestly, we don't even have time for such behavior. If you have seen our activities, we are extremely busy doing good for CDH families with a multitude of projects. All of our time is spent providing services for CDH support, research and awareness and that is proven by all the accomplishments that we are steadily achieving. There is just not enough hours in the day for any type of negativity or silliness.

Our charity works with any person and other charity who wants to help CDH families in a positive, productive, non-competitive environment and this has been proven in our work for 18 years, membership in ACDHO and helping several other charities to get started. There can never be enough support or awareness or funding for these children no matter who is doing it.

We wish you all the best in the world. If there is anything we can do for you or if you have any further questions or concerns please do not hesitate CHERUBS Parent Advisory Board at cpab@cherubs-cdh.org

5

Grandpop General Member of the Public

Rating: 5

07/26/2013

We lost my grandson to congenital diaphragmatic hernia last week. I am on the board of a trust that will be making a donation to your foundation. I am very impressed with your work and professionalism and wish you continued success.

Comments ( 1 )

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CHERUBS 07/29/2013

Thank you very much for your kind words. If there is anything at all that our charity can do for your family, please do not hesitate to contact me directly.

Dawn Williamson, President & Founder

919-610-0129, dawn.williamson@cdhsupport.org

3

charleys mummy in uk x Volunteer

Rating: 5

07/25/2013

I live in the UK and chose to volunteer for Cherubs after receiving such wonderful support after the birth of my daughter with CDH. The previous Rep in the UK started her own charity up so I wanted to continue the good work that Cherubs do in the UK. It truly feels like a family. The fact everyone understands exactly the journey you are on helps enormously . Cherubs continue to give us support and it has been a journey that has had many ups and downs . Only a Cherubs member can explain to you how much they are needed and. Of the wonderful work they do in supporting families and Raising Awareness of CDH. Not just in 1 country but all over the world.

Previous Stories
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Volunteer

Rating: 5

04/04/2013

I've been a volunteer Rep for Cherubs for over 12 mths now. My daughter is a CDH "survivor" despite her surviving Cdh she has endured many struggles and continues to do so. The reason I volunteer for this wonderful Unique charity is because they supported us not only during our pregnancy but have continued to support us continuously. They are unique because as many have already said . Once you become a Cherubs member you enter into a family unit. It doesn't matter what depth of support you need or how much you donate every member is equally supported . I know what I have to offer is valued , I know the money I raise is used to help families on their Cdh journey and in research to help so in future there is hope that no other family endure this horrible condition . I'm about to jump out of a plane to raise much needed awareness & funds for Cdh. I've met other members , our siblings have met and are now life long friends too , with other children who understand their journey. There is no other like them . I'm not in the same country as their Head Quarters yet I feel so close to them . Thank you Cherubs & all members for all you do :) united we will conquer

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4

PDonahoeMD Professional with expertise in this field

Rating: 5

07/25/2013

As the director of the Pediatric Surgical Research Laboratories at Massachusetts General Hospital (MGH) (Boston, MA) and the Principal Investigator of a research study entitled, Gene Mutations and Rescue in Human Diaphragmatic Hernia, (based at MGH and Boston Children’s Hospital) that aims to understand better the genetic causes of congenital diaphragmatic hernia and pulmonary hypoplasia, our group has been honored to work with the CHERUBS association for over 6 years. CHERUBS has provided enormous support to many of our local New England families, as well as to those we have recruited both nationally and internationally. We look forward to presenting our research and interacting with new and returning families at the annual CHERUBS conferences. Dawn Williamson’s professionalism in initiating and sheparding this dedicated group and their support of our genetic research has made an enormous impact on our efforts towards devising novel treatments for CDH and associated abnormalities of lung development.

CDHMaMa Client Served

Rating: 5

05/21/2013

I learned about CHERUBS in 2012, when we found out our unborn son (who is now almost 10 months and kicking CDH booty) had CDH. CHERUBS is amazing and a great support system.

2

deanncc Volunteer

Rating: 5

04/04/2013

2 of my 3 children were born with CDH, Cherubs has been a great place for me to find support, information and just talk with others who have been through what we have. They do amazing things to help educate people on CDH and families affected by it.

Previous Stories
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Volunteer

Rating: 5

04/30/2011

10 yrs ago when the doctors told us our son Claude, would be born with CDH, we were clueless. We found CHERUBS and what a great place for support. 5 1/2 yrs later when Celie was born we found out she had CDH as well. I agian found strength and support with them. CHERUBS does so much for the families that are lost and dont know where to turn. I am thankful everyday I found this group and that it is here for other families as they go through this journey.

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Karla6 Volunteer

Rating: 5

04/03/2013

I have been involved with CHERUBS since my son was born in 2008. I did not know he was going to born with CDH and knew nothing about the birth defect. Too afraid to look for information while my son was in NICU, I learned everything I needed and wanted to know about my son's condition from the experienced parents at CHERUBS. Everyone is so helpful and friendly. CDH can be a lonely place and it's so comforting to know that I have a family to support me at CHERUBS. I have been able to connect with several families in person over the years as well. Amazing!

3

Nicolle C. Volunteer

Rating: 5

04/03/2013

CHERUBS has helped me in so many ways. I didn't find them until after my son passed away, but when I did I was able to work through my grief with others in my position.

Previous Stories
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Volunteer

Rating: 5

05/03/2012

This charity has been very helpful to many across the world! I am proud to help those who are going though what I went through.

3

justamom7 Client Served

Rating: 5

04/03/2013

I want to give CHERUBS a HUGE shout out for all that they have been doing. Ever since I became a part of this heartfelt charity, I have seen CHERUBS grow by leaps and bounds. CHERUBS is like a FAMILY everyone treats you like you mean something to them, it does not matter HOW CDH has affected you. CHERUBS DOES NOT stand in front of you, or stand behind you, CHERUBS STANDS next you, holding your hand, giving a hug, sending positive thoughts, or praying for you. CHERUBS does not just go away if you lost your child to CDH or if your child is a survivor, they are there for LIFE. I am very excited to be a part of this AWESOME group as CHERUBS raises CDH awareness for the MONTH OF APRIL, but all year long.

Previous Stories

Client Served

Rating: 5

06/20/2012

CHERUBS, what can I say about them? The group is one that takes the extra step to make sure you are taken care of. My life changed with the announcement of my baby having CDH. If you want the most update information about CDH contact CHERUBS. The entire group from the workers, volunteers, to support groups, and all those that have been touched by CHERUBS, is wonderful. Without any of these people, I would had a nervous breakdown. My loss of a child to CDH is not the only one, I have a group of friends that I found through CHERUBS, that I call my family. Thank you CHERUBS for all that you do, for everyone.

5

ziggazihaa General Member of the Public

Rating: 1

03/28/2013

How come this organization does not transmit to everyone how much its president takes out of the organization in monetary terms. In 2010 she took $4500.00 in wages or COMPENSATION as it is on the IRS form in 2011 she took $35,000 IN COMPENSATION yet when expenses for 2011 are put on its facebook page ther is NO mention of her $35,000 payment to her and in fact the figures quoted on the facebook donnot corespond with the IRS form.Why is that is she ASHAMED she is taking so much out if not she should be

Review from Guidestar

Amanda66 Client Served

Rating: 5

12/19/2012

I first heard about CDH when I was 23 weeks pregnant and my unborn son was diagnosed. I came across Cherubs website and it changed my life. I met so many warmhearted people who were also affected by CDH in one way or another. After we lost him shortly after birth due to complications from CDH, the Cherubs family was there to support my family. I am truly blessed to be part of this organization!

1

Jane42 Client Served

Rating: 5

11/04/2012

My granddaughter was born with CDH and joined the angels at three days old. Cherubs helped my daughter and her partner throughout her pregnancy and in the very difficult time afterwards. Without this organisation, parents and families would have to walk this heartbreaking path alone. Thank god for Cherubs.

Shane K. Client Served

Rating: 5

10/16/2012

My son was diagnosed with CDH in utero at 27 weeks. CHERUBS was a great source of information and support for my family and I, and with CHERUBS' help, we were able to navigate our cdh journey. Cherubs helps raise awareness and support, and hopefully a cause and cure soon. Keep it up Cherubs!

Debbye P. Client Served

Rating: 5

08/30/2012

Cherubs, The Association of Congenital Diaphragmatic Hernia Research, helped me more than I can say during what was the hardest time of my life. My unborn baby was diagnosed with CDH, and the resources and personal communication through CHERUBS really saved me from dispair and loneliness asking nothin in return. I will be forever in debt to this non-profit and hope to give back through volunteering at least a portion of what I have received. This is the BEST source for knowledge and support for all families affected by CDH.

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2005duke Volunteer

Rating: 5

08/16/2012

My Grandson was born with a right sided CDH . Cameron was given a 10% chance for survival. He endured ECMO and 4 months in the hospital lots of ups and downs. Cherubs has been my life support cameron is 7 but still has complications from CDH. I personally have been very happy with all the support we have recieved from Cherubs. I believe that if the cause is ever found for CDH it will be because of the hard work of Cherubs.

1

Candie K. Client Served

Rating: 5

08/15/2012

Cherubs is an amazing non-profit where you meet many wonderful people and learn a wealth of information on CDH. I first learned of Cherubs from my son't would be surgeon; he told me that it would be a great place for support and could help answer other questions I may have. I've met so many supporting people through my journey with CDH through Cherubs. I am glad to have a place I can talk to other parents; even now after we lost our son I sitll find myself involved and there praying and supporting other families battling CDH. Thanks Cherubs!

mexicalislim Volunteer

Rating: 5

08/15/2012

Our unborn son was diagnosed on 3/15/2012. At first we were angry, sad, confused. The medical staff wasn't that helpful. We had to result to our own investigation. Doing so we found Cheubs. We received an email informing us of our state rep. We then went to a conference held in Burlingme CA. We met cherubs president Dawn and other families who felt what we felt and who have mde it through this difficult journey we have ahead. Cherubs opened their arms and accepted us as family. I have learned more from cherubs than the medical staff we are dealing with. Although our Cherub hasn't been born we receive messages with daily support. They continually ask if we need anything. It is difficult to find people who offer help without looking for something in return. I thank Yaweh we found Cherubs. I don't know how anyone did it without their huge support group. Thank you Cherubs for all you do.

Vanessa L. Donor

Rating: 5

08/14/2012

My son was born with CDH and we didnt know it until 3 weeks later when we ended up in the ER. I found CHERUBS months later, and it has been an invaluable resource for me as I watch my son grow stronger every day. Thank you CHERUBS for being so great!!! I now donate about $10 a month and try to send in items for the CDH totebags when I can.

Beatrice O. Client Served

Rating: 5

08/13/2012

Excellent communication & efforts towards getting needed research

Tabbatha H. Client Served

Rating: 5

08/13/2012

Cherubs helped me to understand that I was not the only one out there going through a CDH experience. All of the Dr's and hospitals I was treated at had never heard, made me feel like a black sheep. When I came across CHERUBS everyone understood my story, and were there through my grieving process. Amazing charity!!

danielnshanon Donor

Rating: 5

08/13/2012

So far my experience with Cherubs has been wonderful, Dawn, the founder, has such love for all these children and wants to do all she can to help every family. Now with the indroduction of the bill in the senate she has rallied all the CDH community to stand behind it and get more reseach dollars for the babies. I have never seen it be about her but always about the babies and I know that even though they are a small charity they will continue to do GREAT things!!

1

Maggie21 General Member of the Public

Rating: 5

08/13/2012

I have adaughter with cdh and cherubs was there to teach us about the condition, offer us support and even sent us a car package. Without cherubs dealing with our daughters cndition would have been much harder.

Raul C. Client Served

Rating: 5

08/11/2012

When I first learned that our child had been diagnosed with CDH we were at a loss in finding resources for the treatment and general knowledge in trying to prepare for his birth. CHERUBS volunteers were instrumental in preparing us with information and emotional support as we tried ago cope with our sons condition. The general public is as of yet still underinformed about this condition and CHERUBS is slowly but surely changing that. Thank you!

Kelly E. Client Served

Rating: 5

08/10/2012

When I found out my unborn daughter was diagnosed with CDH, no one understood what I was going through. Except the other parents on the Cherubs message board. By talking with them I gathered information that was essential to treating my child. I discovered more treatment options and support; ultimately they helped me choose where I came for treatment. My daughter is still in the NICU but expected to make a full recovery and lead a normal life. I have Cherubs in part to thank!

1

Anita C. Client Served

Rating: 5

08/10/2012

beecause of cherubs I recieved the only info I was to get on CDH while pregnant and during the time of my sons nicu stay. They have helped to access much needed info so i could make the right choices in my sons care. They were supportive to me in finding help to a friend of mine when her undiagnoseed daughter died due to CDH. they make me, and this is thee most important thing of all, feel like I am not alone in all of my struggles.

Earon S. General Member of the Public

Rating: 5

08/10/2012

When I was 5 months pregnant with twins, I was told one of them had a cogential diaphramatic hernia. The physicians gave her a 20% chance of surviving and encouraged me to get an abortion because she would probably have several birth defects and the other twin was at risk for premature delivery. My husband and I had been told we could not have children so abortion was not an option. I turned to Cherubs to learn more about the condition and found support from others who had babies with CDH. We were not sure what we would face in the months to come but Cherubs gave us hope. This organization provided us with the latest research data and connected us with other families close to our area. We had never heard of CDH and we were so scared. I cannot thank Cherubs enough for helping us through the most difficult time of our life. They helped us find specialists in our state and understand the medical procedures that would be required when our daughter was born. She had surgery at 2 days old and again at 4 years old. Cherubs has been my only trusted resource over the years and even today I still turn to the organization to keep up with the latest research. I would highly recommend Cherubs to any family that learns their baby has CDH. It is a long hard road but you will not be alone.

1

bentleesmom01 General Member of the Public

Rating: 5

08/10/2012

Our daughter was born with CDH and its amazing to have an organization that is all about CDH, finding more information on it, and some where you can talk to parents that have been through the same things you have been through. its wonderful to have such amazing people out there that want to know and find answers as much as we do!! THANK YOU CHERUBS YOU ROCK!

1

Debbie44 Client Served

Rating: 5

08/10/2012

Cherubs helped my family tremendously! My daughter gave birth to a CDH baby at 34 weeks. Chrubs had already sent her a tote bag full of supplies and an invaluable book. The day of my granddaughter's surgery we had the book out and were reading it and looking at the picutres that helped us understand what was going on. Danielle and her husband had already made connections with other parents through Cherubs and were so much more informed and prepared because of the supoort and knowledge they gained from those wonderful families. Cherubs is more than a charity, it is a network of multiple support in so many areas for the parents, grandparents, and siblings. They tirelessly raise awaremess and funds in hope of someday finding the reason for CDH and preventing it. They have worked for years with our representatives in Washington to get funding for research. I cannot say enough about this organization and the work they do.

1

JoanaDennis R. Client Served

Rating: 5

08/10/2012

One year ago, I wasn’t sure if my newborn son Samuel Reis would be alive long enough to leave the hospital and go home with our family.
During my 35th week of pregnancy, I found out that my unborn child had a congenital diaphragmatic hernia, a condition where the diaphragm doesn’t fully form, resulting in the abdominal organs lifting into the chest cavity and preventing proper lung growth. I was devastated and lost, as I knew nothing about this condition. CHERUBS — the Congenital Diaphragmatic Hernia Public Awareness and Support Association was there to provide me with information about CDH and connect me with other CDH families.

1

Survivor_Father Volunteer

Rating: 5

08/10/2012

Since my son is a CDH suvivor, I have become an active volunteer to help others affected by this birth defect. As a volunteer and member, I have experienced firsthand all the great things CHERUBS does for families impacted by CDH. From support, to financial assistance, to fighting to raise awareness and funds for research, CHERUBS really does a lot with a very limited budget.

Courtney D. General Member of the Public

Rating: 4

07/13/2012

I myself am a CDH survivor. When I was fourteen I met a little baby with CDH. The child's aunt had connected with my Mom via CHERUBS while looking for information for her pregnant sister. The day I had been admitted to the ICU for my breathing, the women's nephew had been born and was put into the same ICU. For the two months I was in the hospital I would visit to see how he was doing. His parents told me they enjoyed seeing me and that I gave them hope. Unfortunately, a month or so after I got out the hospital he passed away. But he didn't pass without a fight. Until that point I had never knowingly met another cherub, and if it hadn't been for CHERUBS I may not have met him.

Annette L. General Member of the Public

Rating: 4

06/20/2012

I have a Survivor child that was born in 1987 with CDH. I had trouble finding information about CDH. I could have used all the great help Cherubs provides to families. thanks for this organization....I am trying to help spread the awareness about CDH.

Shelly M. Volunteer

Rating: 5

06/20/2012

28 months ago we welcomed our Cherub Jayden into the world, and 27 months ago we buried him.

He crashed at birth but fought back, and kept fighting back for 23 days until he could fight no more.

For my daughter the days are long & lonely. There is an emptiness in her heart nothing can fill, and the chances for another baby are so small they are almost nil. She will forever miss her son...

For me as his grandma, it feels like a piece of me is missing, that I have been cheated of the chance to spoil & love him like a grandma should. Endless supplies of pinwheels at his grave are all I can give him now. I will forever miss my grandson...

Please support CHERUBS! They were there for us and so many families in so many way that we are now volunteers helping to advance support of CHERUBS. My daughter is now a Hospital Angel volunteer & I am a Co-Rep for Oregon. We all need to band together & fight to "Save the Cherubs" until we have the answers & someday can keep ANY family has to go through this journey!

Jayden's CDH Story 2/19/10 - 3/14/10
http://www.youtube.com/watch?v=0fKsAsMS_ZA

Previous Stories
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Client Served

Rating: 5

04/29/2011

My grandson was diagnosed with CDH at 17 weeks into my daughter's pregnancy with less than a 50% chance of survival. Although our doctors did an excellent job of preparing us for what was to come we still had a ton of questions that only families who have been down the CDH road could really understand & relate to. We found CHERUBS just before he was born and the support they showed was phenomenal after he was born and especially after he grew his wings.

Although we will always grieve his loss the 'family' we have found through CHERUBS will always be dear to our heart and we are proud to support them in getting awareness out about CDH.

Charles H. Client Served

Rating: 5

06/19/2012

Cherubs was an extremely helpful resource when we discovered that our unborn child might have CDH. The statistics, research, and advice was beyond my expectations. Since our son's birth, they have proven to be a wonderful support group, and a blessing.

George S. General Member of the Public

Rating: 5

06/19/2012

I learned about CDH the hard way; our son was diagnosed prior to his birth. He survived the delivery, unfortunately he did not survive past his first day. CHERUBS has been a wonderful resource to learn, to grieve, to celebrate, and to just talk (or listen) to others who understand what we are dealing with. CHERUBS provides a strong, meaningful support system that is rarely found.

Charlotte H. Client Served

Rating: 5

06/19/2012

Twenty weeks into the pregnancy my 1st grandchild was discovered to have CDH. My son and his (wife) lived in the Bahamas where the doctor told them that they had no technology to handle the birth of such a newborn condition. I was beside myself with worry as they tried to find a way to get the baby's mother, Karla, who is Nicaraguan and not yet married to my son, to the US in time for the baby's birth. CDH babies are notoriously known for early births. Karla was not a US citizen, at the time I had no idea that people from third world countries don't get to just come to our country. I was devestated to hear that it could take many months even in emergency cases. I found a fledgling Cherubs site on line and contacted them to see if they could help in any way. Dawn, who at the time WAS Cherubs, contacted a woman who lived in the Bahama's, a mother who lost her first born son to CDH and was well versed in the challenges associated with living there. This wonderful woman moved heaven and earth to get my future daughter-in-law to the United States. She was very well aquainted with "someone who knew someone" and got my son an immediate personal appointment with the US Ambassador. My son and daughter-in-law arrived in Florida not more than 48 hours before my grandson was born. I will forever be in debt to Cherubs, they not only gave me the light of my life, my grandson who is almost six, but a certain amount of accomplishment to a grieving mother in Abaco, The Bahamas, whose son did not die in vane but instead was the strength behind a mother's determined effort to save the life of another baby.

Janelle.L General Member of the Public

Rating: 5

06/19/2012

CHERUBS IS A WONDERFUL resource I found out at 18 Weeks that my Baby would be a CDH BABY I new nothing about this they told me that I should look to have a abortion but I was not going to instead I prayed an went home did my own research I knew nothing about CHERUBS AT THIS TIME not until my daughter was about a month,old my friend told me about,it once I went online I was amazed at the wonderful support an stories of all the beautiful Children I am still very new to this my daughter is still fighting every minute of het life i'm grateful to GOD that she is now 4 months survived ecmo twice an still fighting i'm greatful to CHERUBS TO KNOW that i'm not alone an there are children that make it out of this rear birth defect it gives u something to hold on to along with your faith in the lord I pray that they continue to get recognition an continue to do the awesome job that they are doing because they are definitely needed out here.....Thank you again CHERUBS JANELLE.L

2

Devon R. General Member of the Public

Rating: 5

06/19/2012

After having a CDH baby, undiagnosed, CHERUBS was a life saver. THe CDH journey, alone is a roller coaster and having a beautiful group to help guide/support you through it has been a blessing. CHERUBS will always be apart of our lives. Camden is now 3 and although his CDH journey is far from over, we want to give back to CHERUBS and hopefully be a support to other families.

1

Vicki S. General Member of the Public

Rating: 5

06/19/2012

Cherubs is the greatest tool for anyone diagnosed with CDH. My daughter found out at a 14 week ultrasound that my granddaughter had CDH. Our local doctors suggested to abort the baby!! We went home and starting researching and found Cherubs and realized there was hope and a great support system. From Cherubs site we found Dr David Kay's and as a result I have a 20 month old granddaughter Hailey Grace. Thanks Cherubs from the bottom of our hearts: ) this is a family I forever want to be a part of.

1

Shankari M. Volunteer

Rating: 5

06/19/2012

It was in 1999 that I first heard of the horrible thing called Congenital Diaphragmatic Hernia. I learnt that my son, my second child, had lcdh. I made it through those tough times due to my faith and the immense help, advice and prayers I got from Cherubs and all the members there. It was definitely the silver lining during the darkest period of our lives.

1

Tracy L. Volunteer

Rating: 5

06/19/2012

I first heard the words "congenital diaphragmatic hernia" at a level II ultrasound when I was 29 weeks pregnant with my first child. We had been sent for the level II because my OB/GYN had seen a "bright spot" on my ultrasound a few weeks earlier and she and the radiologist assumed it was just mucus but she wanted to be sure. From that day on, my life was changed forever. We were given a great prognosis before she was born but afterwards, things were totally different! She was so very, very sick that she (unexpectedly) required the use of life support called ECMO, or extracorporeal membrane oxygenation. We were transferred from Providence, RI to Boston for the use of ECMO. At the time, I felt so alone. Nobody I knew had ever heard of CDH before (neither had I). And nobody, I mean NOBODY I knew had any idea what I was going through. One of my daughter's nurses in Boston had suggested I look into CHERUBS. I had checked them out when I was pregnant but wasn't ready to read stories of non-survivors so I tucked tail and ran the other way. I had no idea at that time that CHERUBS would become my support system, my go-to for all things CDH, and that my CDH peers would become like another family. CHERUBS is not only about statistics, facts, leads to good CDH healthcare or ECMO centers. CHERUBS is about sticking together, supporting each other, and just knowing that everybody "gets it." Not only do they get it, but they're there for you no matter what. I love my CHERUBS family! And three years later, my little miracle may be thriving but I know who to go to for questions or advice. Because they're always there. I'm so passionate about CDH and CHERUBS that I volunteer to help families in my area when they need a shoulder to cry on, someone to vent to, or just to know that someone nearby understands what they're dealing with. Nothing is more scary than having your unborn (or newborn) baby diagnosed with a condition that most people have never heard of. But with CHERUBS, we're there for you. We'll reach out to you to make you feel comfortable and a little more at ease. CHERUBS-The Association of Congenital Diaphragmatic Hernia Research, Awareness, and Support. We're all in this together to raise awareness, garner more research, and support each other. There's no other organization quite like this one and I'm so proud to be a part of it!

1

mommaof3mcj General Member of the Public

Rating: 5

06/19/2012

My son was born with multiple birth defects and one of them was CDH. My son Charlie was 4 months and 10 days old when he passed away from PH in 2008. I HATE CDH AND ALL BIRTH DEFECTS!!

1

Karen78 Volunteer

Rating: 5

06/19/2012

I'm a Beeba (Grandma) to my precious little grandson Ruben Luis who passed away after 5 hours from CDH. I'm so thankful I've joined the amazing people at Cherubs & love helping to support Cherubs & all they stand for. Because of Cherubs I learned all about what CDH is & how it affects so many families. I'd never heard of CDH until 2010 when my daughter at about 20 weeks found that their unborn son would be born with CDH & only have a 50% chance to survive. Those 5 hours were some of the most precious times I will ever have in my life & I'm so glad I was able to have the support from my Cherubs family.

1

bunky572 General Member of the Public

Rating: 5

06/19/2012

I am a former Neo-natal Respiratory Therapist. Congenital Diaphragmatic Hernia babies scared even the most experienced practitioner half to death. So just now imagine a bundle of joy you have waited on for 9 months has arrived to the world and your bundle of joy is your wost nightmare realized. Cherubs helps those parents become educated, provides support, and teaches advocacy to those who have woken up one day to this terrible birth defect. Cherubs has also given what little money and resources they have to recruit the top specialists in the field to better aide in this mission. Cherubs has operated far too long on a shoe string budget, yet despite that they have managed awareness on Nationally televised dramas, documentary shorts, and even have marched on Washington. If it was in my power to give them the resources they needed to obliterate CDH, I would in a heartbeat ( no pun intended).

13

Kalan S. Client Served

Rating: 5

05/04/2012

I was only 10yrs old when I first learned about CDH. My family was super excited about another baby coming into our family. I was hoping for another sister and my brother was hoping for a brother. I knew something was wrong, when the tech ask my dad to take us out of the room. I had no idea what to think. What seemed like a life time, was only a few minutes. My dad came and brought us back. Mom was crying and now the doctor was in there. The first thing they told us, was it was a girl. I was so excited. But I knew there was a long pause and when my parents did that there was something bad coming. All I recall was that the baby would need a lot of work. I told the doctor I would help and do as much as I could. He smiled and just shook his head. During the rest of my mom's pregnancy, I would help her find information on what CDH was. Before my mom was to deliver, I got to tour the NICU. This was not exactly where I was hoping my baby sister would have to come to. But the place was filled with nurses that understood exactly what these special babies needed. My parents told them that they got their information from CHERUBS. The nurses all smiled and said that thet was the best source of information. My mom delivered my sister, Allison Faith, I got to see her hooked to machines, and even though she would fight a good fight, I stood in that NICU, and knew that CDH needed more awareness. From that day since, I decided that I want to be a NICU nurse. I will be a walking talking billboard, for CHERUBS. I plan on even doing a project in school to raise awareness for CDH. CHERUBS helped my family and I plan on paying it forward. Thank you CHERUBS for helping this family.

5

Craig_W Donor

Rating: 5

05/03/2012

I watch as Dawn puts in 50 or 60 hours a week at CHERUBS to help CDH families. She takes phone calls at midnight and answers email constantly even when I ask her not to because she cant stand to not help someone for 5 minutes. The office was in our home until last year so I know exactly how much time and love goes into her work. If you were there in DC during the march to see all the people and be on Capital Hill you would understand. I met families and I saw the difference this charity makes. If you ever stepped into the office you would understand. If someone has a complaint because she missed one email out of thousands or they were asked to donate then they need to get a grip. My wife has done more to help CDH families than anyone else in the world has and she deserves admiration and respect. Stop complaining and donate.

2

Tina C. Client Served

Rating: 5

05/03/2012

Cherubs has been a God send for me. When I had a son born with congenital diaphragmatic hernia 15 years ago, I found all the information, love and support that I needed from cherubs. I have never known any other charity as loving, dedicated, and as supportive as this charity has been for me. I am so grateful to Dawn for founding this charity, she helps thousands of us everyday. Members from all over the world pull together to provide support for one another. Dawn has worked tirelessly to raise awareness of this devastating birth defect in the most professional and ethical way possible.

2

Helene M. Client Served

Rating: 5

05/03/2012

When my daughter's 20 week ultra sound showed my grandaughter had a leftsided CDH, we knew nothing about it or what to expect. Then we found CHERUBS. We learned so much and we were offered care and support from others who had been through it. My grand daughter, Brielle's journey ended 16 days after her birth, but ours continues. We support all the work that CHERUBS has done to create awareness and seek research. We offer support and prayers to other families just starting their journey. Our family, just like so many others, want answers. Without awareness there is no caring, no desire to find a cause. Without a cause there is no cure, no help for these innocent babies. CHERUBS is fighting for research on behalf of all the babies.

2 schester

schester Volunteer

Rating: 5

05/03/2012

I am a volunteer at the cherubs office and have gotten to see first hand all the good they are doing from sending tote bags and packets to being readily available for members via any contact method to answer questions and concerns. I have also had to see the side pf CDH that has givin me a reason to spread awareness...I hate having to send out greiving parent packets and seeing the word non survivor. I thank Cherubs for all the good they do and hope because of the awareness they are raising more research will be done so we all see more survivors!

1

h.forsyth.roach Client Served

Rating: 4

05/03/2012

I am a mother to a CDH angel. In 2011 just a few days after my son Silas' diagnosis in June at 20 wks I attended the annual conference for CDH which just happen to be in Florida this year (2011). My husband & I were panicked, heart broken, & lost. We showed up the last day & yet got welcomed w/open arms. Its funny because I called the number & spoke to Dawn. They had me on the phone w/Dr Shands right then & there after they heard our story. Since that day I have spoken to MANY Cherubs members. I got cards after the conference, emails, prayers & well-wishes. I have called Dawn hysterical at times & only gotten vm & quickly got a text back or a call to talk me through my episode. I have helped them in many ways such as talking to politicians, get a bill board campaign opportunity for the Cherubs & sent her my pics & video's of our sweet Silas to help raise awareness. Cherubs gave me hope when I needed it & answers too.. Thank you Dawn & Cherubs..

2

Jessica45 Client Served

Rating: 5

05/03/2012

When my family went with me to have our ultrasound done on our 4th child, we could tell by the tech's face it was not good. September 2006 we became crushed to learn about CDH. While some thought it was best to just terminate, we seeked out other families that had been in our shoses. We found the CHERUBS online, and found it was full of so much information, that we shared it with our family. It gave us all a better understanding of what we would be facing after delivery. We were better informed by the information that CHERUBS gave us, then some of the information the doctors gave us. Although we fought a great fight, our journey ended 7 hours later after Allison Faith, came into this world. We have not left CHERUBS, we now supply love and support to all families facing the unknown, and to those that will fight and win, and sadly to those that fight and still lose. CHERUBS will be a forever part of my family. Thank you CHERUBS for all that you do!!

1

Tina Volunteer

Rating: 5

05/03/2012

I love this charity so much I volunteer to help others as I was helped. When I first found out of my daughters condition I went to CHERUBS for information whether it was what I wanted to hear or not it was what I needed to hear. The doctors had already given us the grim news of my daughter's condition and what her future could be like as well as worse case scenario. I am a realist. So when I went to CHERUBS I looked for the worse case scenario and found myself crying for all the babies who had grown "wings". I turned off the computer I had seen what I had needed to at the time. Once my daughter made it out of the NICU quicker than what the doctors expected I found myself at home caring for a baby with several lasting effects from CDH. No one in my rural area could give me any "helpful" advice in dealing with my daughter's condition. Let alone understand what I was going through. No one but another CDH parent could help me now. I remembered CHERUBS and the long list of families that are members and volunteers. Someone there had to know how to help me. By talking with the other parents I have helped my daughter have the best life possible with this condition. I go to them first with any concern or triumph. We exchange current and new therapies being used to help our kids. We are all connected and share in the fight against CDH. We gather and discuss improvements made and research being done to find the cause. We know the answer is most likely simple if we could only see it. But we can't and there in lies our dilemma. Do we give up or keep fighting? I choose to "Fight like a CHERUB" I thank God everyday for Dawn Williamson. Without her will to fight I and many other parents would not have the knowledge needed to ease our child's suffering. Thank you Dawn I am proud to wear the ribbon you created so lovingly from the design of Shane's nursery. Keep it up you are doing an awesome job!

Previous Stories

Volunteer

Rating: 5

04/29/2011

Cherubs is desperately trying to help save our babies lives. With little money for research and having the awareness of Congenital Diaphragmatic Hernia next to nothing we struggle every day doing what we can to get information to expectant families. 50% of the babies don't survive which is why I believe this sad diagnosis is unheard of. I believe that any help offered our charity will be taken with thankful hands. We are so grateful for any support offered to our members.

Sincerely,
Tina DeForge

2

Noel W. Volunteer

Rating: 5

05/03/2012

My son Aidan was born on June 6, 2006 with severe LCDH. On June 18, 2006 Aidan earned his angel wings. It took me many years of grief and sorrow until I finally found Cherubs. All I can say is thank God I found them. I have finally, years later begun to heal by helping other families walking the same path I faced alone with my husband. Dawn is not only the head of Cherubs, she is a friend and a support system for so many. I don't know where I would be without the love and support of these amazing people.

4

sekushi24 Volunteer

Rating: 1

05/03/2012

I was a member of Cherubs and will have NOTHING to do with this organization ever again. It is nothing but drama. If you say something that Dawn doesn't like you get censored and warned like a child. She is very selfish and everything revolves around her. Cherubs is constantly asking for money and donations and yet you never see the money leaving the organization or people being helped. When I first found Cherubs I was desperate for answers. I scoured the website and found nothing but dead ends. I tried emailing numerous times and got NOTHING. It wasn't until I started finding people on Facebook that I was able to get answers. Sadly it was accompanied by drama. Dawn doesn't let Cherubs members do any other kind of fundraisers for groups that aren't Cherubs. She has gotten mad at Moms for starting their own non-profits in memory of their deceased loved ones, raising money for March of Dimes, doing fundraisers to help other CDH families and lots of other fundraisers. If money isn't being raised for Cherubs than it isn't "right." They are also good at bullying and being mean to other organizations that don't help them win money. Ask any Team SF member about the Vivint contest. Nothing but hatred and bullying coming from Cherubs members. I will never support this group and encourage others not to support it also. Once you open your eyes and really realize what goes on you would be appalled.

Comments ( 1 )

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CHERUBS 05/03/2012

We just asked for reviews on CHERUBS Facebook fan page so you must have read our request there. Thank you for being a fan. :) I wish you had signed your real name so we would have an idea who you are and what your issues are so we could respond. Or if you had called, emailed or otherwise contacted myself (Dawn) or any other Board Members to help resolve your issues. Unfortunately, posting anonymously about things that are untrue (as our 17 years as a charity and helping others start their own non-profits reflects and support of 4000+ families has shown) is not constructive. I am sorry that you feel unsupported and that your opinion of our charity is negative based on misinformation you received via Facebook. If you would like to talk about your issues, you can call 919-610-0129 or you can reach any of our Board at abarry@cherubs-cdh.org, thally@cherubs-cdh.org, dsilverman@cherubs-cdh.org, khess@cherubs-cdh.org or myself at dawn.williamson@cdhsupport.org We wish you all the best on your CDH journey and are here if we can help in any way. http://www.cdhsupport.org

EDPneedshelp General Member of the Public

Rating: 5

05/03/2012

"cdhdad" is obviously Elizabeth Doyle-Propst. I have seen her say the same things time and again about Cherubs using only phrases that she uses. How sad that a charity CEO has to resort to trolling another charity's reviews and bashing them in an attempt to dissuade CDH families from finding help. If Breath of Hope would stop stalking Cherubs and slandering them and start working together to help everyone, the CDH community could thrive.

Comments ( 1 )

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CHERUBS 05/03/2012

Please do not comment on this. We do not bash others. No matter the behavior of others, we will not stoop to the same level.

2

Anonymous General Member of the Public

Rating: 5

07/06/2011

I am the parent of a child with Congenital Diaphragmatic Hernia. While I have not been a member of CHERUBS, I commend this charity's work, honesty, ethic and perseverance to the cause in the face of adversity.

Review from Guidestar

7

cdhdad General Member of the Public

Rating: 1

04/30/2011

This organization was formed for one person's ego, Dawn Torrence Williamson, who still calls herself a grieving Mother. She attempted to file suit against Duke Medical Center and their doctors for her son's condition. The name of the organization is based upon her own son and the decorations she chose for his nursery - that is public record with "her story" she has posted out on anything and everything she can.

She has banned members because they asked too many questions - or they left and then she "banned" them. Then she tells all she can use their photos because they signed a contract and threatens to sue them. When if she banned them, she negates the contract - therefore she can't use said photos.

Until she is ousted from the CDH community and this organization the "drama" will continue because she is the source of it. She has filed suit against other organizations and defamed them all over the internet, even encouraging others to attack the volunteers of other organizations.

This organization was ignored from 2000 - 2007, only to come back because another organization was forming. It was never about these families or these children. It was about one person and her ego. She continues to bash others and lie. The materials and website have misinformation all over them and too many state there is nothing but doom and gloom when visiting it.

Research is not taking surveys, especially ones that ask if you ever were struck by lightening. There is no official Board of Directors, the doctors she lists want nothing to do with her organization and do not have on their CVs that they are Board Members.

Where did the $30K go to? Office space? Parades? How is that cost effective? Truly this woman needs to be outed for what she is and uneducated, ignorant, lying drama queen who does nothing but play on the Internet all day.

Comments ( 2 )

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CHERUBS 05/01/2011

IP's show this comment was created by a banned member who has spent the past 8 years bringing negativity and dishonesty to a community of critically ill babies and their families. Nothing good in this world is done without evil people trying to bring it down. 16 years of success, continued praises from the medical community and families, successful audits of our charity and the 1000's of families we have helped show our true intentions. We wish her well in her own charity and hope she finds a positive outlet for her grief.

profile

CHERUBS 05/01/2011

IP's show this comment was created by a banned member who has spent the past 8 years bringing negativity and dishonesty to a community of critically ill babies and their families. Nothing good in this world is done without evil people trying to bring it down. 16 years of success, continued praises from the medical community and families, successful audits of our charity and the 1000's of families we have helped show our true intentions. We wish her success with her charity and hope that she finds a positive outlet for her grief.

1

Gregory Zion C. Client Served

Rating: 5

04/30/2011

When I found out that my baby was going to be born with CDH, it seemed that there were no medical professionals that could help me understand what it was. I googled different things and I kept coming to a website and a foundation called Cherubs; they accepted me with love and support, arms wide open. I learned so much and having people who understood how I was feeling made my journey a little bit easier. My son passed away and six years later I still feel so much support and appreciation knowing that Cherubs is helping families and babies with CDH... the research is so important; this foundation is so important!

1

Michelle B. Client Served

Rating: 5

04/30/2011

My daughter, Theresa, was diagnosed with CDH @ 24 weeks gestation. CHERUBS' website provided great insight into the condition, and speaking with volunteers, the coordinator, and finally meeting families like ours really helped while we were dealing with the diagnosis, the treatments, and all of the trials and triumphs that are associated with having a survivor of CDH. They do a lot for families like ours all over the WORLD! It is a great organization, and it truly provides support for families of CHERUBS on earth and in heaven!

1

evelynrosado Client Served

Rating: 5

04/30/2011

Hi my name is Evelyn in a parent of 3 . My youngest was diagnosed with cdh and unfortunately passed on and earned his wings. I found Cherubs during my time of greiving and found comfort in the words of inspiration that they gave me. I suppprt them always in memory Of my son and all that have earned their wings and those that continue to suffer. Cherubs helps new members and the old ones aswell. They educate us with new findings and updated info. I'm extremely proud of all the members and staff. Cherubs rocks!!!!!!!!

1

Kendrah Mom to Oz Client Served

Rating: 5

04/30/2011

CHERUBS is the world's first and largest Congenital Diaphragmatic Hernia (CDH) support group, and research group. It is 100% volunteer driven,100% of the funds go to help families, and promote awareness and research to find a reason why this happens to our children.

I use the term "our", because until March 1, 2010 I had never heard of CDH either. My partner, Chris, and I were expecting our first child, and how happy we were! That day we were going to see our baby at its 19th week ultrasound and find out if we were having a boy or a girl. We found out we were having a boy, and also that he had CDH. We were told at best he had a 50% chance for survival, sent home with a choice, and no information about CDH or anyplace we could find support. We found CHERUBS through a Google search for CDH, and how lucky we were. Not only did we find a wonderful, loving community that embraced us, but CHERUBS is also headquartered in Raleigh, NC, which is about 90 minutes from our house.

We had the pleasure of meeting Dawn in person at The Great Human Race held March 23, 2010 in Durham, NC. CHERUBS was one of many groups that participated, and we walked - we walked for our son who was at 23 weeks, we walked to remember those children who have been taken by CDH, such as Shane, and for those who fight everyday to live with this condition. In April, we received our HOPE tote bag from CHERUBS, filled with items other families have made or purchased to help expecting CDH families like ourselves prepare for their child's arrival and time in the NICU. In June, we also participated in a "Save the Cherubs" photo shoot of local families, as the expecting family. These photos were used to create awareness campaign posters. These events are just a small example of projects organized and executed by CHERUBS.

Through the weeks after our diagnosis, CHERUBS was with us every step of the way, every appointment we would update the community, and voice our fears and our hopes. The whole CHERUBS community was praying for us the day our son, Oz (Hebrew for strength) was born, July 21, 2010. Within 30 minutes of life, the doctors, who monitored us rigorously to prepare for this moment, knew our Oz wasn't going to be in the 50% who survive. My family called CHERUBS. We had 2 CHERUBS moms there by our side within 2 hours, and to meet our son. They brought him a blanket and teddy bear, they held his tiny hand, and stayed until he was no longer with us 10 hours later. The next day, CHERUBS board of directors came together to form the Oz Kidd-Ward memorial scholarship to assist CDH survivors going to college, what an honor for our family. Several members also attended Oz's funeral July 27, 2010. They has been a shoulder and confidant these weeks after Oz's passing. Without the support of the CHERUBS community, I know making it to this point would have been much, much harder.

Every week, every day more babies are brought to our attention who have just been diagnosed, who are fighting, and who have heartbreakingly passed, and CHERUBS is there for each family to provide support.

1

sleat95 Client Served

Rating: 5

04/30/2011

I am currently 34 weeks pregnant with a baby diagnosed at 20 weeks with CDH (Congenital Diaphragmatic Hernia). We were told our baby had little chance of survival (50% or less). He is our first pregnancy/child. We were devastated, lost, felt helpless, and worse, knew no one that had been through the same thing.

We came across Cherubs one day - we joined right away. We were sent a care package in the mail a few weeks later, filled with thoughtful items for our imminent, long journey in the NICU. We have now been able to talk to many families to give us hope and comfort. Now, I am only a few weeks away from delivery and we have confidence that we have the support we need to get through the hardship we have ahead, thanks to Cherubs.

1

Susan P General Member of the Public

Rating: 5

04/29/2011

My grand daughter was born with CDH. My daughter was having a hard time with her baby's condition and the doctors were telling her that her daughter would probably not survive. CHERUBS made a big difference in her life when she found other families in the group that let her know there was hope for her baby to get better. I appreciate everything the support group has done for them.

1

Katie C. Client Served

Rating: 5

04/29/2011

My daughter Sofia was diagnosed with CDH at 18 weeks into my pregnancy. I spent the first several months scared and confused while my daughter had her first surgeries and struggled to live. I had never heard of CDH and didn't know what to expect.

I was contacted on MySpace by the founder of CHERUBS during that time. Dawn had found me by searching for people who had listed CDH on their profiles. She had invited me to join the CHERUBS forums and get to know other CDH families.

I gained access through the CHERUBS web site to detailed information about my daughter's condition and to many families who were going through what I was with CDH and the families who had already overcome the long hospital stay that encouraged me daily. They also asked for prayers for my daughter when she had to have her patch re-attatched after she grew too fast.

The founder and members have always been very positive and are always focused on helping the families out by providing totebags with info and goodies for the new parents, prayer chains for the CDH babies and kids who arent doing well or need surgery, or having baby showers to provide the CDH families with several items. The group is also fighting daily to push research on CDH to find the cause and a possible more suitable fix than a patch that won't stretch when the child grows on next to no budget. They are spreading awareness to the public that a virtually unheard of birth defect called CDH will cause 1/2500 babies will be born with their stomach contents out of place, and of whom only 50% will survive.

My daughter did survive, but the son of a friend I'd met through CHERUBS didn't. The founder of the group, Dawn, drove 3 hours one way to be with the family at the hospital to support them as their son struggled to live. Again, she drove 3 hours one way to attend the funeral for their son several days later.

CHERUBS supports many families around the world and without the support group I would be totally lost. The members have become an extended family to me.

I highly recomend this support group to anyone who is dealing with CDH or just wants to know more about CDH.

CHERUBS

CHERUBS Board Member

Rating: 5

04/29/2011

CHERUBS mission is solely to help babies born with Congenital Diaphragmatic Hernia and their families through research, awareness and support services. For 16 years we have provided free services to make the journey of CDH a little easier for 1000's of families around the world.

CHERUBS is a public 501(c)III non-profit organization run by caring parents, grandparents and survivors with a medical advisory committee composed of the leaders of CDH Research. Our members and volunteers have hearts of gold and work as a team putting the big picture of helping all CDH babies first.

We are run as a charity - with the heart of a charity. All donations go to further our services, all of our services and project go to help these babies. We never trademark or copyright, we promote CDH Awareness rather than our own branding, we have never spent a penny in legal fees, we work with other charities and organizations, we support all families and have helped many other CDH charities get started directly and indirectly. Our focus is the always, always the babies and families.

It is this open-hearted outlook and determination that has made us the world's first, largest and most active CDH charity and that has made us successful in helping families.

Review from Guidestar

1

SanJuanita F. Volunteer

Rating: 5

04/29/2011

Cherubs is a great organization for families affected by CDH. I found out that my daughter was going to be born with left CDH when I was only 21 wks pregnant. I did lots of research and found cherubs on the internet. Their website helped me understand what CDH was and how serious CDH can be for babies. I was scared to death but found lots of families through their organization to help support me and give me hope. Cherubs sent me a tote bag with all kinds of information of CDH before I had Natalie. My husband and I called it the gold bag because it had all the information we needed to understand our daughter's health condition. Natalie had a hard first few month of life in the NICU but it now a happy 16 month old baby. Thank you Cherubs for everything you all have done for our family!!!

1

kmmyers307 Client Served

Rating: 5

02/25/2011

CHERUBS truly has become apart of my family. After learning the diagnosis that my daughter would be born with CDH 10 years ago CHERUBS is the first site I found that had so much information and support to offer. Even after her death I continue to be amazed and inspired by so many families working together to support one another with the president of CHERUBS, Dawn, leading the way. Without her tireless efforts so many families would not receive the support they so desperately need.

Review from Guidestar

1

Gillian M. Client Served

Rating: 5

02/15/2011

When our daughter was diagnosed with CDH we had no idea what it really was and how many other babies and families were affected by it. We received a box with gifts information and encouragement from parents who had been through it before. So much is accomplished by this organization with the few people and few resources at its disposal. Knowing that our baby girl is a cherub and that she is in good company and bringing together so many familes is more than I ever thought would happen when we heard about this condition.

Review from Guidestar

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